Latest news with #OneDayAtATime
Yahoo
23-05-2025
- Entertainment
- Yahoo
Valerie Bertinelli Opens Up About Her Haters and Working to Find Self-Love: 'Not Everybody's Gonna Like Me'
Valerie Bertinelli penned a lengthy Instagram post on Thursday, May 22 She detailed how she deals with bad days and what she has learned from the adverse reaction she gets after talking about them The celebrity chef also opened up about how social media has played a role in her change of mindsetValerie Bertinelli is on a self-love journey, and she's not afraid to talk about it. Days after opening up about "going through some of the most emotionally excruciating eight months of [her] life,' the celebrity chef, 65, penned a lengthy Instagram post about how she deals with bad days and what she has learned from the adverse reaction she gets after talking about them. Bertinelli started her post by talking about how people will assume you "cry too much" if you post about your bad days or think you "live in the past" if you post "too many throwback photos." She also said she believes people think she's "narcissistic" because she posts "too many photos" of herself on her Instagram page. The PEOPLE Puzzler crossword is here! How quickly can you solve it? Play now! The food expert recalled being younger and being told by her father that she had to be likable — a "flawed theory," Bertinelli said she worked through thanks to social media. "Love you, Pops and I hate to break it to you, but not everybody's gonna like me. And for the first time in my life, at 65, I'm more than okay with that," said Bertinelli. "Most importantly, I like me." The One Day at a Time alum said she considers herself lucky to have "extraordinary people" in her life who "like me and love me." "I'm a good person, I'm kind and caring, I treat others the way I want to be treated. I'm resilient, I'm low maintenance, I feel things deeply, I love hard, I exude equanimity from my soul," she wrote. "Equanimity is a daily choice I work at, encourage and feed." Bertinelli said that it is "someone else's choice whether they choose to be judgmental or harmful on my page or in my life." "The Block button works wonders on social media. It also works in the real world too," she wrote. As for the reason for posting the message, Bertinelli said she wanted to encourage others to go through the same life journey. "It takes hard work, digging down deep and getting help when you need it. An extra sounding board when you need it. Finding new tools for your emotional tool box," she wrote. "There's a reason those shadows are in you. They protected you when you needed to get through scary times in your past. You can put your arms around them and thank them for protecting you and for keeping you strong when you didn't think you had the strength," Bertinelli continued. She ended her post by telling her followers that "you're not a fraud by being two dialectical things at the same time. You're a bad ass because of those shadows. The shadows make your kindness shine brighter." In her Instagram Stories, Bertinelli reiterated the same sentiments by sharing an Instagram reel by Drew Barrymore in which Barrymore listed "judging others because their life choices are different than yours" as "propaganda I'm not falling for." Never miss a story — sign up for to stay up-to-date on the best of what PEOPLE has to offer, from celebrity news to compelling human interest stories. Bertinelli also shared a quote that read, "It's not about seeing the good in them anymore, it's about seeing the truth in their actions." Read the original article on People
Daily Mail
30-04-2025
- Entertainment
- Daily Mail
AFL WAG Jordan Ablett holds back tears during emotional Sunrise interview about son Levi's rare genetic condition: 'All we have is today'
AFL WAG Jordan Ablett struggled to hold back tears on Wednesday as she opened up about her son Levi's rare genetic condition. Jordan, who shares Levi, six, with husband, footy great Gary Ablett Jr, appeared on Sunrise to discuss Levi's diagnosis and her new memoir One Day At A Time. Just over a year after Levi was born in 2019, he was diagnosed with Menkes, a rare recessive disorder that affects copper metabolism, leading to neurodegeneration, connective tissue problems, and short life expectancy. Speaking to hosts Natalie Barr and Matt Shirvington, an emotional Jordan, 33, said that despite the couple's son being non-verbal he has already taught her and Gary so much. 'Sometimes as parents, we kind of envision the perfect outcome and we create these scenarios in our head as though they're going to happen and as though they're guaranteed,' she said. Pausing to compose herself, Jordan added that Levi's condition had helped put things into perspective. 'I think having Levi has taught me that nothing is guaranteed in life and all we really have is today,' she said. 'It's about making the most of each day and not holding so tightly onto the things in this world and our dreams and desires because they're just not guaranteed, they're not promised to us, so it's about holding those things loosely and then being able to adapt when the plan changes.' The mum of three was almost moved to tears again when Matt asked about the strength of her relationship with Gary in the face of the ordeal. 'We've definitely had our lows, and I really feel for other parents that are raising a child with a disability because I get it, I fully get it, and there are so many layers, she said. 'I think people from the outside might... sorry... kind of presume that it's so heavily physical, but it's so mental as well. 'But I could not have asked for a better husband and a better father to raise Levi and to spend my life with. 'He's been absolutely incredible. Not once has he ever made it about him and about those plans and those things that we anticipated — that's just irrelevant.' Admitting that dealing with Levi's diagnosis had been a 'struggle', Jordan added it was one she could not have fought with out such a strong support network around her. 'It was tough, but thankfully I was just surrounded by the most amazing people in my friends and family, and even the greater community was incredible,' she said. Jordan kept her son's medical diagnosis under wraps as she learned to 'process' his heartbreaking condition, but revealed to VWeekend last week she was ready to talk about it. 'It was shocking… of course it was hard to first accept,' Jordan said of the diagnosis they received from his doctors in May 2020, adding the medication he is currently on will only 'slow the progression'. 'I know we are blessed and I know that when those hard days come, and they do, it's so important to not give into the emotions that follow and let them dictate your day and take away from the gift that it is,' she continued. 'I always knew deep down that I would eventually be open and transparent about it… I don't know what good can possibly come from not being that.' According to The Menkes Foundation, Menkes is a recessive disease linked to the X chromosome and is caused by gene mutations of the copper transporter ATP7A. The condition is characterised by distinctive clinical features, including sparse and de-pigmented hair, and connective tissue problems. Symptoms also include severe neurological issues such as seizures, hypotonia, failure to thrive, and neurodevelopmental delays. 'He's been absolutely incredible. Not once has he ever made it about him and about those plans and those things that we anticipated — that's just irrelevant,' she said Mortality is high in untreated Menkes disease, with many patients dying before the age of three years old. There is currently no complete cure for the disorder, but patients who are treated with parenteral copper histidinate (CuHis) can increase survival and lessen neurological symptoms if initiated early. Aside from Levi, Jordan and Gary also share daughter Grace, four, and son Ezra, two.
West Australian
23-04-2025
- Health
- West Australian
Gary Ablett Jr and wife Jordan share emotional journey of six-year-old son Levi's Menkes disease diagnosis
For over five years, Gary Ablett Jr and his wife Jordan shielded their son Levi's medical struggles from public view, navigating specialists, therapies, and unspoken fears. Now, as Levi turns six, the couple has broken their silence in a raw interview, peeling back layers of grief and resilience tied to a diagnosis. Jordan, 33, has described the moment in May 2020 when doctors identified Menkes disease, a rare genetic disorder disrupting copper metabolism, as a turning point that 'completely changed' their lives, speaking to the Herald Sun. 'It was shocking… of course it was hard to first accept,' Jordan admitted while recalling the prognosis: Neuro-degeneration, connective tissue degradation, and a life expectancy rarely surpassing early childhood. Levi's condition, caused by mutations in the ATP7A gene, manifests in sparse hair, seizures, and developmental delays. Most untreated children die before age three, but copper histidinate injections, started early, offer a fragile lifeline. The medication 'slows the progression,' Jordan said, emphasising that every milestone, like Levi reaching six, feels special. Behind closed doors, the Abletts have grappled with Levi's inability to speak or walk independently. 'He's changed me' Jordan shared in a 2021 interview with the Good Friday Appeal, referencing the constant vigilance against aspiration risks that could send food into his lungs. Regular telehealth check-ins with Melbourne's Royal Children's Hospital punctuate their routine, with respiratory health dominating concerns, according to the same interview. Yet amid the medical jargon, Jordan clings to Levi's 'constant sunshine', as she posted on Instagram, also his laughter, his bond with younger sister Grace, and his quiet determination. 'His life has been a message,' she insisted in the Good Friday appeal article, rejecting pity. In her upcoming memoir One Day At A Time, Jordan details the 'happy and sad tears' of parenting a terminally ill child, framing their journey as a call to cherish fleeting moments, as announced in her October 2024 social media posts ahead of the book's April 2025 release. With Menkes having no cure, the Abletts now channel their energy into advocacy, hoping their story softens the isolation felt by similar families through initiatives like Jordan's 2022-launched House of Hope. Teasing her memoir on Instagram Jordan wrote: 'I am so excited to finally share with you all that I have been working hard behind the scenes for almost one year now, writing my very own book!' 'I can't begin to explain how special this feels for me, and for my family, who have journeyed all of life's highs and lows with me, feeling every single bump and joy along the way. There have been plenty of tears cried while writing this book, both happy and sad tears, but being able to share my story, and hopefully encourage others, has made all 'the feels' worth it. 'I hope that by reading my story, parents of children with a disability will feel less alone, more capable, and will, if they don't already, look at their child through a different lens, seeing them as what they are, a genuine treasure!'
Perth Now
23-04-2025
- Health
- Perth Now
Gary Ablett Jr's wife share news of 6yo son's fatal illness
For over five years, Gary Ablett Jr and his wife Jordan shielded their son Levi's medical struggles from public view, navigating specialists, therapies, and unspoken fears. Now, as Levi turns six, the couple has broken their silence in a raw interview, peeling back layers of grief and resilience tied to a diagnosis. Jordan, 33, has described the moment in May 2020 when doctors identified Menkes disease, a rare genetic disorder disrupting copper metabolism, as a turning point that 'completely changed' their lives, speaking to the Herald Sun. 'It was shocking… of course it was hard to first accept,' Jordan admitted while recalling the prognosis: Neuro-degeneration, connective tissue degradation, and a life expectancy rarely surpassing early childhood. Levi's condition, caused by mutations in the ATP7A gene, manifests in sparse hair, seizures, and developmental delays. Most untreated children die before age three, but copper histidinate injections, started early, offer a fragile lifeline. The medication 'slows the progression,' Jordan said, emphasising that every milestone, like Levi reaching six, feels special. Behind closed doors, the Abletts have grappled with Levi's inability to speak or walk independently. 'He's changed me' Jordan shared in a 2021 interview with the Good Friday Appeal, referencing the constant vigilance against aspiration risks that could send food into his lungs. Regular telehealth check-ins with Melbourne's Royal Children's Hospital punctuate their routine, with respiratory health dominating concerns, according to the same interview. Yet amid the medical jargon, Jordan clings to Levi's 'constant sunshine', as she posted on Instagram, also his laughter, his bond with younger sister Grace, and his quiet determination. 'His life has been a message,' she insisted in the Good Friday appeal article, rejecting pity. In her upcoming memoir One Day At A Time, Jordan details the 'happy and sad tears' of parenting a terminally ill child, framing their journey as a call to cherish fleeting moments, as announced in her October 2024 social media posts ahead of the book's April 2025 release. With Menkes having no cure, the Abletts now channel their energy into advocacy, hoping their story softens the isolation felt by similar families through initiatives like Jordan's 2022-launched House of Hope. Teasing her memoir on Instagram Jordan wrote: 'I am so excited to finally share with you all that I have been working hard behind the scenes for almost one year now, writing my very own book!' 'I can't begin to explain how special this feels for me, and for my family, who have journeyed all of life's highs and lows with me, feeling every single bump and joy along the way. There have been plenty of tears cried while writing this book, both happy and sad tears, but being able to share my story, and hopefully encourage others, has made all 'the feels' worth it. 'I hope that by reading my story, parents of children with a disability will feel less alone, more capable, and will, if they don't already, look at their child through a different lens, seeing them as what they are, a genuine treasure!'
Daily Mail
22-04-2025
- Health
- Daily Mail
Gary Ablett Jr and wife Jordan reveal their dying son Levi's heartbreaking medical diagnosis for the first time
Gary Ablett Jr and his wife Jordan have opened up for the first time about the rare degenerative disorder that their six-year-old son Levi is currently dying of. The AFL WAG, 33, has kept her son's medical diagnosis under wraps until now as she learns to 'process' his heartbreaking condition but has revealed in the upcoming VWeekend on Saturday she is ready to talk about it. Sharing details of his rare disorder, Jordan said Levi was diagnosed with Menkes, a rare recessive disorder that affects copper metabolism, leading to neurodegeneration, connective tissue problems and short life expectancy. 'It was shocking… of course it was hard to first accept,' Jordan said of the diagnosis they received from his doctors in May 2020, adding the medication he is currently on will only 'slow the progression'. 'I know we are blessed and I know that when those hard days come, and they do, it's so important to not give into the emotions that follow and let them dictate your day and take away from the gift that it is,' she continued. 'I always knew deep down that I would eventually be open and transparent about it… I don't know what good can possibly come from not being that.' Gary Ablett Jr, 40, and his wife Jordan, 33, have opened up for the first time about the rare degenerative disorder which their six-year-old son Levi is currently dying of According to The Menkes Foundation, Menkes is a recessive disease linked to the X chromosome and is caused by gene mutations of the copper transporter ATP7A. The condition is characterised by distinctive clinical features, including sparse and de-pigmented hair, and connective tissue problems. Symptoms also include severe neurological issues such as seizures, hypotonia, failure to thrive, and neurodevelopmental delays. Mortality is high in untreated Menkes disease, with many patients dying before the age of three years old. There is currently no complete cure for the disorder, but patients who are treated with parenteral copper histidinate (CuHis) can increase survival and lessen neurological symptoms if initiated early. The revelation of Levi's medical diagnosis comes after Gary, 40, and Jordan celebrated their son's sixth birthday in January. Jordan posted a series of heartwarming photos to Instagram at the time, writing: 'Happy Birthday sweet boy—Thanks for six years of constant sunshine!' Jordan is set to open up about the challenges of raising a child with a disability in her new memoir One Day At A Time. The AFL WAG has kept her son's medical diagnosis under wraps until now as she learns to 'process' his heartbreaking condition, but has revealed in the upcoming VWeekend on Saturday she is ready to talk about it Sharing details of his rare disorder, Jordan said Levi was diagnosed with Menkes, a rare recessive disorder which affects copper metabolism, leading to neurodegeneration, connective tissue problems and short life expectancy Teasing the book on Instagram in October, the mother-of-three said she shed plenty of tears while completing the memoir and hopes it offers hope to other parents who share similar challenges. 'I am so excited to finally share with you all that I have been working hard behind the scenes for almost one year now, writing my very own book!' she said in a lengthy post. 'I can't begin to explain how special this feels for me, and for my family, who have journeyed all of life's highs and lows with me, feeling every single bump and joy along the way. 'There have been plenty of tears cried while writing this book, both happy and sad tears, but being able to share my story, and hopefully encourage others, has made all "the feels" worth it.
