Latest news with #PraderWilliSyndrome


Reuters
a day ago
- Business
- Reuters
Scorpion Capital discloses short position in drugmaker Soleno
Aug 15 (Reuters) - Scorpion Capital disclosed a short position in Soleno Therapeutics (SLNO.O), opens new tab on Friday, citing issues with the drugmaker's recently approved treatment for a rare genetic disorder, sending its shares slumping 15% in early trading. The company in March had received the U.S. Food and Drug Administration's approval for its drug, Vykat XR, to treat a condition called Prader-Willi syndrome. The drug treats hyperphagia — a symptom of the disorder that causes a feeling of insatiable hunger persisting even after meals. Scorpion Capital alleged that the drug causes high risk of fluid buildup in the lungs and heart failure. It also said the drug "may be at risk of being withdrawn from market". Soleno did not immediately respond to a request for comment. Reuters could not independently verify the claims raised in the report. Shares of the company, which launched Vykat XR in April, have risen about 46% so far this year. Earlier this month, Soleno said it had seen 295 unique prescribers of the drug. Previously, the short seller had also targeted other biotechs such as Harmony Biosciences (HRMY.O), opens new tab and Allakos .


The Sun
08-08-2025
- Entertainment
- The Sun
Katie Price reveals how much weight Harvey has lost just a week after he moved to new home
KATIE Price has revealed how much weight her son Harvey has lost just a week after he moved to a new home. Former glamour model Katie, 46, is a doting mum to her son Harvey, 23 - who lives with ADHD, autism, genetic condition Prader-Willi Syndrome and septo-optic dysplasia. 4 4 4 Just last week, Harvey moved to a new home in Southampton, with his mum fighting back tears as she dropped him off. And since his move, Katie has revealed how much weight he has lost. This comes after she revealed Harvey would be starting on the weight loss jab, Mounjaro, once he got to his new college. Speaking on her podcast this week, The Katie Price Show, she could be heard chatting about Harvey to her sister Sophie. "So when we got off the boat, we went and saw Harvey," she said midway through the new instalment. Katie then revealed how much weight Harvey has lost, leaving her sister stunned. "He's lost 8lbs. It's good," she told her sister. Sophie was shocked and swooned over how good it was that he had lost such a substantial amount. When Harvey left his school earlier this summer, Katie was overcome with emotion when it hit her that she would miss her son when he went to his new home. "I kept it in but I felt my lip go, because that's it - no more college. Katie Price reaches out to Harvey's lookalike half-brother to arrange first meeting after dad Dwight Yorke's snub "And then they were all crying there because they're going to miss him," she said while recalling his leavers' assembly. Recalling the moment she dropped Harvey off at his new home, she continued: 'I took him to his place in Southampton, he was so excited. 'And then at half four this morning, he took a screen shot of outside of his window and it was obviously still dark. 'He drew loads of stars and a moon, and a picture of me with a big heart and then [Katie's boyfriend] JJ looked like a little twig man next to me. "He always does JJ small and me big.' But, despite Harvey's excitement about his new chapter, Katie confessed her son was emotional about the change. She added: "I FaceTimed him just before I got my lashes done and he was in bed crying. "I went, 'What are you crying for?' "He said: 'Because I miss you'. So I said, 'Are you happy there?' and he went, 'Yes'.' Katie is also mum to Junior, 20, and Princess, 18, from her marriage to Peter Andre, and Jett, 11, and Bunny, 10, who she shares with third husband Kieran Hayler.


The Sun
23-07-2025
- Entertainment
- The Sun
Emotional Katie Price drops son Harvey off at new home after he's booted out of college for being ‘too difficult'
KATIE Price was left emotional as she dropped son Harvey off to his new home after being "kicked out" of his £350k a year college. Harvey, 22, was born with ADHD, autism, genetic condition Prader-Willi Syndrome, and septo-optic dysplasia, which causes blindness. 3 3 He was previously accepted into a residential college, but in February Harvey was kicked out for being "too difficult". Earlier this month, former glamour model Katie, 47, revealed Harvey would be leaving college and going into independent living. In a new clip, Katie filmed herself and Harvey in the car on a road trip to Southampton as she drove him to his new home. Katie said: "I'm back in the van, we're going to your new place until October. Are you excited?" Harvey replied: "Yes." Speaking to the camera, Katie said: "I'm on my way to take Harvey to his next place after college. "We've got about an hour and 20 drive and I don't know how I'm going to feel leaving him there." She then turned to her son and said: "I hate leaving you there Harv." Harvey replied: "It's s*** innit mum," which promoted the TV star to giggle and say: "Stop making me laugh." She reassured him: "I'm going to come and see you on Saturday." Katie Price reveals son Harvey now weighs 30st as she gives update on his fat jabs and says 'I can't wait to see what he looks like' Speaking to her fans again, she said: "So there you go. I'll let you know how I feel when I've dropped him off." She then put her face in her hands and said nervously: "Oh I don't like these days at all but he's 23 and he's got to go to residential now." The mum-of-five captioned the clip: "Love Harvey's positivity today." He gave the camera a thumbs up and said: "I love you mum." The night before Katie shared a clip of her cuddling Harvey in bed before their road trip to Southampton. Her decision for Harvey to go back to collage comes after she revealed that her 23-year-old son was due to start weight loss injections in order to control his ballooning weight. Harvey weight around 30st as a result of his many complex needs, including Prader-Willi syndrome, but Katie hopes the use of weight-loss drug Mounjaro will keep it under control. Speaking on her podcast with sister and co-host Sophie Price, Katie said: "Hopefully Harvey starts his Mounjaro this week, but we'll talk about that next week and I'll go through all of what's happening about that." The TV personality's eldest child has Prader-Willi syndrome, which sparks a constant desire to eat food and a permanent feeling of hunger which leads to obesity. Harvey battles a series of debilitating conditions including autism, septo-optic dysplasia, ADHD and oppositional defiant disorder. In a video posted in April, Katie revealed: 'I'm so heartbroken and gutted that his weight is just going up. 'I just googled it in stones, 188kg is just a few kg of being 30 stone. 'It's so life-threatening now, I'm still waiting for the doctors to get back to me starting on the mounjaro and his journey to a healthy life.' She continued: 'It's so sad his quality of life at the moment where he's so big, he just can't really do much." Katie is also mum to Junior and Princess Andre as well as Jett and Bunny Hayler. Katie Price's relationship history We take a look back at the highs and lows of Katie Price's relationship history. 1996-1998: Katie got engaged to Gladiators star Warren Furman - aka Ace - with a £3,000 ring. But their relationship didn't make it as far as 'I do'. 1998-2000: Katie described Dane Bowers as 'the love of her life' but she broke up with the singer when he allegedly cheated on her. 2001: Footballer Dwight Yorke is the father of Katie's eldest child Harvey. He has had very little to do with Harvey throughout his life. 2002: Rebounding from Dwight, Katie famously had one night of passion with Pop Idol star Gareth Gates, allegedly taking his virginity. 2002-2004: Katie was dating Scott Sullivan when she entered the jungle for I'm A Me Out Of Here!. He threatened to "punch Peter's lights out" when chemistry blossomed between her and Peter Andre. 2004-2009: The jungle romance resulted in Katie marrying Aussie pop star Peter. They had two kids, Junior and Princess, before their bitter split in 2009. 2010-2011: Fresh from her break-up with Peter, Katie enjoyed a whirlwind relationship and marriage with cage fighter Alex Reid. They split 20 months after their Las Vegas wedding. 2011: Katie briefly dated model Danny Cipriani... but it ended as quickly as it begun. 2011-2012: They didn't speak the same language, but Katie got engaged to Argentinian model Leandro Penna in 2011. He later fled home to South America. 2012-2018: Wedding bells rang once more after Katie met Kieran Hayler in 2013. They had two kids together, Jett and Bunny, before their break-up and divorce. 2018-2019: Katie moved on quickly with Kris Boyson. They had an on-off romance for one year and even got engaged. They split for good in 2019. 2019: Katie was linked to Charles Drury during her on-off relationship with Kris. Charles, who also dated Lauren Goodger, has always denied being in "official relationship" with her. 2020-2023: Car salesman Carl Woods took a shining to Katie in 2020. Their relationship was up and down for three years. They broke up for a final time last year. 2024-present: After weeks of rumours, Katie confirmed her relationship with Married At First Sight star JJ Slater in February this year. 3


Daily Mail
14-07-2025
- Entertainment
- Daily Mail
Katie Price reveals son Harvey, 23, is 'coming home for good' and entering the 'real world' after struggling to find him a place at specialist college due to funding cuts and her bankruptcy
Katie Price has revealed her eldest son Harvey is 'coming home for good' this week, after she struggled to secure him a place at a residential college amid cuts to council funding and her bankruptcy. The former glamour model, 47, explained that the 23-year-old will begin 'independent living' in a new place that is nearer to her home in Sussex, after previously lamenting the long distance between them. Harvey is blind, autistic, has septo-optic dysplasia, a learning disability and is one of the 2,000 people in the UK with Prader-Willi syndrome, a genetic disorder. He had been living at £350,000-a-year specialist institution National Star since 2021, but amid cuts to funding and Katie's financial woes, he was withdrawn last year. Since then, she has had a difficult time trying find him a new place, with one care home calling him 'too difficult' and the West Sussex County Council slashing his funding. But, speaking on her podcast, The Katie Price Show, last week, the mother-of-five revealed that Harvey is now leaving his college and heading out into the 'real world'. The former glamour model, 47, explained that the 23-year-old will begin 'independent living' in a new place that is nearer to her home in Sussex, after previously lamenting the long distance between them Katie said: 'Harvey is doing the countdown for his new place. He's got his leavers ceremony where they give out certificates and then it's the "real world" Mr Harvey Price.' She explained that he was going first to a temporary accommodation, before beginning his new placement in Littlehampton in October. She said: 'I've found him a place in Southampton which is temporary. It's got five other adults in it. 'Then he moves to his place in October, which is Littlehampton, which will be nearer to me. He's going from college to independent living.' The TV personality also took to her Facebook page to reveal her excitement over the move, sharing a sweet photo of her and Harvey cuddling during a visit to see him at college. She captioned the heartwarming snap: 'Reunited with my baby bear. Harvey's coming home for good in 12 days'. While on Tuesday, she shared another shot of her giving him a kiss and gushed: 'Love you so much Harv, not long now' with the hashtags '#soproudofyou #familytime # newbeginningsahead'. Katie got candid on her podcast as she detailed what a difficult undertaking it had been trying to get Harvey into a new institution for months on end, since she was forced to withdraw him from National Star. The TV personality also took to her Facebook page to reveal her excitement over the move, sharing a sweet photo of her and Harvey cuddling during a visit to see him at college On Tuesday, she shared another shot of her giving him a kiss and gushed: 'Love you so much Harv, not long now' with the hashtags '#soproudofyou #familytime # newbeginningsahead' Though he later returned to school, she was hit by another hurdle in February when he lost a place at a care home for being 'too difficult'. At the time she explained how Harvey had lost his place weeks before the move after management changed and they determined that they couldn't cater for his needs. Reflecting on the tough journey, she said: 'We worked months and months for that and he was told four-and-a-half weeks before that he couldn't go there, and Harvey has been doing the countdown. 'Well it's stressful because you want the right thing for your child and it is a lot of time and effort to go back and do more meetings, more forms, it is very time-consuming because you want the best for your child.' Katie has also frequently stressed the challenges of Harvey being placed a long distance away from her and admitted that he often became upset and wanted to return home. In April, she detailed their 'difficult and upsetting' journey back to the college, after Harvey became so distraught at having to return that he lashed out in the car. Taking to Snapchat after the move, she admitted she was 'heartbroken' to see her son so upset, telling her followers she hoped to be able to move him to a branch closer to her new family home in Sussex after leaving her Mucky Mansion. She said: 'Now that was very difficult, it was really upsetting. Harvey just did not want to go back to college. I'm surprised I've still got a car left. He was literally gonna go for the car. Katie has also frequently stressed the challenges of Harvey being placed a long distance away from her and admitted that he often became upset and wanted to return home 'It is so sad when your son just doesn't wanna go to college and just wants to be with you all the time. 'That's why I can't wait for him to come home near us but the place we have got for him is not ready yet, maybe in May. So yeah, it is heartbreaking.' In July last year, she revealed that the local authority had cut Harvey's funding because he has 'no healthcare issues', with an assessor concluding that he 'only needs social care'. Katie - who was declared bankrupt for a second time last year over an unpaid tax bill worth more than £750,000 - has been trying to secure funding to extend Harvey's time at National Star for another year. Speaking on her The Katie Price Show podcast last year, the reality star admitted : 'I'm having a nightmare at the minute. 'We were looking for him to stay at his college another year or if not a placement, but [the local authority] haven't accepted it. 'They've given me three months that he has to find somewhere else by July. With someone like Harvey you need the transitional move, you need to do it slow.' Katie was Harvey's primary caregiver until he turned 19, and in 2021 filmed his move into National Star College as part of BBC documentary Katie Price: Harvey and Me. His biological father is former footballer Dwight York, who briefly dated Katie in 2001, before breaking up soon after she fell pregnant with Harvey.


The Sun
03-07-2025
- Entertainment
- The Sun
Katie Price reveals major update on son Harvey's future after being ‘kicked out' of £350k a year college
KATIE Price has opened up about her son Harvey's future after being "kicked out" of his £350k a year college. Harvey, 22, was born with ADHD, autism, genetic condition Prader-Willi Syndrome, and septo-optic dysplasia, which causes blindness. 3 3 He was previously accepted into a £350,000-a-year residential college, but in February Harvey was kicked out for being "too difficult". Now former glamour model Katie, 47, has revealed her eldest child will be leaving college this month and going into independent living. Katie said: "Harvey is doing the countdown for his new place. "He's got his leavers ceremony where they give out certificates and then it's the 'real world' Mr Harvey Price." The mum-of-five continued on the Katie Price Show podcast: "I've found him a place in Southampton which is temporary. "It's got five other adults in it. "Then he moves to his place in October, which is Little Hampton, which will be nearer to be. "He's going from college to independent living." The 21-year-old has Prader-Willi Syndrome, a complex condition that causes obesity and learning difficulties. He is also autistic and partially blind. Katie previously said: "Harvey is supposed to be moving in four-and-a-half weeks, they've changed management and said they won't be able to cater for Harv, because he's too difficult. "So now I've got to find another placement for him... so yeah, more drama to deal with." Later in the show, she said: "We worked months and months for that and he was told four-and-a-half weeks before that he couldn't go there, and Harvey has been doing the countdown. "Well it's stressful because you want the right thing for your child and it is a lot of time and effort to go back and do more meetings, more forms, it is very time-consuming because you want the best for your child." Finding the right care for Harvey has been a constant issue for Katie since her eldest reached adulthood. Last year she had another run-in with a local authority over a place at a specialist college after a report allegedly found Harvey to have "no health issues". His time at £350,000-a-year National Star College, Gloucestershire came under threat as a result. Twice-bankrupt Katie, who lived three hours away in Horsham, West Sussex, appealed the decision. Speaking on an episode of her podcast last spring, she said: "They've given me three months - he has to find somewhere else by July. "With someone like Harvey, you need a transitional move, you need to do it slowly." She added: "I'm trying to find somewhere nearer for Harvey, but three months isn't a long time." What is Prader-Willi syndrome? PWS is a genetic condition that can impact muscle tone, sexual development and the function of the nervous system. As well as this, those with Prader-Willi syndrome are more likely to have learning difficulties. Often, it also sparks a constant desire to eat food and a permanent feeling of hunger which leads to child obesity. However, the syndrome is very rare, with the NHS estimating that it affects "no more than one in every 15,000 children born in England". What causes Prader-Willi syndrome? Those with PWS have a genetic defect on chromosome number 15. In around 70 per cent of cases, some of the DNA information that's inherited from the father is missing, which is referred to as "paternal deletion". Other cases occur when a child has two copies from their mother and none from their father. The condition is obtained purely by chance, but those who have one child with PWS have a less than 1 per cent chance of the next one being affected. 3