Latest news with #Dutchie
Yahoo
08-05-2025
- Health
- Yahoo
A 4-foot, 2-inch giant fights against NIH cuts that affect her
NEW YORK (PIX11) – In the past three months, the Trump administration has cut the National Institutes of Health's 60,000 research grants by about 800, and counting. While that represents just over one percent of all NIH research grants, the financial value of those grants far outweighs their number. Community CloseUp: We're in your neighborhood So far, more than $2.3 billion in research has been discontinued, or nearly 5% of the NIH's yearly research budget of $47 billion. The Trump administration this month also proposed slashing the NIH budget for next year by nearly half. This year, meanwhile, it's worth noting that nearly one-third of discontinued grants were for research being carried out in New York. One New Yorker who's taking an active stance to prevent further cuts points out that the value of the research goes far beyond each project's price tag. Lauren Ruotolo, 48, has been a direct recipient of NIH research, as well as a participant. 'I never thought that I was that different,' Ruotolo said in a recent interview at her apartment, with her Maltipoo, Dutchie, sitting beside her on the sofa. In many ways, Ruotolo isn't particularly different from any other author, content creator, public speaker or influencer. She did, however, talk about one way in which she stands out. 'I have McCune-Albright syndrome,' she said. 'It's a very rare disease.' The disease strongly affects bones as they grow, beginning at birth. It creates cysts on bones, which fill with blood. 'At the age of eight, I actually stopped growing,' said Ruotolo about the effect of her condition. That has not kept her from going anywhere or doing anything. Still, she said that she's fully aware of the challenges that she, and other people with disabilities, face. It's transformed her from being only a bone disease patient to also becoming an advocate for people with disabilities. She said that one issue in particular is front and center in her advocacy. 'America's crown jewel is biomedical research,' she said, as she pointed out that most of that research is funded by the NIH, which is the largest funder of biomedical research in the world. 'The amount of cuts that have been made is a significant issue,' said Ruotolo. 'At the end of the day, it affects patient care.' She speaks from personal experience. 'I go and I get poked and prodded in every single test that you can imagine,' she said, describing a process in which she's been involved for more than 15 years. Ruotolo has been one of a variety of patients in studies and treatment of her rare bone disease at NIH headquarters, in Maryland. She said that while it's extremely thorough and time-consuming, it's time well spent – all of the time. 'I got to meet children with [McCune-Albright Syndrome],' she said, 'and they got to see me, and I got to tell them that it's going to be okay,' among the many benefits she said that participating in NIH research on her condition has given her and others. However, during a recent visit to Capitol Hill to advocate for fellow differently-abled Americans, she said, one major development occurred which showed her how under attack many programs are. '[At] the agency at the NIH that my study is in,' Ruotolo said, '17% of the staff was cut that day.' It was part of an effort to cut up to 20,000 jobs ordered by Kennedy, whose department, HHS, oversees the NIH. In explaining the cuts recently, Kennedy said that the point of them is simple. 'We're eliminating redundancies,' he said. 'We're streamlining the agency.' Most of the grants HHS has cut are related to HIV / AIDS; transgender health; diversity, equity, and inclusion in healthcare; and COVID. Also, while more than two-thirds of the cuts are in states that voted blue in the 2024 election, red states are by no means immune, with the remaining one-third of the reductions. 'It seems like this is just the start,' said Noam Ross, executive director of rOpenSci, a data-science non-profit that has collected and analyzed details from scientists directly affected by the grants' cuts. 'This is going to have huge impacts in the long term,' Ross said about the reductions in research funding. 'These grants are planned out for years, and then can take five years, six years, seven years, to complete this research because it's difficult, complex scientific work.' 'And they can only do that [work],' he continued, 'if the government is going to make a commitment, and keep its promises.' When the Trump administration does not keep the promises that the federal government made to back research, Ross said, the result is something that affects patients like Ruotolo, as well as the rest of Americans who'll need high-quality healthcare at various points in their lives. Ruotolo, who describes herself as being no different than anyone else, is able to be no different – despite her rare disease – because of treatments and innovations made through the NIH. That point is not at all lost on Ruotolo. She said that it's motivated her to increase the number and frequency of her trips to Washington, D.C. to lobby legislators and policymakers, and to try to prevent more cuts. She said that she's also been speaking out on social media, and on other platforms, as well as writing letters and other content, about preserving and restoring NIH research. She's also encouraging as many people as possible to do the same. 'Because I don't want to just sit at home and be upset and be angry and scream at the TV or just scroll on Instagram,' Ruotolo said. 'I can't just sit down, and not do anything.' Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed. For the latest news, weather, sports, and streaming video, head to PIX11.
Yahoo
27-03-2025
- Automotive
- Yahoo
Man Builds 1930s Style Race Car
⚡️ Read the full article on Motorious The 1930s were a special time within the automotive industry as many new facets of automobile design began influencing production. One of the most recognizable movements in the world of cars was the improvement of performance across the various brands in the industry. From Duesnbergs to BMW, these vehicles were getting faster, lighter, and better looking as engineers were given a lot more leeway in creative design. One event which allowed companies from across the globe to showcase their car's performance was racing which is why it became such a popular sport at the time. Watch the latest Motorious Podcast here. This racing enthusiast decided to take things into his own hands, using his passion for speed to build something extraordinary. While the exterior of his prized driving vehicle looks like an abandoned race car, every piece of this vehicle was built for speed. Under the vehicle sits an original 1930 Nash chassis, a popular choice for any racer during the first golden era of automotive racing. The rest of the car was specifically picked out and even designed by the owner, who worked with someone he described as a 'metal artist' to make the body. Even the side-exit exhaust pipes seem to be bespoke pieces of custom design and engineering that make the car one of a kind. Under the hood is a massive straight-eight engine that produces a pretty hefty power and torque figure fit for any vintage racing course. It all started with one chair fixed to the chassis, eventually leading to a birdcage body and, finally, a fully built racing vehicle. Spinning tires is likely no issue for this classic high-performance race car which is why it has earned its own name and reputation for fun. Deemed 'Dutchie' after the driver's national heritage, this particular hand-crafted sports car has the sort of personality and style which has become rare in today's world of cars. All of this makes it one of the coolest custom vehicles in modern car enthusiast culture, and we hope to see a lot more like it in the years to come.
