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$24M research project looks to improve care Indigenous people with dementia
$24M research project looks to improve care Indigenous people with dementia

CBC

time28-05-2025

  • General
  • CBC

$24M research project looks to improve care Indigenous people with dementia

When Elizabeth Edgar-Webkamigad's mother first showed signs of dementia, it was a long and difficult process to get a diagnosis. "It was right smack in the middle of COVID," said Edgar-Webkamigad, who lives in Sault Ste. Marie, Ont. Because her mom started to show signs of dementia in the middle of a global pandemic, it took time just to get an appointment with a family doctor. But to get a brain health assessment, Edgar-Webkamigad's mother had to be referred to a geriatrician. "It took almost a year to get that actually happening," she said. Even after her mother's diagnosis, her care didn't always recognize her culture and the trauma she experienced attending the Spanish Indian Residential School for Girls. A doctor told Edgar-Webkamigad her mom was lashing out when a personal support worker tried to bathe her. "I can tell you in most of my life, I saw my mom bathe maybe a handful of times," she said. That was because her mother had traumatic experiences in residential school, and later a tuberculosis hospital (although she was never diagnosed with the disease) while bathing. "For her, bathing time was not a sacred time," Edgar-Webkamigad said. "It was a time where violence was introduced. It was a time where body shaming happened. It was a time where abuse happened." Because of those experiences she had sponge baths for most of her life. Edgar-Webkamigad said the health care system should do better at recognizing Indigenous traditions and medicines. She mentioned that in her part of northeastern Ontario, for example, there's a plant-based medicine that has a calming effect and has been used for generations to help people with dementia. Creating care 'bundles' Now Edgar-Webkamigad is sharing her family's experiences with a $24-million research project that spans seven universities across Canada along with several Indigenous organizations, such as the Maamwesying North Shore Community Health Services and the Métis Nation of Alberta. The Indigenous Brain Health Assessment Bundle Project has received funding from the New Frontiers in Research Fund to create bundles, which are region-specific resources for health care providers to provide culturally appropriate care for people who are showing signs of dementia. Sharlene Webkamigad, Edgar-Webkamigad's niece, is a researcher at Laurentian University who is involved in the project. She's been meeting with people like her aunt to hear their stories and help find better ways for the health system to care for their loved ones. "I've been hearing about the importance of healthcare professionals having knowledge of those more culturally specific ways of approaching somebody who has dementia, including the care for them within long term care facilities," Webkamigad said. The research project will span six years.

Boomers have a drug problem, but not the kind you might think
Boomers have a drug problem, but not the kind you might think

Yahoo

time18-05-2025

  • Health
  • Yahoo

Boomers have a drug problem, but not the kind you might think

Baby boomers – that's anyone born in the U.S. between 1946 and 1964 – are 20% of the population, more than 70 million Americans. Decades ago, many in that generation experimented with drugs that were both recreational and illegal. Although boomers may not be using those same drugs today, many are taking medications, often several of them. And even if those drugs are legal, there are still risks of interactions and side effects. The taking of multiple medications is called polypharmacy, typically four or more at the same time. That includes prescriptions from doctors, over-the-counter medicines, supplements and herbs. Sometimes, polypharmacy can be dangerous. I am a geriatrician, one of only 7,500 in the U.S. That's not nearly enough to accommodate the surging number of elderly boomers who will need medical care over the next two to three decades – or help in dealing with the potential problems of multiple drug use. We geriatricians know that polypharmacy isn't always bad; multiple medications may be necessary. If you've had a heart attack, you might be on four medications or more – beta-blockers, ACE inhibitors, statins and aspirin, for instance. And that's appropriate. But about half of older adults take at least one medication that's not necessary or no longer needed. Doctors need to periodically reevaluate to make sure each medication is still right for the patient and still the correct dose. During treatment, the patient's weight may fluctuate, either up or down. Even if it stays the same, body composition might change; that occurs as people age. As a result, one may react differently to a drug. That can happen even with a medication a person has been on for years. Polypharmacy often means higher health care costs and more drug interactions. Patients are more likely to miss medications or stop taking them altogether. Sometimes, physical activity diminshes; falls, cognitive impairment, malnourishment and urinary incontinence increase; there may be less ability to do daily tasks. Those on five or more medications have a much higher incidence of having an ADE – an adverse drug event – compared to those using fewer meds. Making matters worse, the symptoms of polypharmacy are sometimes masked and taken as signs of aging. Studies have suggested solutions, with better coordination among care providers being one. Making the pharmacist an integral part of routine care is another. The increasing use of electronic patient records helps. So do smartphone apps, sometimes an easier way for patients and providers to connect. But so far, there's no magic pill, and as researchers and clinicians investigate improvements, much of the burden remains on patients and their families. There are steps you can take to stay safe, however. Regularly clean out the medicine cabinet and get rid of expired medicines or those you're no longer taking. Either throw them away or ask your doctor or pharmacist about the best way to dispose of them. When seeing the doctor, bring in the meds you take and review each one in detail. Make certain you need to continue taking them all and verify the right dose. You can also check the PIMs list, also known as the Beer's List. Published by the American Geriatric Society, it's an index of medications potentially harmful to the elderly. Some are linked to increased risks of side effects, and not a few are sold over-the-counter without prescription. That includes medicines containing antihistamines like diphenhydramine, or Benadryl. In the elderly population, Benadryl carries an increased risk of dizziness, confusion and urinary retention. Medicines that are part of the NSAID family (nonsteroidal anti-inflammatory drugs) are also on the list. In some elderly patients, they can cause high blood pressure or kidney failure. Commonly used medicines in the NSAID family are those containing ibuprofen or naproxen. Just because a medicine is on the Beer's List doesn't mean your doctor was wrong to prescribe it, or that you should stop using it. Instead, use the medication with caution and discuss with your doctor to make sure you need it. Determine with your doctor the lowest useful dose, monitor for side effects, and speak up if you have any. As a geriatrician, I see patients in an outpatient setting, either as their primary care provider or as a specialist consultant. We review medications at every visit: the list, the dose and how often the patient is taking it. A true and accurate medication list is the critical first step in geriatric care. This is especially important during care transitions, such as when a patient is coming out of the hospital or nursing home. Particularly at that time, we find out if the patient is using the medication as prescribed, or taking it more frequently or less or not at all. Which leads to my final piece of advice: If you've strayed with your meds, one way or another, know that we doctors don't judge or punish patients. Just tell us the truth. That's all we want to hear. Then we can move forward together to find the best regimen for you. This article is republished from The Conversation, a nonprofit, independent news organization bringing you facts and trustworthy analysis to help you make sense of our complex world. It was written by: Laurie Archbald-Pannone, University of Virginia Read more: To tackle gendered violence, we also need to look at drugs, trauma and mental health Do we really need to burp babies? Here's what the research says What are heart rate zones, and how can you incorporate them into your exercise routine? Laurie Archbald-Pannone is affiliated with American Geriatrics Society.

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