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Heartbroken Scots parents pay tribute to ‘special' baby girl who died from rare condition at nine days old

Heartbroken Scots parents pay tribute to ‘special' baby girl who died from rare condition at nine days old

Scottish Suna day ago
'In Rita's short life, she had a profound impact on all who met her'
FAMILY'S PAIN Heartbroken Scots parents pay tribute to 'special' baby girl who died from rare condition at nine days old
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A SCOTS couple have been left heartbroken after their "special" baby girl died from a rare condition at just nine days old.
Tiny Rita Grace Ghazala was born on December 9 last year but sadly passed away days later.
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Parents Elizabeth and Fadi with their baby girl Rita while in hospital
Credit: Facebook/GlasgowChildrensHospitalCharity
Proud parents Elizabeth, 31, and Fadi, 34, said their "beautiful" daughter was a "huge inspiration" during her short life.
The tot was diagnosed in the womb with the life-limiting condition Edwards' Syndrome - also called trisomy 18.
It is a rare genetic condition that cannot currently be cured and is caused by an extra chromosome in the body's cells.
With trisomy 18 there are three copies of chromosome 18 rather than the usual two.
Little Rita died at Glasgow's Royal Hospital for Children nine days after she was born.
She passed away on December 17 at the exact same time that she was born at 3.34pm.
Parents Elizabeth and Fadi, from Kirkintilloch, East Dunbartonshire, told Glasgow Live: "Even though it was short, the time that we got with Rita was very special, we wouldn't change that.
"We got to meet her, hold her, and love her - we got a lot from her.
"She knew us - although she was in an incubator she recognised our voices and knew when we were around."
The couple stayed at Crossbasket House while their baby girl was receiving treatment in hospital.
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Two days after being born, little Rita went through major gullet and windpipe surgery.
The newborn also survived an emergency ventilation procedure during the night.
Her parents added: "Our beautiful daughter, Rita Grace, gave us the best nine days of our lives. Rita was a huge inspiration.
"On her second day she was away from us for eight hours while she went through major surgery, and was well-known on NICU for keeping the doctors and nurses on their toes.
Symptoms of Edwards' syndrome
Newborn babies with Edwards' syndrome may have some, or all, of the following symptoms: low birth weight
ears in a low position on their head
cleft lip or palate
club foot
problems with their heart, kidneys or spine
problems with their breathing or digestion
Each person with Edwards' syndrome is different, and there are also different types which can cause different symptoms.
Source: NHS
"In Rita's short life, she had a profound impact on all who met her.
"She inspired others all over the world, and we have been humbled by the messages of love that we have received.
"We are truly honoured to be her parents."
Fadi, along with friends and family, is now taking on a cycling challenge in the tot's memory - Ride for Rita.
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The tot was diagnosed in the womb with the life-limiting condition Edwards' Syndrome
Credit: Facebook/GlasgowChildrensHospitalCharity
The team will cycle 210 miles across Scotland, connecting the neonatal units in Aberdeen and Edinburgh before finishing in Glasgow, at the NICU where Rita was treated.
They set off on Tuesday, July 22.
Rita's mum Elizabeth will be joining the team from Edinburgh to Glasgow along with Grandma Anne, Auntie Eleanor and others.
They plan to arrive in Glasgow on Saturday, July 26.
Her parents added: "Rita was incredibly brave, resilient and peaceful from the get-go. She made us very proud parents."
Over £8,000 has already been raised for Glasgow Children's Hospital Charity.
Kirsten Watson, CEO at Glasgow Children's Hospital Charity said: "We are truly honoured that Fadi, Liz and their loved ones are taking on this incredible challenge in memory of Rita.
"We know that Rita's resilience will be an inspiration to the team throughout their journey, and will help them conquer every challenge as they ride to the finish line in Glasgow.
"The Ride for Rita challenge is raising vital funds in support of the Family Bereavement Support Service at Crossbasket House, creating a meaningful legacy for a very special girl."
You can donate to the fundraiser here.
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