2 days ago
EXCLUSIVE We won the world's worst 'lottery': Both of our kids have a one in a million disorder with a life expectancy of 12... these were the warning signs
Amy and Cliff Marini something joke they've 'won the genetic lottery' with their son and daughter, Lucas and Lara.
But behind that humor lies a deep sadness, for the couple have discovered that both their children suffer from an extremely rare and terminal genetic neurodegenerative disorder called Cockayne Syndrome (CS).
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