Latest news with #NationalThalassaemiaWelfareSociety
New Indian Express
09-05-2025
- Health
- New Indian Express
Thalassaemia Day: Delhi speaker Gupta calls for support to patients
NEW DELHI: Delhi Legislative Assembly on Thursday observed International Thalassaemia Day with a special awareness event. On the occasion, Assembly Speaker called for unity, prevention and support for Thalassaemia patients. The event was held at the Delhi Legislative Assembly Premises, organised in collaboration with the National Thalassaemia Welfare Society. Guided by this year's global theme, 'Together for Thalassemia: Uniting communities, prioritising patients,' the event underscored the urgency of unified action. In his address, Gupta reiterated the significance of the occasion, stating, 'Let today not be just a remembrance, but a renewed commitment to prevention, awareness, and support.' Gupta paid tribute to the unwavering strength of thalassaemia patients and their families, whom he described as beacons of courage and inspiration. India bears the heaviest global burden of thalassaemia, with more than 50 million carriers and an estimated 12,000 to 15,000 children born annually with thalassaemia major. While bone marrow transplantation remains the only known permanent cure, it is prohibitively expensive and dependent on donor availability—rendering it inaccessible to most patients. In the absence of curative options, affected individuals rely on lifelong blood transfusions and iron chelation therapy, often costing up to Rs 2 lakh per year.
The Print
06-05-2025
- Health
- The Print
Delhi Vidhan Sabha to be illuminated in red on International Thalassaemia Day
The Vidhan Sabha will be illuminated with red light to create awareness, it said. The National Thalassaemia Welfare Society will observe International Thalassaemia Day with a special awareness event conducted in collaboration with the Delhi Legislative Assembly on Thursday, said a statement from the Assembly Secretariat. New Delhi, May 6 (PTI) The historical Delhi Vidhan Sabha will be illuminated with red light on International Thalassaemia Day on May 8 to spread awareness about the disease, Speaker Vijender Gupta said on Tuesday. The event will be attended by Speaker Gupta, along with Delhi Health Minister Pankaj Kumar Singh and National Commission for Backward Classes Chairman Hansraj Gangaram Ahir, it said. A conference on Thalassaemia awareness will be organised, followed by a symbolic gesture as part of the global 'Bring Thal to Light' campaign by the Thalassaemia International Federation. 'The Assembly building will be illuminated in red in the evening to raise awareness and express solidarity with thalassaemia patients around the world,' the statement said. The theme this year — Together for Thalassaemia: Uniting Communities, Prioritising Patients — calls for collective action in prevention, early diagnosis and sustained patient care to tackle the disease. PTI VIT VIT RUK RUK This report is auto-generated from PTI news service. ThePrint holds no responsibility for its content.
