logo
Sushmita Sen was told to take a medicine every 8 hours for the rest of her life to survive. How she overcame health challenges and pill dependency

Sushmita Sen was told to take a medicine every 8 hours for the rest of her life to survive. How she overcame health challenges and pill dependency

Economic Times21-06-2025
Choosing a Different Path
An Unbelievable Turnaround
Understanding Addison's Disease: A Complete Breakdown
What Causes Addison's Disease?
Common Warning Signs
Persistent nausea accompanied by vomiting
Pain or discomfort in the abdominal region
Frequent episodes of diarrhea
A noticeable reduction in hunger or interest in food
Unexplained weight loss
Aching in muscles and joints
Involuntary muscle cramps or twitching
Ongoing feelings of muscle fatigue or weakness
Sushmita Sen is no stranger to battling a health crisis. The 'Main Hoon Na' actress, who survived a massive heart attack in 2023, had been living with Addison's Disease, a rare autoimmune disorder , since 2014, and was told point-blank by her doctors that she had to take a steroid called hydrocortisone every eight hours to prolong her life.'There is a hormone in the body called cortisol. My adrenal glands had stopped producing it. I had gone into an adrenal crisis. I was declared steroid-dependent for life,' she told Rajeev Masand in 2019.However, the actress was determined not to rely on drugs to stay alive.Despite the diagnosis, Sushmita wasn't willing to accept a future that relied solely on pharmaceuticals. As soon as she grasped the seriousness of her condition, she made a decisive call to her fitness trainer and asked to begin training in gymnastics—something completely out of the ordinary for someone in her condition.'The doctor said not to do any anti-gravity movements. The first thing I did was call my trainer... I don't like who I am becoming in the attempt to survive.' she told MasandShe expressed a strong desire to try anti-gravity workouts, a form of aerial fitness, and pushed herself to defy the limitations that doctors had placed on her. She admitted that while this approach may not be advisable for everyone, especially those battling chronic diseases, she believed that her body was trying to guide her in a different direction.She also adopted a comprehensive detox program, trying every medical protocol she could. Along with that, she reintroduced yoga, aerial exercises, and anti-gravity training into her life. These became her tools not just for survival, but for transformation.One day, her journey took a shocking turn. After she collapsed unexpectedly, Sushmita was rushed from Dubai to Abu Dhabi for emergency medical care. Following her treatment, she was released and began her journey back to Dubai. During that time, her doctor from Turkey reached out with astonishing news. He told her to stop taking the hydrocortisone. Her body had started naturally producing cortisol again. The doctor, astounded, mentioned that in his 35 years of experience, he had never seen someone with adrenal failure regain natural hormone function. He had triple-checked the test results and was still in disbelief.For Sushmita, that moment was overwhelming—like receiving a divine message she had long waited for. Her body, once written off as steroid-dependent, had fought back and healed itself in a way that stunned even the most seasoned experts.Addison's disease is a rare yet serious medical condition that arises when the adrenal glands fail to produce adequate amounts of specific vital hormones. According to a report from Harvard Health Publishing, this disorder particularly affects the production of cortisol—a hormone that plays a central role in the body's response to stress—and aldosterone, which is responsible for maintaining the balance of sodium and potassium. These minerals directly influence the volume of fluids in the body and help regulate blood pressure. Addison's disease falls under the category of adrenal insufficiency, where the glands don't function to their full capacity.The primary cause of Addison's disease is damage to the adrenal glands, which are small, triangular organs situated above each kidney. These glands are essential for the release of various hormones that control metabolism, manage blood pressure, and support immune system performance. In the majority of cases—up to 90 percent—this damage results from an autoimmune reaction. This means that the body's immune system, which is designed to defend against harmful invaders like viruses and bacteria, mistakenly attacks the adrenal glands instead. Over time, this misguided attack impairs the glands' ability to produce hormones, leading to the development of Addison's disease.People with Addison's disease typically experience a broad range of physical symptoms, many of which are related to hormonal imbalances in the body. These symptoms often develop gradually and may worsen over time if not treated. They include:These signs are the body's way of signaling that the adrenal glands are not functioning properly. Because many of these symptoms are also found in other medical conditions, Addison's disease is sometimes misdiagnosed or goes undetected until the symptoms become severe.
Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

Cortisol Cocktail: What Is It, Why It's Trending, And Does It Actually Reduce Stress?
Cortisol Cocktail: What Is It, Why It's Trending, And Does It Actually Reduce Stress?

News18

time5 days ago

  • News18

Cortisol Cocktail: What Is It, Why It's Trending, And Does It Actually Reduce Stress?

The viral cortisol cocktail is being pitched as a cure for stress, fatigue, and poor sleep. But is there any science behind it or is it just another wellness placebo? If you've spent time on Instagram Reels or health hashtags on TikTok lately, you've likely come across influencers touting the benefits of something called a 'cortisol cocktail." This brightly coloured, alcohol-free drink, usually made from orange juice, coconut water, sea salt, and sometimes magnesium powder, is being claimed as a fix for everything from poor sleep to persistent fatigue. But can this viral mocktail really influence cortisol levels, the so-called ' stress hormone", or is it simply another internet wellness trend with little scientific backing? As stress, burnout, and sleep disorders rise globally, the appeal of a natural remedy is understandable. But the truth behind this concoction is more complicated. What Is Cortisol And Why Is Everyone Talking About It? Cortisol is a steroid hormone produced by the adrenal glands, which sit atop the kidneys. Often referred to as the 'stress hormone," it plays a critical role in regulating metabolism, blood sugar, blood pressure, immune response, and the body's sleep-wake cycle. Levels naturally peak in the early morning, helping us wake up, and gradually decline through the day. But chronic stress can keep cortisol levels unnaturally high for extended periods, which is linked to anxiety, poor sleep, weight gain, and high blood pressure. Importantly, however, most endocrinologists globally do not view cortisol as something that needs to be 'manually lowered" in healthy individuals. Outside of rare medical conditions like Cushing's Syndrome (excess cortisol) or Addison's Disease (too little), cortisol regulation is best achieved through long-term lifestyle strategies, not a one-time drink. What Exactly Is In A Cortisol Cocktail? There's no single recipe, but common ingredients include: The drink is usually consumed either first thing in the morning or just before bed, with different proponents claiming varied benefits from improved mood and energy to better sleep. Some have also taken to calling it an 'adrenal cocktail," suggesting it supports the adrenal glands that produce cortisol. What Is Adrenal Fatigue And Is It Even Real? One of the central claims behind the cortisol cocktail is that it can fix something called 'adrenal fatigue." The theory goes: chronic stress exhausts your adrenal glands, impairing their ability to produce cortisol, leading to symptoms like tiredness, low energy, and salt cravings. But most endocrinologists and medical associations, including the Endocrine Society and the Indian Society for Endocrinology and Metabolism, do not recognise 'adrenal fatigue" as a legitimate medical diagnosis. Fatigue, brain fog, or sleep issues could point to thyroid dysfunction, anaemia, vitamin deficiencies, or mental health concerns, all of which need proper medical evaluation. In short: the symptoms are real, but the condition may not be. Does The Cortisol Cocktail Actually Work? There is no clinical evidence that the cortisol cocktail directly lowers cortisol levels or treats chronic stress. None of the drink's ingredients, not even magnesium or vitamin C, have been proven in the amounts used in the cocktail, to significantly modulate cortisol. That said, the ingredients do have physiological roles: Magnesium: Plays a role in hundreds of essential body functions, from turning food into energy to supporting nerve signals, muscle movement, and steady heart rhythm. It may help with anxiety and sleep, but such benefits are generally seen only in those who are deficient, a condition uncommon in healthy Indians with balanced diets, though low levels can occur in those with poor nutrition or certain medical conditions. Vitamin C: Important for adrenal function, but meaningful cortisol effects have only been observed in high-dose supplements, far beyond what fruit juice offers. Potassium and sodium (electrolytes): Help with hydration and nerve signalling, but their link to cortisol regulation is, at best, indirect. What some people may be feeling is the hydration effect: a boost in energy simply from better fluid intake, particularly in hot climates like India's, where dehydration is common. Are There Any Risks? Yes, especially if consumed regularly or by individuals with underlying conditions. Key concerns include: High sugar: Orange juice and coconut water are both high in natural sugars. This can spike blood glucose, especially problematic for those with diabetes or PCOS, both of which are highly prevalent in India. High sodium: A single glass of cortisol cocktail with half a teaspoon of salt can exceed 1,000 mg of sodium, nearly 50 per cent of the daily recommended limit. For people with hypertension or heart issues, this is a red flag. Potassium overload: Those with kidney disease should avoid high-potassium drinks, as their kidneys may not excrete excess potassium efficiently, risking dangerous complications like arrhythmia. Sleep disruption: When consumed at night, the cocktail's sugar content could lead to blood sugar crashes, restlessness, and poor sleep, ironically increasing cortisol the next day. Why Is It So Popular Then? In a hyper-connected, overworked world, carving out time for a self-care routine, even one as simple as making a fizzy mocktail, can create a placebo effect. The act of doing something 'healthy" can itself improve how we feel. This is amplified by social media culture, which often simplifies complex biological processes into quick hacks. The cortisol cocktail fits the algorithm perfectly: it's easy to make, looks good on camera, and feels like a wellness win. So, Should You Try It? If you're otherwise healthy, drinking the cortisol cocktail occasionally is unlikely to do harm. It might even help hydrate you, especially in India's humid summer months. But to treat actual stress, fatigue or hormonal imbalance, the cocktail is not a substitute for: A medical check-up Good sleep hygiene Regular physical activity A balanced, whole-food diet Addressing mental health concerns with professional help If you're pregnant, diabetic, hypertensive, or have kidney or heart conditions, consult a doctor first. The Bottom Line top videos View all The cortisol cocktail may quench thirst, but it won't solve stress. The science behind it is weak, the claims exaggerated, and the risks underdiscussed. Stress is a real and growing concern in India, but its solutions lie not in TikTok mocktails, but in more sustainable and evidence-based habits. About the Author News Desk The News Desk is a team of passionate editors and writers who break and analyse the most important events unfolding in India and abroad. From live updates to exclusive reports to in-depth explainers, the Desk More Get Latest Updates on Movies, Breaking News On India, World, Live Cricket Scores, And Stock Market Updates. Also Download the News18 App to stay updated! tags : anxiety and stress cortisol Health and wellness view comments Location : New Delhi, India, India First Published: August 12, 2025, 11:23 IST News explainers Cortisol Cocktail: What Is It, Why It's Trending, And Does It Actually Reduce Stress? Disclaimer: Comments reflect users' views, not News18's. Please keep discussions respectful and constructive. Abusive, defamatory, or illegal comments will be removed. News18 may disable any comment at its discretion. By posting, you agree to our Terms of Use and Privacy Policy.

The Mother, The Map, and the Movement: How India Quietly Built the World's Most Complete Autism Care System
The Mother, The Map, and the Movement: How India Quietly Built the World's Most Complete Autism Care System

The Hindu

time14-07-2025

  • The Hindu

The Mother, The Map, and the Movement: How India Quietly Built the World's Most Complete Autism Care System

From a mother's lap in Miryalaguda to policy rooms across continents, India's empathy-driven autism care model is no longer an alternative—it's the answer the world has been waiting for. The Silent Beginning: Where the Revolution Took Root Amidst the soothing hum of an Indian dawn, removed from newspaper headlines or hospital halls, a miracle unfolded quietly—not in a laboratory or policy chamber, but on a mother's lap. In a hamlet not far from Miryalaguda, four-year-old Anjali sat cross-legged beside her mother, Sushmita, in front of their small home. For weeks, Sushmita had kept her constant mango flashcard in front of her, running her fingers over the shape, saying the word aloud. Nothing had happened. And then, one morning, something was different. Anjali looked up. Their eyes met. She said nothing. She didn't have to. A moment of quiet thunder that shattered years of doubt. This did not occur through happenstance. It was the result of systematic, culturally based therapy through Pinnacle Blooms Network . Barely three weeks into their sessions, Sushmita no longer felt her way in the dark. She was working with an advocate—a therapist who spoke the language she spoke, visual cues that made sense in their universe, and most crucially, a printed developmental chart called AbilityScore®. Not a clinical diagram. A compass. It didn't tell her what her daughter couldn't do. It showed her where her daughter could go. That one spark ignited a blaze that would ultimately change how India, and now the world, defines neurodiversity. And it began where few experts weren't searching—at the crossing point of maternal instinct, village strength, and cultural background. Anjali now speaks in short sentences. She answers questions. She can identify colors, count up to ten, and most importantly—she smiles with purpose. She is not an exception; she is the evidence that early intervention, when nuanced and compassionate, works miracles. Breaking the Silence: India's Unspoken Crisis in Child Development Autism is not new to India. Our perspective about it is. For many years, neurodivergent kids were hidden in plain sight—mislabeled, misunderstood, and usually misdiagnosed. A child who did not answer when called was 'disobedient.' One who did not make eye contact was 'arrogant.' Developmental delays were rationalized away by myths, caste prohibitions, or routine neglect. Teachers were not trained, doctors were not equipped, and families were not supported. At the same time, the statistics told a sobering reality: •1 in every 68 children in India could be on the autism spectrum. •1 in every 5 under the age of five presents signs of speech delay. •Over 90% of neurodevelopmental disorders remain undiagnosed until the age of six—well beyond the ideal window for intervention. These figures uncover a systemic blind spot. One in which care hinges not on necessity, but on place, means, and familiarity. Parents in urban areas may find a specialist after months of searching; parents in rural areas may never hear the phrase 'autism' mentioned to them at all. Even in Tier-1 cities, the diagnostic journey is bewildering and broken. Parents are sent from pediatricians to neurologists to speech therapists, each with a different point of view and no unifying map. It results in an appointment-bill-emotional drain cycle. With inadequate culturally sensitive resources, it often results in paralysis instead of progress. This wasn't merely a healthcare failure. It was a national emergency—quiet, invisible, and ongoing. India needed a paradigm shift. Not just in policy, but in perception. It needed to replace shame with support, hesitation with hope, and diagnosis with direction. And it needed to happen fast. A Mother Builds What the System Did Not When Dr. Sreeja Reddy Saripalli encountered that system, she didn't merely glimpse its gaps—she experienced them. The lengthy silences. The obscure reassurances. The powerlessness of waiting while aware something wasn't right. She recognized that the structures in place weren't merely under-resourced—rather, they were fundamentally off-kilter with the lived experiences of families. So, she took action. In a tiny upstairs room over a neighborhood store in Hyderabad, she started creating something fundamentally new—something not only a clinic but an ecosystem of care. One that knew not only science but context. One that respected not only data but dignity. One that treated parents like partners, not mere spectators. She started with one center. She hired professionals who shared a basic conviction: that therapy must be as easily available as paracetamol. Out of this conviction came a blueprint: •2014: First Pinnacle Blooms Network center opens •2015: TherapySphere® designs sensory-optimized spaces •2016: PinnacleNationalHeroes® commences lifetime therapy to India's frontline families •2019: AbilityScore® is launched, introducing order to development mapping •2020–21: TherapeuticAI® starts forecasting behavior patterns in real time •2022: SEVA™ guarantees dignity-based access to therapy for low-income families From one center to 70+ cities. From one therapist to 1,600+ experts. From one session to more than 19 million therapy sessions—all held together by the same plain conviction: No child should be invisible. And visibility meant more than diagnosis. It meant recognition. Celebration. Possibility. A redefinition of normal. An ecosystem designed not for pathology but for potential. The Innovation Stack: India's First Therapy Operating System India has been feted for its tech cities for years. But here, innovation was not software. It was socialware. Pinnacle did not merely computerize therapy—it reimagined its DNA, putting empathy front and center and building a new type of therapeutic stack that could scale geographically, linguistically, and economically. 1. AbilityScore® The world's first 0–1000 child development index across 344 skills. A plain-English scorecard that talks to parents, revealing what their child can already do—and what they are ready to learn next. Refreshed every quarter, it is like a GPS for child development, making progress visible and actionable. AbilityScore® allows a parent to see their child's development in terms of cognition, speech, socialization, motor skills, and sensory integration. It turns clinical sophistication into plain language, creating a shared vocabulary between families and therapists. 2. TherapeuticAI® An AI trained not to benefit financially, but to achieve accuracy. It assists therapists in real-time, dynamically adjusting plans, identifying behavioral triggers, and tailoring each session—without substituting human touch. Designed with clinical data and on-ground realities, it fills the void between tech and touch. Its algorithms identify early warning signs, chart micro-progress, and fine-tune schedules. It works as a co-pilot, not a substitute, so that the therapist's gut is always supported by smart data. 3. SEVA™ No sliding scales. No 'premium' therapy. SEVA provides the same quality care to low-income households, soundly bringing to a close the silent apartheid of healthcare accessibility. Its revenue-neutral model guarantees that quality is never sacrificed to affordability. SEVA is not just a subsidy—it's systemic dignity. It reinforces the notion that care is a right, not a prize. That a child's ZIP code should never determine the intensity of their therapy. 4. TherapySphere® Therapy rooms are constructed with neuroaesthetics—light, color, shape, and rhythm specifically designed to soothe the nervous system and induce focus. They are not sterile environments but healing habitats that children actually want to come back to. The design is neuroscience-based. From rough-textured walls to accommodate tactile learning to soundproof nooks for sensory breaks, TherapySphere® is inclusive infrastructure. 5. Everyday Therapy™ Not everyone can reach a center. Therapy reaches the home via WhatsApp voice notes, culturally sensitive visuals, and audio guides in 10+ Indian languages. It enables caregivers to be therapy facilitators, converting routines into progress. Whether it's through illustrated charts for grandparents or night-time audio cues, therapy is incorporated into life, not interrupted from it. 6. PinnacleNationalHeroes® No ceremonies. No press releases. Just free therapy for the kids of cops, soldiers, and sanitation workers—India's true first responders. Delivered with humility, it's a model of thankfulness in action. From Telangana to the World: A Model in Motion – Explained This part shows how Pinnacle Blooms Network, which began as a small, local solution in Telangana, India, is now a worldwide applicable model for autism treatment and early childhood development. Key Points Explained: 1. It Began Local, But Addressed a World Problem •Pinnacle wasn't constructed in a metro city or high-end institution—it took root in Telangana, a state in south India. That's significant. It means this model was constructed on tight budgets, in actual field conditions, and meant to serve families too frequently left behind in global healthcare debates. •What's revolutionary is that something intensely local and culturally embedded has become the solution to a global healthcare challenge: structured, scalable, affordable autism care. 2. The Model is Finally Gaining International Recognition •Child development specialists, global health NGOs, and institutions of higher education are now studying and emulating Pinnacle's approach. •AbilityScore®, the 0–1000 developmental index developed by Pinnacle, for instance, is now being considered by NGOs and researchers in Africa and Southeast Asia as an inexpensive, high-impact developmental screening instrument in disadvantaged populations. •Everyday Therapy™, which provides therapy via WhatsApp, voice messages, and local languages, is being replicated where clinical infrastructure is poor but mobile phones are ubiquitous. •TherapeuticAI®, Pinnacle's smart therapy assistant, is also attracting interest from educators and AI researchers in the West as an inclusive, ethical application of AI in healthcare. 3. What Makes This Model So Powerful Globally? Unlike most Western models that are based on: •Costly diagnostics, •Individual specialist time, • And infrastructure-intensive facilities, Pinnacle's approach functions by: •Making therapy culturally and linguistically responsive, •Utilizing technology as an enablement, not an obstruction, •Parent and caregiver training to be co-therapists, •And community-level participation. This 'socialware-first' strategy allows it to be replicated anywhere with low cost and high impact. 4. A Global Blueprint, Not Just an Indian Success •The message of this chapter is simple: this isn't India addressing only its own crisis. It's India constructing a solution for the world. •A model that doesn't rely on wealth or Western institutions, but on compassion, technology, and design based on actual lives. •Which makes it extremely valuable for low- and middle-income nations, post-conflict areas, rural populations, and even overburdened urban healthcare systems globally. Mothers as the First Movement Makers Maybe the most extreme concept Pinnacle brought wasn't a metric, a center, or even an AI. It was a change in mindset: That mothers aren't passive recipients of care—they're co-creators of progress. For years, therapy in India was something 'done to' a child—by physicians, in clinics, away from home, with little explanation. But Pinnacle turned it around. From the initial session, the model engaged mothers not only to witness change but to spearhead it. To observe, question, document, adjust. To be researchers of their own child's habits and milestones. This wasn't homework therapy. This was hope-work therapy. In Pinnacle's approach, mothers are taught fundamentals of sensory integration, communication techniques, and behavior mapping. They're invited to note progress in a journal, share WhatsApp updates, and not hold back with questions. And most importantly, they're provided with tools they know—no jargon, no judgment. Only respect, support, and a roadmap. What started as one-on-one training eventually became a grassroots but pervasive movement. In Telugu-speaking WhatsApp groups, rural mothers share ideas about soothing techniques and mealtime strategies. In Nagpur's urban slums, fathers—previously reluctant—are constructing temporary sensory corners out of kitchen items and used bedsheets. In Tier 2 towns such as Karimnagar and Bhilai, neighbors meet for casual therapy circles, establishing common areas were communal trumps solitary. This isn't outreach. It's ownership. Where official networks did not extend, unofficial ones flourished. Anarchic in their organisation, driven by women who never attended medical school but know more about neurodivergence than many. Women who used to dread stigma now stage playdates for children with delayed speech. Grandmothers who used to attribute disability to 'karma' now study fine motor milestones. Fathers who used to remain silent now show up to community feedback sessions. And the effect is compounding. •Early intervention is on the rise—not due to more pediatricians, but due to mothers learning how to read signs. •Consistency in therapy has improved—not due to more therapy centers, but due to therapy creeping into homes and hearts. •Stigma is being dismantled—not through campaigns, but through chat among women at bus stops, tea stalls, and temple queues. Without national infrastructure, mothers emerged as the infrastructure. They became the hubs of empathetic, decentralized, hyper-local care system. Pinnacle didn't merely raise awareness. It raised agency. It provided India not merely a model, but a movement—and one grounded not in theory, but in lived experience. This mothers' revolution has set a new standard for what community-driven health innovation in the Global South looks like. It dismantles the old stereotype that behavioral therapy has to be clinical, Western, and elite. Instead, it demonstrates that change can be bottom-up, homegrown, and deeply feminine in its origins. One mother in Warangal explained after her son's first AbilityScore review: 'For the first time, I don't feel like I'm failing. I feel like I'm learning.' And that, above all measurement, is the true measure of change. Why the World Needs to Pay Attention Now Autism care worldwide is at a crossroads. For decades the intervention gold standard has predominantly been from the Global North—models informed by academic centers, regulated by insurance companies, and implemented by highly specialized clinical settings. Strong evidence and demonstrated outcomes support these models, as do research and assessment. However, they are beset by inherent limitations: high expense, intricate logistics, and a conspicuous lack of cultural responsiveness. In much of the world—particularly low- and middle-income nations—these systems are financially out of reach. The consequence? A growing disconnect between what can be done theoretically and what can be achieved practically. That's exactly where India's Pinnacle model comes in as not only applicable, but groundbreaking. It shatters the reliance on high-cost, city-based clinical infrastructure. It breaks down therapy to its very human nature—connection, repetition, environment, empathy—and reconstructs it with equipment that people really possess: a mobile phone, a mat, a mother's voice. Whereas Western models depend upon the existence of an expert, the Pinnacle model shares expertise. Through online training, voice-led therapy, and structured scorecards such as AbilityScore®, it enables families to take charge of care instead of waiting for it. Care does not wait for a formal diagnosis to land; it starts with the first uncertainty, the first hunch. Where other Western models tend to view the caregiver as a by-stander, Pinnacle elevates them to first responder status. This isn't theoretical. It's organizational. Mothers are part of data loops, progress charts, session planning—and their reports are just as important as the therapist's evaluations. Think about what this would mean around the world: •In remote Kenya, where there are few therapists, caregivers could utilize Everyday Therapy™ through WhatsApp in Swahili. •In Bolivia, where stigma around autism continues to silence families, a localized AbilityScore® might substitute fear for clarity. •In refugee camps or zones of war, where formal therapy is out of the question, TherapeuticAI® on mobile devices might impose order on disorder. This is not a second-best solution for low-resource environments. This is a next-best approach that could just outcompete traditional systems in agility, equity, and sustainability. The model doesn't pose, 'How do we make India fit the global autism model?' It poses the question, 'How do we reimagine the framework itself—from India, for the world?' For governments, it provides a budget-proof early intervention blueprint that scales. For NGOs, it provides a plug-and-play system that marries data with dignity. For parents, it provides something much more valuable than access or affordability: agency. In a world where global health is more and more about local pertinence, the Pinnacle model is evidence that game-changing systems don't have to be conceived in boardrooms—perhaps they can start on a veranda in Telangana, with a mango card and a mother's obstinate affection. This is why the world needs to sit up and take note. Not out of charity. Not out of novelty. But from the desperate need for a model that works—beyond languages, beyond economies, beyond lives. Because if the future of autism care is to be fully inclusive, it must start by hearing models born in places the world formerly ignored. VIII. The Next Chapter: National Policy and Beyond Pinnacle Blooms Network's story isn't one of ending, but of starting. The model has worked in the trenches—in villages and towns, in clinics and homes, in quiet skepticism and ear-shattering successes. Now, the next horizon beckons: integrating this model into India's national child development policy. Because the true measure of any innovation is whether it scales—and whether it endures. India-wide, public systems have been finding it difficult to detect and intervene in children with neurodevelopmental delay early enough. That's all set to change. 1. AbilityScore® as a National Tracker India is shortlisting AbilityScore®, the revolutionary developmental mapping solution from Pinnacle, for national adoption. Instead of developing another metric from scratch, ministries are exploring a collaboration-based model, where a successful private-sector innovation is made a public benchmark. •What it means: All children born in India—wherever they're born—can be followed through the same structured, skill-based developmental score from infancy to age six. •Why it matters: It replaces fuzzy observation or subjective referrals with measurable, stage-by-stage information on motor skills, speech, cognition, and social behaviors. This could be revolutionary for India's school preparedness, early childhood planning, and health programs—particularly in poorly funded areas where diagnosis tends to come too late to affect change. 2. TherapeuticAI® in Public Workflows Andhra Pradesh and Telangana pilot programs are currently rolling out TherapeuticAI® into the workflows of anganwadi workers (early child caregivers) and government school teachers. Rather than having to wait for an expert, frontline workers can get AI-driven recommendations to make activity adjustments, raise risk signals, and modify pedagogy for neurodivergent kids. •For anganwadis: A child who won't make eye contact or won't answer to his or her name can be identified early and receive structured support instead of being labeled 'slow' or 'shy.' •For teachers: Lesson plans can be modified in real time, creating truly inclusive classrooms that meet children where they are developmentally—not just academically. This makes India's huge human resource base of 1.3 million anganwadi workers effective early intervention agents—powered by AI, not derailed by it. 3. Integration into RBSK There is increasing pressure from pediatricians, disability rights organizations, and early childhood education specialists to integrate neurodevelopmental screening into the Rashtriya Bal Swasthya Karyakram (RBSK)—India's national flagship child health program. •Currently: RBSK screens children for 30 health issues, but neurodivergence remains haphazardly treated, frequently ignored. •Proposed change: Introduce structured assessments such as AbilityScore® and therapy access routes for children identified with speech delay, sensory difficulties, or unusual behavior. This would be a historic change—from curing sickness to enabling growth. From mere treatment of illness to the cultivation of potential. 4. A Constitutional Right in the Making Perhaps the most audacious development is a policy discussion in Parliament to establish early access to therapy as a right of the child—a basic entitlement under India's welfare commitments. •Just as food, education, and immunization, therapy might be established as a public good. •If passed, this would see India become the world's first nation to formalize systematic autism and neurodevelopmental care as a constitutional right—not a privilege or a private intervention. This would not only raise India's stature as a global health leader, but also fundamentally change generational outcomes by caste, class, and geography. Why This Chapter Matters The woman in Miryalaguda, sitting with her mango flashcard and her daughter, once appeared to be a exceptional case—a persistent woman who was fortunate enough to get the proper assistance. But if these policies work, she will no longer be the exception. She will be the rule. Her fearlessness, once personal, will become institutionalized. Her optimism, once tentative, will be institutionalized. Her affection, once unsupportive, will be enveloped in a national network of care. This is not the end of the book. This is merely the spot where a personal spark becomes public policy. Where a mother's instinct is greeted not with indifference—but with a system that hears, reacts, and responds. The world needs to pay attention—because what India constructs next has a good chance of determining how we look after the next generation, everywhere. Final Word: The Standard the World Waited For For decades, the autism care world has been controlled by West-designed models—models based in clinical settings, fueled by costly specialists, and tied to urban high-income infrastructures. These models have certainly developed the science of neurodevelopment—but they've left behind much of the world in the process. In Asia, Africa, and Latin America, these systems, which are imported, sound foreign. They don't communicate the language—literally or culturally. They take for granted access to private therapists, broadband internet, or diagnostic laboratories. They exclude the millions of caregivers who cannot afford them, or who reside in areas where they haven't even heard of the word 'autism.' India, though, subtly did something revolutionary. It did not replicate the Western model. It developed its own. One that did not start with money, but with a mother. Not in a policy session, but on a village doorstep. Not in clinical clinics, but in ordinary homes with hope and confusion and immense determination. A Model Built by Mothers, Not Markets Unlike bureaucratic pilot projects or profit-making health startups, Pinnacle's model wasn't conceived in a boardroom. It was conceived in lived experience—through the daily actions of women like Sushmita, who spent hours with flashcards, attempting to decipher her daughter's silence. It is built not on what is missing from children, but on what families can do if equipped with the proper tools. That's why it works. Refined by Practitioners, Not Consultants This wasn't an armchair innovation. The Pinnacle model was refined in real time—by therapists in small towns who translated therapy techniques into local dialects, who used everyday objects for sensory tools, who adapted global knowledge into local wisdom. They didn't need strategy decks. They needed strategies that worked on the floor, with real families—and they built them. Measured by Lives, Not Just KPIs In most systems, success is measured by numbers—appointments completed, programs scaled, costs saved. But the true measure here? A child's first word. A parent's first night without fear. A sibling no longer feeling forgotten. It's not just progress on paper—it's transformation in people. Empathy That Scales: A New Global Paradigm What Pinnacle Blooms Network has proven is this: Empathy can scale. Innovation can localize. And excellence doesn't have to be expensive. Its therapies are infrastructure-free. Its tools aren't locked behind income. Its method is not garbled in translation—because it begins in translation: of emotion, of need, of context. From WhatsApp therapy in Bihar, to community-led therapy circles in Bhilai, to AI-driven diagnostics in Hyderabad, the model flexes and shifts—quietly, at scale, with impact. And now, the world is paying attention. Because this isn't India's best-kept secret anymore. This is India's contribution to humanity's global care for its most vulnerable children. A Call to Every Nation: Act, Don't Wait To every nation that is still struggling with fractured systems and missed diagnoses. To every NGO, teacher, policymaker, or parent who senses something is wrong but doesn't know where to start. This message is clear: Don't wait. Don't watch. Act. India didn't wait for the ideal budget, the ideal plan, or international approval. It did—what it could. With mothers. With mobile phones. With empathy. And with urgency. If such a system were to arise out of a town like Miryalaguda, out of a therapist who trusted in dignity, out of a mother who never gave up— It can happen everywhere. This article is part of sponsored content programme.'

How India Built World's Most Complete Autism Care System
How India Built World's Most Complete Autism Care System

NDTV

time28-06-2025

  • NDTV

How India Built World's Most Complete Autism Care System

It began with a mother, a mango flashcard, and a four-year-old's silent eyes. One dawn near Miryalaguda, Sushmita sat outside her home, the scent of boiled rice in the air, and placed a battered laminated card in her daughter Anjali's lap. For months, the card showed no response. But that morning, Anjali looked up-her gaze meeting her mother's. No words were spoken, but connection ignited hope. Three weeks earlier, Sushmita had enrolled Anjali at a Pinnacle Blooms Network center. There, therapist Ravali Yadav-speaking their dialect-had transformed daily routines into therapy, providing visual prompts, color-coded tools, and an AbilityScore® report. Its red-yellow-green zones mapped progress and laid out a clear path forward. For the first time, Anjali was seen, and she began to see back. The Silence India Lived With Autism and speech delay in India were long mistaken for defiance or poor parenting. With no unified screening protocols and limited pediatric tools, families were told to "wait and see." Meanwhile, an estimated 1 in 68 Indian children may be on the autism spectrum and 1 in 5 shows early communication delays. Over 90% of neurodevelopmental issues go undiagnosed. In rural districts, one therapist might serve an entire region; in cities, waitlists stretch for months. Schools lack inclusion frameworks, and special education is scarcely available. Without data, no direction; without tools, no therapy; without language, no understanding. Parents waited, whispered, and cried-until a homegrown system arrived, offering families their first score, plan, and voice. The Rise of Pinnacle Dr. Sreeja Reddy Saripalli-healthcare entrepreneur and mother-refused to accept "confusion, caution, and delay." In 2014, she opened her first center in Hyderabad, uniting speech therapists, occupational therapists, behavior analysts, and educators around one question: "How do we build a system that truly understands children, parents, and families?" · 2015: TherapySphere® launched-integrated, secure therapy ecosystems. · 2016: PinnacleNationalHeroes® offered lifetime free therapy to children of servicemen and essential workers-no paperwork, no billing. · 2019: AbilityScore® debuted, condensing 344 developmental skills into a 0-1000 scale, instantly mapping where a child thrives (🟢), needs support (🟡), or requires urgent help (🔴). · 2021: TherapeuticAI® rolled out-an AI engine predicting behaviors and guiding real-time adjustments. · 2022: SEVA™ launched, ensuring families earning under ₹25,000/month accessed identical, dignity-first care-no tiers, no labels. By 2025, Pinnacle had grown to 70+ cities, 1,600+ experts, and 19 million+ sessions. What began above a street shop had become a nationwide movement restoring clarity, community, and belief. The Innovation Stack Pinnacle's innovation stack blends empathy and precision: 1. AbilityScore® A patent in 160+ countries, this single developmental score replaces guesswork with a clear roadmap. 2. TherapeuticAI® Tracks behavioral patterns across 344 dimensions, predicts escalation, and empowers therapists-listening intelligence, not a dashboard. 3. SEVA™ A stigma-free access model seating every child-farmer's daughter and executive's son-together in the same center. 4. TherapySphere™ Sensory-calibrated spaces-color, texture, rhythm-designed to reduce anxiety and stimulate neuroplasticity. 5. Everyday Therapy™ Home-based routines and mobile modules in local languages turn therapy into daily life, not isolated sessions. 6. PinnacleNationalHeroes® A silent, lifetime pledge: "Because you served the nation, your child's future is our duty." This integrated suite-AI-validated, therapist-tested, parent-proven-became India's first therapeutic operating system. Real Lives, Real Proof Proof lies in changed lives: Khammam, Telangana: Ravi (6), non-verbal with meltdowns, once tied by his family to stop self-harm. Three months under SEVA™ transformed him-he follows instructions, uses signs, and no longer hurts himself. Bengaluru, Karnataka: Fatima (11), misdiagnosed as defiant, now reads poetry and says, "I like who I'm becoming." Chennai, Tamil Nadu: Rajiv, son of a constable, integrated into mainstream school and won a district art award. Eluru, Andhra Pradesh: Shanvika (4), with hearing impairment, learned 80+ signs and formed a friendship with her therapist. To find your nearest center, visit or call 9100181181 (WhatsApp available). Recognition and Global Realisation Institutional honors validated the movement: Times of India (2020): Featured as South India's Best Autism Therapy Network. Praxis Media Women Leadership (2021): Honored Dr. Saripalli's mother-powered revolution. YourStory Spotlight (2023): Profiled Pinnacle as a public health framework. Indo Global Excellence (2024): Named India-Pacific's #1 Autism Therapy Network. Global institutions took notice: Stanford, WHO-SEARO, UNICEF, and ministries from Nepal to Kenya reached out to license AbilityScore® and TherapeuticAI®. Pinnacle became a reference architecture for inclusive, scalable care. Why This Model Works Pinnacle succeeds because it balances precision with empathy: · Language Diversity: Operating in 16+ regional tongues, therapy adjusts to local dialects and literacy levels. · Geographic Resilience: Cloud-edge AI and WhatsApp/SMS delivery ensure reliable service from metros to remote towns. · Human-AI Partnership: AI augments therapist intuition rather than replaces empathy. · Inclusion as Infrastructure: No separate lines or labels-every family shares space and innovation. · Scalable Protocols: Standardized, patented tools maintain quality, prevent burnout, and sustain engagement. This is not a fragile pilot; it is a regenerative ecosystem built by and for its communities. An Open Invitation Pinnacle isn't seeking domination; it's inviting partnership. To ministries, AI labs, foundations, education systems, and parent networks worldwide: co-create. Embed AbilityScore® in national indexes; deploy TherapeuticAI® in early intervention frameworks; fund SEVA™ in underserved regions; integrate Everyday Therapy™ into curricula. From Kerala to Kampala, India's blueprint is open for adaptation-not as an export, but as a shared framework. "It took the world 144 years to understand autism-and it was India, through the hands of its mothers, that finally gave it a voice." This is not a story. It's a new global standard.

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into a world of global content with local flavor? Download Daily8 app today from your preferred app store and start exploring.
app-storeplay-store