2 days ago
Research Launched Into Impacts Of Endometriosis In NZ
Endometriosis New Zealand and the University of Canterbury have launched a major new research project aimed at building a comprehensive picture of how endometriosis impacts the lives of those living with the condition in New Zealand.
Titled Barriers and Facilitators of Endometriosis Care in Aotearoa New Zealand, the research will involve a series of short surveys running from June 2025 to March 2026, exploring topics such as diagnosis, treatment, work, education, finances, and patient experiences in the healthcare system.
"This is a landmark study for the 120,000 New Zealanders living with endometriosis," says Endometriosis New Zealand Chief Executive Tanya Cooke. "For too long, their experiences have been under-recognised in health and policy settings."
"This research will provide the information we need to push for meaningful change and inform the development of a future National Endometriosis Action Plan."
The project is open to anyone over the age of 18 in New Zealand with suspected or confirmed endometriosis. Participants can choose to complete one, some, or all ten monthly surveys, each taking around 10 minutes. All data will be confidential and managed under strict University of Canterbury ethical guidelines.
Lead researcher and PhD candidate Katherine Ellis said the research would fill significant gaps in our understanding.
"We know endometriosis has wide-ranging impacts on people's lives, from chronic pain and fertility issues to lost income and disrupted education. Currently we have to rely mainly on international data to try to understand these issues," says Ellis. "This research will provide us with New Zealand-specific data to inform health system responses, influence government policy and help target support."
"This project is about turning the lived experiences of those with endometriosis into insights that can contribute towards better policymaking in future."
The first survey, which collects demographic information and connects with the subsequent surveys, is now open. Participants who complete each month's survey will also go into the draw to win a $100 gift box, generously donated by Miller Road Fragrances.
"This is your chance to help change the future of endometriosis care in Aotearoa," says Cooke. "We are asking everyone who is eligible to share their story."
You can sign up and undertake the initial demographic survey, for more information see link below.
