Latest news with #GoldGeese
Daily Mirror
6 days ago
- Daily Mirror
'Our son, 9, died of brain cancer - now our daughter is fighting to live'
Craig Evison and Victoria Morrison tragically lost their nine-year-old son, Kyle, in 2020 and are now fighting for their two-year-old daughter, Ruby-Rose, who could just have months to live Two heartbroken parents who say they were trolled as their young son died of an incurable brain tumour are facing more heartbreak, with their daughter's heart described as a "ticking time bomb". Craig Evison and Victoria Morrison have heartlessly been trolled once more as their two-year-old daughter Ruby-Rose battles against the odds to survive. The young girl has Megdel Syndrome, which impacts the body's nervous system, and the family were told she may not live past her third birthday. The grieving parents are still coming to terms with the death of their 'happy', 'very smart' and 'loving' son Kyle in 2020, who bravely battled a brain tumour for a year. Before his death a group of family and friends came together to try and raise funds so the nine-year-old could participate in a medical trial in New York, but the Covid-19 pandemic prevented any possible treatment. With around £100,000 raised, the parents now hope to use the money for Kyle's young sister. As well as paying for medical equipment, they hope to use it to make memories with Ruby, such as take her to Disney in Florida. But when they tried to access the money, charity Gold Geese said they could not release the funds because the donations were made for Kyle when he was a cancer patient and can now only be spent on trials for another child in a "similar" situation to him. The parents have since revealed that they have been subject to online abuse following confusion as to why they were requesting Kyle's donation pot. Craig, 39, told MailOnline: "I don't think the general public understanding how disheartening, and financially draining having a terminally ill child is. We are still recovering from Kyle all these years later. If he needed or wanted anything he got it, because we knew the end result but regardless, we wanted the little life he had left to be the best." Victoria added: "Kyle's money is his legacy, as well as doing things with Ruby and our other son that we couldn't do with Kyle because of Covid. It was absolutely heartbreaking because I couldn't even take Kyle to the local park just to do something together. It was the most horrible year of our lives." Kyle's family were even sent awful messages from trolls while the young boy was dying, with one cruel person messaging Victoria to say they couldn't "wait to smoke on his ashes". Another stranger also demanded they tell Kyle about his condition, despite the family wanting to keep the information from him so he wouldn't be scared. "The abuse we received, and the things said about him and Vicky was horrible, it was disgusting," Craig said. A High Court judge will now decide whether the money raised for Kyle can be released to the parents and used for Ruby. Gold Geese argue that the money should only be used for children with cancer, although Craig and Victoria believe Ruby's condition is 'similar' as the disease impacts her nervous system similarly to her late brother. Craig told The Sun: "We couldn't predict what was going to happen, we are humans. Kyle sadly passed. His sister Ruby-Rose is in an extremely rare and a very similar situation. If she makes it another [month], she has outlived the hospital's expectancy. We are just trying to have that chance to make these memories while there's still time and we physically can." The parents say the £100,000 would go towards paying for Ruby's specialist equipment, clothing, food and physiotherapy. They have set up a GoFundMe page - under the name "Ruby-Rose's Making Memories Fund", in a desperate attempt to raise more funds should they not be successful with their case in the High Court. Explaining Ruby's condition, Craig said: "Its like your heart only has so many beats. Hers is already a ticking time bomb. [It impacts] her liver, her kidneys, she's also deaf. She struggles with basic mobility functions already. She can't sit up unaided herself. She can't eat normally, she can't maintain body weight. She struggled to get over the 8kg point, she should be a lot heavier." He added: "I have a saying of its bad enough its happened once with Kyle, but going through it a second time is absolutely dreadful. Parents shouldn't bury their children, your kids should bury you in a sense. Its very hard." Deputy Master Marc Glover will deliver his judgement in the High Court at a later date.
Times
07-07-2025
- Health
- Times
Charity won't give parents of dying girl, 2, £100k in donations
A couple whose nine-year-old son died of cancer and whose daughter is terminally ill claim that a charity refused to hand over £100,000 of donations. Kyle Morrison was diagnosed in 2019 with an incurable brain cancer. Before his death, supporters donated thousands to pay for potential treatment in the US and 'memory making' experiences for the family. However, the Covid pandemic meant that the family could not travel before the boy died a year later. His parents, Craig Evison and Victoria Morrison, went on to have a daughter, Ruby-Rose, now two, but she too is seriously ill with a genetic metabolic disease and is said to be unlikely to live beyond this summer. The couple launched a GoFundMe page — under the name 'Ruby-Rose's Making Memories Fund' — in an attempt to take her to Disney World. But when they tried to claim almost £100,000 left from the money donated for their deceased son, the parents were told it would not be paid because Ruby-Rose was not suffering from cancer. The parents have now launched a High Court claim against Gold Geese, the charity that holds the money, claiming it should fund their daughter's trip to see her beloved Minnie Mouse. However, officials at the charity have told the court that the money cannot be paid out because the donations were made for Kyle when he was a cancer patient. They argue that the funds can be spent only on medical trials or another child in a 'similar' situation to the couple's son. The judge, Marc Glover, was told that Kyle was diagnosed with diffuse intrinsic pontine glioma, a rare form of cancer, when he was eight. A significant amount was raised through Golden Geese, which is based in Essex, and Kyle was scheduled to travel to the US for treatment in late 2020. By the time that pandemic restrictions were eased, the boy was too ill and he died in October of that year. The parents, who also have another son, went on to have their daughter, Ruby-Rose, in 2022, but she was diagnosed with Megdel syndrome, a genetic metabolic condition characterised by high levels of acid in the body, which is usually fatal in early infanthood. Representing themselves in court, the couple have told the judge that their daughter was unlikely to live beyond this summer. They said that the money raised for Kyle should now go to their daughter. Morrison told the court: 'We just want the money to make as many memories as we can.' But William Moffett, a barrister representing the charity, responded that the fund raised for their son could be used only for children with cancer, not other diseases. The lawyer referred to a contract agreed by the parents stating that if the money were not spent on their son's treatment before he died, it would go to a trial or the cause of a child in a 'similar' position. Moffett said that it would have been impossible for donors to the son's cause to have meant for the money to benefit Ruby-Rose, as she had not been born at the time that it was pledged. The barrister reminded the court that 'Gold Geese is a cancer charity, it's on its logo', before adding: 'There are other charities whose objects would include assisting someone with Ruby-Rose's condition, but it wouldn't be proper for Gold Geese to stray outside the illness of child cancer.' The charity's position is that it was behaving as it was 'legally obliged to do within the ambit of their purpose'. However, the couple insisted that the contract allows money to be spent for Ruby-Rose's benefit, as they maintained that their daughter fell into the definition of a 'similar' case, as stated in the agreement. The judge will rule at a later date.
Telegraph
07-07-2025
- Health
- Telegraph
Cancer charity sued over £100k that parents want to use for ill daughter
A charity is being sued over £100,000 raised by the parents of a cancer-stricken nine-year-old boy who want to spend the money on their terminally ill daughter, a court has heard. Craig Evison and Victoria Morrison's son, Kyle Morrison, died in 2020 after being diagnosed with an incurable brain cancer. Before his death, well-wishers had donated thousands to pay for treatment in the US and 'memory-making' experiences for the family, but the Covid-19 pandemic meant Kyle was unable to travel. The couple went on to have daughter Ruby-Rose, now two, but she is seriously ill with a genetic metabolic disease and is unlikely to live beyond summer 2025. They began a GoFundMe page, separate to Kyle's fundraiser which is now the subject of the legal claim, in an attempt to take her to Disney World in Florida to meet Minnie Mouse. But the couple say that when they tried to claim the almost £100,000 left from the money donated for Kyle, they were told it could not be paid because Ruby-Rose does not have cancer. The parents, from Cheshunt, Hertfordshire, are now suing Gold Geese, the charity which holds the money, at the High Court, saying the money should be spent to benefit Ruby-Rose. However, the charity says the donations were made for Kyle when he was a cancer patient and can now only be spent on trials or another child in a 'similar' situation to him. Kyle was diagnosed with diffuse intrinsic pontine glioma (DIPG) in 2019 when he was eight, the court heard. Attempts to raise money for his treatment began with a Facebook campaign through the group One Pound Warriors, which encourages donors to give small but regular sums to charitable causes. However, the group then passed on Kyle's cause to Essex-based Gold Geese, a charity which benefits children with cancer. The money flooded in and Kyle was due to go to the US for treatment in late 2020, but by the time Covid travel restrictions were eased he was too ill. He died in October 2020. Used for children with cancer The couple, who also have another son, then went on to have daughter Ruby-Rose in 2022, but she was diagnosed with Megdel syndrome, an inherited disorder that affects multiple body systems and which is usually fatal in early infanthood. Ms Morrison, Kyle's mother, told Judge Marc Glover that they believed the money raised for Kyle should now go to their daughter. But William Moffett, the barrister acting for the charity, said the money can only be used for children with cancer and not other diseases. He added that the contract which the couple had agreed stated that if the money was not spent on their son's treatment before he died, it would go to another DIPG trial or the cause of a child in a 'similar' position. There was no way donors could have meant for the money to benefit Ruby-Rose, as she was not even born at the time that it was pledged, he said. A judgment will be delivered at a later date.
Scottish Sun
07-07-2025
- Health
- Scottish Sun
Parents who raised £100k for tragic son sue charity after refusing to give them cash for terminal daughter's Disney trip
Charity won't had over money as youngster has different disease CHARITY FIGHT Parents who raised £100k for tragic son sue charity after refusing to give them cash for terminal daughter's Disney trip Click to share on X/Twitter (Opens in new window) Click to share on Facebook (Opens in new window) A MUM and dad who raised £100,000 for their tragic son are suing the charity for withholding the money as they want to use it for their terminally ill daughter. Craig Evison and Victoria Morrison's nine-year-old son Kyle tragically passed away in 2020 from incurable brain cancer. Sign up for Scottish Sun newsletter Sign up 3 Craig Evison and Victoria Morrison are battling a charity for £100k raised for their son Credit: Champion News Service Ltd 3 Kyle tragically passed away aged just nine Credit: Facebook Before his death, well-wishers had donated thousands to pay for treatment in the US and "memory-making" experiences for the family. But due to Covid lockdown restrictions, Kyle's parents were never able to take him travelling before his death. Craig and Victoria instead hoped to use the money for his two-year-old sister Ruby-Rose, who has been diagnosed with genetic metabolic disease and may not live past the summer. They created a Go Fund Me page - under the name "Ruby-Rose's Making Memories Fund" - saying they want to "take our kids travelling across the globe and see and do as many amazing things". This includes taking Ruby-Rose to Disney in Florida to meet her beloved Minnie Mouse. But when they tried to claim almost £100,000 left from the appeal money for Kyle, charity Gold Geese said they could not access the cash because Ruby-Rose has a different disease. Craig and Victoria are now suing the charity at the High Court in London - saying it should be handed over to benefit their daughter. But the organisation says it cannot pay out because the donations were made for Kyle when he was a cancer patient and can now only be spent on trials for another child in a "similar" situation to him. The court was told Kyle was diagnosed with a rare cancer - diffuse intrinsic pontine glioma (DPIG) - in 2019 when aged eight. Attempts to raise money for his treatment and make the most of his time left originally started with a Facebook group before Gold Geese took over the campaign. The money flooded in and and Kyle was due to go to the US for treatment in late 2020, but Covid prevented his travel and by the time restrictions were eased, he was too ill. Tragically, the brave youngster died in October that year. Craig and Victoria went on to have Ruby-Rose in 2022 but were heartbroken to discover she had a condition known as Megdel syndrome. The disease is characterised by high levels of acid in the body, which is usually fatal in early childhood. Representing themselves, the couple told the judge their daughter is unlikely to live beyond this summer but is continuing to fight her illness. They said: "We just want the money to make as many memories as we can." But barrister William Moffett, representing the charity, said the money could only be used for the purposes it was donated - children with cancer, and not other diseases He said the couple agreed to a contract that stated that if the money was not spent on Kyle's treatment, it would go to another DIPG trial or the cause of a child in a "similar" position. The lawyer also argued there was no way donors intended the money for Ruby-Rose as she was not born at the time. He continued: "Gold Geese is a cancer charity, it's on its logo. "There are other charities whose objects would include assisting someone with Ruby-Rose's condition, but it wouldn't be proper for Gold Geese to stray outside the illness of child cancer. "The charity is trying to do what they're legally obliged to do within the ambit of their purpose. "If the court were to tell us otherwise, they would have authority, but we don't think it's the right answer here. "It's just an unfortunate fact that Mr Evison and Mrs Morrison have a child who is ill with a different illness." But the couple insisted the contract allows money to be spent for Ruby-Rose's benefit, since they believe she falls into the definition of a "similar" case. They also told the court they have continued to highlight childhood cancer and if any of the donors specifically stated they wanted their money to go on research, the couple would not object. Craig said: "We couldn't predict what was going to happen, we are humans. Kyle sadly passed. His sister Ruby-Rose is in an extremely rare and a very similar situation. "If she makes it another [month], she has outlived the hospital's expectancy. We are just trying to have that chance to make these memories while there's still time and we physically can." Deputy Master Marc Glover described the couple as a "courageous family" who had suffered devastatingly bad luck. He will deliver his judgment at a later date.
The Sun
07-07-2025
- Health
- The Sun
Parents who raised £100k for tragic son sue charity after refusing to give them cash for terminal daughter's Disney trip
A MUM and dad who raised £100,000 for their tragic son are suing the charity for withholding the money as they want to use it for their terminally ill daughter. Craig Evison and Victoria Morrison's nine-year-old son Kyle tragically passed away in 2020 from incurable brain cancer. 3 3 Before his death, well-wishers had donated thousands to pay for treatment in the US and "memory-making" experiences for the family. But due to Covid lockdown restrictions, Kyle's parents were never able to take him travelling before his death. Craig and Victoria instead hoped to use the money for his two-year-old sister Ruby-Rose, who has been diagnosed with genetic metabolic disease and may not live past the summer. They created a Go Fund Me page - under the name "Ruby-Rose's Making Memories Fund" - saying they want to "take our kids travelling across the globe and see and do as many amazing things". This includes taking Ruby-Rose to Disney in Florida to meet her beloved Minnie Mouse. But when they tried to claim almost £100,000 left from the appeal money for Kyle, charity Gold Geese said they could not access the cash because Ruby-Rose has a different disease. Craig and Victoria are now suing the charity at the High Court in London - saying it should be handed over to benefit their daughter. But the organisation says it cannot pay out because the donations were made for Kyle when he was a cancer patient and can now only be spent on trials for another child in a "similar" situation to him. The court was told Kyle was diagnosed with a rare cancer - diffuse intrinsic pontine glioma (DPIG) - in 2019 when aged eight. Attempts to raise money for his treatment and make the most of his time left originally started with a Facebook group before Gold Geese took over the campaign. The money flooded in and and Kyle was due to go to the US for treatment in late 2020, but Covid prevented his travel and by the time restrictions were eased, he was too ill. Tragically, the brave youngster died in October that year. Craig and Victoria went on to have Ruby-Rose in 2022 but were heartbroken to discover she had a condition known as Megdel syndrome. The disease is characterised by high levels of acid in the body, which is usually fatal in early childhood. Representing themselves, the couple told the judge their daughter is unlikely to live beyond this summer but is continuing to fight her illness. They said: "We just want the money to make as many memories as we can." But barrister William Moffett, representing the charity, said the money could only be used for the purposes it was donated - children with cancer, and not other diseases He said the couple agreed to a contract that stated that if the money was not spent on Kyle's treatment, it would go to another DIPG trial or the cause of a child in a "similar" position. The lawyer also argued there was no way donors intended the money for Ruby-Rose as she was not born at the time. He continued: "Gold Geese is a cancer charity, it's on its logo. "There are other charities whose objects would include assisting someone with Ruby-Rose's condition, but it wouldn't be proper for Gold Geese to stray outside the illness of child cancer. "The charity is trying to do what they're legally obliged to do within the ambit of their purpose. "If the court were to tell us otherwise, they would have authority, but we don't think it's the right answer here. "It's just an unfortunate fact that Mr Evison and Mrs Morrison have a child who is ill with a different illness." But the couple insisted the contract allows money to be spent for Ruby-Rose's benefit, since they believe she falls into the definition of a "similar" case. They also told the court they have continued to highlight childhood cancer and if any of the donors specifically stated they wanted their money to go on research, the couple would not object. Craig said: "We couldn't predict what was going to happen, we are humans. Kyle sadly passed. His sister Ruby-Rose is in an extremely rare and a very similar situation. "If she makes it another [month], she has outlived the hospital's expectancy. We are just trying to have that chance to make these memories while there's still time and we physically can." Deputy Master Marc Glover described the couple as a "courageous family" who had suffered devastatingly bad luck. He will deliver his judgment at a later date.
