Latest news with #Jayme
Yahoo
15-05-2025
- Health
- Yahoo
Angelman Syndrome Clinic in Colorado provides hope to families
(COLORADO SPRINGS) — When a child is born, so is a whole host of hopes and dreams. 'When you hold your child for the first time, the first time you hear their cries… you play out their lives completely,' said Emanuel Prodan, a father of three, 'and you hope it's the most incredible version of a life that they could possibly want.' That's what happened when his son Jonah came into the world on Dec. 18, 2020. 'And you think about all the fun times you're going to have with them growing up,' said Emanuel. 'And then kind of just as quickly, that goes away.' Early on, Emanuel and his wife Jayme could tell their son was different. 'I started noticing around five months that he wasn't meeting milestones,' said Jayme. 'He wasn't rolling; he wasn't even trying to sit up. There was so, so much information on the internet… and delays do exist with no underlying medical condition, and that's what I was just really hoping for.' Initially, doctors downplayed their concerns, but Jayme said she knew something wasn't right. 'I had to fight for a referral, and I had to fight for a neuro consult.' 'As time went on, we were starting to notice more and more things,' said Emanuel. For more than a year, they pushed their doctors. 'My gut knew something more was at play,' Jayme explained. 'Finally, they did a neurological test and then they did some genetic testing, and then that's when they realized, okay, he's got Angelman syndrome,' said Emanuel. Finally, the Prodans had an answer, but so many more questions. 'Angelman syndrome is a genetic development disability,' said Dr. Wendy Pierce, Pediatric Rehabilitation and Medicine Specialist at Children's Hospital Colorado. 'It's an inherited disability that affects all aspects of speech, the ability to perform activities of daily living, and mobility.' 'When I explain it to people, I say it affects mobility in every way, and when you think about mobility in every way, you don't really think about coordinating chewing, coordinating your tongue to speak, coordinating swallowing,' said Emanuel. 'It's kind of like just a complete lack of coordination in your body,' said Jayme. 'I think in a lot of instances Jonah can understand what I'm asking of him, but it's like he's trapped in a body that cannot coordinate all of the things to do, even the simplest of tasks.' According to Dr. Pierce, symptoms of Angelman Syndrome range in severity. 'There is a big spectrum,' she said. 'There are folks who have Angelman who actually do not have the ability to walk, and there are kids who have the ability to walk; most kids have speech challenges.' When Jonah was diagnosed, Emanuel, a pilot in the U.S. Air Force, was stationed in Mississippi. 'There just wasn't specific care for Angelman there, and so we just kind of sprang into action. We got that first bit of shocking news and went, 'Okay, how do we help him? I think we need to move,'' said Emanuel. Luckily, they landed in the Centennial State, home of the Chromosome 15 and Related Disorders Clinic at Children's Colorado, a designated Center of Excellence and one of only three clinics in the world to earn this distinction for its level of care. 'We have a multidisciplinary clinic specifically for this diagnosis,' said Dr. Pierce. 'So all of the providers that are in that clinic are experts and see Angelman.' 'They knew Jonah's syndrome before we came in,' said Jayme. 'They had treated children with Angelman Syndrome.' 'It's been spectacular. I mean, every time we've met with them, especially the first time, was just unbelievable,' said Emanuel. 'Getting to meet eight or nine different doctors who were just there to talk about Jonah.' Providers include neurologists, physical, occupational, and speech-language therapists as well as genetic specialists, dieticians, and more. 'It serves as a one-stop shop for families so that way, families can just take one day off of work and see multiple different specialties together,' said Dr. Pierce. 'And especially for families with complex needs, it's nice when you know all your providers are together and they are talking with one another so that way they don't feel like they have to be the go-between for their different specialists.' 'We felt such a sense of relief. It went from this nameless, faceless thing… and then boom, we've got this whole care team,' said Emanuel. 'It's changed our entire life, and I cannot, I cannot say that enough,' said Jayme. 'It's been fun watching him progress as he's been learning to improve upon his mobility,' said Dr. Pierce. 'He's still very young, and he still has a lot of potential.' A potential that Jonah works hard every day to reach. Jayme said he has multiple appointments every week with physical, speech, and occupational therapists. 'He's just an amazing little boy,' said Jayme. 'He challenges himself all the time to just go harder, go faster.' And he does it all usually with a smile on his face, a classic characteristic of those with Angelman Syndrome. 'He smiles a lot,' said Jayme. 'I think it's like the instinctive, like 'Oh, this is awkward, I'm just going to laugh through it,' kind of thing because very often we will find him laughing at situations that are not funny at all.' The Prodans will be the first to admit that life isn't always heavenly, but they have their own little angel helping them see the light. 'I remember really struggling; I just want him to live a full life,' said Emanuel. 'And I remember thinking to myself, like, 'What do I mean by that? Does going to college mean having a full life?' Plenty of people don't go to college, and they live full lives. Does being married make you have that? No. Does having kids? No.' What initially seemed like a devastating diagnosis has opened the Prodans' eyes to a whole new world. 'I want people to know that there is hope beyond the diagnosis,' said Jayme. 'It doesn't have to be the worst possible thing.' 'If I told myself four years ago what my day would look like, I think it would be kind of crushing to four years ago me,' said Emanuel. 'But today, it's normal. We're growing with him.' And when times do get tough, they lean on their faith and ask, 'What would Jonah do?' 'People do hard things every single day, and Jonah does hard things every single day,' said Jayme. 'And I can meet him there and do those hard things with him.' 'If he overcomes it every single day, who are we to sort of lie down and go 'I can't take this anymore? I have to give up,' He's so resilient,' said Emanuel. Jonah will never fly planes like his father or teach at the Air Force Academy, but he teaches those around him important lessons every day. 'Everything that he produces is from a place of compassion, from a place of love,' said Emanuel. 'He has never met somebody he doesn't care for. He loves everybody. And that gives me the perspective of, if he can be that way, then innately we all have that capability.' Emanuel said Jonah's love of life and contributions to society have also caused him to completely reevaluate what he used to consider important. 'I think I've always sort of come from a perspective of, we need to be productive and be at work… and Jonah kind of shattered that for me in the sense that I don't see him as a person of value based on what he can produce or what he can't produce,' said Emanuel. 'He's valuable. He contributes. It just looks different than what we're used to being told contribution and value look like in society. He's a joy to be around.' The Chromosome 15 and Related Disorders Clinic provides care for people of all ages from before birth through adulthood. According to Children's Hospital Colorado, 1 in 12,000 to 20,000 people have Angelman Syndrome, and approximately 500 to 1000 cases occur annually. Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
Black America Web
25-04-2025
- Entertainment
- Black America Web
Jayme Lawson Is Having A Major Moment Right Now – These Pics Show Why
Black America Web Featured Video CLOSE Source: Anadolu / Getty Jayme Lawson is having a major moment right now. From her standout role as 'Pearline' in the new hit film Sinners to her steady rise across Hollywood's biggest stages, the bombshell beauty is proving she's got range—on screen and the red carpet. Whether posing at high-profile events or serving face at fashion week, Jayme's style feels intentional and fly, yet effortless. And her radiant, melaninated skin adds to her overall look. The DMV native is a natural baddie – with a bawdy and confidence that make her looks hit even harder. RELATED: Red Carpet Rundown: The Black And Beautiful Cast Of 'Sinners' Serve Radiance At The NYC Premiere Jayme Lawson is having a major moment right now Jayme has a soft, petite frame, but make no mistake—her presence is powerful. There's a quiet way about her that commands attention, even in the most subtle silhouettes. And while we're swooning over her fashion choices, we're also obsessed with her skin. Sis glows like she drinks eight glasses of water and minds her business daily. If that is the secret, we need the details now. Jayme's red carpet presence combines old Hollywood glam and contemporary edge. She's not afraid to play with structure, texture, volume, layering, or color. Whether she's dripping in fringe and sequins at the Essence Black Women in Hollywood event or wrapped in soft velvet and minimalist glam at the Sinners premiere, she shows up like that girl. You can tell she loves a bold silhouette – and, at times, a monochromatic moment. Working with celebrity stylists like Jason Rembert, Jayme knows how to lean into statement pieces that honor her deep chocolate skin and natural aura. A review of Jayme's high-profile appearances shows that she gravitates toward jewel tones, metallics, soft blushes, and rich, earthy hues. She makes the most of luxe fabrics, such as tweed, tulle, and silk. Her aesthetic is graceful, feminine, flirty, and fearless. Hair-wise, Jayme stays versatile. But she's a brown girl – are we really surprised? We've seen her slay everything from a curly updo to sleek buns, a high pony, and a polished bob. Her beauty looks lean soft and glowy. Think neutral glam, soft lashes, and glossy lips. Gallery: 7 Pics That Show Jayme Lawson Is Having A Major Moment Right Now Jayme is not just next up in Hollywood. She is a fashion force and one to watch. Scroll to see our gallery of top looks. Jayme Lawson Is Having A Major Moment Right Now – These Pics Show Why was originally published on Source:Getty Jayme gave major main character energy at the Sinners premiere. The 'Pearline' actress kept it sultry and sleek in a blush gown with a plunging neckline and subtle ruching. Her hair was styled into a slick bun, paired with a delicate diamond necklace. Understated, elegant, and effortlessly grown woman – 10 out of 10. No notes! Source:Getty Jayme sparkled head to toe in a deep purple sequin skirt suit with fringe detailing. The cropped blazer showed off her tiny waist and her fitted skirt added '70s flair. Her soft, wavy honey-blonde bob and bold eye liner brought extra edge. It was giving disco glam meets Black excellence. Source:Getty Jayme glowed in a tiered olive green two-piece set with puff sleeves and a flowy skirt. Isn't set perfect for the warm months ahead? Her curly ponytail and radiant skin made the earthy look pop. Effortless, breezy, and red carpet-ready. Source:Getty Wearing a pink tweed mini dress and matching jacket draped over her shoulders, Jayme gave us modern Chanel muse. Her swooped bang, top knot, mini quilted bag, and black modern Mary Jane heels tied the whole look together. Cute, classy, and camera-ready. Source:Getty Jayme turned the sidewalk into a runway in this off-the-shoulder coral dress with dramatic volume and a cinched waist. Her dress ankle-length was perfect and its peach color made her melanin glow. Jayme's high bun with a black bow, jeweled choker, and strappy heels made the look street-chic perfection. Source:Getty Jayme rocked a rich purple monochrome moment with a fitted textured top and a draped asymmetrical skirt at another a Paley Center premiere for Genius MLK/X . Her honey-blonde ponytail and fresh glam kept the look youthful and chic. Her pointed pumps added a grown woman edge. Source:Getty Jayme Lawson gave regal realness in a sleek black gown paired with a silver-beaded and scalloped cape that stole the show at the Genius MLK/X . Get into the cape – and its train, honey! Her curly updo and glowing makeup added to the queen energy. She looked like she came to slay and serve couture drama.
Yahoo
27-01-2025
- Yahoo
Teen amputee and first aider's bond after crash
A teenager who lost his leg in a motorbike crash and the passerby who gave him first aid say they are now friends for life. Ted, 17, was involved in a crash when he was driving home from his pub job along the A27 near Selmeston, East Sussex. Sainsbury's worker Jayme Guthrie, 21, who was one of the first people on the scene on 15 December, spoke to the ambulance on the phone and rang Ted's mum Sasha. Ted, who lives near Hailsham, spent nearly a month in the Royal Sussex County Hospital in Brighton and had to have his left leg amputated up to the knee before returning home on 10 January. Ted, his family, and Jayme, from Eastbourne, said they now had a bond for life after the crash. "I remember the crash, I was thrown across the road and I just remember lots of pain in my leg. You start to feel a bit sick and want to pass out," Ted told BBC Radio Sussex. "I had Jayme talking to me and I was focusing on my parents and told her their numbers so she could call them. Everything almost slowed down when the crash happened." Ted's mother Sasha, 50, was at home when she received the call from Jayme. She said: "Jayme said she was with my son who had been in an accident. She answered all the questions I wanted to ask before I got the chance to ask which really helped. She said he was awake and okay. "I took comfort in the fact he was awake." Jayme said: "I saw the bike scatter across the road, I pulled my car onto the bank and ran over without a second thought. My body moved and my brain followed it. "When he said he was 17, my heart just dropped because I thought 'you're just a kid'. I kept talking to him and called his mum for him. "He looked up at me when the paramedics arrived and gave me a little wave and smile. The one thing that stuck with me was his absolute bravery and how focused he was able to be." Jayme is running Worthing Half Marathon on 4 May for a charity of Ted's choice. He said he wants to support a charity that helps provide people with prosthetic limbs in developing countries. "On New Year's Eve I visited Ted and his family in the intensive care unit, I said to them at the hospital that I feel tethered to Ted in some way," Jayme added. "There will always be a relationship there with him and his family. It just goes to show in moments of need, people you don't know can band together." Asked whether the incident has made them friends for life, Jayme said: "I say this to Ted all the time, he's stuck with me now!" Ted said he wanted to go skydiving and take a motorbike trip with his father in the future. He added: "It's not the end of the world if something like this happens, don't let fear control you. I'm still here, I'm still with my family." Follow BBC Sussex on Facebook, on X, and on Instagram. Send your story ideas to southeasttoday@ or WhatsApp us on 08081 002250. Teenager walks with prosthetic legs after sepsis
BBC News
27-01-2025
- BBC News
Hailsham: Teen amputee and first aider's bond after crash
A teenager who lost his leg in a motorbike crash and the passerby who gave him first aid say they are now friends for 17, was involved in a crash when he was driving home from his pub job along the A27 near Selmeston, East worker Jayme Guthrie, 21, who was one of the first people on the scene on 15 December, spoke to the ambulance on the phone and rang Ted's mum who lives near Hailsham, spent nearly a month in the Royal Sussex County Hospital in Brighton and had to have his left leg amputated up to the knee before returning home on 10 January. Ted, his family, and Jayme, from Eastbourne, said they now had a bond for life after the crash. "I remember the crash, I was thrown across the road and I just remember lots of pain in my leg. You start to feel a bit sick and want to pass out," Ted told BBC Radio Sussex."I had Jayme talking to me and I was focusing on my parents and told her their numbers so she could call them. Everything almost slowed down when the crash happened."Ted's mother Sasha, 50, was at home when she received the call from Jayme. She said: "Jayme said she was with my son who had been in an accident. She answered all the questions I wanted to ask before I got the chance to ask which really helped. She said he was awake and okay."I took comfort in the fact he was awake." Jayme said: "I saw the bike scatter across the road, I pulled my car onto the bank and ran over without a second thought. My body moved and my brain followed it."When he said he was 17, my heart just dropped because I thought 'you're just a kid'. I kept talking to him and called his mum for him."He looked up at me when the paramedics arrived and gave me a little wave and smile. The one thing that stuck with me was his absolute bravery and how focused he was able to be."Jayme is running Worthing Half Marathon on 4 May for a charity of Ted's choice. He said he wants to support a charity that helps provide people with prosthetic limbs in developing countries."On New Year's Eve I visited Ted and his family in the intensive care unit, I said to them at the hospital that I feel tethered to Ted in some way," Jayme added."There will always be a relationship there with him and his family. It just goes to show in moments of need, people you don't know can band together." Asked whether the incident has made them friends for life, Jayme said: "I say this to Ted all the time, he's stuck with me now!"Ted said he wanted to go skydiving and take a motorbike trip with his father in the added: "It's not the end of the world if something like this happens, don't let fear control you. I'm still here, I'm still with my family."
