Illinois advocates concerned about proposed cuts to care hours for developmentally disabled
The They Deserve More Coalition, which is made up of different organizations that support the developmentally disabled, came to the Illinois State Capitol to share their concerns.
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The Governor's proposed budget would include a $32 million dollar decrease in funded hours for care of developmentally disabled living in group homes. The funded hours specifically pay for direct support professionals to staff these group homes.
The Illinois Association for Rehabilitation Facilities said the decrease would result in 900,000 hours being cut from the current total, which could mean over an hour less of care per day.
'If we cut 900,000 hours out of the service system from those people with intellectual and developmental disabilities, then they're going to be in danger of not being able to live effectively in their community,' Lore Baker, President of the Association for Individual Development said.
People with developmental disabilities are assessed and prescribed a certain number of hours of care. In these group home settings, hours are typically pooled together to make sure the people have the proper care.
A spokesperson for Governor JB Pritzker's office said the rollback is more about efficiently using the hours allotted.
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'The discussion of the 'funded hours' obscures a basic fact: IDHS and Governor Pritzker are committing more to DD services than ever before,' Spokesman for the Governor Alex Gough said in a statement. 'Providers will never be told 'you've reached your hours limit' or be forced to lay off support workers. The global hours total is part of a funding model with multiple parts, designed to fairly and equitably distribute limited resources.'
The administration pointed to the other investments being made to services for the developmentally disabled. Those include a 50-cent per hour wage increase for direct support professionals. It's also another year of increases for the overall budget for that division. That overall increase is why advocates and organizations were so caught off guard by the proposed cut, especially since they thought they were past this discussion.
This cut was proposed after the state already backed off a much bigger proposed cut last year. Starting in 2023, the state was prepared to cut 2.3 million hours to the same area. At the time, the state said that was just a step in implementing the findings from the state-commissioned Guide House Rate study, but the state backtracked on that plan after pressure from advocates and lawmakers.
While this proposal will impact significantly less hours, advocates still say it will result in a loss of care.
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'I think it might be possible if the hours didn't disappear,' Baker said. 'But what happened, instead of moving around two hours to go have more hours for someone who has a higher service need and less hours for someone who needs less support, the total amount of hours in the system totally shrunk.'
The governor's proposed budget is just that — a proposal. Lawmakers will spend the next month and a half hammering out the details of the budget. Advocates voiced their concerns about these proposed cuts to the appropriations committee in the House of Representatives.
'Every legislator that we've spoken to has been shocked that this was in the governor's proposed budget,' Baker said. 'They keep saying, didn't we fix this last year? And we're like, We thought so, but not so much.'
Copyright 2025 Nexstar Media, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.
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