Latest news with #osteochondroma

The Sun

Our sporty 11-year-old's ‘growing pains' were the first sign of horrifying diagnosis that's blown our lives apart

ISABELLE Vella's parents were devastated to discover their 11-year-old daughter's 'growing pains' were actually an aggressive form of bone cancer. 'We just couldn't believe it,' her dad, Al Vella, said. 'My wife collapsed at the hospital.' 7 Before the diagnosis, Isabelle, from Cambridge, was a carefree, adventurous girl who loved triathlons and spending time with friends. So when she started complaining of leg pain in April, her parents assumed it was just growing pains or a sports injury from training. But after a GP visit and an X-ray, their world was turned upside down, Isabelle was diagnosed with osteochondroma, a rare bone cancer. The condition affects up to 35 children a year in the UK and usually begins at the ends of long bones, where new bone grows during childhood. "The ironic thing is, before the appointment she asked, 'Is it cancer?' and we told her not to be so ridiculous," the dad said. Isabelle is now in her second round of chemotherapy and faces lifechanging surgery in August. Doctors will either amputate her leg or try to save it using bone grafts or metal implants. Despite everything, Isabelle has stayed upbeat. Just a week after her diagnosis, she sat her Grade 3 drumming exam and passed with Merit. 'She won't be able to do triathlons or contact sports anymore,' said her dad, Al Vella. Childhood cancer explained "I have no doubt that she'll find a wheelchair sport in the future, maybe even go towards something like the Paralympics." Her treatment has been gruelling, leaving her with a feeding tube and frozen ovaries to protect her chances of having children later in life. "She has a massive zest for life but what has been taken away from her has completely destroyed us," he added/ "We have no option but to carry on and be strong for her. 'Devastating' Mum Faye Vella said watching her daughter go through treatment has been "totally heartbreaking." "It was such a shock to see how poorly the chemo made her," she saud, "It is devastating seeing your lovely child confined to her bed and not even be able to talk because they feel so ill," she added. With Isabelle's ongoing recovery set to take several years, her devastated parents have now set up a GoFundMe page. 7 7 7 They say it will help contribute towards specialist therapies, possible prosthetics, wheelchairs, equipment and even the high likelihood that they will need to adapt their home. Faye praised the staff at Addenbrooke's Hospital who have helped them through. "The staff literally picked me up the floor and looked after us both," she said. She calls her cancer Voldemort Faye said she initially "naively" thought the pain was something minor, but now draws her strength from Isabelle. "She's one of a kind," the mum said. "She's scared, but she knows she has to get through this." The tween chooses not to use the word cancer, calling it Voldemort, a nod to Harry Potter. instead. "Despite the pain she's in, she is just so joyful and happy and manages to laugh and smile at things," Faye said.. Al, who had never heard of osteochondroma before Isabelle's diagnosis, is urging parents to trust their instincts if something feels wrong with their child. "My advice to others would be if you have any concerns, get it seen to," he said. "Any aches or pains with your kids, you just never know what it really could be. "Keep pursuing, if you think something could be wrong, don't give up in getting an answer. "We never could have imagined this could have been the outcome and are so glad we got it checked when we did'". 7 7 Red flag symptoms of bone cancers Osteosarcoma is the most common type of bone cancer in children. Osteosarcoma is the most common type of bone cancer in children. Tumours can appear in any bone in the body, but they mostly occur in the bones on either side of the knee and in the upper arm. It mainly affects children and young adults under the age of 25 and has a survival rate of 65 per cent, according to Children with Cancer UK. Ewing sarcoma is the second most common type of bone cancer in children that mainly affects legs, pelvis, arms and ribs. Children suffering from osteosarcoma or Ewing's sarcoma may experience: Bone pain – this may come and go initially but then become more persistent Tenderness Redness Swelling Fracture may occur after a minor injury at the site of the weakened bone According to CCLG, pain tends to be the most common symptom of bone cancer and this will often be worse at night. There may also be some swelling in the affected area if the tumour is close to the surface of the body and it may become tender to touch.