B.C. Health Ministry restores drug funding for girl with rare disease
Article content
Charleigh Pollock has Batten disease, and the drug Brineura costs around $1 million a year.
Article content
Article content
Osborne says she spoke with the girl's family tonight and told them that the funding would be available 'for as long as the treating physician and the family deem it appropriate.'
Article content
Article content
Osborne says she believes health professionals should make decisions about care, and a letter she received from Batten disease experts in the United States detailed a 'significant disagreement.'
Article content
Article content
The minister says the Vancouver Island girl and her family should not suffer because of the disagreement over the drug.
Article content
Hashtags
Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles
CTV News
2 hours ago
- CTV News
Ride from Grand Bend to London raises crucial funds for MS research
A 2-day bike ride from Grand Bend to London and back was held this weekend to support those living with MS. With the details, here's Brent Lale.
CTV News
3 hours ago
- CTV News
MS bike ride from Grand Bend to London
A 2-day bike ride from Grand Bend to London and back was held this weekend to support those living with MS. With the details, here's Brent Lale.
CTV News
4 hours ago
- CTV News
Nanaimo, B.C., councillor's motion proposes asking for closure of safe injection site
The City of Nanaimo is seen in this file photo. ( A city councillor in Nanaimo, B.C., is expected to push the city to reach out to a B.C. health authority in a bid to close the overdose prevention site next to city hall. The agenda for Monday's council meeting says Coun. Ian Thorpe will bring forward a motion, asking council to 'formally request' that Island Health close the supervised drug consumption site on Albert Street. Thorpe said during Nanaimo's July 21 council meeting that he planned to put forward a motion that tells the provincial government that the city has 'had enough' of local disorder. The motion comes after council decided at a July 16 committee meeting against building a 1.8-metre-high fence proposed by city staff aimed at protecting those at city hall from what they said was violence and disorder associated with the overdose prevention site. Mayor Leonard Krog said earlier this month that the proposed fence may not have made a 'real difference' to workers subjected to intimidation and harassment while sending a 'really problematic message' about how to deal with disorder in the area. The fence came with an estimated cost of $412,000 before it was rejected at the committee meeting. This report by Chuck Chiang of The Canadian Press was first published July 26, 2025.
