Round-the-clock carer: One woman's battle for her family's survival

New Straits Times

18-06-2025

KOTA TINGGI: A housewife's daily life is a testament to her resilience, as she provides round-the-clock care for her bedridden husband and their youngest son, who is battling a range of serious medical conditions.
Parini Masiran, 49, said her 14-year-old son, Muhammad Aqiel Asyraaf Zamri, was born with multiple health complications, including cerebral palsy, chronic lung disease, hyperactivity, gastroesophageal reflux and growth problems.
"He requires close supervision and special care," she said.
To add to the burden, her husband Zamri Daud, 57, was left unable to walk after a severe joint inflammation during Ramadan.
He was terminated from his job as a security guard and is now awaiting approval for invalidity pension from the Social Security Organisation (Perkeso).
"It started with swelling in his knee , however the inflammation worsened and now he's fully reliant on a wheelchair. I have to help him to the bathroom daily," she said.
Despite the weight of caring for a disabled husband and a chronically ill son, Parini still clings to hope and faith.
Her family survives on just RM900 in monthly aid.
Parini said her family relies solely on the RM900 financial assistance from Baitulmal and the Social Welfare Department.
RM400 goes to their household expenses, while RM500 is for her special needs child Aqiel.
"Doctors once said he would not live long, but Aqiel is now 14.
"He needs around RM1,500 every month for his milk, adult diapers and medical care. We get by because the house is fully paid for, but everything else is bare minimum."
Parini has three children. One is still in Form Four while her eldest son is married and has his own responsibilities.
"There's just enough for food," she said. "I can't take up work – I have to be home for Aqiel and my husband, however, to make additional income I sell kuih and banana chips when I can.
Despite her hardship, she still wears a smile.
"As a mother, we must be strong. Life and death are god's will, but we don't stop trying," she added.