logo
Family appeals for help to raise funds for son's 24-hour palliative care

Family appeals for help to raise funds for son's 24-hour palliative care

The Citizen29-04-2025
Family appeals for help to raise funds for son's 24-hour palliative care
A Centurion family is calling on the community's support in raising funds for their 10-year-old son.
Eben Beukes requires 24-hour palliative care following a series of life-threatening illnesses.
Once a vibrant and kind-hearted child, Eben's life dramatically changed in December after contracting Covid-19.
His father, Hendrik, explained that what began as a viral infection quickly escalated into a critical health emergency.
Hendrik said, Eben developed Paediatric Inflammatory Multisystem Syndrome (PIMS), a rare but severe autoimmune reaction, which was followed by a secondary streptococcal infection.
'His body just couldn't fight anymore. He suffered multiple strokes and severe cerebral damage. Practically overnight, our loving little boy was left completely dependent on round-the-clock care,' said Hendrik.
The family's story is one of quiet strength and unimaginable loss, as two years ago, Hendrik lost his wife, Eben's mother, to a stroke.
Now, as a single father, he is not only caring for his critically ill son but also supporting his teenage daughter, Ané, who is facing the trauma of her brother's sudden health decline.
'As a father, I try to create a space filled with love, honesty, and prayer. My daughter and I talk openly about our feelings, fears, and hopes. I encourage her to express herself, and we lean on our faith and the close support of family and friends to carry us through,' he said.
Hendrik said some days are harder than others, 'but we take it one day at a time, leaning on God and each other'.
Despite these challenges, Hendrik continues to pour all his love and strength into giving Eben the comfort, dignity, and care he deserves. However, the emotional and financial toll is heavy.
Eben now relies on:
– 24-hour nursing and palliative support
– tube feeding and respiratory assistance
– ongoing seizure management
– specialised equipment, including oxygen and suction machines
– basic supplies such as diapers, hygiene products, and medication
'The costs are overwhelming,' Hendrik said.
The family is on a journey to raise R500 000 to cover Eben's medical bill.
'Medical aid does not cover long-term palliative care at home. Every cent donated will go toward Eben's nursing care, equipment, and daily medical needs. The R500 000 would definitely go a long way in covering Eben's bill, but any amount donated is greatly appreciated and we are grateful for the support.'
He acknowledges that he can't carry the burden alone.
'This is the hardest journey I have ever walked. Balancing work, caregiving, and emotional support is exhausting. I find strength in my children's smiles, in prayer, and the kindness of others.'
He said the family is asking for any donation, prayer, or simply sharing Eben's story to help ease their load and ensure Eben continues to receive the care he needs.
'Every donation will go directly towards Eben's 24-hour nursing care, essential medical equipment, and daily consumables such as feeding supplies, diapers, and urgent medical needs,' he explained.
'While R500 000 would provide a solid foundation to sustain his care for the coming months, the high cost of private nursing and specialised supplies means ongoing support will likely be needed. With faith in God's provision and the generosity of others, the family remains hopeful that we will be able to meet Eben's continued need,' he said.
Hendrik also extended heartfelt gratitude to the doctors and nurses at the PICU at Unitas Hospital.
'Their dedication and compassion carried us through the darkest days. They weren't just there for Eben, but for us as a family.'
He said the company he worked for the past 15 years has stood by him and supported him through this journey.
If you would like to reach out personally or help the family, you can contact Hendrik on 061 462 1420.
He further expressed his gratitude to the community for the continued support.
For more information and how you can donate, visit the following link:
https://www.backabuddy.co.za/campaign/help-us-give-eben-the-care-he-deserves
Do you have more information about the story?
Please send us an email to bennittb@rekord.co.za or phone us on 083 625 4114.
For free breaking and community news, visit Rekord's websites: Rekord East
For more news and interesting articles, like Rekord on Facebook, follow us on Twitter or Instagram or TikTok.
At Caxton, we employ humans to generate daily fresh news, not AI intervention. Happy reading!
Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

Chikungunya virus: symptoms, treatments and how to protect yourself from the mosquito-borne threat
Chikungunya virus: symptoms, treatments and how to protect yourself from the mosquito-borne threat

IOL News

timea day ago

  • IOL News

Chikungunya virus: symptoms, treatments and how to protect yourself from the mosquito-borne threat

Southern China is experiencing a chikungunya outbreak, reviving memories of COVID-19 controls. Image: Jimmy Chan/pexels In what feels eerily like a return to 2020, southern China is facing an outbreak that's reviving memories of the pandemic, but this time, it's not Covid-19. It's chikungunya, a virus spread by mosquito bites that causes sudden fever and severe joint pain, often lingering for months or even years. According to Bloomberg, the outbreak's epicentre is Foshan, a city in Guangdong province in South China, where over 6500 cases have been reported in just a few weeks. The local government is acting swiftly: hospitals are keeping patients under mosquito nets, drug purchases are being monitored, and communities are undergoing mass testing and disinfection campaigns. What is chikungunya Pronounced chik-un-GUN-yuh, the virus was first identified in Tanzania in 1952, but only arrived in China in 2008. Today, it's known to circulate in over 110 countries, mostly in Africa, South and Southeast Asia, and now, more prominently, southern China. According to the World Health Organisation (WHO), symptoms usually appear 3–7 days after a mosquito bite and include: Sudden high fever. Intense joint and muscle pain. Skin rashes. Headaches. Swelling of the joints. While most people recover within a week, some may suffer from chronic joint pain for months, sometimes even years. Fortunately, deaths are rare, and the virus is not spread person-to-person, only through mosquito bites. Still, in vulnerable groups like newborns, the elderly, and those with chronic illnesses like diabetes or heart disease, the illness can hit harder. Video Player is loading. Play Video Play Unmute Current Time 0:00 / Duration -:- Loaded : 0% Stream Type LIVE Seek to live, currently behind live LIVE Remaining Time - 0:00 This is a modal window. Beginning of dialog window. Escape will cancel and close the window. Text Color White Black Red Green Blue Yellow Magenta Cyan Transparency Opaque Semi-Transparent Background Color Black White Red Green Blue Yellow Magenta Cyan Transparency Opaque Semi-Transparent Transparent Window Color Black White Red Green Blue Yellow Magenta Cyan Transparency Transparent Semi-Transparent Opaque Font Size 50% 75% 100% 125% 150% 175% 200% 300% 400% Text Edge Style None Raised Depressed Uniform Dropshadow Font Family Proportional Sans-Serif Monospace Sans-Serif Proportional Serif Monospace Serif Casual Script Small Caps Reset restore all settings to the default values Done Close Modal Dialog End of dialog window. Advertisement Video Player is loading. Play Video Play Unmute Current Time 0:00 / Duration -:- Loaded : 0% Stream Type LIVE Seek to live, currently behind live LIVE Remaining Time - 0:00 This is a modal window. Beginning of dialog window. Escape will cancel and close the window. Text Color White Black Red Green Blue Yellow Magenta Cyan Transparency Opaque Semi-Transparent Background Color Black White Red Green Blue Yellow Magenta Cyan Transparency Opaque Semi-Transparent Transparent Window Color Black White Red Green Blue Yellow Magenta Cyan Transparency Transparent Semi-Transparent Opaque Font Size 50% 75% 100% 125% 150% 175% 200% 300% 400% Text Edge Style None Raised Depressed Uniform Dropshadow Font Family Proportional Sans-Serif Monospace Sans-Serif Proportional Serif Monospace Serif Casual Script Small Caps Reset restore all settings to the default values Done Close Modal Dialog End of dialog window. Next Stay Close ✕ With over 7,000 cases reported, authorities are implementing measures reminiscent of the pandemic. Image: Saeed Saeed/pexels Not another lockdown, but a wake-up call. Though the virus itself isn't new, the scale of the response in China is catching attention worldwide. Authorities are now tracking people buying over-the-counter fever or pain relief medication, a tactic used during the Zero-Covid strategy, reports "Bloomberg". Rather than lockdowns or digital tracking, outbreak control should focus on vector management and reducing human mosquito contact, Dr Donal Bisanzio, a senior epidemiologist at RTI International, a nonprofit research group, told BBC News. According to Kang Min, Director of Guangdong CDC's Institute of Infectious Disease Prevention and Control, new cases are slowing down, but challenges remain due to international travel and the flood season, which fuels mosquito breeding. Here's what local authorities are doing: Mass disinfection drives and stagnant water removal. Encouraging window screens and mosquito nets. Fines of up to 1,000 yuan (R2 600) for businesses not cleaning up mosquito habitats. Seven-day health campaigns in high-risk towns like Lecong. Communities light mosquito coils at the same time daily to maximise the repellent effect. What does this mean for travellers and locals alike? With the outbreak spreading to 12 cities in Guangdong province and a first imported case in Hong Kong, a 12-year-old boy who had visited Foshan, global attention is growing. The US State Department has even advised travellers to China to exercise increased caution. In an interview with eNCA, Professor Tulio de Oliveira from the Centre for Epidemic Response and Innovation at Stellenbosch University discussed the chikungunya virus. He noted that in South Africa, the NICD has recorded ten travel-related cases of this virus from December to July. During the winter months, there are no immediate concerns about widespread outbreaks in South Africa. However, emphasised that the real concern for South Africa will arise in the summer when mosquito populations increase. "The variant causing concern originated in Réunion Island in March, leading to a significant outbreak with nearly 50 000 infections. While it also spread to Mauritius, effective measures helped control it there." He added, 'This variant has mutations that allow it to spread more easily through certain mosquito species.' 'Climate change and rising temperatures are expanding the areas where mosquitoes thrive, which could lead to more chikungunya cases. ' He urged vigilance as the situation evolves, especially with the potential for more introductions of the virus into South Africa as the seasons change. How to protect yourself Use mosquito repellent daily, especially in humid, rainy seasons. Install mosquito screens on windows and doors. Sleep under mosquito nets, especially if you live near standing water. Wear long sleeves and pants if you're outside at dawn or dusk. Eliminate stagnant water in plant pots, buckets, or outdoor containers. If you've travelled to affected areas and develop fever, joint pain, or rash, see a doctor and mention your travel history. Early detection helps avoid complications and stops the spread.

Does SA need a Covid-like ministerial advisory committee to deal with HIV funding cuts?
Does SA need a Covid-like ministerial advisory committee to deal with HIV funding cuts?

TimesLIVE

time3 days ago

  • TimesLIVE

Does SA need a Covid-like ministerial advisory committee to deal with HIV funding cuts?

Increase health taxes. Roll out the twice-a-year anti-HIV jab lenacapavir to stop HIV from spreading. Use artificial intelligence (AI) to do more with less. Convene a ministerial advisory committee. These are some of the things that have surfaced as potential solutions to fill the huge gap that US President Donald Trump's administration's sudden funding cuts in February have left. But would they work — and are they doable? Only if we move fast, and get lots of each thing, it seems. Health minister Aaron Motsoaledi told Bhekisisa's TV show, Health Beat, in July, that he 'would strongly consider' a ministerial advisory committee (MAC), like the one we had during the Covid pandemic for which scientists advised the health department on what to do. 'There's nothing wrong with establishing a MAC [to deal with funding cuts],' Motsoaledi admitted ... but we've not yet established anything like that for [the funding crisis].' No MAC or emergency think-tank with input beyond government structures has since been announced by the health department. But scientists warn such a committee should be an important part of the country's response to the crisis. 'We need to urgently convene a national think-tank,' medical doctor and the head of Wits RHI, Helen Rees, cautions. 'There are some really superb people who've been working in the programmes closely and well with the health department who could contribute their ideas and experience ... [and help figure out] what [strategies] can we [the health department] retain that aren't hugely expensive.' In Johannesburg, research released at the Conference on HIV Science in Kigali in July, shows HIV testing between January and March 2025 was 8.5% lower than the same time last year (before the funding cuts), and 31% less people were diagnosed with HIV in 2025. During the same period, there was also a 30% reduction in people who tested positive, who started on antiretroviral treatment, compared to 2024. So what has South Africa done so far? Motsoaledi has managed to raise a small amount of extra funding — R735m — from the treasury through the Public Finance Management Act. But it's less than 10% of the R7.9bn we've lost (and are in all likelihood about to lose in September, the end of the US financial year). The country is, however, starting to make progress with the rollout of lenacapavir, an injection that is taken once every six months, that provides near complete protection against HIV infection. About 170,000 people got newly infected with HIV in 2024, according to the latest Joint UN Programme on HIV and Aids report. A modelling study has shown if between two- and four-million people in the country take the jab, each year, for the next eight years, South Africa could end Aids as a public health threat by 2032. South Africa's medicines regulator, the South African Health Products Regulatory Authority, has told Bhekisisa the shot will be registered in the country before the end of the year. And, at a presentation at the Kigali conference, health department consultant Hasina Subedar said, if all goes well, the department will start to roll out the jab in April 2026. In July, the health department accepted an offer from the Global Fund for Aids, TB and Malaria, to reallocate R520m of its funds to buy lenacapavir from its maker, Gilead Sciences, over the next three years until cheaper generic versions become available. The funds will become available in October. But, if the health department budgets for the $60 per patient per year that the Global Fund has told them to, the grant is only enough to put about 400,000 people on preventive treatment for three years — about 10% of what is needed to end Aids by 2032. One more way to generate 'a stable and predictable funding stream' without donors, according to a July report by the public health organisation Vital Strategies, is to increase taxes on tobacco, alcohol and sugary drinks to a level where taxes constitute 50% of the selling price of the products. That money can then be used, among other things, to improve health infrastructure. According to the report, 45.7% of the price of a box of cigarettes, 27.6% of a bottle of beer and 3.4% of sugar-sweetened carbonated drinks currently go towards taxes in South Africa. Mia Malan recently asked Wits RHI's Helen Rees how the country should go about to find solutions to the HIV and TB funding crisis. Following is an edited version of the full TV interview.

US axes mRNA vaccine contracts, casting safety doubts
US axes mRNA vaccine contracts, casting safety doubts

Eyewitness News

time4 days ago

  • Eyewitness News

US axes mRNA vaccine contracts, casting safety doubts

WASHINGTON - President Donald Trump's administration on Tuesday announced it would terminate 22 federal contracts for mRNA-based vaccines, questioning the safety of a technology credited with helping end the Covid pandemic and saving millions of lives. The announcement, made by Health Secretary Robert F. Kennedy Jr., marks his latest effort to weave vaccine scepticism into the core of US government policy. "We reviewed the science, listened to the experts, and acted," Kennedy said in a statement. The health department's Biomedical Advanced Research and Development Authority (BARDA) is "terminating 22 mRNA vaccine development investments because the data show these vaccines fail to protect effectively against upper respiratory infections like COVID and flu," he added. "We're shifting that funding toward safer, broader vaccine platforms that remain effective even as viruses mutate." The changes affect Moderna's mRNA bird flu vaccine - a move the company itself disclosed in May - as well as numerous other programs, including "rejection or cancellation of multiple pre-award solicitations" from pharmaceutical giants Pfizer and Sanofi. In total, the affected projects are worth "nearly $500 million," the Department of Health and Human Services (HHS) said. Certain late-stage projects were excluded from the move "to preserve prior taxpayer investment." "Let me be absolutely clear: HHS supports safe, effective vaccines for every American who wants them," Secretary Kennedy said. "That's why we're moving beyond the limitations of mRNA and investing in better solutions." Since taking office, Kennedy, who spent two decades sowing misinformation around immunisation, has overseen a major overhaul of US health policy - firing, for example, a panel of vaccine experts that advise the government and replacing them with his own appointees. In its first meeting, the new panel promptly voted to ban a longstanding vaccine preservative targeted by the anti-vaccine movement, despite its strong safety record. He has also ordered a sweeping new study on the long-debunked link between vaccines and autism. Unlike traditional vaccines, which often use weakened or inactivated forms of the target virus or bacteria, mRNA shots deliver genetic instructions into the host's cells, prompting them to produce a harmless decoy of the pathogen and train the immune system to fight the real thing. Though in development for decades, mRNA vaccines were propelled from lab benches to widespread use through President Trump's Operation Warp Speed - a public-private partnership led by BARDA that poured billions into companies to accelerate development. The technology's pioneers, Katalin Kariko and Drew Weissman, were awarded the 2023 Nobel Prize in Medicine for their work contributing "to the unprecedented rate of vaccine development during one of the greatest threats to human health in modern times."

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into a world of global content with local flavor? Download Daily8 app today from your preferred app store and start exploring.
app-storeplay-store