logo
Orewa Local Gets #GutsyForGutCancer Running 161km In Under 24 Hours

Orewa Local Gets #GutsyForGutCancer Running 161km In Under 24 Hours

Scoopa day ago
Orewa local Neville Modlin inspired his community this past weekend running 161.8km in 23 hours and 55 minutes to pay tribute to his father who recently passed away from pancreatic cancer.
In late November 2024 when Neville Modlin's father casually mentioned he was feeling 'a little under the weather' their family had no idea that his funeral would be held on New Years Eve that same year. Neville's father passed away only 6 weeks later after a short and intense journey with pancreatic cancer which is becoming one of New Zealand's deadliest cancers with 88% of Kiwis passing away within 5 years of diagnosis.
Neville says 'the speed that everything progressed for my dad was totally unexpected.' Within 10 days they were planning the estate, after 15 he became an expert in cancer medication and in 30 he was organising fulltime care and planning a funeral. Not to mention supporting his mum throughout the process who was navigating losing her life partner of over 60 years.
Neville channelled his grief into action, taking on his biggest personal challenge in part of The Gut Cancer Foundation's #GutsyForGutCancer raising critical funds and awareness for Kiwis battling gut cancer.
'What began as a personal challenge became a public journey. I never expected the magnitude of what unfolded, besides the first 4km I was never alone' Neville says. Even at 3am he had local runners coming out to show their support and run alongside him, some whom he had never met before.
Neville and his family have been blown away by the communities support both on the day and in the fundraising campaign as they've now surpassed their initial fundraising goal by almost 6 times!
Like many New Zealanders Neville didn't know much about gut cancers when his father was diagnosed, 'because he went downhill so fast there was little support – We were figuring it out one day at a time.'
Liam Willis, Executive Officer of The Gut Cancer Foundation (GCF) highlights that gut cancer is the most common form of cancer in New Zealand with over 6,100 Kiwis diagnosed every year. 'They have some of the worst survival rates of any cancers;' 8 Kiwis die from gut cancer every day.
The GCF funds innovative research, addresses barriers to treatment and is particularly focused on improving experiences similar to Neville's by establishing a comprehensive pipeline to support Kiwis with access to vital resources throughout the cancer journey for patients and whanau.
Liam shares the GCF has created an online hub of resources that is a comprehensive source of information for anyone diagnosed with a gut cancer, adding 'our team are on hand to answer questions they or their whanau may have.' 'We are committed to developing this service to ensure we meet the need of our community and no one has to face a gut cancer diagnosis alone."
The generosity of the GCF supporters and donations help gives New Zealanders access to international clinical trials and allows the foundation to continue to be the voice for our communities. 'By raising awareness of signs, symptoms and specific risk factors we hope to see these cancers detected earlier, increasing the chances of patients surviving their diagnosis.' says Liam.
Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

Triton Hearing: Proud to support better hearing
Triton Hearing: Proud to support better hearing

Otago Daily Times

time14 hours ago

  • Otago Daily Times

Triton Hearing: Proud to support better hearing

Triton Hearing is proud to support better hearing across the Dunedin region, with trusted clinics in central Dunedin, South Dunedin, and Mosgiel. Whether you're based in the city or further out, our local team is here to help you stay connected to the sounds and people that matter most. PHOTO: Triton, Dunedin South Our experienced audiologists offer free hearing checks, personalised hearing aid fittings, and ongoing care tailored to your lifestyle. Each clinic provides a warm, welcoming environment where you can feel comfortable asking questions and exploring the latest hearing technology. At Triton Hearing, we believe better hearing changes lives – and we're committed to making hearing health easy and accessible for all Kiwis. Visit us in Dunedin, South Dunedin, or Mosgiel and take the first step toward better hearing today.

What's it like living with sarcoidosis
What's it like living with sarcoidosis

NZ Herald

timea day ago

  • NZ Herald

What's it like living with sarcoidosis

Sarcoidosis usually affects the lungs, although it can affect every system in the body. Photo / Getty Images Online only What's It Like To Be is a regular column where New Zealanders from all walks of life share first-hand experiences of living with and overcoming health challenges. Here, Donna Thomas, 58, tells Paulette Crowley about living with sarcoidosis, a rare inflammatory and autoimmune condition. I was planting some trees in my garden one day and put some compost down. I didn't put a mask on while I was doing this, which was really silly. I remember leaning over the compost bag and noticing the tiniest puff of dust going up my nostril. That was in December 2021. After that, I had some trouble breathing – shortness of breath – and didn't feel well. I went to the doctor's a few times, maybe. Then in April, I had some chest pain. My daughter drove me down to the hospital, where I ended up having a CT scan. That's when they saw a granuloma – kind of a lump of infection – on my lung. They had to remove the upper right lobe of my lung to biopsy it. That procedure didn't go smoothly, as my ribs dislocated during the surgery. It's called a subluxation and the surgeon was kind of blown away because it's unusual. But when I look back from where I've landed now, I must have been in a highly inflamed state. I was finally diagnosed with sarcoidosis, an autoinflammatory disease, in March 2022 by a respiratory physician. I learnt that well over 90% of sarcoidosis cases start in the lungs, but can go on to affect different parts of the body. About 5% of people will end up with it affecting their neurology – it's called neurosarcoidosis. That's what I have ended up with. Donna Thomas (left) before she was diagnosed with sarcoidosis. She now has regular medical appointments, and struggles with a range of health issues. Photo / Supplied Sarcoidosis is definitely one of the rarest rare disorders. The specialist who diagnosed me said most GPs would never see a case in their medical lifetimes. They call it a snowflake disease because everyone who has sarcoidosis presents so differently, meaning that much like snowflakes, no two cases are alike. This is a really big challenge for medical people, and for me as well. I had a consult with a new neurologist recently. When I asked him if he knew about sarcoidosis, he just didn't say anything. We look to medical professionals to treat us and if they don't know what's going on, it's really scary. Some of the ways that sarcoidosis affects me is that my legs, hands and feet ache. This can wake me at night. I also get cramping and burning in my muscles and I've got numbness and tingling in my fingers and toes. My cognition is also affected – I find it hard to remember things – and I get very fatigued. Sarcoidosis accelerates many conditions. I've had significant surgery around my mouth to get basal cells removed and I have cataracts that are coming on hard and fast. I've also just found out I need a hip replacement. I now live a different life to what I used to. I was a trauma specialist and managed a team of 70 people before I was medically retired. I was working 60 hours a week, like lots of people do. Back then, I could spin a lot of plates, you know, just throw anything at me and I'd just shuffle it around. And it always makes me want to cry because I miss my career, but I can't do that anymore. Now, it's not about trying to be who I was but trying to function in a way that I'm not lying in bed all day. Obviously, I can't work, but I might get in two productive hours a day, doing housework and tidying up. I have to take things slowly. If I've got medical appointments, the next day has to be a rest day because my brain and body are just tired. There's a massive spectrum with sarcoidosis – depending on the type of disease, some people can be fine, and lots will go into remission. I don't know if I'd say my disease is at the top of the chain, because I have refractory sarcoidosis, which is chronic and progressive. Frontline treatments haven't worked to put me into remission. Now, we're at the next level of treatment and the last thing we've got to try, at the moment, is a medication called infliximab. The hope is that it will bottom out my immunity and my inflammation levels will drop. I am so, so far away from the person I used to be and have a lot of grief still around that. But you know, you've just got to kind of get on with things. I can either lay down and die or stand up and live the best life I can with this. Grief just takes away time from family and it's made me realise that work's not the most important thing in the world. I've got five kids and my ninth grandchild on the way, so now, it's more family time for me. And more and more I just want to do the things I enjoy, not the things I have to do. Sarcoidosis usually affects people's lungs, although it can affect every system in the body. It mainly occurs in people, especially women, between 25 and 45 years of age. Some studies have suggested there might be a link between sarcoidosis and environmental factors, including potting mix. Some people will have no symptoms from sarcoidosis or have mild, treatable symptoms that clear within a few years. For others, symptoms can become widespread, chronic and hard to treat. To donate to Donna's givealittle, go to

Orewa Local Gets #GutsyForGutCancer Running 161km In Under 24 Hours
Orewa Local Gets #GutsyForGutCancer Running 161km In Under 24 Hours

Scoop

timea day ago

  • Scoop

Orewa Local Gets #GutsyForGutCancer Running 161km In Under 24 Hours

Orewa local Neville Modlin inspired his community this past weekend running 161.8km in 23 hours and 55 minutes to pay tribute to his father who recently passed away from pancreatic cancer. In late November 2024 when Neville Modlin's father casually mentioned he was feeling 'a little under the weather' their family had no idea that his funeral would be held on New Years Eve that same year. Neville's father passed away only 6 weeks later after a short and intense journey with pancreatic cancer which is becoming one of New Zealand's deadliest cancers with 88% of Kiwis passing away within 5 years of diagnosis. Neville says 'the speed that everything progressed for my dad was totally unexpected.' Within 10 days they were planning the estate, after 15 he became an expert in cancer medication and in 30 he was organising fulltime care and planning a funeral. Not to mention supporting his mum throughout the process who was navigating losing her life partner of over 60 years. Neville channelled his grief into action, taking on his biggest personal challenge in part of The Gut Cancer Foundation's #GutsyForGutCancer raising critical funds and awareness for Kiwis battling gut cancer. 'What began as a personal challenge became a public journey. I never expected the magnitude of what unfolded, besides the first 4km I was never alone' Neville says. Even at 3am he had local runners coming out to show their support and run alongside him, some whom he had never met before. Neville and his family have been blown away by the communities support both on the day and in the fundraising campaign as they've now surpassed their initial fundraising goal by almost 6 times! Like many New Zealanders Neville didn't know much about gut cancers when his father was diagnosed, 'because he went downhill so fast there was little support – We were figuring it out one day at a time.' Liam Willis, Executive Officer of The Gut Cancer Foundation (GCF) highlights that gut cancer is the most common form of cancer in New Zealand with over 6,100 Kiwis diagnosed every year. 'They have some of the worst survival rates of any cancers;' 8 Kiwis die from gut cancer every day. The GCF funds innovative research, addresses barriers to treatment and is particularly focused on improving experiences similar to Neville's by establishing a comprehensive pipeline to support Kiwis with access to vital resources throughout the cancer journey for patients and whanau. Liam shares the GCF has created an online hub of resources that is a comprehensive source of information for anyone diagnosed with a gut cancer, adding 'our team are on hand to answer questions they or their whanau may have.' 'We are committed to developing this service to ensure we meet the need of our community and no one has to face a gut cancer diagnosis alone." The generosity of the GCF supporters and donations help gives New Zealanders access to international clinical trials and allows the foundation to continue to be the voice for our communities. 'By raising awareness of signs, symptoms and specific risk factors we hope to see these cancers detected earlier, increasing the chances of patients surviving their diagnosis.' says Liam.

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into a world of global content with local flavor? Download Daily8 app today from your preferred app store and start exploring.
app-storeplay-store