Latest news with #DisabilityandEquality
Irish Times
30-07-2025
- Health
- Irish Times
Man (81) calls for family DNA samples for Tuam remains to extend to cousins
An 81-year-old man has called for the range of DNA samples being collected from family members, in order to to identify remains at Tuam Mother and Baby Home , to be extended to cousins. The rules governing the search for relatives of those buried at the site exclude cousins, with the Department of Children, Disability and Equality citing 'scientific challenges' in relation to their inclusion. However, other relatives at a similar level of distance from the deceased, such as grandnieces and grandnephews, are included. Ted Steede says that his cousin, Josephine, was born in the Central Hospital in Galway in 1933, before being moved to Tuam Mother and Baby Home. She died of whooping cough shortly after. Mr Steede's aunt, Agnes, died almost a week after giving birth. Josephine's name was listed among the 796 children who died at the Tuam Mother and Baby Home between 1925 and 1960, compiled by historian Catherine Corless . READ MORE Mr Steede became a member of the Tuam Mother and Baby Home Alliance, which was involved in putting pressure on the Government to investigate and excavate the site of the home. Part of the process, under the Institutional Burials Act 2022, which was drawn up by the Department of Children, involves a collection of DNA samples from 'eligible family members', who believe they are related to someone buried at the site. This aims to assist in the identification of human remains that may be recovered. The Act defines eligible family members as people who have reasonable grounds to believe that they are a child, parent, sibling, half-sibling, grandparent, grandchild, aunt, uncle, niece, nephew, half-niece, half-nephew, grandniece or grandnephew of the person who is buried at a site. 'They listed so many people', but 'first cousins were excluded,' said Mr Steede. He said it had 'annoyed' him that he cannot supply a DNA sample. The excavation of the Tuam site began on July 14th and access to it is now closed off to the public. [ How Tuam, synonymous with a dark side of Irish history, can finally 'do the right thing' Opens in new window ] Dr. Niamh McCullagh, Senior Forensic Consultant to the Office of the Director of Authorised Intervention, Tuam (ODAIT) shows where excavations will commence at the excavation of the site of the former Mother and Baby Institution, Tuam Mr Steede said he visited the site during the official opening of the excavation, when survivors of the Mother and Baby Home and their families were invited. He said he wasin touch with local TDs regarding his situation, however he was 'still getting no satisfaction' on the issue of providing his DNA for identification. Speaking of their forensic work, he said 'it looks like their hands are tied unless the Government revisits the legislation'. When asked if there was a reason for cousins to be excluded as eligible family members, Forensic Science Ireland (FSI), who will perform DNA testing and matching for The Office of the Director of Authorised Intervention, Tuam (ODAIT), who are in charge of the excavation, said: 'The level of participation by FSI regarding DNA sample testing at Tuam Mother and Baby Home is set out in The Institutional Burials Act 2022″. A spokesperson for the Department of Children, Disability and Equality said that scientific advice outlined during the Pre-Legislative Scrutiny process 'highlighted scientific challenges in relation to the inclusion of cousins'. 'In the case of cousins, the variation in shared DNA can be much greater as the common ancestor is the grandparent rather than the parent. 'This makes it notably more difficult to draw conclusions about a familial link as, at the lower levels, first cousins will be indistinguishable from more distant relatives.' Around 800 babies and young children are believed to be buried in former sewer at site of home run by Bon Secours religious order They added that issues arise due to the 'likely low levels of DNA that will be available from the remains, due to degradation and the size of the bones involved, as well as the general level of relatedness in a country like Ireland. 'These factors increase uncertainty in estimating relationships, particularly relationships, such as cousins, where the variability in shared DNA is greater.' Dr David MacHugh, professor of functional genomics at University College Dublin, told The Irish Times that a 'half niece, half nephew, grand niece and grand nephew have the same expected familial genomic relationship as would a first cousin'. A familial genomic relationship is the degree to which individuals are genetically related. It considers how much genetic material (DNA) two people who come from the same family share. He said it was 'a mystery' why cousins were not eligible to provide DNA. He noted that the average familial genomic relationship from cousin to cousin was, on average, 12.5%. The same figure was true in the relationship of a grandaunt/ granduncle to grandniece/ grandnephew and vice versa. [ Tuam families can see 'light at the end of a very long tunnel' Opens in new window ] Daniel MacSweeney, director of ODAIT, said the process of identifying remains will be 'challenging for many reasons'. Similarly, the familial genomic relationship from a half aunt/ half uncle to half niece/ half nephew was also on average, 12.5%. Daniel Loftus, an independent genealogist and founder of Project Infant, which aims to compile the names of those who died in Mother and Baby Homes and other institutions, said the exclusion of cousins as eligible family members for DNA samples is a 'missed opportunity'. 'Leaving it down to half siblings, and I think nieces, nephews, grandnieces, grandnephews, there's only a limited amount of relationships that would be feasible to try to identify a Tuam baby.' He added that 'we should try to pull out all the stops', given that the excavation is 'monumental in that it's the first of its kind of operation'. Daniel Loftus, founder of Project Infant. Photo: Gráinne Sophia Photography He called for a wider net to be cast in the collection of DNA during the historic excavation and identification process. He suggested there be a 'means of allowing people to submit their DNA voluntarily, even if they suspect that they're related to a Tuam baby'. Breeda Murphy, of Tuam Mother and Baby Home Alliance, said if it was not possible to match remains to the DNA of cousins now, 'with technologies being developed it should be available' in the future. She commended Daniel McSweeney, the director of authorised intervention at Tuam, and his team for their work with Tuam Mother and Baby Home Alliance, including 'for their openness and willingness to include us at every opportunity – it's a completely stark difference to how the Government has behaved". She said families should be able to find remains. 'They have not been fully supported, matter of fact they've been ignored for decades.' She said many people had died 'without ever seeking closure' for what happened to them or a relative in one of these institutions. 'We're losing them regularly. We have people in hospital at the moment who might not make it – they are the voice of the survivor." Mr Steede has had a sample of his DNA taken on his own accord, so that 'even if I passed away in the morning, my DNA could be kept and stored, just in case they found my cousin'. The ODAIT's website states that those who fall outside the definition of an 'eligible family member' can get in touch to 'clarify your relationship and your family's relationship to the Tuam institution' and 'to consider the possibility that there is another living family member who may be eligible to give a DNA sample'. It also states they will hear the 'concerns and wishes' of the family member, allow them to 'contribute to the consultation for the memorialisation process', and allow them to be 'kept up to date on work of ODAIT'. It says that 'if appropriate, the individual falling outside the definition of an 'eligible family member' will be directed to the Tuam Identification Programme, or an Administrative Scheme set up to take DNA samples from eligible family members who are elderly or vulnerable, and who therefore require a sample to be taken on a more urgent basis.
Irish Independent
10-07-2025
- Business
- Irish Independent
Chime open new resource centre in Louth
The official opening of Chime's new centre in Park Street was performed by Minister of State at the Department of Children, Disability and Equality, Hildegarde Naughton TD. It is one of 12 locations nationally which are vibrant centres for Deaf and Hard of Hearing people, offering a broad range of assistance, including hearing aid and other tech services, as well as one-to-one and group support. Minister Naughton praised Chime for its caring support of the Deaf and Hard of Hearing community, and for the new services on offer for people in Louth, Meath, Monaghan, and Cavan. The centre offers advice and support, including hearing aid services, assistive technology and support groups. Nationally, Chime also offers the support of its Explore Programme to support with access to further education and employment, and Child and Family services including social workers and a Deaf specialist multi-disciplinary team. 'As a charity, Chime's provision of advice, services, and community support to Deaf and Hard of Hearing people, as well as its championing of equal rights and full inclusion, is remarkable,' said Minister Naughton at the opening. 'This opening is a continuation of my, and the Government's, commitment to improving services for people with disabilities, and ensuring that they can live full lives with the same rights and access to services, education, transport, sport, culture, careers and means to live independently as all other citizens enjoy.' Sharing her personal story at the launch, Catriona McCaughey, a client of Chime, expressed her gratitude to the charity. 'Chime have supported me through some very stressful times,' she said. 'I hope that by sharing my story, I can help raise awareness of the challenges Deaf people face, and highlight the importance of communication, connection, and equal access. ADVERTISEMENT Learn more 'There are still too many barriers in Ireland, but with greater understanding and the right changes, we can build a society where no Deaf person is left behind.' Chime CEO, Mark Byrne, said the centre would provide much needed services to the north-east, where there are over 20,000 people who are Deaf or Hard of Hearing. 'We are delighted to bring this service to Dundalk as part of our network of 12 dedicated centres and over 30 outreach clinics nationwide,' said Mr Byrne. 'Our goal is to bring essential services for Deaf and Hard of Hearing people directly into communities, supporting individuals throughout their hearing care journey. 'It will offer vital support, connection, and accessible resources to the local community. 'Chime is committed to building an inclusive community where Deaf and Hard of Hearing individuals feel valued, supported and empowered.'
Irish Examiner
29-06-2025
- General
- Irish Examiner
Tánaiste backs major tourism plans for historic Camden Fort Meagher in Cork Harbour
The Tánaiste has pledged ongoing Government support for the continued development of a landmark Cork Harbour fort as a key regional tourist attraction. Simon Harris was speaking at the official opening of a new exhibition space at Camden Fort Meagher — widely recognised as one of the finest remaining examples of a classical coastal artillery fort in the world — which has become an award-winning visitor site since it was reclaimed by community volunteers in 2010. This triggered a massive restoration involving extensive collaboration between the community, Cork County Council, and the government. Mr Harris visited the fort in Crosshaven on Friday to officially open the latest phase of restoration: the casemate building with its striking barrel-vaulted roofs and display rooms. He praised the efforts of all involved in the restoration and regeneration work over the years. 'Camden Fort Meagher is a place of national historical significance and a powerful symbol of Ireland's military and maritime heritage,' he said. 'It has been transformed from a derelict stronghold to a fantastic visitor experience. 'I know Cork County Council is working on plans to further develop it, and we in government will continue to partner together with all those involved to further develop the facility.' Fortifications were first built on the site in 1550, with upgrades in the late 1700s and 1800s to support the naval defence of Cork Harbour. Approximately two-thirds of the structure are located underground in a labyrinth of tunnels and chambers. It was handed back to the state in 1938 and remained an Irish military installation until it was transferred to the county council in 1989. The fort was overgrown in 2010 when local community volunteers began reclaiming and restoring it, spearheading its transformation in phases as funding allowed. The fort closed for extensive restoration during 2023 and 2024, focusing on protecting and conserving the casemate building, which houses the fort's main tourist exhibitions. The work was funded through significant investment by Cork County Council, supported by the government through the Historic Structures Fund and Community Monuments Fund. Nicola Radley, Director of Service, Cork County Council; Minister of State at the Department of Children, Disability and Equality, Hildegarde Naughton TD; Minister of State with responsibility for Community Development and Charities and with responsibility for Rural Transport, Jerry Buttimer TD; Tánaiste and Minister for Foreign Affairs and Trade and Minister for Defence, Simon Harris TD; Cllr Ben Dalton O'Sullivan, Deputising for the Mayor of the County of Cork, and Chief Executive of Cork County Council, Moria Murrell, pictured with elected representatives, volunteers, and other guests, as Cork County Council has officially opened new tourist display rooms at Camden Fort Meagher in Crosshaven. Picture: Michael O'Sullivan Last October, the council and Costello Masonry Conservation Ltd won first prize for the specialist work at the Irish Construction Excellence Awards. The casemate block has now been fully commissioned with new exhibitions telling the story of the fort's history, reclamation, and restoration. Mr Harris said its restoration is a testament to what can be achieved through collaboration between local communities and government. Cllr Ben Dalton O'Sullivan, deputising for the county mayor, said the entire fort is of huge historical and architectural significance. 'For almost 400 years the fort played a key role as a strong strategic position for the defence of Ireland, the west coast of England and Wales. The fort's military and more recent history is told through these new displays and I hope they will inform and entertain,' he said. Minister of State Jerry Buttimer described the fort project as a shining example of community spirit and strategic investment working hand in hand. 'The fort not only tells the story of our nation's past, but also embodies the power of local volunteers and the value of community-led regeneration,' he said. Moira Murrell, the council's chief executive, said they have huge ambition for the fort, but state funding is important to ensure projects of scale are delivered. 'The fort has the potential to be a significant economic driver for Crosshaven and the wider harbour area,' she said. 'We look forward to working with both Fáilte Ireland and government departments to identify funding opportunities to allow Camden Fort Meagher and the wider community to reach its full economic and tourism potential." Camden Fort Meagher is open to the public from Wednesday to Sunday, and on Bank Holiday Mondays between April and October. It will open seven days a week during July and August. See for details. Read More Work on Cork taskforce 'ongoing' as Fine Gael appoints first ever spokesperson on city
Irish Independent
26-06-2025
- Health
- Irish Independent
‘She was fearless' – Tributes to Kerry woman and disabilities advocate
Described as a committed and dedicated campaigner, Ms Browne referred to herself as a thalidomide survivor rather than a victim, having sought acknowledgement and statutory redress from the state. In the 1950s, Thalidomide was a drug to treat morning sickness that was withdrawn in 1961 after it was linked to birth defects. During childhood, hospitalisations and surgeries were common for Jacqui. This helped shape her independent outlook in activism from an early age and gave her the impetus to make inclusion and support a priority. She returned to education while working and received her BA from UCD Jacqui was a valued member of the Disabled Persons Organisations Network and played a key role in contributing to many disability policies and initiatives for almost 40 years. Her role includes input in the forthcoming National Disability Strategy that is symbolic of Jacqui's passion for establishing strategic change for disabled people. Minister Foley said there is a deep sense of loss in the Department of Children, Disability and Equality as many staff knew Jacqui personally and worked with her and learned from her over many years. "I would like to extend my sincere sympathy to the Browne family on the passing of their much-treasured Jacqui,' said Minister Foley. "It was a personal privilege to know Jacqui as a proud Kerry woman full of warmth, wit and welcome for everyone. She was full of passion, compassion and energy in abundance. Jacqui was an eloquent and powerful advocate for people with disabilities and shone a vibrant and necessary light on disability issues,' she added. The Minister said during Jacqui's lifetime she achieved a tremendous amount and that some of her work might be unfinished but she remains an impetus and inspiration to 'all of us' to complete it. "We are without doubt the lesser for Jacqui's passing but greater for having had the privilege of knowing her," Minister Foley said. ADVERTISEMENT Learn more In a statement from Independent Living Movement Ireland, Jacqui is described as a person who never sought the limelight, and her involvement in policy work established advancements in disabled people's rights. 'She was a powerful public speaker and much sought after for her ability to connect policy to practice. Whilst Jacqui took on leadership roles, she was a genuine mentor to many Disabled People and saw part of her role to support other Disabled People to take on key roles,' said a spokesperson. 'She was passionate about the collective empowerment of Disabled People and gave her time generously in online workshops to ensure she shared her knowledge and expertise. Those of us who were fortunate enough to know Jacqui as a person knew someone with a passion for life. She had a wicked sense of humour, a passion for conversation. She was a wonderful host to anyone who visited her in Kerry or Dublin, kind and generous.' The Disability Federation of Ireland also paid tribute to Jacqui saying its members are 'deeply saddened' at her passing. 'Jacqui Browne was a fearless disability advocate who devoted over 35 years to promoting equality and justice for people with disabilities,' said a spokesperson. 'We extend our heartfelt condolences to Jacqui's family, friends, and everyone who knew and worked with her. Her commitment to disability equality changed lives and will continue to shape the movement for generations.'
Irish Independent
20-06-2025
- Business
- Irish Independent
Minimum pay for childcare workers to rise by 10pc after deal brokered for funding
Employer and worker representatives have put forward proposals to increase wages for early year educators and school age childcare practitioners. Minister for Children, Disability and Equality, Norma Foley, welcomed the proposals tabled by employer and worker representatives who are members of a Joint Labour Committee. 'The new proposals for a 10pc increase in minimum pay represent a significant step towards ensuring fair pay for educators and practitioners working in the sector,' she said. Ms Foley said she is committed to ensuring the successful implementation of the proposals by providing a ring-fenced allocation of €45m from the government's Core Funding scheme for the sector. She said this amount has been earmarked to support services in meeting the cost of the proposed increases in pay and conditions. Recently, the minister met with the Joint Labour Committee to highlight the availability of the funding. 'I would like to acknowledge the hard work and dedication of the Joint Labour Committee in these negotiations and their vital role in advancing the professionalism and value of those working in the sector,' she said. If the proposals are implemented through updated Employment Regulation Orders for the workers, she said they will bring much-needed improvements in pay for dedicated professionals and enhance the quality of childcare. 'I am hopeful that these proposals will soon come into effect, marking a positive change for our dedicated and skilled staff in the early learning and childcare sector and the services that employ them,' she said. A spokesperson for providers group, Childcare Service Ireland, said it is pleased to have reached an agreement that enables ring-fenced funding for wages to reach early years educators. ADVERTISEMENT 'There are several pressing issues facing providers, and we look forward to working with the minister to address these challenges,' she said. "Our goal is to ensure the continued sustainability of a high-quality early childhood education and care sector.' The spokesperson said any further wage increases must be fully supported by government funding 'as the ongoing fee freeze and the incoming fee caps significantly limit providers' ability to absorb additional costs'. Darragh O'Connor, Siptu head of organising, said the proposals are a big step forward in the union's campaign for recognition, respect and decent pay for early years professionals. "It's widely acknowledged that there's a staffing crisis that is impacting on parents due to a lack of supply, and impacting on quality for children because of the high levels of staff turnover,' he said. 'We need to see continued year on year investment by government for pay so that educators can afford to stay in their profession.'
