Latest news with #WorldMultipleSclerosisDay
New Indian Express
8 hours ago
- Health
- New Indian Express
MS awareness programmes end with a meet
It starts with blurry vision, numbness in your legs, body weakness, imbalance, bladder issues and fatigue. Even when people visit a general physician with some symptoms of this disease, it goes missed,' pointed out Dr Venkataraman Karthikeyan, consultant neurologist at Kauvery Hospitals. In discussion was Multiple Sclerosis (MS), an autoimmune disease, 'where your own immunological system has gone rogue and the system which it wants to protect, it is going and hitting.' The neurologist was speaking at the awareness meeting about Multiple Sclerosis to empower persons with the disease, conducted by the Multiple Sclerosis Society of India (MSSI) Chennai Chapter on Friday at Anna Nagar Tower Park. World Multiple Sclerosis Day is celebrated on May 30 every year. The theme for this year's World MS Day was 'Navigating MS together - My MS diagnosis'. To spread awareness, the organisation had been conducting a range of activities throughout May, including neurographic art, transforming one's traumatic diagnosis into a colourful storybook, interaction with neurologists, energising yoga therapy, counselling, and brain lab sessions, as well as public awareness programmes at Chennai Airport and radio talk shows.
The Hindu
3 days ago
- Health
- The Hindu
On World MS Day, Chennai Chapter of MSSI raises awareness
To mark the World Multiple Sclerosis Day which falls on May 30 every year, the Multiple Sclerosis Society of India (MSSI ) Chennai Chapter held an awareness campaign on Friday at Anna Nagar Tower Park. 'The theme of World MS Day 2025 is 'My MS Diagnosis' which puts an emphasis on how to diagnose MS, a neuro degenerative disorder. The program is held at the park to create awareness among the general public about Multiple Sclerosis and how quickly they should consult a neurologist,' says Ann Gonsalvez, founder member of the Chennai chapter. 'To de-stress persons living with MS, we have yoga therapy, art therapy, fatigue management, and more - which is also why we have brought music today,' she said. 'The Multiple Sclerosis mainly affects people aged 18-40, and it tends to affect women more. But as a society, there is only limited awareness about it. If it is detected early and treated, people affected can live just like anyone else,' said Dr Venkatraman Karthikeayan, Consultant Neurologist at Kauvery Hospital. 'The MSSI Chennai Chapter hopes to continue improving the quality of life for those affected. There are many people who are unaware of the treatments available for MS, which is why campaigns like these are important,' said Archana Ganesan, a member with MS condition. Around 40 members of MSSI and individuals with MS condition attended the event.
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Business Standard
3 days ago
- Health
- Business Standard
Multiple Sclerosis in India: Symptoms, diagnosis, treatment, cost explained
Multiple Sclerosis (MS) is a chronic disease where the immune system mistakenly attacks the protective covering (myelin) of nerve fibres in the brain and spinal cord. This disrupts nerve signals, causing fatigue, numbness, vision issues, balance problems, and cognitive difficulties. We spoke to leading neurologists, Dr M V Padma from Paras Health and Dr S Mohandas from KIMS Hospital, Secunderabad, to under the disease on World Multiple Sclerosis Day 2025. 'While MS is still considered rare in India, we're now seeing a shift toward moderate prevalence,' said Dr Padma. 'Currently, an estimated 150,000 to 200,000 people live with MS in India, most of them women between 20 and 40 years old.' Vitamin D deficiency, genetic predispositions, lifestyle changes, and higher stress levels may contribute to this increasing prevalence, according to Dr Padma. 'Indians also show a higher frequency of certain HLA-DRB1 gene alleles associated with MS compared to Western populations,' she added. What are the first signs of Multiple Sclerosis, and when should you see a doctor? MS symptoms can be different for each person. Early signs may include: Fatigue Muscle weakness or numbness Vision problems Loss of balance Cognitive difficulties 'If you experience these symptoms, especially more than one, you should consult a neurologist right away,' advised Dr Padma. Left untreated, MS can lead to irreversible disability. How is Multiple Sclerosis diagnosed in India? Diagnosis combines clinical assessments and tests, using the McDonald criteria. The key diagnostic tools include: Magnetic Resonance Imaging (MRI) scans: Identify lesions in the brain and spine Cerebrospinal fluid analysis: Detects immune system markers like oligoclonal bands (OCBs) Evoked potential tests: Measure nerve response times Blood tests: Rule out similar conditions 'A correct diagnosis often hinges on piecing together history, neurological exams, and imaging results,' Dr Padma explained. What treatment options are available for Multiple Sclerosis in India? The mainstay of MS treatment is Disease-Modifying Therapies (DMTs), which help reduce relapses and slow down progression. 'There are injectable, oral, and high-efficacy infusion-based therapies (HETs) available in India,' said Dr Padma. 'HETs are particularly effective and should not be reserved for later stages, starting them early can significantly improve long-term outcomes.' Despite their benefits, HETs are underused in India. 'Only about 10 per cent of Indian MS patients currently access HETs,' she added. Along with this, Ocrevus, a high-efficacy, FDA-approved drug, is now available in India. 'Roche Pharma India launched it in December 2023,' said Dr Mohandas. It's the first and only drug approved for both Relapsing-Remitting MS (RRMS) and Primary Progressive MS (PPMS) in India. It's given twice a year as an IV infusion, making it easier to adhere to than daily or weekly medications. What does Multiple Sclerosis treatment cost in India? The cost varies widely. 'You can't evaluate treatment just by the price of the drug,' said Dr Mohandas. 'You must consider the total cost, consultations, physiotherapy, diagnostics, and missed work days.' Annual costs for MS treatment, especially with HETs like Ocrevus, can be substantial. However, many pharmaceutical companies offer patient assistance programs. 'Roche's Blue Tree Program, for instance, offers services and sometimes free drug support to eligible patients,' he noted. Are there any insurance or government schemes to help Multiple Sclerosis patients? Insurance coverage for chronic conditions like MS remains limited in India. 'We need more inclusive insurance policies tailored to MS,' said Dr Mohandas. The process of getting disability certificates is also challenging due to a lack of standardised assessment for MS-specific impairments like fatigue or cognitive issues. Some pharma companies are stepping in with patient support programs, but systemic reforms are needed. Does Ayurveda or alternative medicine help with Multiple Sclerosis? Ayurveda, homoeopathy, and other alternative treatments are often used in India as complementary therapies. 'Ayurveda focuses on lifestyle regulation and herbal formulations for managing symptoms,' Dr Padma noted. However, scientific evidence supporting their effectiveness remains limited. 'While culturally significant, these should be seen as adjuncts and not replacements for evidence-based therapies,' she emphasised. How important are physiotherapy and rehab in Multiple Sclerosis? Very. 'Physiotherapy plays a crucial role in maintaining mobility, strength, and independence,' said Dr Mohandas. Tailored exercise routines, balance training, and gait improvement can greatly enhance quality of life. Supportive care options like occupational therapy, counselling, and speech therapy are also valuable. What lifestyle changes can help Multiple Sclerosis patients? Here's what both doctors recommend: Diet: A balanced, anti-inflammatory diet rich in vegetables, whole grains, lean proteins, and omega-3s Exercise: Gentle activities like walking, swimming, or yoga Mental health: Counseling, mindfulness, and support groups like MSSI 'Patients should also ensure good sleep, reduce stress, avoid smoking and alcohol, and involve supportive family and caregivers,' said Dr Mohandas. How do you recognise and manage a Multiple Sclerosis relapse? A relapse is defined as new or worsening symptoms lasting at least 24 hours, separated by 30 days from a previous episode. 'Patients should contact their neurologist immediately if they suspect a relapse,' said Dr Mohandas. Early intervention can reduce the severity of attacks and improve recovery. How often should patients get check-ups or MRIs? Monitoring disease activity is essential. 'MS patients should have a clinical neurological exam every 6 to 12 months,' said Dr Padma. MRI scans are typically done annually or when new symptoms appear. What is the long-term outlook for Multiple Sclerosis patients in India? Thanks to modern therapies, MS is no longer as disabling as it once was. 'With early diagnosis and the right treatment plan, many people with MS can lead productive lives,' said Dr Mohandas.
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Business Standard
3 days ago
- Health
- Business Standard
World Multiple Sclerosis Day 2025: History, significance, theme and more
World Multiple Sclerosis Day 2025, observed on May 30, is a global initiative to raise awareness about multiple sclerosis (MS), a chronic, often disabling neurological condition. Established by the Multiple Sclerosis International Federation (MSIF) in 2009, this day unites the global MS community to share stories, advocate for change, and promote access to early diagnosis and care. World MS Day is coordinated by the MS International Federation in collaboration with its members and partners worldwide. What is multiple sclerosis? Multiple sclerosis is a chronic neurological condition where the immune system mistakenly attacks the protective covering of nerve fibres, leading to communication problems between the brain and the rest of the body. Symptoms can vary widely, including fatigue, mobility issues, and cognitive challenges, making early diagnosis and intervention crucial. Why is World MS Day observed on May 30? According to the World MS Day campaign website, the choice of May 30 as World MS Day holds symbolic significance. In 2009, mountaineer Lori Schneider became the first person with MS to summit Mount Everest. Her achievement exemplified the resilience and determination of those living with MS, inspiring the selection of this date to honour their strength and perseverance. What is the theme of World MS Day 2025? The theme for World MS Day 2025 continues the focus on diagnosis, under the campaign titled 'My MS Diagnosis' with the tagline ' Navigating MS Together.' This theme emphasises the importance of early and accurate diagnosis, highlighting the challenges individuals face in obtaining a timely diagnosis and the impact it has on their lives.
News18
3 days ago
- Health
- News18
World Multiple Sclerosis Day 2025: Symptoms And Causes You Must Be Aware Of
Last Updated: World Multiple Sclerosis Day 2025: MS affects millions globally and remains a chronic, often disabling disease surrounded by stigma and misunderstanding. World Multiple Sclerosis Day 2025: Observed globally on May 30 every year, World Multiple Sclerosis Day is a dedicated healthcare awareness event. Its primary goal is to highlight the significant financial, social, and cultural challenges faced by individuals affected by multiple sclerosis. Beyond raising awareness, the day emphasises the importance of fostering inclusion, acceptance, and comprehensive support for people living with this chronic neurological condition, encouraging communities and policymakers alike to promote understanding and improve the quality of life for those impacted. Multiple sclerosis (MS) is among the most common disorders impacting the central nervous system. According to the World MS Day website, the estimated number of people living with MS worldwide is approximately 2.9 million. MS is characterised as an inflammatory disease that causes demyelination. It affects a fatty substance called myelin, which normally surrounds and protects nerve fibres. The loss of myelin disrupts the nerves' ability to transmit electrical signals to and from the brain effectively. Common symptoms of MS include blurred or disoriented vision, tingling sensations in the limbs, tremors, memory difficulties, and persistent fatigue. World Multiple Sclerosis Day 2025: Theme The theme for World MS Day from 2024 to 2026 is focused on diagnosis. The campaign is titled My MS Diagnosis, with the tagline Navigating MS Together, emphasising shared support and understanding throughout the diagnosis journey. The My MS Diagnosis campaign promotes the importance of early and accurate diagnosis for all individuals living with multiple sclerosis. It sheds light on the worldwide obstacles faced in diagnosing MS, aiming to increase awareness by sharing authentic personal stories and relevant data from around the globe. Founded in 2009, the first World MS Day was initiated by the MS International Federation (MSIF), a distinctive global network comprising various MS organisations. This federation offers support to individuals affected by multiple sclerosis through a dedicated team of staff and volunteers around the world. The MSIF includes representatives from many countries, such as Greece, Argentina, Australia, the United States, India, Kenya, Tunisia, the United Kingdom, and Spain, reflecting its broad international reach. World MS Day holds great significance as it offers a vital platform to educate the public about multiple sclerosis and the challenges faced by those living with the condition. MS affects millions globally and remains a chronic, often disabling disease surrounded by stigma and misunderstanding. By observing World MS Day, we help break down these barriers, promote greater empathy, and encourage stronger support for individuals impacted by MS, ultimately fostering a more inclusive and compassionate society. World Multiple Sclerosis Day 2025: Symptoms Common symptoms of Multiple Sclerosis include: It's important to note that not everyone with MS will experience these symptoms, as the disease can vary from person to person. World Multiple Sclerosis Day 2025: Causes The exact cause of this neurological disorder remains unclear. Multiple sclerosis can affect individuals at any age, though it is most often diagnosed in people between 20 and 40 years old. Women are two to three times more likely than men to develop relapsing-remitting MS. A family history of multiple sclerosis increases the risk of developing the disease. Certain infections, such as Epstein-Barr virus—which causes infectious mononucleosis—have been linked to MS. Additionally, factors like low vitamin D levels, limited sunlight exposure, obesity, smoking, and the presence of certain autoimmune conditions (including thyroid disease, pernicious anaemia, psoriasis, type 1 diabetes, or inflammatory bowel disease) may also elevate the risk of developing MS. World Multiple Sclerosis Day 2025: Diagnosis To diagnose multiple sclerosis, a thorough physical examination of the patient is conducted. Doctors often recommend blood tests and imaging studies, such as MRI scans, to help detect signs of the disease. Additionally, if needed, an evoked potential test may be performed to assess nerve function by measuring the electrical activity in the brain and spinal cord, providing further insight into how well the nerves are working. top videos View all World Multiple Sclerosis Day 2025: Treatment There are now advanced immunomodulator-based therapies available for patients with multiple sclerosis, many of which can be taken orally, making treatment more convenient. To help manage symptoms effectively, patients are also encouraged to maintain physical fitness and strength through regular exercise and a healthy lifestyle. First Published:
