
Case of Cork woman refused access to her dead husband's sperm raised in Seanad
'Highly sensitive and complex factors' would need to be fully resolved before a decision could be made on whether the State should fund the posthumous use of spouse's eggs or sperm in assisted human reproduction, according to a junior minister.
Minister of state Marian Harkin was responding in the Seanad to a question posed in the case of Macroom woman Melanie Dineen, whose late husband Dylan Fleming had given written consent for her to use his frozen sperm to conceive their child after his death.
However, Ms Dineen has been informed she cannot proceed with IVF through the public system using the frozen samples, because there is no protocol in place to cover such a scenario.
Sinn Féin senator Nicole Ryan raised the case in the Seanad, describing it as 'heartbreaking and unjust'.
Ms Harkin said she could not talk about individual cases.
But she said: 'There are potentially highly sensitive and complex factors which arise here and these would need to be fully teased out, resolved and a firm decision agreed upon before it is decided whether, notwithstanding what is permitted in the relevant legislation, the State should fund this very distinct form of AHR treatment."
Ms Harkin said health Minister Jennifer Carroll MacNeill was focused "through the full implementation of the model of care for fertility, on ensuring that patients receive care at the appropriate level of clinical intervention and then those requiring, and eligible for, advanced AHR treatment such as IVF will be able to access same through the public health system".
She said Ms Carroll MacNeill was 'eager to see' how the scheme could be grown either through widening criteria or the range of services available.
'The minister hopes to be in a position to announce a clear plan of action in this regard in the coming weeks.'
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Grieving Cork woman is being 'blocked' from having a child with dead husband

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Irish Times
2 days ago
- Irish Times
SOS cancer hotline making ‘a real, tangible difference in the lives of people going through chemotherapy'
An SOS hotline has saved Pauline Doyle, who is being treated for breast cancer , from many trips to a hospital emergency department over the past two years. In this case, SOS stands for Sort Out my Symptoms and it was an initiative that was kick-started by the Covid-19 pandemic. Five years on, this early intervention service has more than proved its worth in keeping vulnerable cancer patients in active treatment away from extra visits to hospital if at all possible, or at least bypassing the ED. 'It is the nearest thing we have to scheduling non-scheduled care,' says Maria Gillespie, assistant director of nursing for what is formally known as the Acute Haematology Oncology nursing Service (AHOS). It started in 2020, when the National Cancer Control Programme received funding for a designated nurse specialist in each of the 26 hospital cancer centres around the State . They were to be available at the end of a phone line for patients in treatment who felt unwell at home. It has grown as a national network since, standardising the approach to ensure there is no so-called 'postcode lottery' at play in this aspect of care. Identical information leaflets and alert cards are handed out at each centre and are available in 10 languages. An additional 18 nurse specialists are now being recruited to bolster the service in the busiest hospitals. READ MORE 'In 2020, we received 1,137 calls,' says Gilliespie. 'Last year, in 2024, we received 21,873 calls. We know it works.' Pauline Doyle. Doyle, who lives in Drumsna, Co Leitrim, and attends St James's Hospital in Dublin for her cancer treatment, says the SOS hotline is something that makes 'a real, tangible difference in the lives of people going through chemotherapy'. She was diagnosed at the end of 2023, after finding a lump in a breast and going to her GP. A mother of two children, aged 10 and 12, she had six months of pre-surgery chemotherapy, followed by radiotherapy after her surgery. She is currently undergoing one year of post-surgery chemotherapy, for which she visits St James's once every three weeks. 'From very early on, and I think this is probably a lot of people's experience, I've had issues with my chemo, and difficulty managing side effects. I've required [hospital] admission a few times. So to have this service has been absolutely invaluable. It has kept me away from the emergency department on lots of occasions. [ I was completely numb and couldn't take it in - I didn't think I would hear the words, 'sorry, you have breast cancer' Opens in new window ] 'It's amazing to have somebody at the end of the line that knows you, that knows your case, that knows your history. Sometimes it's something small. All you need is a piece of advice – take this medication, take that medication. Other times it's, 'Come in and we'll see you.'' If a patient does need to go in after being triaged over the phone, they can go straight to the cancer ward to be seen by that nurse, who will then get a doctor to review them. Blood tests can be done immediately. At the outset of treatment, Doyle, who is currently on leave from work as a mental health nurse, was allergic to her first chemotherapy drugs. 'I came out in very bad skin rashes.' She was ringing the hotline for management of that and the dermatology service was organised to see her as soon as she went in. She has experienced various health issues since, the most recent proving to be a chest infection. Again, the call to the nurse specialist ensured they were all ready for her after she was advised to come in. 'I attended with persistent coughing and they got me a chest X-ray and bloods organised straight away. They could give me the all clear that day, start me on the course of medication and get me turned around and home within an hour or two.' Doyle does not like to think how long all that might have taken if she had gone through the ED, which she has had to do on occasion if in trouble over the weekend when the nurse specialist was off. While she stresses that the ED staff are fantastic, the difference between going through ED and using the SOS hotline is 'night and day'. Gillespie is full of enthusiasm for how well the service is working. 'Really strong foundations have been laid and we're well positioned to grow.' Maria Gillespie, AHOS assistant director of nursing However, she is also mindful that 'the current model is really vulnerable' because many of the cancer centres still have just one nurse providing the service. There is no cover at weekends or during their six weeks of annual holidays. 'When that nurse goes on leave, the impact is instant,' she says. There are plans to build it up into a 24/7 service, but, in the meantime, they have decided to use the allocation of €700,000 ring-fenced annual funding for the 18 additional posts to strengthen it Monday to Friday. 'We've done a really detailed health needs assessment for where we allocate those,' says Gillespie, who explains how the AHOS works. It was adopted from a system that has been operating in the UK for 20 years. Anybody receiving cancer treatment, be that chemotherapy, immunotherapy or radiotherapy, is informed by a nurse specialist about the possible side effects. They are also given a dedicated SOS hotline number to ring if they have any worries and issues such as high or low temperature, nausea, diarrhoea, vomiting, fatigue, anorexia, constipation, urinary symptoms. During the phone call they will be triaged through a standardised system. The next steps are planned according to that assessment. If it's a 'red' symptom, such as a fever, that patient requires an urgent, in-hospital check. 'It can signal an infection and/or sepsis and both of them can be life-threatening for cancer patients.' [ Breakthrough by DCU researcher promises improved 'chemo' with fewer side effects Opens in new window ] If it's an 'amber' assessment, that means the patient has to be seen within 24 hours. However, if the patient has two ambers, then the nurse specialist will escalate them straight away to a red. A 'green' symptom is a side effect that can be managed at home with self-care and follow-up advice. There are no 'wrong' reasons for using the hotline, she stresses, and over time a trusting relationship builds up between the patient and their nurse specialist. Video-enabled care is also being rolled out as part of this service, after a successful pilot project that was started in Naas hospital last year. In nearly 20 of the cancer centres the nurse specialist now has a widescreen monitor on which they review symptoms that can be shown by a patient using their smartphone or other device. The ability to view common problems, such as a sore mouth or infected Hickman line (tube into vein), makes a significant difference in the accuracy of assessment gradings. 'That early intervention is key; being able to actually see patients, that prevents the symptom from becoming worse,' says Gillespie. 'It prevents the patient having to call an ambulance the following day and somebody being in a totally different situation.' Previously, patients may have delayed seeking care because they could not face going through ED. 'There will always be times when patients have to go to the emergency department, if someone has chest pain, for example,' says Gillespie, 'but it's really to avoid as many visits as possible. Cancer patients don't belong in the ED.' The AHOS staff love their jobs, she says, because they can see the very positive benefits for patients. Every time she visits one of the hospitals involved, she always drives away reflecting on the 'phenomenal' impact that one nurse specialist can make. 'The service shows what's possible,' she adds, 'when you put patient-centred design, national leadership and expert nursing together.' From her personal experience, Doyle wholeheartedly supports further resourcing of the SOS hotline network, towards a 24/7 operation. 'When you're really struggling with side effects, it means an awful lot to be able to access a service like this that can look after you and that know you, and that you're not waiting in a big system to get through.'


Irish Examiner
2 days ago
- Irish Examiner
Irish Examiner view: Disturbing revelations by RTÉ Investigates about nursing homes
The revelations in the RTÉ Investigates programme about the standard of care in some private nursing homes were deeply disturbing. Readers may be aware of some of the cases of neglect cited in those investigations, of vulnerable elderly people being abandoned or ignored, left at risk of dangerous falls, or in some cases left in unchanged incontinence pads. Little wonder that David Robinson, a consultant geriatrician at St James's Hospital in Dublin, described the situation as such : 'It's abuse — there's no other word for it.' He is absolutely correct. It would be grimly fascinating to hear someone make a counter-argument that the treatment shown somehow does not constitute abuse. It is no slight on the journalists involved, however, to say that while these specific instances are shocking, they are hardly surprising. On a regular basis, we are reminded that whether it is young children in creches, teens reported as missing from Tusla care, and now the abuse of the elderly, our citizens are regularly betrayed by the systems and structures set up to care for them. In the specific area of elder care, older readers may remember other shocking revelations 20 years ago in the case of the Leas Cross nursing home, revelations which led to calls for legislation and enforcement to ensure that never happened again. Judging by this week's revelations, nothing has changed, That is not the only question facing the State. The bland apologies of the corporate owners of the homes are as meaningless as they are predictable, but it has emerged that Hiqa inspected the homes concerned repeatedly in recent years — with the most recent inspection of one home finding that the institution was 'short-staffed', with some residents who were at a high risk of malnutrition. It seems surprising that swifter action was not taken in this particular instance. Then again, the impending excavation of the Tuam babies' burial ground this week reminds us that the State can fail its citizens no matter what age they are. Shameful obstruction of Leona Macken Earlier this week, the HSE apologised to Leona Macken in court over 'failings' which occurred in caring for her. Ms Macken and her husband Alan had taken an action against the HSE, and the court heard evidence which indicated that her 2016 and 2020 smear tests by Quest Diagnostics should not have been reported as negative. The court concluded that the delay in identifying pre-cancerous abnormalities led to her cancer diagnosis. A mother of two young daughters, she now has incurable metastatic cancer. This is clearly a nightmare for the Macken family, and huge credit is due to Leona Macken for her bravery — not only in pursuing this action, but in advocating strongly that other women go for smear tests. She has pointed out in interviews that while those tests did not work for her, they can work for other people. Minister for health Jennifer Carroll MacNeill also apologised to Ms Macken this week, and added: 'She should not have had to fight for her records. 'They need a resolution to their case, and they do not need additional stress through going through the court process,' she said. This was a reference to Ms Macken having to fight for an audit of her records, something which — as pointed out by the minister — was bound to cause additional stress at a severely testing time for the family. This unwillingness to co-operate with individuals seeking answers has uncomfortable echoes in a case which was in the headlines last week. The O'Farrell family, of Monaghan, spent almost 15 years seeking information from several State agencies about the man who killed their son and brother Shane in a hit-and-run incident, only to be stonewalled by many of those agencies. This form of reflexive obstruction is shameful and seems driven by an overwhelming urge to protect institutions at all costs, irrespective of the stress that that puts on individuals. Ms Macken's grace and dignity this week, and her attitude, should embarrass those who placed that stress on her. What's your view on this issue? You can tell us here True community pub in Kerry The story coming out of deepest south Kerry has something of the Ealing comedies about it. A community is downhearted by the prospect of losing its pub, only to rally to the cause and buy it. Things looked grim when Humphrey Ó Conchuir and Noreen Uí Chonchuir, towners of the Inny Tavern (Tábhairne na hÚine) in Dromaid, south Kerry, decided to retire. A lack of prospective buyers seemed to doom the establishment to dereliction but Forbairt na Dromoda Teo — the local community social enterprise organisation — stepped in. It raised enough funds for a deposit, as well as securing a bank loan for the property. When there was a shortfall, they launched a GoFundMe campaign, which has generated almost €107,500 to date. Some of that support has come from ex-pats, but some has also come from people who have seen similar facilities disappear in their own part of Ireland and who don't want the same to happen elsewhere. Not every community has that kind of support — or an organisation with the drive of Forbairt na Dromoda Teo — but it is good to see a rural area make a stand against decline and depopulation. Read More Irish Examiner view: Scene of shame at Tuam may give closure


Irish Examiner
2 days ago
- Irish Examiner
'Vast majority of people disgusted' with Government putting money ahead of Gaza's children
The Government is putting its cheque book ahead of helping the children of Gaza, actor Liam Cunningham has said. Anyone who would compare the socioeconomic health of Ireland to the dismemberment of children has lost their humanity, he said. It is the very least we can do to stop doing business with Israel, and to pass the Occupied Territories Bill without including services is a waste of time, "it's just tinsel", the activist said. Speaking at a People Before Profit event, Mr Cunningham said: "The vast majority of people are disgusted with what is going on, disgusted with our neutrality being diluted, and the people in power that we entrusted with the health of our democracy are siding with war mongers. "I do not want to see this country that I adore being sold down the Swanee so the boys across the road can have their jobs with whatever commission or whatever when they are finally extricated from government." Mr Cunningham criticised the Government for voting down Sinn Féin's Israeli war bonds bill saying: "You saw in practical terms exactly what happened when the Government shut down the bill. The following day, the Israelis opened fire on Irish troops." Actor Liam Cunningham has been involved in the Freedom Flotilla Coalition, which set off from Sicily on Sunday and is hoping to reach Gaza on June 7. Photo: Sam Boal/Collins Photos. The Game of Thrones star has been involved in the Freedom Flotilla Coalition, which set off from Sicily on Sunday and is hoping to reach Gaza on June 7. It marks the group's second attempt to bring aid to the region after another vessel was bombed by drones last month. It is bringing aid which Mr Cunningham said Israel will not allow into Gaza including crutches, antibiotics, baby formula and even a 3D-printed prosthetic baby's arm. While the people involved in the Freedom Flotilla are remarkable, Mr Cunningham said they should not be the ones charged with bringing aid to the people of Gaza. He said that if Ireland was "doing our job properly" there would be an Irish naval vessel carrying the humanitarian aid. Mr Cunningham attended the event which saw People Before Profit urge people to join a demonstration on June 14 to call on the Government to retain the triple lock. People Before Profit TD Paul Murphy said the Government saw an opportunity in Putin's illegal invasion of Ukraine to go after neutrality in a full-fronted way. "We are in an almighty fight to defend our neutrality and we do not think it is a lost fight," said Mr Murphy. "We do not think it is a guarantee that the Government will get through their legislation to get rid of the triple lock." He added that public opinion is massively on the side of retaining the triple lock.