I went to bed feeling fine but woke up paralysed – doctors blamed it on constipation but the truth was horrifying
SHATTERING DIAGNOSIS I went to bed feeling fine but woke up paralysed – doctors blamed it on constipation but the truth was horrifying
AS a parent with a full-time job and a busy social life playing football and seeing friends, Adam Dawer always had somewhere to be.
But when he went to bed feeling perfectly well one night and woke up unable to stand, it was the start of a nightmare which would lead to a shattering diagnosis for the busy father of five.
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Adam Dawer was a busy dad of five and always had somewhere to be
Credit: Cover Images
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Then his life turned upside down when he began experiencing vomiting and visual disturbances - 18 months later he was diagnosed with MS
Credit: Cover Images
Adam, 47, began experiencing vomiting and visual disturbances and initially thought he might have caught a bug.
But his symptoms didn't subside and continued for weeks.
Unable to stand up without being sick and increasingly concerned, he decided it was time to seek medical help.
'I was starting to worry it was cancer as cancer is a thing that has taken half of my family,' Adam, from Giffnock, East Renfrewshire, said.
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'But no-one could give me an answer, no matter where I went. I went to the GP first and I was told 'it could be this, it could be that'.
'The only one I really remember is 'you might be heavily constipated'. When he said that, I couldn't believe it. I said to my wife Sharon 'we need to go somewhere else'.'
It took Adam 18 months to be diagnosed with multiple sclerosis (MS) and, surprisingly, he felt relieved.
'When the doctor said to me, 'It sounds to me like multiple sclerosis,' I said, 'Thank God!'' Adam recalled.
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'And he said 'You do know what MS is?' And I said 'yeah, but it's not cancer.'
"We were at a different hospital and the minute we walked in there, it was as if somebody flicked a switch. From that moment on, life just got better. Regardless that I've got MS, at least I know what I'm dealing with.
Girl paralysed after giant critter feasted on her scalp
'I felt a big relief because I was thinking it was something that was going to kill me.'
Adam began to research the condition and decided to learn as much as he could.
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In denial
MS is an often disabling disease that affects the central nervous system (brain and spinal cord).
He admits for the first two to three years he was in denial and believed that his life didn't need to change.
For the first few years he had Relapsing Remitting MS (RRMS) and he had several disease-modifying drugs to help slow down the progression of the illness.
'Some worked and some didn't,' he said.
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'Many of the treatments have side effects that make you feel even worse on top of already being ill.
'Now I have Secondary Progressive MS (SPMS), which means I have moved onto the next stage, unfortunately. But I take medication and hopefully this will slow down the progression.'
If I have to go to the kitchen, it might take me five minutes – but I'm OK with that
Adam Dawer
Adam had to give up his job as a graphic designer and accept a slower pace of life.
"If I have to go to the kitchen, it might take me five minutes – but I'm OK with that,' he said.
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'The main thing is: I'm still alive, I'm still breathing, so all is good.
'My wife is now my full time carer and I'm extremely lucky that she helps me get out and about.
'I still drive on occasion, it's the only thing that makes me feel normal like everyone else but mostly Sharon does it now.'
Sharon helps Adam with all the practicalities of MS, such as preparing his scooter, wheelchair or rollator and sorting routes, finding out where is accessible or where might have dodgy pavements.
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'She deals with all of that so I don't need to because I can't anymore,' Adam added.
'I wouldn't leave the house, the anxiety of all of that on top of being ill would be crippling.
'In short, she just lets me concentrate on the MS itself.'
'It's not a one-size-fits-all thing with MS'
More than 150,000 people in the UK live with MS and many of them are unable to leave their house without help.
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According to research by The MS Trust, 94 per cent of patients said their condition has affected their mental health with 60 per cent experiencing low self esteem.
Half of MS patients report feelings of isolation and loneliness.
Adam wants people to be aware that MS can present very differently in each person.
'There's not a set pattern to it,' he said.
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'There could be a guy with MS who runs marathons and there could be someone in a wheelchair. It's not a one-size-fits-all thing.'
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Adam had to give up his job as a graphic designer and accept a slower pace of life
Credit: Cover Images
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His wife Sharon is now his full time carer
Credit: Cover Images
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Despite his diagnosis Adam is happy about life and makes sure he's still present for his five children
Credit: Cover Images
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He is positive about his life and happy he's been able to be an active and present dad for his five children. 'When MS announced itself into my life, the youngest was five,' he said.
'I'm glad that my kids were of an age that my declining health wasn't going to impact them so much. They weren't going to grow up seeing dad be heavily disabled.
'I got to be a proper parent. I really didn't want MS to rob me of being a parent or to rob my kids of having a dad who was there.
'By the grace of God, it worked out and they're all doing their own things now. The youngest will be 20 this year. The oldest is in another country.
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'I honestly haven't been happier and mentally clearer in my life. I just had this mental clarity one day: everything's going to be OK.
'It was like a massive weight came off me. I really can't explain it. It kind of is a spiritual experience - I think having MS has been like a superpower – for my mind, the way I think.
'Everyone's got problems. But when a problem comes up for me, I think, 'Is anybody going to die? No? Then there's no problem. We can fix it.''
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