Latest news with #EHE
CTV News
3 days ago
- Health
- CTV News
‘Live my life out loud': P.E.I. woman battling cancer encourages others to ‘just live'
Prince Edward Islander Michelle Hughes is documenting her cancer journey daily, while encouraging others to live and embrace the joy in everyday. (Source: Facebook / My Journey to Just Live) Michelle Hughes is on a journey to 'just live,' and she's encouraging others to do the same. The 38-year-old Prince Edward Islander from Cornwall is a mother of three young children. She's also battling stage four incurable cancer. Four years ago, and three weeks after giving birth to her third child, Hughes was diagnosed with stage four Epithelioid hemangioendothelioma, or EHE. The Canadian Cancer Society describes EHE as 'a cancerous (malignant) tumour that starts in the blood vessels.' At the time, an oncologist gave her three to five years to live. 'Obviously, I was heartbroken and devastated and envisioned my husband raising our children all by himself. And that oncologist really left a mark in my heart thinking that I need to savour every moment moving forward for these children because they're not going to remember me,' explains Hughes in an interview with CTV Atlantc. 'Thankfully, I came about another oncologist who was a sarcoma cancer specialist at the Princess Margaret (Cancer Centre). And she had said, 'Sure, you could die in those five years. You could die in three years. But I have patients living for decades. And I have hope for you, so I want you to just live.'' The conversation was a turning point for Hughes. 'That's when I realized that tomorrow is not promised to anybody. And I took her slogan, and ran with it, literally. It changed my life. I decided to live my life out loud.' Michelle Hughes Four years ago, Michelle Hughes was diagnosed with stage four Epithelioid hemangioendothelioma, or EHE. (Source: Facebook / My Journey to Just Live) She started by documenting her cancer battle online under the banner My Journey To Just Live. She also wanted to create daily posts with her husband, Ty, and young children as a family keepsake. 'For them to look back and see all the fun memories that we've captured, and all the joy that we've been chasing as a family. But it's evolved into so much more as people actually started to read it and to follow along. And I never envisioned that in a million years, so that's not at all what I set out when I started my journey to just live.' Michelle Hughes Michelle Hughes is pictured with her husband and three children. (Source: Facebook / My Journey to Just Live) Along with challenging herself physically, Hughes' decision to 'just live' included a mind shift change. 'Like, things that you used to just take for granted in life are something that you value every moment of every day,' she says. 'For example, walking my children to the bus stop is my favourite part of my everyday, because when I get to stand there and see my two girls looking out the window back at me and I'm there smiling at them, it's amazing. It's a beautiful feeling because my four-year-old son's hand, who I'm holding, he might not get that opportunity.' Michelle Hughes Michelle Hughes is pictured with her son. (Source: Facebook / My Journey to Just Live) Making an impact People following her journey include over 96,000 on Facebook and 446,000 on Instagram. Her daily posts serve as a diary entry: experiences with the family, daily errands, feelings, life lessons and self reflection. 'It gives a raw, real perspective of what it's like in my journey to just live because, you know, we could meet somebody else who has stage four cancer as well, but we might be walking completely different lives,' says Hughes. 'So, I always just reiterate that this is my journey to just live, and it's been beautiful to connect with cancer survivors and survivors around the world, and just people suffering with chronic health conditions, and hearing from them how me living my life out loud has supported them, and it's been so beautiful to be a part of.' Michelle also has a podcast, and was featured in a documentary called The Journey Home, where she ran, cycled and swam a total of 120 kilometres from the Moncton Hospital to her home in P.E.I. Michelle Hughes Michelle Hughes is pictured in a gym. (Source: Facebook / My Journey to Just Live) Forward thinking Hughes is choosing to 'just live' alongside battling cancer. 'Unfortunately, right now, over the last few weeks my liver pain has come back, and it's out of the norm for me. I'll be going in my CT scan again next week.' Hughes says the cancer she has is 'considered incurable' and there isn't a 'standard protocol' for treating it. In the coming weeks, she'll begin participating in a new clinical trial out of Toronto. 'It is not a pharmaceutically sponsored trial. So, all costs will be on us, but it's not stopping us. We're moving forward because we have hope that it's going to help bring me back to stability as my cancer has been progressing since last year. It's been growing every three months.' Despite these challenges, Hughes isn't slowing down. While preparing for the clinical trial to begin, she is also planning the third annual Just Live Fun Run in Cornwall, P.E.I. on Sunday, Aug. 24. More than 1,500 people have registered, and 500 race kits have been shipped to 12 countries for people who will be participating virtually. 'Last year alone we raised $108,000. All proceeds go to Sarcoma Cancer Foundation of Canada, where they match every dollar.' Michelle Hughes Michelle Hughes is planning the third annual Just Live Fun Run in Cornwall, P.E.I. on Sunday, Aug. 24. (Source: Facebook / My Journey to Just Live) Hughes also has her sights set on her next endurance event in 2026. 'Next year will be my five year 'cancerversary' date. We have something really special we'll be announcing in the coming months. It's going to be so difficult, but I think it's what my body needs and what I mentally need to get through this clinical trial because, obviously, I'm scared, and it's going to be a rough journey. But I need something physically to set my body up for success and to mentally keep me in the game. And I'm really excited to announce this next endurance event that I'm about to do.' As for anyone looking to 'just live' her advice is simple. 'Just live in the moment. It doesn't cost money. You don't have to exert yourself. It's literally just standing in a moment that you don't know you'll have forever and just savouring it.' For more P.E.I. news, visit ourdedicated provincial page.
South Wales Argus
15-07-2025
- General
- South Wales Argus
Proportion of elective home-educated students at Lliswerry
Freedom of Information data obtained by the Argus indicated that the proportion of EHE pupils at Lliswerry is three times the authority average, based on limited figures provided. The council stressed its commitment to supporting all pupils, regardless of their educational arrangements. A spokesman said: "Elective home education figures fluctuate throughout each academic year across all schools. The decision to electively home educate a pupil rests solely with parents. "Newport City Council provides support to EHE families in line with Welsh Government guidance. This includes engagement and activity sessions, assistance in accessing GCSE exams, and the provision of learning resources. Home visits are offered to all EHE learners." 'Good' childcare service praised for supportive environment and happy children School praised for 'nurturing, safe, and inclusive environment' in Estyn report New £70m net-zero carbon school officially opens It should be noted that the figures released to the Argus were not complete and may be updated if further data becomes available. The spokesman added: "The percentage of EHE learners who previously attended Lliswerry High School is just over five percent. While this is slightly above the average for Newport's secondary schools, it still represents a small proportion of the total number of learners. Other schools may also have proportions exceeding the authority average."
South Wales Argus
13-07-2025
- General
- South Wales Argus
Lliswerry High School FOI reveals home education trend
The South Wales Argus can reveal that the school may have more than three times the Newport average of electively home educated (EHE) pupils who were previously on roll at the school. The South Wales Argus obtained these figures through a Freedom of Information request. However, additional data has been withheld by Newport City Council, we can reveal. Lliswerry High School currently has 63 pupils who were previously enrolled but are now being electively home educated. This figure stands in stark contrast to the average across secondary schools in Newport, where the home education rate is just 1.9%. Parents reaction can be read here: While specific enrolment numbers for Lliswerry were not disclosed in the FOI response, if the school has an average-sized student body of around 1,000, its EHE rate would be approximately 6.3%. This is more than three times higher than the city-wide average for comparable schools. Such a dramatic deviation from the norm would ordinarily raise valid concerns about possible systemic issues or parental dissatisfaction. Whether driven by academic concerns, unmet special educational needs, or broader school culture, the number of pupils opting out cannot be dismissed. It may suggest underlying problems within the school environment that may warrant further FOI investigations from the media and internal investigations by education authorities. Despite public interest in these trends, the local authority has declined to release full datasets on related topics such as staff suspensions and exclusions. Officials cited the risk of identifying individuals due to small sample sizes, a decision that may hamper transparency and limit accountability. The council also stated it does not hold national data on EHE rates across Wales, restricting wider comparison. Even so, Lliswerry's anomaly may justify closer scrutiny of its safeguarding, governance, and educational practices, in parental discussions. Whether driven by academic concerns, unmet special educational needs, or broader school culture, the number of pupils opting out suggests underlying problems that warrant further investigation. The FOI response also revealed that Lliswerry High recorded 414 fixed-term exclusions in 2023/24—more than double the Newport secondary school average of 175.6. Permanent exclusion data was partially suppressed, but the school reported five in 2022/23, compared to a city average of 1.88. Newport City Council has been approached for a comment.
Daily Mirror
26-06-2025
- Entertainment
- Daily Mirror
Kim Kardashian arrives for Jeff Bezos wedding in crop top alongside gothic Kris
Jeff Bezos and bride-to-be Lauren Sanchez have arrived in Venice ahead of their hugely anticipated A-lister wedding Kim and Khloe Kardashian and Kris Jenner have arrived ahead of Jeff Bezos wedding this week. The A-list pair have touched down in Venice before their celeb friends tie the knot over the next few days. The two of them have been spotted looking as glamourous as ever. Kris wore a long black gown with ruffle details along with slim black sunglasses. She went for a full glam makeup look and stuck with her iconic bob haircut. Meanwhile, mum-of-four Kim went for a black midi skirt with a matching crop top and covered up with a coordinated hoodie. READ MORE: Natalya Wright looks 'unreal' in a 'gorgeous' black midi that's perfect for wedding season She slicked her brunette hair back into a neat bun and covered up her face with chunky grey sunglasses. Khloe looked gorgeous as she went for an all-leopard print look for the occasion. The TV star wore an eye-catching jumpsuit with black sunglasses and styled her brunette locks into loose waves. Jeff Bezos and Lauren Sanchez have also arrived in Venice, Italy as a helicopter picked them up from his superyacht Koru's support ship, the Albeona. Celebrations will begin on Thursday evening as a casual welcome dinner will be held at the 14th Century Madonna dell'Orto church. The ceremony was expected to take place at the Scuola Grande della Misericordia, an historic 16th-century building in the city centre. However, the No Space for Bezos campaign group claim the couple scrambled to change their plans, after activists threatened to block the canals with inflatable crocodiles to stop their guests from attending. A new plan have now been put in place as it has been moved to Arsenale which is a shipyard complex which will be near-impossible for protestors to get to. Tension is growing on mainland Venice which is where most of the A-listers are reported to be staying. Campaigners Everyone Hates Elon (EHE) and Greenpeace protesters laid out a huge 20x20m banner near to where the Amazon founder will marry his partner. Set out in the city's famous St Mark's Square, the message reads: "IF YOU CAN RENT VENICE FOR YOUR WEDDING YOU CAN PAY MORE TAX." The groups are critical of Mr Bezos, who is the second-richest man in the world, as he is reported to pay a 1.1% true tax rate. A spokesperson from EHE explained: "As governments talk about hard choices and struggle to fund public services, Jeff Bezos can afford to shut down half a city for days on end just to get married. Just weeks ago, he spent millions on an 11-minute space trip. If there was ever a sign billionaires like Bezos should pay wealth taxes, it's this. "While ordinary people struggle to pay the bills, there are more billionaires than ever before. These two things are obviously connected - they're getting richer at our expense. It's not rocket science: tax billionaires like Jeff Bezos now."
Daily Mirror
25-06-2025
- Entertainment
- Daily Mirror
Jeff Bezos and bride Lauren pictured arriving in Italy ahead of lavish wedding
Amazon billionaire Jeff Bezos has touched down in Venice with his bride-to-be Lauren Sanchez as locals gear up for a weekend of disruption amid escalating tension and protests Jeff Bezos and Lauren Sanchez have arrived in Venice, Italy, ahead of their lavish wedding celebrations, which will take place over the next few days. A helicopter picked Bezos and his bride-to-be up from his superyacht Koru's support ship, the Albeona. They were docked just off the coast of Croatia, with the chopped taking 61-year-old Bezos and Lauren Sanchez, 55, to the city of Venice. It landed in the Venice Lido, which is where the annual Venice Film Festival takes place. To kick proceedings off on Thursday night, a casual welcome dinner will be held at the 14th Century Madonna dell'Orto church. Local sources claim security is ultra-tight, turning the stunning city into a "fortress-like operation". The ceremony was expected to take place at the Scuola Grande della Misericordia, an historic 16th-century building in the city centre. But the No Space for Bezos campaign group claim the couple scrambled to change their plans, after activists threatened to block the canals with inflatable crocodiles to stop their guests from attending. Instead, it's been moved to Arsenale, a shipyard complex which will be near-impossible for protestors to get to. Lauren Sanchez and her husband-to-be arrived, with Lauren wearing oversized black sunglasses and a simple black halterneck dress. Meanwhile, their high-profile guests have begun to descend on the city. Donald Trump's daughter Ivanka arrived with her husband Jared Kushner. She wore a green dress and canvas sunhat as she arrived by boat after a day of sightseeing. The couple's three children, Arabella Rose, Joseph Frederick and Theodore James, joined them. Other guests to arrive early include Jeff's adoptive father Miguel Bezos, as well as Orlando Bloom, Katy Perry, Kris Jenner and Kim Kardashian. Just 11 people live on the island and its only dwelling is a modest five-bedroom home, previously the guesthouse to a convent which was part of a long-destroyed monastery complex. But tension is growing on mainland Venice, where most of the A-listers are staying. Campaigners Everyone Hates Elon (EHE) and Greenpeace protesters laid out a huge 20x20m banner near to where the Amazon founder will marry his partner. Set out in the city's famous St Mark's Square, the message reads: "IF YOU CAN RENT VENICE FOR YOUR WEDDING YOU CAN PAY MORE TAX." The groups are critical of Mr Bezos, who is the second-richest man in the world, as he is reported to pay a 1.1% true tax rate. A spokesperson from EHE explained: "As governments talk about hard choices and struggle to fund public services, Jeff Bezos can afford to shut down half a city for days on end just to get married. Just weeks ago, he spent millions on an 11-minute space trip. If there was ever a sign billionaires like Bezos should pay wealth taxes, it's this. "While ordinary people struggle to pay the bills, there are more billionaires than ever before. These two things are obviously connected - they're getting richer at our expense. It's not rocket science: tax billionaires like Jeff Bezos now."
