
Spring 2025 Digital Health Awards: AKU's digital health solution receives Merit honour
The KP-EIR, a customized version of AKU's foundational Hayat platform, was specifically recognized for its impactful contribution to public health. Developed at the request of the provinicial government of Khyber Pakhtunkwa, Pakistan, this system has revolutionized the region's Expanded Programme on Immunization. By significantly improving data management, accessibility, and programme oversight, KP-EIR has directly strengthened vaccination efforts across the province.
'We are immensely honoured to receive this Merit award for KP-EIR,' said Dr Saleem Sayani, Director, AKU Digital Health Resource Centre. 'This recognition is a testament to AKU's commitment to leveraging technology for social good and public health advancement. The successful conversion and deployment of Hayat into KP-EIR highlights the adaptability and scalability of our digital solutions, directly contributing to stronger health systems and healthier communities.'
This award underscores AKU's dedication to developing cutting-edge, practical digital health interventions that address critical health challenges and improve healthcare delivery on a broader scale.
Copyright Business Recorder, 2025
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Express Tribune
6 hours ago
- Express Tribune
An Unconscious Patient Led To Saving Thousands of Lives
The writer is a leading public health specialist in Pakistan and has served at the Aga Khan University, USAID and WHO It was a bright, sunny, and hot day in May 1975 when our small clinical batch, posted in Medical Unit-I, made its way toward the outpatient department (OPD) of the Civil Hospital, Karachi (CHK). We had just entered our third year at Dow Medical College (DMC), and this was our very first day of seeing patients in the OPD. Dressed in crisp new white coats, stethoscopes draped neatly around our necks or tucked into our long pockets, we walked briskly alongside Assistant Professor Shamsuddin Rehmatullah—a cheerful, approachable man known for his sharp diagnostic skills. The excitement was visible on every face; after two long years immersed in the basic sciences, we were finally about to feel like doctors. How could anyone forget those first two years that seemed to stretch endlessly? I had found physiology engaging, especially when guided by Guyton's Textbook of Physiology, but biochemistry was an uphill struggle, and following Gray's Anatomy felt like an even greater challenge. Adding to the ordeal were the mandatory dissections of cadavers, a task my mind resisted at every step. The pungent formalin only made matters worse, leaving my nose running and sneezing constantly throughout each session in the dissection hall. Now, with those difficult days behind us, we stood at the threshold of what we imagined to be a 'doctor-like era' in our student lives—an era we eagerly hoped would be both exciting and fulfilling. We entered the OPD and began observing patients under Professor Rehmatullah's guidance. Before long, a stretcher was rushed in, carrying a young man in an unconscious state. To protect his identity, let's call him Moeen, a name that means 'one who assists or gives aid.' He had been brought in by a friend, who explained that Moeen was a BSc student. He had no surviving family; his entire household had been brutally killed by the Mukti Bahini in 1971, during the conflict in East Pakistan, leaving him the sole survivor. The Professor examined Moeen and diagnosed him as suffering from tuberculous meningitis accompanied by hemiplegia. Meningitis is a serious illness in which the protective layers around the brain and spinal cord become swollen, often causing a high fever, headache, stiff neck, and sometimes confusion or sleepiness—and is fatal if not treated promptly. The Professor immediately admitted Moeen, wrote a prescription, and asked his friend to procure the required medicines, as they were not available in the hospital. At this, the friend broke into tears. He explained that purchasing the medicines was beyond his means; he too was a student who had migrated from East Pakistan with his mother and sisters and was surviving on a very modest income earned through odd jobs. That small earning barely kept him and his family fed. We, the new clinical students, were deeply moved by the young man's helplessness. Quietly, we huddled in a corner, pooling together whatever money we had in our pockets. With the Rs. 78 we managed to collect (about US $7.80), we were able to purchase three days' worth of medicines and essential supplies from the only private chemist shop in CHK, located along Baba-e-Urdu Road. For Moeen's friend, it was an immense relief; for us, it bought a little time to gather more help. Fortunately, that same evening, a relative of mine generously contributed a substantial amount on hearing Moeen's ordeal, which allowed us to secure Moeen's medicines for a few weeks. Yet we knew his treatment for tuberculosis would need to continue for several months. While another batchmate and I worked to raise enough funds for Moeen's full treatment, two other incidents unfolded. A twenty-five-year-old man suffering from severe diarrhoea was admitted to the hospital in a state of shock. He was dangerously dehydrated, his pulse was weak, and his blood pressure critically low. Let us call him Miskin, a name that means 'helpless or miserable.' His mother stood by his bedside, weeping and pleading desperately for someone to save her only son. Miskin was not just her child; he was the sole breadwinner for a family that included his mother and six sisters. What he needed immediately were intravenous infusions—at least three bottles, each containing one litre of Ringer's lactate or normal saline. Yet none were available in the ward that day. The mother was advised to purchase them, but she had no money. At that time, the total cost of three one-litre bottles of normal saline was just Rs. 30 (about US$3), yet that small amount stood between life and death. Realising the gravity of the situation, and fearing that her son's end was near, the distraught mother screamed and cried aloud. Her cries echoed through the ward, drawing the attention of the medical students present. Once they learned of Miskin's urgent need, they quickly pooled their money, bought the required IV infusions, and secured the additional medicines needed for his treatment. Thanks to their timely help, Miskin recovered rapidly and was discharged from the hospital after two days. Throughout his brief stay, his mother ceaselessly offered prayers for the success, health, and lifelong happiness of those students who had stepped in to save her son's life. A few days later, I learned of another tragic incident. A nineteen-year-old girl, severely anaemic, was brought to CHK. She urgently required a transfusion of two bottles of blood. Unfortunately, the hospital's blood bank did not have any that matched her blood group. Her father, who had brought her in, was advised to purchase the blood from another blood bank in the city. But he did not have the Rs. 60 (about US$6) needed to obtain it. They waited, perhaps hoping for some miracle, but none came. Instead, death did. Beginning with the case of unconscious Moeen in May, many similar incidents unfolded over the next three months. It became painfully clear that there were always patients who simply could not afford their treatment, and this inability often led to fatal outcomes. The custodians of public health and the hospital authorities may have grown desensitised to such tragedies, but for many of my classmates, each episode struck a raw nerve. These recurring scenes weighed heavily on our young consciences, leaving us deeply unsettled. In August 1975, I began reflecting on the situation and shared my concerns with my uncles, aunts, and elder cousins. They proposed establishing a fund under a formal authority, allowing contributions to be raised from multiple sources. Acting on this advice, I initially approached the college administration, hoping they might offer official support or umbrella coverage for the initiative. However, they declined to be involved in any student-run activity of this nature. This prompted me to explore an alternative path. I met the President and the Social Secretary of the Students' Union and shared the idea of creating an autonomous fund for needy patients, one that would operate under the patronage of the Students' Union but without its interference. They agreed to initiate the Fund under the Social Section of the Dow Medical College Students' Union (DMCSU) and assured that it would be allowed to operate independently and autonomously under my management, without any interference from the Union. This commitment to the Fund's autonomy by DMCSU was crucial for keeping it apolitical and preventing its polarisation among students. At the time, the student body was sharply divided between two rival groups: the left-wing National Students Federation (NSF) and the right-wing Islami Jamiat-e-Tulaba, both affiliated with national political parties. In addition, there was a third group, the Young Medicos Organization (YMO), which discouraged students from aligning with political parties. The title, management, and operational framework of the fund were discussed with a group of students. We named it SAVE A HUMAN LIFE – WARD FUND, soon commonly referred to as the Ward Fund. Several ideas were proposed for utilising the donations. One suggested providing medicines and supplies to each ward monthly; another recommended giving a fixed amount of money to the professor in charge. However, both were deemed impractical, as serving 30 wards equally would demand significant resources. Moreover, when these ideas were shared with a few professors, they declined responsibility, unwilling to manage the accounting or distribution of medicines and cash. It was therefore decided that medicines and supplies would be provided directly to patients based on individual needs, and I was tasked with designing the plan. Creating a system to meet the needs of over 1,200 beds, around the clock, was a major challenge. In parallel, a second plan was needed to ensure a steady flow of donations. To my great relief and delight, when I presented the plans to the concerned group of students and to the DMCSU, they were accepted without a single change. To raise funds regularly, the proposal focused on DMC students. If each of the 2,000-plus students could be encouraged to donate at least Rs. 5 per month, the collective contribution would total around Rs. 10,000 (about US$1,000 at the time). This effort was not just about money; it aimed to foster a sense of shared responsibility and involvement in a cause with far-reaching ripple effects. To support this goal, we decided to make a heartfelt appeal through a compelling leaflet. A well-crafted message was designed, printed, and widely distributed at the Fund's launch. In addition to personal contributions, students were encouraged to seek donations from their families and friends. To evoke compassion and a sense of urgency from their families and friends, we decided that the leaflet would include brief real-life accounts of needy patients we had recently encountered. It was also decided that each donor would receive an official receipt, stating the Fund operated under the patronage of the Social Section of the DMCSU, to ensure transparency and build trust in its management. The plan for fund utilisation was kept simple. Our class was divided into 30 clinical batches, each assigned to one of the hospital's 30 wards. Within each ward, students were allotted a specific number of beds; for example, in a ward with 50 beds and 10 students, each was responsible for five patients. This ensured all admitted patients were covered, and students were aware of the needs of those under their care. Students identified essential medicines and supplies for patients who couldn't afford them and documented the needs. These were endorsed by the registrar or senior faculty member of the ward, such as a registrar or someone of higher designation, and submitted to me. The items were then purchased and provided to the patient. In emergencies, students could buy the items directly and seek reimbursement with proper receipts and faculty verification. These clear, transparent procedures for collecting and utilising donations were well-received by students from all political groups. The WARD FUND began operating in September 1975 on a modest scale with limited resources but gradually began to expand. Most support provided to patients ranged from Rs. 30 to Rs. 90 (US$3 to US$9), enabling us to assist several needy individuals. It was heartening to see enthusiastic participation from students across different groups, not just those aligned with the ruling party in the DMCSU that year. Some batches even began supporting patients in their assigned wards through their own pooled funds. Thus, a service sparked by one unconscious young patient was steadily growing into a vital lifeline, helping save many lives. The smooth functioning of the Fund was abruptly disrupted by an unexpected incident that drew student politics into its affairs. I tried to salvage the situation by appealing to the professor overseeing the Social Section, but he declined to intervene, unwilling to be drawn into student political tensions. Regrettably, I was forced to step away from the project before mid-1976, despite having managed it successfully for several months. The project was soon discontinued. Although my involvement lasted less than a year, there remains a sense of lasting contentment. The seed planted in 1975 for patient welfare did not go to waste. After graduating from DMC, I learned that a group of students had come together once again to establish the 'Patients Welfare Association,' pursuing similar goals. It's likely that they were aware of the earlier Ward Fund experience, which may have inspired them to build a more structured and formal initiative. They broadened its scope, registered it as an NGO, and over time, it evolved into one of Pakistan's largest student-run volunteer organisations—one that has since served thousands of patients and saved countless lives.


Business Recorder
19-07-2025
- Business Recorder
Spring 2025 Digital Health Awards: AKU's digital health solution receives Merit honour
KARACHI: The Aga Khan University (AKU) has announced that its innovative digital health solution, the Khyber Pakhtunkhwa Electronic Immunization Registry (KP-EIR), has received a Merit honour at the prestigious Spring 2025 Digital Health Awards. This international competition, presented by the Digital Health Resource Centre (dHRC), recognizes the world's best digital health resources. The KP-EIR, a customized version of AKU's foundational Hayat platform, was specifically recognized for its impactful contribution to public health. Developed at the request of the provinicial government of Khyber Pakhtunkwa, Pakistan, this system has revolutionized the region's Expanded Programme on Immunization. By significantly improving data management, accessibility, and programme oversight, KP-EIR has directly strengthened vaccination efforts across the province. 'We are immensely honoured to receive this Merit award for KP-EIR,' said Dr Saleem Sayani, Director, AKU Digital Health Resource Centre. 'This recognition is a testament to AKU's commitment to leveraging technology for social good and public health advancement. The successful conversion and deployment of Hayat into KP-EIR highlights the adaptability and scalability of our digital solutions, directly contributing to stronger health systems and healthier communities.' This award underscores AKU's dedication to developing cutting-edge, practical digital health interventions that address critical health challenges and improve healthcare delivery on a broader scale. Copyright Business Recorder, 2025


Business Recorder
04-07-2025
- Business Recorder
The Lancet study calls for a unified cancer registry in Pakistan
KARACHI: A new research study published in The Lancet Regional Health – Southeast Asia highlights the urgent need for a unified national cancer registry in Pakistan to improve cancer surveillance, policymaking, and resource allocation. Titled 'Cancer Registries in Pakistan: A Scoping Review' the study was co-authored by experts from Aga Khan University (AKU), University of Wisconsin, and Shaukat Khanum Memorial Cancer Hospital. Pakistan faces a substantial cancer burden, with an estimated 185,748 new cancer cases and over 118,631 cancer related deaths recorded in 2022. Yet, the absence of a national cancer registry means that cancer data collection remains fragmented, inconsistent and incomplete, making it harder to plan and implement effective public health efforts. 'Cancer registries are crucial, they provide population-based data on cancer trends and treatment efficacy, and enable health authorities to monitor disease patterns, guide policymaking, and allocate resources to establish an effective national cancer control programme,' expressed Dr Zehra Fadoo, Chair of AKU's Department of Oncology. The research study identifies 17 cancer registries in Pakistan, with wide variations in scope and geographical coverage. Currently, only 19 of Pakistan's 129 cities contribute data to at least one registry. Many registries face operational challenges, limited funding, and inconsistent data collection methods. The study has identified strengths and weaknesses of different registries, providing information that can be used to plan for cancer data aggregation and future research studies. 'Building a national cancer registry isn't something one institution can do alone,' explained Sehar Salim Virani, from the Departments of Surgery at AKU and the University of Wisconsin. 'It will require coordinated action, government leadership, and institutional collaboration. This paper is a first step towards that goal. By mapping what exists, we can now move towards what is needed. It's time to turn fragmented efforts into a unified national response.' One of the registries profiled in the study is the Aga Khan University Cancer Registry (AKU-CR), a hospital-based registry established in 2009. AKU-CR has an inbuilt international coding manual that serves as the foundation for measuring the cancer burden in Aga Khan University Hospital (AKUH) in Pakistan. The purpose and goal of AKU-CR is to collect, maintain, and disseminate the highest quality cancer data that will contribute towards cancer prevention and control—improving diagnoses, patient care, treatment, survival, quality of life and establish background for research. So far, using USA-based CNExT software, the registry has documented over 71,900 cases. At AKUH, the clinical aspects of the Cancer Registry are overseen by the AKUH Cancer Committee with trained registrars, ensuring high standards in data quality and clinical relevance. Pakistan has a National Action Plan for Non-Communicable Diseases, control and health promotion (NAP-NCD) which includes cancer prevention and control. The Ministry of National Health Services Regulations and Coordination nominated the Pakistan Health Research Council (PHRC) as the focal point for Cancer Registry in Pakistan, and in 2020, a National Steering Committee was notified with members from all major cancer registries and data centers. Despite these efforts, challenges remain in achieving complete, consistent, and uniform data collection. 'Pakistan has long struggled with adopting national cancer registration,' noted Syed Nabeel Zafar, from the Department of Surgery and Carbone Cancer Centre at the University of Wisconsin. 'With the rising incidence of cancers in Pakistan, a national cancer registry is essential to be able to address this growing problem. In lieu of national a registry many institutions across Pakistan have pitched in and developed cancer registries at local or regional levels. Government buy-ins are needed to develop a national level registry. While this requires effort and resources, it is not very expensive, and would be very feasible to do in Pakistan' A national cancer registry is vital to enhance cancer surveillance and inform public health action in Pakistan, where cancer rates continue to rise. This will require existing registries to work together and partner with stakeholders across both the public and private sectors to build a comprehensive, sustainable system that serves the entire population. Copyright Business Recorder, 2025