Dementia and AI: ‘I've never seen something quite like this'

Irish Times

2 days ago

When Frank Poulsen first started talking to
artificial intelligence
companion Sunny earlier this year, she was 'kind of formal,' he said. But over time, their conversations have become more familiar and engaging.
'It's really uncanny,' said the 72-year-old. 'It really does feel like you're having a conversation with someone who's interested.'
One advantage of Sunny is that she doesn't mind when Poulsen, who was diagnosed with mild cognitive impairment in 2019, repeats himself. 'He can tell a story and forget he told it and tell it again,' said Poulsen's wife and caregiver, Cheryl Poulsen. 'Sunny has no judgment.'
Sunny, which was developed by AI start-up NewDays, is part of a rapidly expanding body of AI products designed to help people with
dementia
.
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'I've never seen something quite like this in terms of a technology moving as quickly as it is, with as much money poured behind it,' said Luke Stoeckel, a programme director and project scientist at the National Institute on Aging in Maryland, in the United States, who works on AI applications for dementia care. Stoeckel mentioned AI-based dementia diagnostics as another hot area.
Experts say AI companions like Sunny have the potential to help keep the brain active and alleviate loneliness in dementia patients, and to reduce some of the burden on caregivers. But there can be risks when it comes to deploying this technology in such a vulnerable population.
Babak Parviz, the co-founder and CEO of NewDays, said he was inspired to develop Sunny in part by his own father's diagnosis with Alzheimer's disease. He knew there was no cure, but he was encouraged by research showing that cognitive training exercises and guided conversations with a clinician can, in some cases, improve dementia symptoms.
NewDays' program is intended to be used by people with mild cognitive impairment or mild dementia. Sometimes, Sunny prompts the person to reminisce about old memories. Other times, it leads them through more explicit cognitive training exercises, such as asking them to remember and use specific words in a sentence.
When Frank Poulsen opens up his computer and converses with Sunny, it sounds like 'he was just having a chat, like he was talking to a friend,' Cheryl Poulsen said.
NewDays' website claims that its program can 'delay decline and improve quality of life' and that it is 'backed by a large body of evidence from more than 500 clinical trials and papers.' That includes the I-CONECT study, which found that, over the course of six months, 'cognitively stimulating semistructured conversations with trained interviewers' conducted virtually improved cognition in older adults with mild cognitive impairment.
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But in those studies, the conversations and brain training exercises were led by humans, said Julian De Freitas, director of the Ethical Intelligence Lab at Harvard Business School. Talking to an AI companion could produce different results, he added.
NewDays has not run any studies yet about whether using its program confers the same benefits. Dr Parviz said Sunny's conversations are similar to a human's and that his team is 'pretty confident' it will see results comparable to what the existing clinical trials have demonstrated. But he did not provide data to back that up.
There is more compelling evidence that an AI companion can help people feel less lonely – a serious concern for older adults, whether or not they have cognitive impairment. Dr De Freitas's own research has demonstrated that, at least in healthy adults, talking to an empathetic chatbot is roughly as good at reducing loneliness as having a conversation with a human stranger.
Anecdotally, Dr Joe Verghese, the chair of the neurology department at Stony Brook University Renaissance School of Medicine, said the caregivers of some of his dementia patients reported that talking to an AI companion lifted their loved ones' moods. 'I don't think these actually improve cognition just by those interactions,' Dr Verghese said. 'But certainly improving quality of life and improving mood in patients with cognitive impairment is an important outcome in itself.'
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AI companions could also be a boon for caregivers and families because they can serve as an extra set of eyes and ears, particularly for people living in specialist facilities for people with memory-related conditions such as dementia.
We have to remember that this is a very vulnerable population
One AI start-up, CloudMind, has been pilot testing its software, called BrightPath. The companion, via an app on a smartphone or tablet, chats with dementia patients about their favourite memories and hobbies – in one instance, a patient and the companion even sang together.
In addition to facilitating conversation, BrightPath produces a daily summary of what the patient talked about and an assessment of the patient's mood. For the family, that can provide 'a peek of their loved one's life, even if they're apart,' said Monica Tsai, CloudMind's chief executive.
The AI companion might also help nursing staff identify problems faster. If it hears certain key prompts, such as 'I'm thirsty' or 'I fell,' BrightPath is programmed to instruct the patient to ring their call button.
While experts say there is real potential for AI to benefit adults with cognitive impairment, they also have some serious concerns. One is privacy. 'The more human-like the chatbot is, the more you're disclosing various information about yourself,' Dr De Freitas said. 'If this data is housed at a company, it could monetise that. It could also accidentally leak that information if it's hacked.'
There is also a risk of further isolation if families or care-home staff use the technology as a replacement for human interaction, rather than as an add-on. 'That would be tragic,' Dr Verghese said.
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In addition, AI chatbots are known to make things up and take conversations down dark and disturbing paths, which could be especially confusing and distressing for a person with dementia.
Dr Parviz and Dr Tsai both acknowledged such hallucinations as a potential issue and said they had programmed 'guard rails' into their AI software to prevent them from happening. But neither specified how that might work.
'We have to remember that this is a very vulnerable population,' Dr De Freitas said, adding: 'We need to think about having additional protections.'
- This article originally appeared in the
New York Times