Latest news with #LRBADeficiency
Yahoo
07-08-2025
- Yahoo
‘Heartbroken, disgusted and sad': Family speaks out after Sebastian's Playground in Solon vandalized again
SOLON (WJW) — What was meant to be a joyful space for families has recently become the target of repeated vandalism in Solon. 'I was heartbroken, disgusted and sad,' said Kelly Baylog of Solon, describing how she felt after discovering the damage at Sebastian's Playground in Solon Community Park. Neighbor performs CPR, saves local family's choking dog The playground, which opened this past spring, was built in memory of Kelly's son, Sebastian Botirius, who passed away in 2022 at just 4 years old. Sebastian had battled a rare genetic disorder known as LRBA Deficiency, and his final wish was a simple one — to go to a playground. 'Not just because the playground is built in honor of Sebastian,' Kelly continued, 'but because my husband and I, along with the city, have worked so hard to build a playground for families to play on.' City officials have confirmed multiple acts of vandalism in recent weeks, including graffiti on the musical instruments and damage to playground equipment and fencing. 'We get a lot of feedback from families saying they love that it's fenced in,' Kelly said. 'But right now, there are no gates because of the vandalism.' The Solon Police Department says they are aware of the vandalism and have had the park listed as an area of special attention for patrol since construction began. They are now urging residents and park visitors to stay vigilant and to report any suspicious activity or damage they see. 'Grateful': Local mother saved during cardiac arrest, had baby the next day 'It's used by so many people in the community and surrounding communities,' Kelly added. 'I'd like to see it continue to be enjoyed by kids of all ages.' Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed. Solve the daily Crossword
Yahoo
29-04-2025
- Sport
- Yahoo
Sebastian's Playground opens in Solon, a tribute to boy who died from rare disease
SOLON, Ohio (WJW) – Dozens of families flocked to a brand new playground at Solon Community Park. It's a lasting tribute to a little boy who died of a rare disease three years ago. Sebastian's Playground is specially designed to accommodate children of all abilities, no matter what challenge they might face. 'I love that, I truly do. All kids should feel equal. No matter if you're totally 100% healthy or you're a healthy needs kids, you know, all kids just want to have fun,' said India Howard. Cavs win by 55 points to sweep Heat, heading to semifinals The playground is inspired by four-year-old Sebastian Botirius, who died in 2022 after a courageous battle with a rare genetic disorder, LRBA Deficiency. Sebastian loved to go to the park and his final wish was to visit a playground. It prompted his parents to launch a campaign to build a play area that everyone could enjoy. 'I don't want people to remember Sebastian as a four-year-old that died. I want them to remember him as a four-year-old that lived and he brought lots and lots of joy both during his life and after,' Sebastian's father, Kip Botirius, said. The family's dream of creating Sebastian's Playground became a reality because of the generosity of Northeast Ohioans who were touched by his story and donated more than $150,000 toward the project. Sebastian's parents and his brother Jackson cut the ribbon for the grand opening of the playground on Saturday. On Monday night, families enjoying the unique play area gave it the Solon 'seal of approval.' 'It's amazing. I mean, for someone who lived such a short life to inspire so many beautiful positive things,' said Sara Balkanyi. 'It's so heartfelt. It makes you feel good that they wanted something for other kids,' grandparent Teena Barnes said. Cedar Point opens this week: What's new this season? Three years after Sebastian's death, the playground that was born out of heartbreaking grief is now a source of great joy. 'I think he's smiling. I think Sebastian is smiling, he's happy,' said Howard. 'I can feel him when I'm here, I can see signs and I know he's just happy. He's just happy with all the joy and all the kids,' said Kip. Sebastian's family is hoping to eventually build similar playgrounds in other communities across Ohio and the country. Donations can be made at Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
