Latest news with #lockedinsyndrome
BreakingNews.ie
2 days ago
- Health
- BreakingNews.ie
Cork woman who had locked in syndrome since 2008 dies
A woman who was diagnosed with a rare syndrome in 2008 which rendered her aware and awake but unable to move or communicate has died. Catherine O'Leary of Carrigaline, Cork was 32 years old when she developed locked in syndrome after she suffered a stroke during surgery to remove a brain tumour. Advertisement In a post on the Catherine O'Leary Facebook page her family confirmed that the mother of one had passed away this morning. 'It is with great sadness that our beloved Catherine passed away peacefully this morning, surrounded by family. She will be deeply missed by all who knew and loved her.' When Catherine was first diagnosed she spent time in a high dependency bed at Cork University Hospital (CUH) before being flown to a rehabilitative facility in Putney in the UK for treatment. She initially responded well to the rehabilitation treatment at the Royal Hospital for Disabilities in Putney. However, in October 2008 she stopped breathing and lapsed into a deep coma. Advertisement Doctors told her family there was little or no hope for her. However, she regained consciousness and was subsequently flown back to CUH. Catherine was a patient at CUH for a further four years. She spent a year and a half as a full-time resident in Farranlee House Community Nursing Unit in Cork before being brought home to Carrigaline in September 2014. Catherine required 24 hour care, could only communicate by blinking and was fed through a tube. In 2013 her father Pat and his family took the HSE to court on Catherine's behalf, claiming a late brain tumour diagnosis in CUH was the reason for her condition. The HSE denied these claims. Advertisement The O'Leary family was awarded a settlement of €2.5 million following the High Court battle with the HSE. Catherine was a former manager of a branch of Subway in Ballincollig, Co Cork. Pat O'Leary previously told the Irish Examiner that the decline in Catherine all started with a case of hiccoughs in 2005. Catherine couldn't shake them off. They were persistent to the point of annoyance, and so she was referred to a clinic in CUH. Mr O'Leary said that 'they kept putting it down to reflux in her stomach'. By Nov 2007, by which time Catherine had lost weight and been suffering serious headaches, she had had enough, returning to the clinic and demanding a brain scan. Advertisement Mr O'Leary told the Examiner in 2013 that the scan found a non-cancerous tumour on her brain stem. 'We knew at the start, from what the neurologist said, it was going to be a difficult operation... Where the actual tumour was, it was on the brain stem. It was affecting all her organs, her eating, her movements — she would have been dead in three weeks otherwise.' Mr O'Leary and his wife Margaret campaigned tirelessly on behalf of their daughter. The family created a GoFundMe page in 2021 to help pay for a new vital signs monitor for Catherine. The old one needed to be replaced as the model had become obsolete and was beginning to damage her fingers. The doctors' grim prognosis that Catherine would not live beyond ten years later formed the basis of a damages settlement. Advertisement But the award — which effectively predicted Catherine would die before 2017 — didn't take into account her battling spirit which saw her exceed medical expectations. In 2018 Mr O'Leary told Primetime on RTE that people often asked him if they were able to communicate in any way with Catherine. 'People say 'does she understand you? We are there. We are talking to her as if she understands everything. But I mean there is a certain amount of interaction. When she wakes up she looks at the ceiling and sees all her lovely photographs of her son and herself and you would see her smiling and her eyes travelling around the ceiling looking.' He described his daughter as a 'fighter' and cared for her until the end. Funeral arrangements will be finalised in the coming days for Ms O'Leary.
Irish Times
2 days ago
- Health
- Irish Times
Cork woman who lived with rare locked-in syndrome since 2008 dies
A woman who was diagnosed in 2008 with a rare syndrome that rendered her aware and awake but unable to move has died aged 49. Catherine O'Leary, of Carrigaline, Cork , was 32 years old when she developed locked-in syndrome after she suffered a stroke during surgery to remove a brain tumour. Her family confirmed the mother-of-one died this morning. 'It is with great sadness that our beloved Catherine passed away peacefully this morning, surrounded by family. She will be deeply missed by all who knew and loved her,' their post on the Catherine O'Leary Facebook page said. READ MORE When Ms O'Leary was first diagnosed she spent time in a high dependency bed at Cork University Hospital (CUH) before being flown to a rehabilitative facility in Putney, England. She initially responded well to the rehabilitation treatment at the Royal Hospital for Disabilities. However, in October 2008 she stopped breathing and lapsed into a deep coma. Doctors told her family there was little or no hope for her. However, she regained consciousness and was flown back to CUH. Ms O'Leary was a patient at CUH for a further four years. She spent time in a nursing unit before she was brought home in September 2014. She required 24-hour care, could only communicate by blinking and was fed through a tube. The O'Leary family secured €2.5 million in settlement of a High Court against the HSE in 2013. They claimed her condition was caused by a late diagnosis of a brain tumour. The HSE denied the allegations. The case alleged Ms O'Leary was first referred to CUH in late 2005 with continuous hiccoughs that had persisted for three months. No cause for the hiccups was found through investigations in 2006 and 2007, over which period she continued to experience these, plus headaches and she lost weight. A scan in January 2008 identified a brain tumour and she underwent surgery that month, the case alleged. Ms O'Leary's parents Pat and Margaret campaigned tirelessly on her behalf. In 2018, Mr O'Leary told RTÉ's Primetime that people often asked him if they were able to communicate in any way with Catherine. 'People say: 'Does she understand you?' We are there. We are talking to her as if she understands everything. But I mean there is a certain amount of interaction. 'When she wakes up she looks at the ceiling and sees all her lovely photographs of her son and herself and you would see her smiling and her eyes travelling around the ceiling looking,' he said. He described his daughter as a 'fighter' and cared for her until her death.
Daily Mail
13-07-2025
- Health
- Daily Mail
It started with tingling hands. Then Mallory was plunged into a 'waking coma' unable even to scream. What she heard still haunts her...
It's the stuff of nightmares. Fully conscious, aware of everything and everyone yet unable to move, communicate, or even breathe unassisted. Some call it 'locked in syndrome.' Mallory Wilkerson refers to it as a 'waking coma', and it was her horrifying reality for three agonizing months back in the fall of 2024.
News.com.au
21-06-2025
- Health
- News.com.au
Man's horror ‘locked in' syndrome after error
A young man is now locked in a nightmare after his livelihood was stolen by negligent doctors. Jonathan Buckelew, 34, has been awarded a staggering $75 million (AU $116 million) in damages after multiple physicians failed to diagnose his life-threatening stroke, leaving him paralysed from head to toe for the rest of his life. Jonathan was rushed to North Fulton Hospital on October 26, 2015, after falling unconscious during a chiropractic neck adjustment, New York Post reported. Despite the emergency response, almost every physician who came into contact failed to clock Jonathan's stroke. Their lackadaisical care led the patient in his mid-20s to develop horrific locked-in syndrome, leaving him unable to move or talk despite having full consciousness. 'This case is heartbreaking because Jonathan's paralysis and brain damage were completely avoidable,' said Jonathan's lawyer, Lloyd Bell, in a statement made following the Georgia Court of Appeals' decision to uphold a verdict in their favour last March. 'If the slew of healthcare providers involved in Jonathan's care would have acted according to the standard of care, caught and treated his stroke earlier, and communicated more effectively, Jonathan's life would look entirely different.' The Buckelews sued the chiropractor, the hospital, Dr. Matthew Womack, radiologist James Waldschmidt and neurologist Christopher Nickum for their failure to catch Jonathan's stroke — the rapid treatment of which could have prevented his tragic outcome. A Fulton County state court found Womack and Waldschmidt guilty of malpractice, ordering the former to hand over $40 million. Jonathan was ultimately awarded $29 million in past and future medical expenses and $46 million for pain and suffering, per court documents. Jonathan is now restricted to communication through eye movements and a keypad that he manages to use with his nose. His parents, Jack and Janice, have turned their home into a 24-hour care centre for their debilitated son. 'I really feel like there's no real justice for somebody who lost every aspect of his life,' Jack, told CBS affiliate Atlanta News First. 'He wants to do things, he wants to go places — it just breaks our heart to see him like he is,' the desperate father continued. 'There are some days where he's like 'pull the plug,' so those are the tough days.' Jonathan's counsel has blamed the hospital staff for not following standard procedure. 'The ER doctor saw this patient was having all these signs and symptoms of stroke and never called a stroke alert, and they had policies in place that they were supposed to follow certain protocols to reach the correct diagnosis, and they didn't follow their policies and procedures,' Bell said.
