
Portiuncula review: How can the same issues occur at the same hospital again?
Portiuncula hospital
– particularly around governance, communication, the presence of consultants and training and reliance on locum consultants.
Seven years later, the public would be forgiven for wondering if this is Groundhog Day, as another review at the Ballinasloe hospital highlights strikingly familiar concerns.
'Unfortunately, although changes were made following the 2018 review, many of the same scenarios have been identified by this 2024 review process,' a review summary noted.
On Wednesday, the Health Service Executive published a summary report of five external reviews into the care provided to women and their babies at the Ballinasloe hospital.
READ MORE
The reviews were commissioned after five cases of
neonatal encephalopathy
(NE) requiring therapeutic hypothermia (known as neonatal cooling) were identified in a close time period. NE is an impairment of neurological function.
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Maternity services across Ireland should be reviewed, expert group urges following Portiuncula report
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Adding to this, a further five reviews are under way, while two more reviews are due to begin imminently.
In the summary, the review team laid out four common themes of concern: communication, governance, clinical care, leadership and clinical governance and infrastructure.
For anyone who consistently follows health news, the terms will be familiar. Time and time again, they are touted as the reason why things go wrong in our health service.
But how can the same issues occur at the same hospital again? Steps were taken to improve things. One of the recommendations in the 2018 report was to improve clinical governance. Consequently, the responsibility for maternity services was given to a new clinical director from the hospital group.
Wednesday's report notes, however, that while this might have seemed a 'positive move', the position has no executive oversight, no regulatory or budgetary control and their role is 'purely oversight and advisory'.
'There have been a number of changes in recent years to the governance structures of HSE hospitals from health boards to hospital groups to regional groups,' the report said.
'The further the distance between the key decision makers and the clinical coalface, the more likely it is that decisions will be significantly delayed and based more on financial merit than clinical need.'
As such, the review team has recommended that clinicians take up leadership roles, and reliance on locum consultants is reduced.
The review team also noted the two communication systems in place, which they said should be simplified to make it more efficient and to reduce the 'clinical risks'.
Furthermore, the report said there were situations in which staff were unable to contact the consultant on call due to mobile phone coverage problems.
'This is not a safe or satisfactory arrangement and needs to be resolved as a matter of urgency,' the report added.
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What is HIE? The condition affecting newborns has led to reviews in Portiuncula hospital
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The hospital's maternity unit is small, delivering 1,400 babies annually. Consequently, the review team cited difficulty in its ability to provide the 'full range' of maternity and newborn services and to attract permanent staff members.
'It is operationally challenging and there are significant clinical risks in providing maternity services in this way,' it said.
In conclusion, it found 'the current situation does not meet the expectations of parents, increases clinical risk, and is no longer sustainable'.
That statement is stark, but the more alarming finding is the review team stating the issues arising in the report are ones that 'could plausibly arise in other similar sized maternity units'.
As such, the team 'strongly recommends' that there is an opportunity to review the way maternity services are delivered across the State.
Such a finding will do little to reassure expectant parents of the safety of the maternity system. If anything, it will leave them with more questions than they had before.
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Irish Times
4 hours ago
- Irish Times
How eating disorders are changing: ‘I'm not the stereotype. I'm a man, I'm plus-sized'
When William Dwyer Joyce was a teenager, skinny jeans and Indie bands were what was cool. To be slim was fashionable. As a someone who didn't fit into that stereotype, and who was always 'plus-sized', Dwyer Joyce turned to food as a coping mechanism. The now 32-year-old was diagnosed with binge-eating disorder when he was 21, though he says he struggled with mental health difficulties long before that diagnosis. 'For me, my binge eating was very secretive. It was going to the shop, getting large amounts of things like chocolate, crisps, cookies, whatever. And going home and secretly eating it to the point where I could not eat it any more,' he says. 'It created a coping mechanism that was quite harmful because my body image was very poor. It was about numbing. In a sense it was self-harm. If you eat to the point of pain, it's not a nice thing to go through.' READ MORE Compounding this difficulty, Dwyer Joyce also struggled with alcohol addiction and drug misuse issues. These challenges, he says, all came from the same place: a desire to be able to exert control. He is now five years sober. 'When I got sober, it was like I was in a house that was on fire. Sobriety put the fire out, but now I'm standing in rubble and I have to build the house again,' he was when he seriously sought help for his eating disorder. 'In April 2020 I got sober for the last time. A year after that, in 2021, I had a year of sobriety under my belt. My 30s were knocking on my door and I thought, I cannot live like this forever and the only person who can change this was me.' One difficulty he found when seeking help, he says, was the questioning attitude and scepticism he faced by some healthcare professionals because he doesn't fit the common eating-disorder stereotype: a young woman or teenager with anorexia. 'I am the opposite of the stereotype in that I'm a man, I'm plus-sized, I wasn't restricting food,' he adds. 'There is all this messaging around fatness or plus-sized people that if you're fat it's a moral failing or you're lazy or you don't care about how you look. But that's just not true.' William Dwyer Joyce: 'I am the opposite of the stereotype.' Photograph: Dara Mac Dónaill This stereotype is beginning to change, according to Laura Casey, director of services at Lois Bridges, an eating disorder treatment centre in Sutton, north Co Dublin. The number of young men seeking help at the centre has increased in recent years, she notes. Casey attributes this rise to the increasing gym culture seen online – in which men are constantly fed images of bodybuilders with very little body fat – combined with the masculine tendency of men to keep their feelings to themselves. 'But when they do go and reach out, they're not heard the same. Their voices can be dismissed a bit easier,' she says. Another changing trend is the prevalence of a condition known as avoidant/restrictive food intake disorder, or Arfid, which is often diagnosed among people who are neurodivergent. 'It's sometimes called the beige diet; they eat a lot of chicken nuggets and chips. But we're moving away now from language that describes these people as being a picky eater, and acknowledging in many cases they have a sensory aversion to something.' Laura Casey, director of services at Lois Bridges eating disorder treatment centre in Sutton, Dublin. Photograph: Dara Mac Dónaill According to Casey, Arfid can have a significant impact on an individual, particularly in a social setting. 'Sometimes a person's diet is so restrictive they won't eat. There is a lot of shame and stigma if all they are able to eat is a chicken fillet roll. So, nutritionally, they can be at the same risk as anorexia. It affects their vitamin intake and electrolytes,' she says. When it comes to certain foods, some people with this diagnosiscan have a panic attack or feel like they're choking. 'They can only eat yoghurts and drinks,' she adds. Awareness of eating disorders has increased since the Covid-19 pandemic, when there was a rise in the number of referrals for treatment to HSE eating-disorder teams, who provide specialist treatment. HSE data shows there were 894 referrals to such teams last year, a 33 per cent increase on 2023. There was also a 24 per cent rise in accepted referrals, where patients proceed to treatment after an initial consultation. A total of 562 patients were assessed last year, of which 90 per cent were female and 59 per cent were children under the age of 18. One-third were teenagers aged between 15 and 17. Still, the service also saw the number of adults accessing treatment increase by 51 per cent. You're either too sick for the psychiatric hospitals or you go into a general hospital and there's no help there for these things — 'Rebecca' Of those assessed, 503 had an eating disorder, 118 more diagnoses than in 2023. Some 63 per cent (318) presented with anorexia nervosa; 18 per cent (97) with an 'other specified feeding or eating disorder' (OSFED); 8 per cent (42) with bulimia nervosa; 3 per cent (16) with Arfid; and 2 per cent (10) with binge-eating disorder. Many eating disorders begin the teenage years. But disorders often don't end there. Rebecca, not her real name, was first brought to Child and Adolescent Mental Health Services ( Camhs ) at age 15. However, she believes this 'did a lot more harm than good'. Although she acknowledges there are many good people working in the service, she was unhappy with the attitudes she faced in relation to her anorexia. Then the coronavirus lockdown happened, shutting down vast swathes of regular life. 'Everything was gone, and I deteriorated very rapidly.' Following this, she underwent a 'string of hospital admissions and A&E presentations' to help with her diagnosis, but she says it was like a 'revolving door'. 'You're either too sick for the psychiatric hospitals or you go into a general hospital and there's no help there for these things. You're stuck between nothing that will help,' she says. 'When you go into a general hospital, it's really only for one thing: to be fed against your will. But it's so important to get to the root cause of it. It was very difficult to find help that suited me. And then when people do offer you that help, it's hard to accept it if you've had bad experiences. I'm still struggling a lot.' The almost 21-year-old makes a comparison to alcoholism: relapse can be a common challenge for people, and oftentimes the difficulties of the illness are persistent. 'But there's no AA meetings [for eating disorders] around the country that you can pop into. You're kind of just left alone,' she adds. Dr Art Malone, a consultant psychiatrist and chair of the eating disorder specialist interest group at the College of Psychiatrists, says one of the biggest challenges is that some areas of the State have inadequate access to the necessary specialist services. 'Not all areas that have a specialist service are fully resourced to deliver the sort of service they would need to do. The biggest one is probably the lack of higher-level care needed for severe cases, so the lack of inpatient treatment is something all teams have to contend with,' he says. Dr Malone says that for the 'very small minority of patients' who have very severe, acute illnesses there is 'no higher-level care available in the way that it should be'. 'What ends up happening is there can be funding sought in other places such as private places or abroad but there can often be fairly lengthy delays in arranging that and then even when it is arranged – because it's taking people out of their home environment – it can be quite tricky then to transfer their treatment back to their own home set-up,' he says. 'Body positivity was such a thing, but now we've gone back almost 20 years,' says Alicia Woods, clinical nurse specialist at Lois Bridges. Photograph: iStock Dr Malone says there's a big push to try to make early intervention a priority, as this can prevent people from needing inpatient care. He cites international research that found the relapse rate for people with severe illness who receive inpatient treatment is around 50 per cent in their first year. 'But it's important to note that services where they do exist are extremely hardworking. Things have come on such a huge distance in a very short time, but it's coming from such a low base in terms of service accessibility that there is still a way to go.' [ Eating disorders: 'I wouldn't speak to my worst enemy the way I talked to myself' Opens in new window ] In recent years, the Government has taken steps to improve eating-disorder services. Currently, 14 of the 16 specialist eating disorder teams recommended in its internal plans are funded. Minister of State for Mental Health Mary Butler says no patients have been treated abroad this year so far for specialist eating-disorder care. 'I'm very proud of the progress we are making in establishing a full suite of services to support people with eating disorders, from early intervention in the community to the development of specialist inpatient beds for acute care,' she says. However, things are far from perfect, those working in the sector say. Figures from the HSE show that one-third of funded posts at eating disorder regional specialists teams are currently unfilled. In the adult eating disorder team in the Sligo, Leitrim, South Donegal health area, there are more vacancies than people in post: 3.2 whole-time equivalent staff are in place, with seven unfilled posts in the area. Furthermore, there are only three adult specialist eating disorder beds in the country, all of which are in St Vincent's hospital, Dublin. The rules for these beds, which are for those who are acutely unwell, require patients to be within that hospital's catchment area to be treated there. As a result, people with eating disorders outside that area who go into public hospitals for treatment are typically referred to a general psychiatric unit. Often they are unable to access specialised care in such settings. However, The Irish Times understands a plan has been devised by the HSE to increase the number of public eating-disorder beds nationally. Minister of State for Mental Health Mary Butler says no patients have been treated abroad this year so far for specialist eating-disorder care. Photograph: Brian Lawless/PA Wire At least 20 new specialist beds will be established in the coming years, under proposals submitted by the HSE for Ms Butler's approval. The beds will be spread between Dublin and the rest of the country, but all of them will have a national catchment area. For some people, recovery feels impossible. Aoife, which is not her real name, developed eating disorder behaviours when she was 12, after she sought to lose weight for her Confirmation. 'My family weren't very nice about my body. But also society. You'd be in drama class and I was the biggest so I would have to try on the costume and if it didn't fit me then nobody would get it. Then there were things like the Special K diet, or Kate Moss's saying about skinny being better,' she says. The 32-year-old Cork woman says she was diagnosed with anorexia at the age of 15, and went into hospital when she was 16, which she describes as 'the worst point in my life ever'. 'I couldn't control anything. I had a tube in my nose, I wasn't allowed to walk anywhere. I basically just lay in bed. I soiled myself because it would expend too much energy to go to the bathroom. It was only about weight restoration, not about treating the eating disorder,' she says. She struggled through college but was determined to continue her studies. I've been told I'll never recover. I have chronic anorexia. So you ask yourself, what's the point in trying? — 'Aoife' After graduating as a teacher, she realised she needed to get better before she could work full-time. In 2016, she returned to inpatient care. She improved somewhat, she says, but was not in recovery. She was admitted again two years ago, but had to leave early due to panic attacks. For her, she says, a history of trauma is playing a role in her current condition: her sister died when she was very young. 'I overate when she died; that was soothing myself. My life felt out of control, I didn't know who would die next. Food was something I could control,' she says. But it is 20 years since the onset of those challenges. These days, she feels quite hopeless about her current trajectory. 'I've been told I'll never recover. I have chronic anorexia. So you ask yourself, what's the point in trying? Normal eating is no longer normal for me. This has become my normal and it's very hard to see outside of it,' she says. [ Eating disorders in later life: Some of my peers have had teenage weight levels for decades Opens in new window ] 'It's pointless to be here every day. I keep wondering, how did things come to this? I'd love for someone to tell me what to do because I just don't know where to go or what to do. I look inward wondering what I could do differently. What did I do to deserve this?' Trying to find somewhere to go is something many patients experience. Alicia Woods, clinical nurse specialist at Lois Bridges, says the centre is a private facility, but they receive 'phone calls everyday of the week from people who don't have private health insurance'. 'We treat a range of eating disorders. And in terms of age, we've treated from 18 up to people in their early 70s,' she says. 'The majority of older people with eating disorders have had it their whole life but they just haven't had the information, education or support to seek help. Some people do develop it later in life.' Though Woods says the reasons why individuals develop eating disorders are complex and nuanced, she believes social media is playing a role. 'Body positivity was such a thing, but now we've gone back almost 20 years. The videos on social media, encouraging people to obsessively run 5K a day, or the 'what I eat in a day' videos [and the food quantity] is not enough to feed a toddler,' she says. She is also concerned about the potential impact the widespread availability of weight loss jabs like Ozempic might have on vulnerable individuals. 'We know that people can put in fake weights and get these prescriptions. If someone already has a low [body mass index] ... the potential of that is frightening,' she adds. But even when people can access treatment, often recovery is not linear, according to 38-year-old Edel Higgins. She was diagnosed with an eating disorder when she was around 25. She didn't know much about such disorders at the time, but says she had 'always tried to change my physical appearance'. [ Families: the untapped superpower in eating disorder recovery Opens in new window ] It took four inpatient stays before she reached a point where she sees herself as being in recovery. She says: 'It doesn't just take one go. People often feel guilty when they have to go back. But it's such a complex illness.' The Tallaght woman is four years in 'proper recovery', but she says for her that doesn't mean the eating disorder is 'completely gone', but just now she has the 'resilience' to acknowledge and challenge those urges when they arise. She writes poetry to help her cope. She looks at inspirational quotes hung up on her wall. 'Sometimes I wish I could wake up, go about the day, not having all of these overwhelming feelings – the eating disorder and mental health [difficulties]. But it doesn't work that way. It can be frustrating. But it's about findings ways to deal with it.' Bodywhys (The Eating Disorders Association of Ireland) – – (01) 210 7906 – alex@

The Journal
12 hours ago
- The Journal
Charlie Bird's wife supporting All-Ireland morning walk in aid of Motor Neurone Disease
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Irish Times
14 hours ago
- Irish Times
Boy who suffered catastrophic injuries after fall at park settles case with €3.3m interim payment
A boy who suffered 'catastrophic and life-changing' injuries after he fell and hit his head at a Dublin City Council-owned park almost 10 years ago has settled a High Court action against the local authority and a GP with an interim payment of €3.3 million. James Higgins, who is now 12, from East Wall, Dublin 3, requires around-the-clock care, is essentially non-verbal, suffers with epilepsy and will be a wheelchair user for life, the court heard on Friday. The interim settlement agreement was reached following mediation. The case will return to court in six years. The court heard there were complex questions relating to causation and liability in the case. The case had been contested. READ MORE Kevin Higgins brought proceedings on behalf of his son James against Dublin City Council and Dr John Taylor, claiming they acted negligently and in breach of their duties. Jeremy Maher SC, for James, said the boy, when he was two-and-a-half years old, suffered 'catastrophic and life-changing' arising from a fall at May Park, Malahide Road, Dublin 5, on December 1st, 2015. Mr Maher said the boy, while retrieving a football, fell on an all-weather soccer pitch where slush had accumulated and hit the left side of his head. Mr Maher said it was their case the pitch was in dangerous condition and should not have been in use and that the council was in breach of its duty and negligent in its management of the park. James was subsequently brought to Dr Taylor's surgery at Ardlea Road, Artane, Dublin 5, Mr Maher said, where it is alleged the GP was negligent and breached his duty in failing to immediately refer the child to hospital. James was later that evening brought to Children's Health Ireland Temple Street. There it was determined he had suffered a bleed within his skull and he underwent emergency surgery, Mr Maher said. Mr Maher said this surgery was life-saving, but the damage had advanced to such an extent that James was left with devastating injuries. The barrister said James required around-the-clock care, was essentially non-verbal, suffered with epilepsy and would never be able to work or live independently. Mr Maher said James's 'heroic' parents had given up their careers to care for James. Mr Maher said that following mediation, the defendants had agreed the interim settlement of €3.3 million. Mr Justice Paul Coffey approved the settlement, stating that James's case was a reminder of the fragility of life and the limitless nature of parental love. He said it had been 'deeply humbling' to listen to Mr Higgins address the court about James's condition and their experience of his care.