Latest news with #NationalSickleCellAnaemiaEliminationMission
India Today
2 days ago
- Health
- India Today
Ministry of Health's guide to spotting a sickle cell crisis early
Sickle Cell Anaemia is a hereditary blood disorder where the red blood cells, instead of being round and flexible, become crescent or 'sickle' shaped. These abnormal cells block blood flow and reduce oxygen delivery to various parts of the body, causing sudden and painful episodes known as Sickle Cell Crises. As per the Ministry of Health & Family Welfare, early identification of sickle cell crisis symptoms can save lives. This genetic disorder is more common in certain tribal and rural communities of India, and recognizing the warning signs is crucial for timely medical TRIGGERS A SICKLE CELL CRISIS?Sickle cell crises can be triggered by:InfectionsDehydrationSudden changes in temperatureHigh altitudesStressPhysical exertionThese crises often result in complications that need urgent medical TO IDENTIFY A SICKLE CELL CRISISThe Ministry outlines the following major symptoms:HAND-FOOT SYNDROMEOne of the earliest signs in infants and children is swelling and pain in the hands and feet. This happens due to sickled cells blocking blood flow in small vessels of the CHEST SYNDROMEThis life-threatening condition mimics pneumonia and includes symptoms such as:Sudden chest painCoughFeverShortness of breathIt can occur due to infection or blocked blood vessels in the lungs and demands immediate VISION OR VISUAL DISTURBANCESThe abnormal shape of sickle cells can affect tiny blood vessels in the eyes, leading to vision problems or even permanent loss of sight if severe cases, the crisis may restrict blood flow to the brain, resulting in a stroke. Symptoms include:Sudden weakness or numbnessDifficulty in speakingSeizuresLoss of consciousnessThis is considered a medical emergency in children and IS MOST AT RISK?Sickle cell anaemia is inherited, meaning both parents must pass on the defective gene. Communities in states like:ChhattisgarhOdishaMaharashtraMadhya PradeshGujaratJharkhandHave higher reported cases, particularly among Scheduled Tribes (STs).HOW IS IT DIAGNOSED?The disease can be diagnosed through a simple blood test:Newborn ScreeningHaemoglobin ElectrophoresisGenetic testing (for carrier identification)Early diagnosis helps in better management and prevents long-term & PREVENTIVE TIPSWhile there is no universal cure yet (except for bone marrow transplant in specific cases), these steps help reduce crisis frequency:Stay well-hydratedAvoid extreme temperaturesTake prescribed medications like hydroxyureaPrevent infections through vaccinationRegular health check-upsGOVERNMENT INTERVENTION & SUPPORTUnder the National Sickle Cell Anaemia Elimination Mission, the Government of India is taking proactive steps:Free screening camps in tribal regionsAwareness programs in schools and communitiesGenetic counseling before marriageDistribution of folic acid and medicines at primary health centersSickle Cell Anaemia may be a lifelong condition, but awareness, early diagnosis, and proper care can significantly improve quality of life. The Ministry's efforts aim not just at treatment, but at elimination of the disease through early screening and public education.
The Hindu
17-05-2025
- Health
- The Hindu
Sickle cell disease patients get disability certificates
MYSURU A total of 35 patients with sickle cell disease were given disability certificates at a health camp jointly organised by the Centre for Training, Research, and Innovation in Tribal Health (CTRITH) and the Department of Health and Family Welfare at Kollegal taluk hospital on Friday. Sickle cell disease has been identified as a genetic disorder in which red blood cells contort into a sickle shape, causing them to block blood flow and reduce oxygen delivery. Predominantly affecting tribal communities in India, sickle cell disease may cause chronic anaemia, pain, fatigue, acute chest syndrome, stroke, and a host of other health complications. According to a statement issued by the CTRITH, a total of 45 patients, along with 55 caregivers, participated in the free health camp, where they underwent a routine health check and medical consultation. The persons with sickle cell disease were successfully registered and certified under the Unique Disability ID (UDID) system, enabling them to access the government's disability benefits. 'This was not just another health camp. It marked a significant milestone by bringing together all diagnosed sickle cell disease patients from across the district under one roof and facilitating their disability certification,' the statement noted. The health camp was inaugurated by the Chamarajanagar district health officer, M. Chidambara, who said sickle cell disease was a genetic disease that not only required medical attention, but also strong community and family support for its prevention, early detection, and effective management. 'Today, our district has become the first in the State to issue disability certificates for people with sickle cell disease through a camp-based approach. This is a proud moment for us. This reflects our commitment to the National Sickle Cell Anaemia Elimination Mission and highlights the value of collaboration with organisations working in the field,' he said. Dr. Chidambara also emphasised the importance of genetic counselling and awareness among carriers to help prevent the birth of children with the disease. Genetic counsellor from JSS Medical College, Mysuru, Deepa Bhat, who is also the head of the sickle cell disease programme at CTRITH, acknowledged the leadership shown by Dr. Chidambara and nodal officer for the National Sickle Cell Anaemia Programme in Chamarajanagar district, Ravikumar. Dr. Bhat said Chamarajanagar was possibly the only district where regular and systematic sickle cell disease camps were being conducted. The health camp not only provided the patients with routine care, but also facilitated their disability certification, which is an essential step towards accessing government support, she added. Chamarajanagar district tuberculosis eradication officer Ravikumar, Kollegal taluk administrative medical officer Rajashekar, and the medical staff of Vivekananda Girijana Kalyana Kendra Hospital, B.R. Hills, also participated in the programme.
