Australia's lung cancer screening program has started — should eligibility be expanded?
An abdominal scan in October 2021 picked up a lump in her right lung.
"And there was a high probability that it was lung cancer," Ms Ives said.
The timing was both devastating and lucky.
Just seven months earlier, the Queenslander had lost her much-loved husband Michael to "horrific" oesophageal cancer, leaving their three teenage children bereft.
Another cancer diagnosis was too much.
While she was exposed to a lot of cigarette smoke in the 1970s and '80s, as an avowed non-smoker herself, the type of cancer was also a shock.
"Because they [health authorities] did such a great job educating us about lung cancer and smoking, for someone like me, who never smoked, I probably wouldn't have thought myself vulnerable in any way," the 57-year-old said.
But the early diagnosis was also a blessing.
Her medical team monitored the mass until changes were spotted on scans last year, prompting her surgeon to remove a wedge of lung containing the tumour.
"It just blows my mind that I had that surgery and with clear margins, and that I haven't had to go through chemotherapy or anything else," the primary school teacher said.
Ms Ives had no symptoms when the scan first detected her early-stage cancer.
"I had no idea that it was there," she said.
Thoracic physician Dr Kwun Fong said lung cancer is the number one cause of cancer deaths in Australia and worldwide.
Around 9,000 Australians die from the disease each year.
"The reason why it's got such a poor outcome is because when we detect it, usually it's at a very late stage where cure is no longer possible and that's because the lungs are an internal organ," Dr Fong said.
"By the time we get symptoms, the cancer might be well advanced."
The lung cancer researcher said smoking is the biggest risk factor for the disease, but other contributors include air pollution, diesel fumes, asbestos exposure and a genetic predisposition.
"In women who've developed lung cancer, about a third of women do not have a history of smoking," Dr Fong said.
One in 10 men diagnosed with lung cancer are non-smokers, according to the Lung Foundation Australia.
For the past decade, the specialist, based at The Prince Charles Hospital in Brisbane, has been conducting trials to assess the value of screening certain groups of people for lung cancer.
The latest phase will include 3,000 participants from across Australia in three different arms: never or light smokers, Aboriginal and Torres Strait Islander people, and current or former smokers.
Those who qualify for the trial will have a low-dose chest CT scan to check for early signs of lung cancer.
Senior health worker Mark Dorante encouraged eligible Indigenous Australians to participate.
Dr Fong said the research aims to discover evidence that can help "tweak and improve" the newly launched National Lung Cancer Screening Program for heavy current or former smokers aged between 50 and 70 years old.
It's estimated the targeted program will save 12,000 lives over the next decade.
"We're very fortunate, we're one of the few countries where this national program will be rolled out," he said.
But not everyone is eligible, and Dr Fong said his latest trial aims to "advance the knowledge by finding out who else will benefit [from checks]".
Firefighters are one group eager for screening due to the risks of cancer-causing smoke.
General manager of the Rural Fire Brigades Association Queensland, Justin Choveaux, said firies can be exposed "day in and day out" for months during the nation's long fire seasons.
"My suggestion and my hope would be that all firefighters, whether you be full-time, part-time or volunteer, would be able to access free screening," Mr Choveaux said.
The downsides of screening programs can include false positives, exposure to radiation from scans, and the detection of conditions that might never cause harm.
Dr Fong said his screening trial is expected to take up to three years to complete.
"[We] have to make sure that the benefits outweigh the harms and it's affordable and can be feasible and practical in our health care system," he said.
A spokesperson for the federal Department of Health said the National Lung Cancer Screening Program (NLCSP) is "underpinned by strong clinical evidence".
"The NLCSP will undergo a comprehensive evaluation after two years to ensure that it remains responsive and evidence-based, which may include changes to the eligibility criteria," the spokesperson said.
"Individuals who believe they may be at risk of lung cancer or have concerns about their lung health, should not wait for screening and are strongly encouraged to consult their healthcare provider."
These days Nicole Ives is focused on her "strong" and "pragmatic" children, her kayaking trips and lifelong love of art.
She's "overwhelmed" by the standard of health care she received and doesn't dwell on her lung cancer, a life perspective she shared with Michael.
Details of the Australian Lung Screen Trial can be found here.
Hashtags

Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles


SBS Australia
25 minutes ago
- SBS Australia
Meet the Worimi doctor fighting high rates of cervical cancer among First Nations women
For most women, cervical screening can be an awkward but necessary test. Yet for First Nations women, additional barriers, such as a lack of access to culturally safe care and stigma, are leading to lower screening rates, putting them at a higher risk of developing cervical cancer. For the past 20 years Dr Marilyn Clarke has worked on Gumbaynggirr Country as an obstetrician and gynaecologist. She's seen the impacts of low screening rates firsthand. "It can be an entirely preventable disease with good screening and treatment pathways," Dr Clarke told NITV. "Australia is one of the world leaders in the area ... but unfortunately for First Nations women, we are not seeing the same result," she said. Mortality rates nearly four times higher The rate of cervical cancer among Aboriginal and Torres Strait Islander women in Australia is more than double the rate among non-Indigenous women. The mortality rate for First Nations women is nearly four times higher. Cultural barriers, lack of awareness, logistical challenges, and historical and systemic issues contribute to under-screening and late detection of pre-cancerous lesions, representing a system failure for Aboriginal women. Additional barriers include remoteness, socioeconomic disadvantage, and the need for culturally safe healthcare services. New initiative to tackle disparity Dr Marilyn Clarke hopes to see those statistics change for the better. SISTASCREEN is a co-designed strategy being developed which aims to increase cervical screening rates by offering the test during routine antenatal checkups at Aboriginal-led health services. 'Antenatal visits at their local Aboriginal community-controlled health service is an opportune time to engage First Nations women in cervical screening in a way which ensures culturally safety and empowerment," Dr Clarke said. The project is set to be led by Southern Cross University in partnership with the National Aboriginal Community Controlled Health Organisation (NACCHO), with $2.4 million in funding over three-years from the federal government through Cancer Australia. "It's really important that any healthcare intervention, or strategy or screening program, involves First Nations people from the ground up," Dr Clarke said. The project will see six "early adopter" sites established from the outset: the first is the Bullinah Aboriginal Health Service in Ballina on the New South Wales Coast. Its goal is to establish 50 sites at Aboriginal community controlled health organisations across the country over the next three years. A welcomed step forward NACCHO CEO Pat Turner AM has welcomed the partnership. 'For too long, our women have faced barriers to lifesaving screening and care, barriers rooted in systems that weren't designed for us, by us," Ms Turner said. "We cannot eliminate cervical cancer in Australia while Aboriginal and Torres Strait Islander women continue to be left behind." Arrernte and Gurdanji woman Pat Turner is the CEO of NACCHO and the Lead Convener of the Coalition of Aboriginal and Torres Strait Islander Peak Organisations. Source: AAP Ms Turner said the co-designed strategy provides critical care that is culturally safe and empowering. 'SISTASCREEN is about more than closing a gap in statistics,' Ms Turner said. "It's about putting Aboriginal and Torres Strait Islander women at the centre of solutions, embedding screening and care within our own health services, led by our own workforce, in a way that is culturally safe and empowering. 'This project gives us the chance to reach women at a critical moment in their lives, while they are pregnant and engaging with antenatal care, so that we can support their health and well-being, now and into the future."

ABC News
2 hours ago
- ABC News
Gynaecological cancer survivors help educate Australia's future doctors and nurses
When Kristin Young was diagnosed with stage 3 ovarian cancer in 2009, it had taken her doctors some time to figure out what was wrong. "Ovarian cancer is difficult to pick up and often thought to be other things," she said. "The most common symptoms — bloating, feeling full [quickly] and the need to urinate more often … they present like other common conditions." In Kristin's case, it was a much rarer symptom — swollen lymph nodes in her groin — that prompted concern. "The really tricky thing about ovarian cancer is it manifests in many different ways … and spreads quite widely before it ever gets big enough to give you a symptom," she said. "Many women have hoped that the medical system would do better to pick it up early, but the system is up against the perplexing biology of ovarian cancer, which is worsened by its rarity." Kristin underwent treatment, which was successful, but 4.5 years later, the cancer returned. The now-retired psychologist said one of the biggest challenges of dealing with a cancer diagnosis was navigating the health system and "getting the right communication" with her medical team. When an opportunity came up to work with trainee health professionals to improve their understanding of gynaecological patients' lived experiences, Kristin knew she wanted to be involved. "One of the really important things … is to share that message that [ovarian cancer] is difficult to diagnose, and how important it is to listen to the stories that women bring to the doctor," she said. "If, through education and awareness, we can help a small number of people be diagnosed even a bit earlier, it's better than things staying the way they are." The volunteer-led program, Survivors Teaching Students, is a national initiative that brings ovarian and other gynaecological cancer survivors and caregivers into the classrooms of medical, nursing and other health professional students across the country. Alison Evans, CEO of the Australian and New Zealand Gynaecological Oncology Group (ANZGOG), said the program was developed by the Ovarian Cancer Research Alliance in the US and brought to Australia by ANZGOG in 2017. "It's vital because it's really giving voice to what symptoms are, what diagnosis looks like, and what treatment looks like from a patient's perspective," Ms Evans told the Health Report. In Australia, 19 women are diagnosed and six women die from gynaecological cancer every day. Despite this, Ms Evans said gynaecological cancers — which include uterine, endometrial, ovarian, vulval, vaginal and cervical — were poorly understood in the community. "There's a stigma around these cancers because they are part of the reproductive system, and therefore they're hidden and they're very personal," she said. With the exception of cervical screening, there are no early detection tests available, and as a result, gynaecological cancers often grow silently during the curable stage. Adding to the challenge is the fact women may have symptoms overlooked or minimised by health professionals, which Ms Evans hopes the program will help to change. Since 2017, Survivors Teaching Students volunteers have delivered in-person and online programs to more than 20,000 students across 22 universities in Australia and New Zealand. During a typical session, students hear from three volunteers — including patients, carers and family members — about their personal experience with gynaecological cancer, including the physical, mental and emotional toll it takes. "Patients are real people with lives and families, and we want the doctors and nurses of the future to see that," Kristin said. One of the key goals, she said, is to emphasise the importance of good health communication and compassionate care. "Patients remember what doctors and nurses say, and that sometimes can be engraved in your mind forever." But the most important part, according to Kristin, is answering the questions from students. "Many students are really touched at an emotional level … and perhaps start to think they would consider a career in oncology or oncology-based research." Further research was critical for early detection and treatment options to be improved, Ms Evans said, particularly for the 55 per cent of gynaecological cancers considered rare or less common, which often had limited treatment options. "We want doctors to be curious about these diseases for the rest of their career," she said. "The most important thing is that GPs and nurses … have a voice in their head that is the woman's voice or the carer's voice that they take with them." Kristin said her own experience with ovarian cancer was proof that oncology research was having an impact. "I'm a 'super responder' on one of these new molecular-based treatments … so the prognosis that I had, which was very poor, I have now outlived this, and I know that that represents hope," she said. "Research is prolonging lives in some people and with more research it will prolong more lives." In addition to inspiring and educating the next generation of health professionals, she said the Survivors Teaching Students program had strengthened the community of people living with gynaecological cancer. "At the very personal level, I have made good friends, what I feel are lifelong friends. "The term lifelong is ironic in ovarian cancer because many of the women I have met … unfortunately have not had long lives. I have my contacts list and my phone is full of people who have passed away, but I never delete them." The program helped people affected by gynaecological cancer leave a "lasting legacy", Ms Evans added. "Many women and their families at the end of treatment are looking for a way to make a difference. Listen to the full story and subscribe to the Health Report podcast for more.

ABC News
5 hours ago
- ABC News
Interim report suggests Queensland opt out of building accessibility requirements
Jamie-Lee Dwyer spent most of her twenties searching for an accessible place to live, but when she had no other options, she moved into a group home. "It felt like I was stuck in prison," she said. The now 32-year-old has a genetic, progressive neuromuscular condition known as Friedreich's Ataxia and uses a wheelchair. Unable to find a home or an apartment in Brisbane or on the Gold Coast that she could afford and access, Ms Dwyer moved into a group home between 2017 and 2018. "It was pretty strange to suddenly be surrounded by people who live very limited lives and be pushed into a structured routine of when to wake, when to go to bed, [and] when to eat," she said. She's worried other young Queenslanders with a disability could have limited options under preliminary recommendations, which suggested it should not be mandatory for new homes to be made accessible. An interim report by the Queensland Productivity Commission recommended that the state should opt out of the accessibility standards outlined in the current National Construction Code (NCC). The LNP government tasked the agency to find ways to improve the state's productivity. The report said evidence suggested changes to the NCC around the "liveable housing" requirements had increased construction costs for builders. Queensland had been phasing in the new accessibility standards under the requirements since 2023. It meant that new homes being built in the state needed to include features such as at least one step-free entry and wider internal doors and corridors, as well as a toilet on the ground or entry level. Queenslander-style homes were exempt from having a step-free entry. The report said while the changes provided some benefits, such as improved accessibility, a regulatory impact analysis showed the benefits were unlikely to justify the costs imposed. The commission's preliminary position was that unless it was demonstrated through consultation that the standards provide a net benefit to the state, the government should make the NCC's accessibility standards a voluntary option. "While there is benefit to national harmonisation of building rules, through the NCC, builders are not restricted from adopting stronger efficiency or accessibility standards where they believe there are benefits from doing so," the report stated. It comes as leaked federal Treasury advice warned the Albanese government's goal of building 1.2 million homes in five years is not on track to be met. The documents, which were leaked to the ABC, suggested the government could freeze changes to the NCC to speed up housing approvals as a major outcome of the three-day summit that is underway this week in Canberra. The Summer Foundation's Joel Dignam, who leads the non-profit organisation's Building Better Homes campaign, said the standards in Queensland should be retained. "It definitely has become the norm since it was introduced," Mr Dignam said. He said all states and territories played by the NCC, but Western Australia and New South Wales hadn't opted into the accessibility component of it. Mr Dignam said removing it would take away the opportunity for someone with a disability to have a dignified home and be a part of the community. He said the standards offered long-term benefits for others, too, particularly as people become older. Under the standards, bathrooms and toilets are required to have reinforced walls to enable future installation of handrails. Mr Dignam said it was much easier to install the handrails with the walls already in place. "We're asking for [accessibility standards] to be retained so that those benefits can begin to flow through rather than the government sending a message to people with disability that they don't matter," he said. Master Builders Queensland CEO Paul Bidwell said he strongly believed the costs of accessibility requirements outweighed the benefits. "If there is no net community benefit, then they shouldn't do it," he said. Mr Bidwell said the state needs to build 50,000 new dwellings each year but is just short of approving 38,000 dwellings in the last 12 months since June. He said it wasn't just about building new homes, but it also impacted the building work required for the Brisbane 2032 Olympic and Paralympic Games. "Unless changes are made, we are not going to be able to deliver on all of that," he said. Mr Bidwell said accessibility requirements should be made voluntary, not mandatory. "By making it voluntary, you are giving people the choice," he said. Mr Bidwell said it did cost more to retrofit homes with accessibility features after they had been built, but said that didn't mean every house in the state should be made to have accessibility requirements. A spokesperson for Treasurer David Janetzki said the state government would wait for the full report by the Queensland Productivity Commission before considering any of its findings or recommendations. "The full report will be handed to the Treasurer on October 24, with the government given three months to respond before the Commission publishes the final report," the spokesperson said. Ms Dwyer now lives in Specialist Disability Accommodation (SDA) through the National Disability Insurance Scheme (NDIS) on the Gold Coast. She was one of the first in the state to move into this type of housing designed for NDIS participants who have high support needs and helps them live more independently. Ms Dwyer said SDA had changed her life and wouldn't have been possible without the NDIS. She said the state would be going backwards if it removed the accessibility requirements for new homes. "I would hate for younger people in similar situations to not be able to experience accessible accommodation and the independence that comes with this," Ms Dwyer said.