logo
Legislation being fast-tracked to ensure cancer survivors can't be discriminated against by insurers

Legislation being fast-tracked to ensure cancer survivors can't be discriminated against by insurers

The legislation aims to ensure that people who have survived cancer are not penalised for their past health experiences when trying to buy a home or other financial activities.
The right-to-be-forgotten legislation to be brought forward by the Government before summer recess.
The move follows what the Government said was positive progress with a voluntary code of practice on the issue, introduced in 2023, by the insurance sector.
Minister of State Robert Troy said he has prioritised the Central Bank (Amendment) Bill 2025 that will give effect to the right to be forgotten following industry engagement.
He said the Cabinet has now agreed to bring forward legislation which will ensure that cancer survivors cannot be discriminated against when it comes to certain insurance products, specifically mortgage protection.
The so-called 'Right to be Forgotten' legislation was introduced by Fianna Fail Deputy Catherine Ardagh under the Central Bank (Amendment) Bill 2025.
Mr Troy said the voluntary code is being fully adhered to by the eight insurers who originally signed up.
A report from Forvis Mazars, on behalf of Insurance Ireland, found that more cancer survivors have access to mortgage protection without increased cost than prior to the introduction of the code.
Mr Troy said: 'Since taking on this brief, I have recognised the importance of the issue for cancer survivors, their partners, and families.
'By adopting this Bill in Government time and focusing on amendments at Committee stage, it has allowed me to introduce it faster and secure its place on the agenda before the summer recess.'
ADVERTISEMENT
Learn more
Chief executive of the Irish Cancer Society Averil Power said the society released research in 2022 outlining how hard it was for people affected by cancer to access insurance and other financial products in Ireland.
'We found that only one in four cancer survivors felt they were treated fairly when buying financial products.
'After years of campaigning, we welcomed the introduction by Insurance Ireland of a voluntary code to improve access to mortgage protection insurance for cancer survivors.'
Ms Power said the Irish Cancer Society has consistently argued that legal protection was needed and that other insurance products should also be covered.
The Bill seeks to enshrine the 'Right to Be Forgotten' for cancer survivors in Irish law, ensuring they are not unfairly treated in accessing insurance products, such as mortgage protection insurance, due to their past medical history once they have met defined recovery milestones.
It is understood that the Department of Finance has engaged extensively with stakeholders, including the Irish Cancer Society, Insurance Ireland, regulators, and international peers, in order to identify the most appropriate and effective means to progress this legislation.
It is expected that committee stage amendments are also being prepared, and the Department of Finance will work in consultation with the Attorney General's Office, to ensure the bill is fully compliant with EU law and operationally viable.
Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

Govt walks back plans to force companies to slap health warnings on booze amid rising cost pressure & Trump tariff fears
Govt walks back plans to force companies to slap health warnings on booze amid rising cost pressure & Trump tariff fears

The Irish Sun

time8 hours ago

  • The Irish Sun

Govt walks back plans to force companies to slap health warnings on booze amid rising cost pressure & Trump tariff fears

THE Government has canned plans to force booze companies to put health warnings on beer, wine and spirits. The measure has been slapped with a two-year delay due to concerns that it would hurt Irish 3 Frank Murray of Alcohol Action Ireland said there is a huge link between cancer and alcohol consumption 3 Tainiste Simon Harris brought the motion to cabinet Credit: PA The last The law was due to kick in next year but the Cabinet today agreed to put it on the long finger following backlash by the booze businesses. Industry figures had warned the Government that the introduction of the labels specifically for Ireland would create an added cost for businesses which could have an impact on prices for consumers. This increase in cost for companies was coming at a time when Trump is threatening tariffs of up to 30 per cent on all goods travelling from READ MORE IN IRISH NEWS Many Irish beer and whiskey companies rely on the US market for major sales, and tariffs run the risk of hurting their bottom line. In a bid to ease the pressure on these companies, the Cabinet today agreed to delay the introduction of the Tanaiste The Tanaiste told his Government colleagues that the delay will enable the Most read in Irish News However, one Minister told the Irish Sun that the alcohol labelling law will not see the light of day under the current Government. They said: 'That's that done. You won't be hearing about that again.' 'PEOPLE DON'T KNOW THOSE RISKS' Alcohol Action Ireland had previously slammed the Government's decision to delay the label law. Chairperson of Alcohol Action Ireland Professor Frank Murray told 'Unfortunately, the risk of alcohol consumption in terms of cancer, for instance, begins at very low levels of alcohol consumption, particularly breast cancer. 'Again, most people don't know that I'm afraid.' NEW PLAN The The proposal comes as part of a newly published ten-year NHS plan. There have also been similar initiatives in other countries — including 3 It was proposed that booze get slapped with a health warning Credit: Getty

'The real work starts now': Long-awaited inquiry into drug that causes birth defects begins
'The real work starts now': Long-awaited inquiry into drug that causes birth defects begins

The Journal

time12 hours ago

  • The Journal

'The real work starts now': Long-awaited inquiry into drug that causes birth defects begins

A LONG-AWAITED inquiry into an antiepileptic drug that can cause serious birth defects if used during pregnancy has finally gotten underway, nearly five years after the Government committed to holding one. The non-statutory inquiry into the historical licensing and use of sodium valproate will have three strands, with statements from those affected by the drug expected to be taken from September. Health Minister Jennifer Carroll MacNeill has welcomed the commencement, saying that it 'will give those directly affected by sodium valproate an opportunity to have their voices heard'. The inquiry was approved by Cabinet in July 2023 , almost three years after the then-health minister Stephen Donnelly committed to holding a probe into the drug. Barrister and mediator Bríd Flaherty was announced as the chairperson of the non-statutory inquiry in June 2024, with Donnelly saying at the time that he intended to get it up and running ' in a matter of weeks ', but this did not take place. The delay in the commencement of the inquiry is understood to have been due to the fact that the data regulations had yet to be finalised. Sodium valproate can cause serious birth defects and developmental disorders to an infant if taken during pregnancy and women have been advised against using it unless no other treatment is possible. The drug was prescribed in Ireland and elsewhere for years after the danger was discovered and many countries are now investigating its use. Today, the Health Products Regulatory Authority (HPRA) states that the drug can cause birth defects and problems with the development and learning of the child if their mother takes it during pregnancy. Advertisement Children exposed to the drug while in the womb are at a high risk of serious developmental disorders (in up to 30-40% of cases) and congenital malformations (in approximately 10% of cases). Symptoms of fetal valproate syndrome (FVS) vary, but can include characteristic facial features, spina bifida, congenital heart defects, cleft lip and/or cleft palate, genital abnormalities, skeletal abnormalities and developmental delay. The drug's risk to infants has been made public in recent years, but campaigners in the UK found documents in the National Archives that indicated health regulators were aware of the risk as far back as 1973 but chose not to warn patients, saying it 'could give rise to fruitless anxiety'. A HSE report published in 2018 estimated that 1,250 children have been affected by valproate since 1975 in Ireland. In 2021, an investigation by The Journal Investigates found that around 3,000 Irish children were potentially harmed by exposure to the drug in the womb. Read The Journal Investigates's investigation into the valproate scandal . Last January, doctors began informing men of the potential risks that taking sodium valproate can have on their future children before prescribing it to them following precautionary measures recommended by the European Medicines Agency. Inquiry The Department of Health said the inquiry will have three strands. The first strand will be the review phase, which will establish a timeline for the use of sodium valproate in Ireland 'in women of childbearing potential including information on regulation, prescribing, dispensing and safety information issued'. The inquiry will seek to document the evolution of the regulation of the drug and the practices around the control of it. The Department said the inquiry 'will have responsibility to request documentation and submissions from a range of stakeholders', and the chair will record 'difficulties encountered where such requests are refused as part of their reporting function'. The second strand of the inquiry will seek oral statements from anyone impacted by the use of the drug, including people diagnosed with Foetal Valproate Spectrum Disorder (FVSD), their mothers and other family members who may wish to participate. This is anticipated to begin in September. Anyone who wishes to take part in this strand of the inquiry can register their interest on its website . These sessions will be held in private, and other stakeholders may also be invited to provide oral statements in separate sessions. Related Reads Chairperson appointed to probe into drug that causes birth defects after almost a year's delay Six months on, chairperson yet to be appointed to inquiry into drug that causes birth defects Doctors to inform men taking sodium valproate of risks to unborn children The third strand will focus on assessing the health service's current capacity to respond to safety issues 'related to use of anti-seizure medications (ASMs) in women of childbearing potential'. This will involve an assessment of the current systems in place to respond, disseminate and implement measures that address these potential safety issues, the development of other recommendations regarding current control systems for sodium valproate and other ASMs, and the services and supports for those impacted by sodium valproate. The Department said the results of this assessment will inform future service development. A communications campaign will be launched in the coming weeks to raise public awareness and support engagement with the inquiry. 'The real work starts now' Last month, when the inquiry had yet to commence, the Organisation for Anticonvulsant Syndromes (OACS) Ireland group, which supports families that have been impacted by the drug, told The Journal that it was seeking a meeting with the Minister for Health to discuss the status of the inquiry. Today, Carroll MacNeill said she was 'grateful' to meet with OACS Ireland recently 'and I know this is an important day for them and the families they represent'. 'I have every confidence that the Chair will conduct an independent and fair Inquiry and finally get answers for those affected and their families,' she said. In a statement, chair of OACS Ireland Karen Keely, whose three adult sons have been affected by exposure to sodium valproate, said: 'The real work starts now. 'The Inquiry will draw a spotlight on a public health issue which, whilst life-changing, is perhaps not as well known or understood by the public as other public health issues,' Keely said. Solicitor Ciara McPhillips, who represents OACS Ireland within the inquiry process, said: 'Together with OACS, I look forward to working with all stakeholders under the stewardship of the Chair to ensure those affected understand how it arose that women and mothers were prescribed a medication, which whilst very effective in preventing seizures, was so devastatingly detrimental to their children – many of whom will never live independent lives.' Readers like you are keeping these stories free for everyone... A mix of advertising and supporting contributions helps keep paywalls away from valuable information like this article. Over 5,000 readers like you have already stepped up and support us with a monthly payment or a once-off donation. Learn More Support The Journal

The condition with no obvious symptoms you might notice when exercising – and it affects one in four Irish people
The condition with no obvious symptoms you might notice when exercising – and it affects one in four Irish people

The Irish Sun

time13 hours ago

  • The Irish Sun

The condition with no obvious symptoms you might notice when exercising – and it affects one in four Irish people

THERE is a condition with no obvious symptoms that you might notice when you're exercising that could be a silent killer - and it affects one in four Irish people. The HSE has taken to Advertisement 1 High cholesterol is one of the most common conditions in Ireland Credit: Getty Images - Getty High cholesterol means there's too much of a fatty substance called cholesterol in your blood - and it puts you at risk of heart problems and stroke. Affecting one in four people in Ireland, you will not feel it or notice any symptoms, and the only way to know is by getting a blood test through your GP. High cholesterol is mostly caused by lifestyle habits like eating fatty food, not getting enough The Advertisement READ MORE IN HEALTH "Too much cholesterol can block your blood vessels. It makes you more likely to have heart problems or a stroke. "Cholesterol is made in the liver and helps your body function, but too much of it in your blood can block vessels and cause serious health issues." And you may notice it if you have the following symptoms when exercising: Chest pain or tightness Shortness of breath after light activity Fatigue more quickly than usual Pain or cramping in your legs MOST READ IN HEALTH Exclusive The condition can also be inherited, and your chances are higher if you have conditions like high blood pressure, diabetes or an underactive thyroid. Advertisement A blood test will measure both your 'good' cholesterol and your 'bad' cholesterol along with other fatty substances. High blood pressure, high cholesterol and type 2 diabetes are all dubbed 'silent killers' - should we really be that worried? Your GP may recommend a cholesterol test if you're over 40, overweight or have a You might also need regular testing if you have high blood pressure, kidney disease, pancreatitis or other related conditions. If your cholesterol is high, the HSE said you must make lifestyle changes like eating a healthier diet and getting more physical activity. Advertisement In some cases, you may be prescribed TREATMENT AND PREVENTION STEPS Statins are the most common treatment and must be taken long term, since cholesterol levels usually rise again when you stop. And this comes with its own side effects, including headaches, indigestion, diarrhoea, constipation and muscle pain. One of the biggest factors in managing cholesterol is diet - especially cutting down on saturated fats like butter, fatty meat, cream and cheese. Advertisement Instead, Exercise is another key part of treating the condition with 150 minutes of moderate activity helping to move cholesterol to the liver and be broken down. Health bosses also said that smoking lowers your good cholesterol and damages your arteries, so quitting is a must if you have the condition. And lastly, alcohol should also be reduced with at least two to three alcohol-free days per week and avoiding heavy or binge drinking. Advertisement

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into a world of global content with local flavor? Download Daily8 app today from your preferred app store and start exploring.
app-storeplay-store