Latest news with #StephenDonnelly
Irish Independent
a day ago
- Health
- Irish Independent
Cancer support centres in Wicklow still waiting for budget funding
The government pledged to invest €41 million in cancer services this year, including a €5.5 million allocation to the Alliance of Community Cancer Support Centres and Services. Purple House in Bray, Greystones Cancer Support and Arklow Cancer Support Group are members of the Alliance and were due to receive funding during 2025. However, it's understood none of those groups have received that funding. Former Health Minister Stephen Donnelly first made the announcement while paying a visit to Purple House Cancer Support Centre in Bray last October, where he also stated he had asked his Department to consider funding for other cancer support services in County Wicklow. These include Wicklow Town Cancer Support, West Wicklow Cancer Support, Rathdrum Cancer Support and Roundwood Cancer Support. Funding was also ringfenced for these community cancer support groups around the county, but they have yet to be contacted by officials from the HSE. Raising the issue in the Dáil recently, Social Democrats TD for Wicklow Jennifer Whitmore called on her constituency colleague Tánaiste Simon Harris to make sure the promise of funding for these groups is kept. 'The Tánaiste and I both well know the amazing work these cancer groups do in County Wicklow. I have seen correspondence from the former Minister where he said that funding would be recurrent funding, no matter the affiliation with the National Cancer Control Programme (NCCP).' In response Minister for Health Jennifer Carroll MacNeill said The HSE and the NCCP have recently been working with community organisations to distribute the 2025 funding allocation. 'The first call for the full members of the Alliance of Community Cancer Support Centres, of which Purple House is one, is now almost complete and the second call for the associate members is now under way.' 'The Alliance has 21 full members and 22 associate members. The associate members will now go through that process as well, but the priority is, of course, for the full members.' she added.
Irish Independent
2 days ago
- Business
- Irish Independent
Wicklow Meals on Wheels food servings up 23pc since January as food costs soar
In June, the organisation delivered more than 800 hot, healthy, nutritious meals to residents in need of the service. However, the latest Consumer Price Index figures released by the CSO revealed that prices for goods and services were up 1.8pc on average on June 2024, and up 0.5pc monthly from May 2025 to June 2025. For example, the price of meat is up on average 8pc, while beef specifically is up 21.9pc. The continued rise in prices is also impacting on essentials outside of meat. Butter is up 18.6pc and fresh low fat milk is up 13.7pc, while fish is up 3.3pc. Noeleen Redmond of Wicklow Meals on Wheels said: 'The cost of meat in particular is going up all the time. We have a rota involving the four butchers in Wicklow town and have a great relationship with them. We tend to use each of them for two month periods of the year. 'The price of everything is going up though, not just meat. Every single thing we buy is more expensive, right down to the butter in the spuds. A pound of butter now costs €5, and it wasn't that long ago when it used to be €2.29. We have noticed an inordinate difference in costs which seem to be rising all the time.' Despite the increasing pressures being placed on them, Wicklow Meals on Wheels consider themselves to be in a good position, and remain financially secure. They also secured a sizeable grant allocation from then Health Minister Stephen Donnelly last year, just before moving into their new premises. Noeleen said: 'We ran at a €3,500 deficit after Covid. We continued our deliveries in 2020, but with the restrictions in place, we didn't collect any money from March to September, and actually also started a third delivery per week, so we ended up with a deficit, but that has since been cleared. 'I have to thank the people of Wicklow town and surrounding areas for al of their support. The Singing Santy's were back in December for the first time since Covid and raised €1,700. We also started up our church gate collections again. Thankfully we remain in a good position despite the rising food costs and will continue to deliver up to 90 meals twice per week.' She added: 'We served more than 100 meals more in June than we carried out in January of this year, involving serving two meals per person per week. We delivered around 650 meals in January, compared to nearly 800 meals in June. 'Our demand is significantly higher. The rising food costs are probably having an influence, but we are probably victims of our own success as well. We have been making a lot of effort to highlight the service, and I think people who could avail of the service are noticing. 'I was down in Tramore the other week and I bumped into a woman who said she saw me in the Wicklow People featured in an article on Wicklow Meals on Wheels. We have been raising awareness over the service, and alongside making our profile higher, people are also living longer.'
Irish Times
3 days ago
- Health
- Irish Times
Inquiry begins into historical use of anti-epileptic drug and effects on pregnant women
The historical licensing and use of the anti-epileptic drug sodium valproate for women of childbearing age will be examined as part of an inquiry that started its work on Tuesday. Mothers of children diagnosed with foetal valproate spectrum disorder (FVSD) have long called for a public inquiry to investigate why they were not warned about the risks of taking the drug while pregnant . FVSD is caused by exposure in the womb to valproic acid, which is the key ingredient in sodium valproate, better known in Ireland as Epilim. An Irish Medical Journal study published in 2021 said diagnosing the condition was 'difficult' due to the lack of any specific diagnostic test or biomarker. READ MORE However, it said dysmorphic facial features, neural tube defects, congenital heart disease and cleft lip were among the most commonly associated characteristics. The study noted that Irish public health data suggested 3,126 babies were potentially exposed to sodium valproate before birth between 1975 and 2015. Minister for Health Jennifer Carroll MacNeill said the inquiry would give people directly affected by sodium valproate an 'opportunity to have their voices heard'. She welcomed the commencement of the inquiry, which was announced last year by her predecessor, Stephen Donnelly. She said she recently met the Organisation Anticonvulsant Syndromes Ireland (OACS Ireland), a campaign group dedicated to supporting and advocating for families affected by foetal anticonvulsant syndrome. 'I know this is an important day for them and the families they represent,' Ms Carroll MacNeill said. 'I have every confidence that the chair will conduct an independent and fair inquiry and finally get answers for those affected and their families.' The inquiry, involving three distinct phases, is chaired by barrister Bríd O'Flaherty. The Department of Health said it envisaged she would spend 12 to 18 months conducting an 'independent, fair and rigorous process'. The first phase will establish a timeline for the use of sodium valproate in women of childbearing potential in the State, including information on regulation, prescribing, dispensing and safety information issued. The inquiry will document the evolution of the drug's regulation and practices around its control. The second phase will focus on oral statements from people diagnosed with FVSD, their mothers and other family members. The final strand will assess the health service's capacity to respond to safety issues related to the use of anti-seizure medications in women of child-bearing potential.
The Journal
3 days ago
- Health
- The Journal
'The real work starts now': Long-awaited inquiry into drug that causes birth defects begins
A LONG-AWAITED inquiry into an antiepileptic drug that can cause serious birth defects if used during pregnancy has finally gotten underway, nearly five years after the Government committed to holding one. The non-statutory inquiry into the historical licensing and use of sodium valproate will have three strands, with statements from those affected by the drug expected to be taken from September. Health Minister Jennifer Carroll MacNeill has welcomed the commencement, saying that it 'will give those directly affected by sodium valproate an opportunity to have their voices heard'. The inquiry was approved by Cabinet in July 2023 , almost three years after the then-health minister Stephen Donnelly committed to holding a probe into the drug. Barrister and mediator Bríd Flaherty was announced as the chairperson of the non-statutory inquiry in June 2024, with Donnelly saying at the time that he intended to get it up and running ' in a matter of weeks ', but this did not take place. The delay in the commencement of the inquiry is understood to have been due to the fact that the data regulations had yet to be finalised. Sodium valproate can cause serious birth defects and developmental disorders to an infant if taken during pregnancy and women have been advised against using it unless no other treatment is possible. The drug was prescribed in Ireland and elsewhere for years after the danger was discovered and many countries are now investigating its use. Today, the Health Products Regulatory Authority (HPRA) states that the drug can cause birth defects and problems with the development and learning of the child if their mother takes it during pregnancy. Advertisement Children exposed to the drug while in the womb are at a high risk of serious developmental disorders (in up to 30-40% of cases) and congenital malformations (in approximately 10% of cases). Symptoms of fetal valproate syndrome (FVS) vary, but can include characteristic facial features, spina bifida, congenital heart defects, cleft lip and/or cleft palate, genital abnormalities, skeletal abnormalities and developmental delay. The drug's risk to infants has been made public in recent years, but campaigners in the UK found documents in the National Archives that indicated health regulators were aware of the risk as far back as 1973 but chose not to warn patients, saying it 'could give rise to fruitless anxiety'. A HSE report published in 2018 estimated that 1,250 children have been affected by valproate since 1975 in Ireland. In 2021, an investigation by The Journal Investigates found that around 3,000 Irish children were potentially harmed by exposure to the drug in the womb. Read The Journal Investigates's investigation into the valproate scandal . Last January, doctors began informing men of the potential risks that taking sodium valproate can have on their future children before prescribing it to them following precautionary measures recommended by the European Medicines Agency. Inquiry The Department of Health said the inquiry will have three strands. The first strand will be the review phase, which will establish a timeline for the use of sodium valproate in Ireland 'in women of childbearing potential including information on regulation, prescribing, dispensing and safety information issued'. The inquiry will seek to document the evolution of the regulation of the drug and the practices around the control of it. The Department said the inquiry 'will have responsibility to request documentation and submissions from a range of stakeholders', and the chair will record 'difficulties encountered where such requests are refused as part of their reporting function'. The second strand of the inquiry will seek oral statements from anyone impacted by the use of the drug, including people diagnosed with Foetal Valproate Spectrum Disorder (FVSD), their mothers and other family members who may wish to participate. This is anticipated to begin in September. Anyone who wishes to take part in this strand of the inquiry can register their interest on its website . These sessions will be held in private, and other stakeholders may also be invited to provide oral statements in separate sessions. Related Reads Chairperson appointed to probe into drug that causes birth defects after almost a year's delay Six months on, chairperson yet to be appointed to inquiry into drug that causes birth defects Doctors to inform men taking sodium valproate of risks to unborn children The third strand will focus on assessing the health service's current capacity to respond to safety issues 'related to use of anti-seizure medications (ASMs) in women of childbearing potential'. This will involve an assessment of the current systems in place to respond, disseminate and implement measures that address these potential safety issues, the development of other recommendations regarding current control systems for sodium valproate and other ASMs, and the services and supports for those impacted by sodium valproate. The Department said the results of this assessment will inform future service development. A communications campaign will be launched in the coming weeks to raise public awareness and support engagement with the inquiry. 'The real work starts now' Last month, when the inquiry had yet to commence, the Organisation for Anticonvulsant Syndromes (OACS) Ireland group, which supports families that have been impacted by the drug, told The Journal that it was seeking a meeting with the Minister for Health to discuss the status of the inquiry. Today, Carroll MacNeill said she was 'grateful' to meet with OACS Ireland recently 'and I know this is an important day for them and the families they represent'. 'I have every confidence that the Chair will conduct an independent and fair Inquiry and finally get answers for those affected and their families,' she said. In a statement, chair of OACS Ireland Karen Keely, whose three adult sons have been affected by exposure to sodium valproate, said: 'The real work starts now. 'The Inquiry will draw a spotlight on a public health issue which, whilst life-changing, is perhaps not as well known or understood by the public as other public health issues,' Keely said. Solicitor Ciara McPhillips, who represents OACS Ireland within the inquiry process, said: 'Together with OACS, I look forward to working with all stakeholders under the stewardship of the Chair to ensure those affected understand how it arose that women and mothers were prescribed a medication, which whilst very effective in preventing seizures, was so devastatingly detrimental to their children – many of whom will never live independent lives.' Readers like you are keeping these stories free for everyone... A mix of advertising and supporting contributions helps keep paywalls away from valuable information like this article. Over 5,000 readers like you have already stepped up and support us with a monthly payment or a once-off donation. Learn More Support The Journal
Irish Independent
4 days ago
- Entertainment
- Irish Independent
Suzanne Crowe: Level of churn at the top of the HSE is unsettling for all
The most fascinating aspect of the responses to quotes from Stephen Donnelly at the MacGill Summer School last week is that there was a reaction at all.
