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Are We Choosing Which Lives Deserve To Be Born? The Quiet Genocide

Are We Choosing Which Lives Deserve To Be Born? The Quiet Genocide

Yahoo11-06-2025
Advancements in prenatal screening have enabled early detection of genetic conditions like Down syndrome. But in some parts of the world, this progress has quietly led to the near-eradication of individuals with the condition — long before birth.
In Iceland, around 85% of expectant mothers undergo first-trimester genetic screening. Nearly 100% of those who receive a prenatal diagnosis of Down syndrome choose to terminate the pregnancy. Only two or three babies with the condition are born there each year.
Denmark reports a termination rate of over 95%. In France, it's around 77%. These numbers have sparked concern among ethicists and disability advocates, who warn of a troubling cultural shift: one that frames the existence of disability as undesirable — and preventable.
The American Context
In the United States, where prenatal screening is optional and unstandardized, the termination rate after a Down syndrome diagnosis ranges from 60% to 90%, depending on geography, access to care, and socioeconomic status.
Despite these figures, advocacy groups like the National Down Syndrome Society (NDSS) offer a different perspective. According to their 2022 Fact Sheet, life expectancy for individuals with Down syndrome has risen from 25 years in 1983 to more than 60 years today. People with the condition increasingly live independent lives, attend school, hold jobs, and contribute meaningfully to their communities.
'Contemporary Eugenics' and the Role of NIPT
The AMA Journal of Ethics has raised a pressing question: Are today's prenatal screening practices — particularly non-invasive prenatal testing (NIPT) — a modern form of eugenics?
Unlike the coercive eugenics of the 20th century, contemporary eugenics doesn't require state enforcement. It operates subtly through individual decisions, medical norms, and cultural assumptions about what kinds of lives are 'worth living.' NIPT, which detects chromosomal conditions like Down syndrome as early as 10 weeks, may give the illusion of 'informed choice' while implicitly devaluing disability.
'Even making screening available for Down syndrome… is already, by definition, suggesting that they are not valued reproductive outcomes,' the article states.
The concern, as the authors put it, is that society may be shrinking the definition of 'normal' while expanding the definition of 'abnormal' — a shift driven not by malice, but by medicine, convenience, and silence.
Frank Stephens: A Voice for the Valued
That silence was broken in a viral speech by disability advocate Frank Stephens, who has Down syndrome and testified before Congress:
'I would like to make three points. First, we are a medical gift to society — a blueprint for medical research into cancer, Alzheimer's, and immune system disorders.
'Second, we are an unusually powerful source of happiness. A Harvard-based study found that people with Down syndrome, as well as their parents and siblings, are happier than society at large. Surely happiness is worth something.
'Finally, we are the canary in the eugenics coal mine. We are giving the world a chance to think about the ethics of choosing which humans get a chance at life.'
His testimony reframes the conversation: not just about disability, but about who gets counted as human — and what it means when entire categories of people begin to disappear.
A Local Voice of Compassion
Monty Bennett, a Dallas-based hotelier and philanthropist, is also the Publisher of The Dallas Express. But for Bennett, advocacy on behalf of children with disabilities is not just professional — it's personal.
As the father of a special needs child, Bennett has witnessed both the challenges and the beauty of raising a child the world doesn't always understand. His experience has shaped his lifelong commitment to supporting and defending the value of every human life.
'Every life has a divine purpose, regardless of what chromosomes they carry,' Bennett told The Dallas Express. 'As the father of a special needs child, I've seen the challenges — and the incredible joy — that come with raising someone the world often overlooks. It breaks my heart to think of how many lives — full of love, dignity and joy — are quietly erased before they ever get a chance.
'Our son is an incredible blessing,' he added. 'If society measured value not by perfection but by compassion, children like him would be at the top of every list.'
Bennett has long supported the development of early childhood programs that serve children with Down syndrome and other developmental disabilities. His philanthropy reflects a broader conviction — that children born with special needs deserve not just protection, but opportunities to thrive in a world that too often doubts their worth.
Reframing the Future
Disability rights advocates say the real danger isn't just the test — it's the unspoken cultural script that surrounds it. Campaigns like 'Don't Screen Us Out' warn that prenatal screening, especially when not accompanied by balanced counseling, becomes a method of informal eugenics.
Choice, they argue, is only meaningful when society embraces the full spectrum of life — and supports parents, no matter the diagnosis.
As prenatal technology advances, we're forced to reckon with what it reveals about us: Are we simply diagnosing? Or are we deciding who gets to be born?
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Scientists argue for stricter lead soil contamination standards. What fire survivors should know
Scientists argue for stricter lead soil contamination standards. What fire survivors should know

Los Angeles Times

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  • Los Angeles Times

Scientists argue for stricter lead soil contamination standards. What fire survivors should know

It's a number thousands of Palisades and Eaton fire survivors have come to depend on: 80 milligrams of lead in each kilogram of soil. Below this concentration, California has historically deemed yards safe enough for families to rebuild and move home after a fire. Any more, state scientists say, comes with a notable risk of kids developing neurological problems from the lead they accidentally inhale, absorb through their skin and eat while playing outside. In a new paper out Friday, Harvard environmental health researchers argue it's not strict enough. The scientists contend that the state's health standard is not based on sound science and should sit around 55 milligrams per kilogram of soil (a measure also referred to as 'parts per million') instead. 'We're getting asked these questions every single day, like every other scientist ... 'Is it safe for my kids?' ' said Joseph Allen, lead author on the paper and a Harvard T.H. Chan School of Public Health professor who has been working with fire survivors through the LA Fire HEALTH Study research program. 'I can't look at somebody in the eye any more, knowing what I know about these models, and tell them yes.' However, other soil and health researchers said it's a debate best confined to technical scientific papers, with few implications for fire survivors wondering if their property is safe. Here's what you should know: Lead can cause negative health effects at virtually any level of exposure, so scientists at California's Department of Toxic Substances Control set their health standard for lead in residential soil by first starting with a goal: The standard should prevent children from losing one IQ point due to lead exposure. To answer this, the department uses a computer model, LeadSpread, that estimates how much lead might enter the body of a kid who plays in the dirt, primarily through accidentally eating dirt left on their hands. Then, it determines what fraction of lead that has entered the body actually makes it into the bloodstream. From there, DTSC estimates that 1 microgram of lead per deciliter of blood results in a loss of one IQ point. By digging through DTSC's papers outlining how it calculated the 80 mg/kg standard, the Harvard researchers identified three issues. First, they point out that the standard comes from an old version of the department's model, LeadSpread 8. When DTSC recalculated the number with the updated LeadSpread 9, they got 70 mg/kg, but determined that the difference wouldn't significantly impact IQ. The Harvard researchers argue DTSC does not have a strong basis for that assumption. Second, the Harvard scientists warn that the LeadSpread model is disconcertingly dependent on other assumptions. For example, the model determines what percent of lead that enters the body ends up in the blood based on a 1983 study looking at infants who consumed formula contaminated with lead. It's a very different situation than soil, the Harvard scientists argue, and even a slight shift of that percentage can give a much stricter result of around 55 mg/kg. The same is true if DTSC were to use a higher estimate for how much dirt, on average, a kid ingests per day. Finally, the Harvard researchers point out that lead causes harm not just to the nervous system — for which the IQ metric attempts to account — but also to bones, the kidneys and the heart. And not all kids have the same risk. Kids with other health conditions may be more sensitive, as are 2-year-olds compared to 6-year-olds. 'The model sort of happens in a vacuum,' said Lindsey Burghardt, chief science officer at Harvard's Center on the Developing Child and author of the paper. 'But kids … live in the context of their developmental environment where they're having a number of different exposures and experiences, whether they're positive or negative.' DTSC did not immediately respond to a request for comment. Many soil and environmental health researchers say the debate shouldn't concern fire survivors all that much. Given all the uncertainty in lead modeling — and the wide range of sensitivity different kids may have based on their health conditions and how much they play in the dirt — many researchers say concerned residents should focus on their own risks and think about lead levels as 'much lower than the standard,' 'close to the standard,' and 'much higher than the standard' instead of obsessing over differences in digits. For example, much higher levels in soil that's about to get covered with a new concrete foundation might not matter all that much. Levels close to the standard in the yard of a home with no kids may not matter if the residents aren't avid gardeners and always take their shoes off when entering the house. On the flip side, even lower levels in the soil in an area where a 2-year-old likes playing in the mud could pose a risk that's unacceptable for a resident. 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For kids, that might mean going to clean parks to play in the dirt. For adults, it could mean always wearing gloves when gardening. To avoid continued exposure when inside, residents can routinely wash their hands, take their shoes off when entering the house, wipe down pets after they play in the yard, and invest in air purifiers to remove any contaminated dust.

More women get Alzheimer's than men. It may not just be because they live longer
More women get Alzheimer's than men. It may not just be because they live longer

Yahoo

time8 hours ago

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More women get Alzheimer's than men. It may not just be because they live longer

Working three full-time jobs, raising kids and tending her blooming garden: Angeleta Cox says her mother, Sonia Elizabeth Cox, never really slowed down all her life. Then, at the age of 64, a diagnosis of Alzheimer's slammed the brakes on the vibrant life she'd painstakingly built after immigrating to Canada from Jamaica in 1985. "The onset of the symptoms came on very fast," Cox said of her mother. "She forgot my dad first, and she wasn't able to respond to my brother, so I became a care provider for her," said Cox. Sonia Elizabeth died late last year, after years of battling Alzheimer's. More women get diagnosed with Alzheimer's disease than men. In developed countries, studiessuggest about two-thirds of people with Alzheimer's are women. It's a pattern seen in Canada, too, where women account for almost two-thirds of people with dementia, according to the last count from Statistics Canada. Scientists long explained this with a simple demographic fact: women tend to live longer, and age is a strong risk factor for the development of dementia. But that understanding is now changing. While age is still considered an important risk, scientists are increasingly realizing other aspects — both biological and sociological — may play an important role in making women susceptible to developing Alzheimer's. WATCH | Alzheimer's in women linked to early menopause, say scientists: "I think we're beginning to be at an inflection point," said Gillian Einstein, who studies how sex and gender can influence an individual's risk for developing dementia, as part of the Canadian Consortium on Degeneration and Aging. "I think you can feel it here," she said, gesturing around at the Metro Toronto Convention Centre, where leading Alzheimer's researchers gathered for the annual Alzheimer's Association International Conference (AAIC) in late July. "There's so many more sessions on sex differences, or women's health." Hormones, babies and menopause Alzheimer's disease is the most common form of dementia in the world, according to the World Health Organization. It causes symptoms like memory loss, confusion and personality changes. In Canada, Alzheimer's is also the ninth leading cause of death, according to Statistics Canada. One factor scientists now know about: the timing of key hormonal changes, like when women first get their periods, how long they are fertile for, and the age they reach menopause. "There are a lot of studies in the UK Biobank, for example, showing that the longer the reproductive [period] women have, the lower the risk is of late-life Alzheimer's disease. Having [one to] three children also seems to lower the risk of Alzheimer's," said Einstein, referring to a large database containing the health and genetic information from 500,000 volunteers. Premature menopause, which happens before the age of 40, and early menopause (between the ages of 40 and 44) are also key risk factors, said Dr. Walter Rocca, who studies the differences in the way men and women age at the Mayo Clinic in Rochester, Minn. "So these women should be treated appropriately to avoid these deficiency of hormones," said Rocca, who presented research on the topic at the AAIC conference. What that treatment looks like could vary widely, Rocca said, based on the patient, as well as the cost and availability of the drug. Some main treatment approaches include pills, patches, gels and creams containing the hormone estrogen, which has been shown to have neuroprotective effects but naturally declines during menopause. The risk of cognitive decline with early or premature menopause exists whether the menopause happened naturally, or caused by their ovaries being removed, says Einstein. She pointed to a study she co-authored, which analyzed data from over 34,000 women from the UK Biobank. "Women who had their ovaries removed prior to the age of 50 will also have an increased risk of Alzheimer's," she said. More inclusive research Researchers are playing catch-up, when it comes to understanding women's risk for Alzheimer's, says Natasha Rajah, a Tier 1 Canada Research Chair in Sex, Gender and Diversity in Brain Health, Memory and Aging at Toronto Metropolitan University. "Not only have we not been included in the research, but even in the clinical trials, we're not represented," she said. "It makes no sense when you think this disease affects more females than males." She's hoping to fill in some of those blanks. She's currently conducting the Canadian Brain Health at Midlife and Menopause study (BHAMM), which searches for early signs of the disease through brain scans and blood samples at mid-life. 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Different choices Looking back, Cox says she now realizes surgically induced menopause was a risk factor for her mother, who had a full hysterectomy after having fibroids in her 30s. The knowledge has led her to make different choices for herself — like reducing stress and taking care of her mental health. She's also now aware of how her own hormones can interact with Alzheimer's risk. "When it came time for me to deal with my fibroids that I had, I chose not to have a full hysterectomy." She's also passing down the knowledge to her daughter — and sharing it with other members of the Black community who have been impacted by Alzheimer's, through the Pan African Dementia Association. She's hoping researchers will find out more about risk factors for women developing Alzheimer's — so fewer women and families have to live through what her mom did. "When it impacts women, it impacts the entire family and the community," she said.

Explosions at US Steel plant in Pennsylvania leave 1 dead, 2 missing and multiple injured
Explosions at US Steel plant in Pennsylvania leave 1 dead, 2 missing and multiple injured

Yahoo

time8 hours ago

  • Yahoo

Explosions at US Steel plant in Pennsylvania leave 1 dead, 2 missing and multiple injured

Pennsylvania Plant Explosion CLAIRTON, Pa. (AP) — Explosions at a U.S. Steel plant near Pittsburgh left one dead, two missing and at least nine others in hospitals Monday, with emergency workers searching the badly charred rubble for victims, officials said. The explosions sent black smoke spiralling into the midday sky in the Mon Valley, a region of the state synonymous with steel for more than a century. An Allegheny County emergency services spokesperson, Kasey Reigner, said one person died and two were currently believed to be unaccounted for. Others were treated for injuries, Reigner said. Allegheny County Emergency Services said a fire at the plant started around 10:51 a.m. The explosions sent a shock through the community and led to officials asking residents to stay away from the scene so emergency workers could respond. 'It felt like thunder,' Zachary Buday, a construction worker near the scene, told WTAE-TV. 'Shook the scaffold, shook my chest, and shook the building, and then when we saw the dark smoke coming up from the steel mill and put two and two together, and it's like something bad happened.' Pennsylvania Gov. Josh Shapiro said via X that 'multiple explosions' occurred at the facility. Allegheny Health Network said it had seven patients from the explosion being treated by its hospitals. It did not provide information about the patients' conditions. University of Pittsburgh Medical Center said it is treating two patients at UPMC Mercy, the region's only level one trauma and burn center. Clairton residents like Amy Sowers, 49, felt an explosion nearby. Sowers, who was sitting on her porch located less than a mile from the plant, felt her house shake. 'I could see smoke from my driveway,' she said. 'We heard ambulances and fire trucks from every direction." Sowers decided to leave the area after she said she smelled a faint smell in the air. Sowers, who grew up in Clairton, has seen several incidents at the plant over the years. Despite health concerns, Sowers said many residents cannot afford to leave. A maintenance worker was killed in an explosion at the plant in September 2009. In July 2010, another explosion injured 14 employees and six contractors. 'Lives were lost again,' Sowers said. 'How many more lives are going to have to be lost until something happens?' Air quality concerns and health warnings The plant, a massive industrial facility along the Monongahela River south of Pittsburgh, is considered the largest coking operation in North America and is one of four major U.S. Steel plants in Pennsylvania that employ several thousand workers. In a statement, U.S. Steel said an 'incident' occurred at the plant's coke oven batteries 13 and 14. The company, now a subsidiary of Japan-based Nippon Steel Corp., said emergency teams were immediately dispatched to the scene, but it gave no other details about the cause of the explosions, casualties or damage. The company's CEO, David Burritt, said in the statement that U.S. Steel is working with authorities to investigate the cause. The plant converts coal to coke, a key component in the steel-making process. To make coke, coal is baked in special ovens for hours at high temperatures to remove impurities that could otherwise weaken steel. The process creates what's known as coke gas — made up of a lethal mix of methane, carbon dioxide and carbon monoxide. Clairton Mayor Richard Lattanzi said his heart goes out to the victims of Monday's explosions. 'The mill is such a big part of Clairton,' he said. 'It's just a sad day for Clairton.' The Allegheny County Health Department said it is monitoring the explosions and advised residents within 1 mile (1.6 kilometers) of the plant to remain indoors, close all windows and doors, set air conditioning systems to recirculate, and avoid drawing in outside air, such as using exhaust fans. It said its monitors have not detected levels of soot or sulfur dioxide above federal standards. According to the company, the plant produces 4.3 million tons (3.9 million metric tons) of coke annually and has approximately 1,400 workers. The plant has a long history of pollution concerns In recent years, the Clairton plant has been dogged by concerns about pollution. In 2019, it agreed to settle a 2017 lawsuit for $8.5 million. Under the settlement, the company agreed to spend $6.5 million to reduce soot emissions and noxious odors from the Clairton coke-making facility. The company also faced other lawsuits over pollution from the Clairton facility, including ones accusing the company of violating clean air laws after a 2018 fire damaged the facility's sulfur pollution controls. In February, a problem with a battery at the plant led to a 'buildup of combustible material' that ignited, causing an audible 'boom,' the Allegheny County Health Department said. Two workers who got material in their eyes received first aid treatment at a local hospital but were not seriously injured. Last year, the company agreed to spend $19.5 million in equipment upgrades and $5 million on local clean air efforts and programs as part of settling a federal lawsuit filed by Clean Air Council and PennEnvironment and the Allegheny County Health Department. The fire at the Clairton plant knocked out pollution controls at its Mon Valley plants, but U.S. Steel continued to run them anyway, environmental groups said. The lawsuits accused the steel producer of more than 12,000 violations of its air pollution permits. Environmental group calls for an investigation David Masur, executive director of PennEnvironment, another environmental group that has sued U.S. Steel over pollution, said there needed to be 'a full, independent investigation into the causes of this latest catastrophe and a re-evaluation as to whether the Clairton plant is fit to keep operating.' In June, U.S. Steel and Nippon Steel announced they had finalized a 'historic partnership,' a deal that gives the U.S. government a say in some matters and comes a year and a half after the Japanese company first proposed its nearly $15 billion buyout of the iconic American steelmaker. The pursuit by Nippon Steel for the Pittsburgh-based company was buffeted by national security concerns and presidential politics in a premier battleground state, dragging out the transaction for more than a year after U.S. Steel shareholders approved it. ___ Levy reported from Harrisburg, Pennsylvania; Casey reported from Boston and Whittle reported from Portland, Maine. Associated Press reporters Holly Ramer in Concord, New Hampshire, and Beatrice Dupuy in New York City contributed to this report.

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