
The answer to suffering is compassionate care, not state-assisted dying
SIR – I work as a nurse in a hospice that is currently celebrating 120 years of service to the people of the East End of London.
The care – including pain control – that our patients receive is outstanding. Through such care, the whole team ensures that patients have a good death.
I cannot support the proposals to introduce assisted dying (Letters, May 15).
Mary Moore
London E2
SIR – I commenced my career as a nurse in the NHS in 1962, and retired in 2017.
In the early days, I did not witness patients dying in agony. Doctors prescribed appropriate pain relief, and would oversee its careful administration by nurses. Patients died peacefully.
Things changed, however, after Harold Shipman's murders. I would also argue that alterations to the way nurses are trained have resulted in a loss of skills in the area of end-of-life care.
However, the idea of assisted dying goes against everything that the medical and nursing professions stand for.
Maureen Hamilton
Redcar, North Yorkshire
SIR – Palliative care does not lessen the need for the option of an assisted death.
My late cousin died aged nearly 97, having received superb care. He and I were close and talked over the phone for years. In the last two years of his life, during every chat, he would ask plaintively: 'Why won't they let me die?'
I can cite similar cases, the most shatteringly traumatic of which was that of my late mother.
Long before a massive stroke reduced this highly intelligent woman to an utterly dependant husk, she'd made clear her wishes. In the event, however, exemplary palliative care prolonged her miserable existence and postponed her death by a completely unwanted three years.
Anne Jappie
Cheltenham Gloucestershire
SIR – Since assisted dying was introduced progressively from 2019 into all states of Australia, about 2,500 people have chosen to make use of it.
The system is rigorously controlled, and applicants have three interviews with medical and psychological experts.
To date, there have been no recorded instances of the system failing to do the job it was designed for – namely, allowing an individual to take their own life, on their own terms and in their own time (usually in their home, surrounded by friends and relatives).
Phillip Mason
Torquay, Queensland, Australia
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Sarah says they went to the GP 'a few times' before Isobel was given an ultrasound. 'He said it was fibroids [benign growths in the womb] and she started to cry,' Sarah recalls. 'He said, 'Why are you crying?' And she said, 'I'm worried it could be something serious'. He said, 'No, no, it's just fibroids'. 'So we didn't think anything more of it. I have fibroids, a lot of women do.' But Sarah grew concerned because the pain Isobel was experiencing seemed abnormal, with painkillers barely touching the sides. By February, she was experiencing 'really bad belly pain' - which Sarah says doctors recommended ibuprofen for - and in March, the pain spread to her back and legs. They told us Isobel had cancer and it had spread to quite a few places. It wasn't like how you see it on the TV, when they hold your hand. She was told quickly, without compassion. SarahIsobel's mum Sarah took her to A&E at Queen's Hospital in Romford on two occasions in March which conducted more ultrasounds. 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But this doesn't necessarily mean cancer - there are all sorts of reasons for lumps and swellings, but it must always be checked by a GP. The lump is usually found deep under the skin and might be felt before it can be seen. The lump is usually solid to the touch, painless and hard to move around under the skin. It will continue to grow and as it does, it can become painful. Other symptoms depend on where in the body the lump is. These can include: Tummy pain and constipation if there is a sarcoma near the tummy A cough that does not go away if there is a sarcoma near the lungs Source: NHS Sarah says: 'They told us it was incurable, and that they would do everything they could to prolong her life. Which, at the age of 19, is not what you want to hear. 'I didn't leave her side after that. I was just too scared, let down, devastated… just looking at her and crying. We all cried. 'She would say, 'Why me? Why couldn't I have gotten another cancer?' To go through that as a family, it was unbearable.' Sarcoma UK say more than 5,100 people are diagnosed with the disease each year. In a recent study, it was shown to take an average of almost seven weeks to diagnose in children. Sarcoma develops in the body's bones and soft tissues, such as muscles, fat, blood vessels, nerves, tendons, and joint linings. There are more than 100 subtypes, the two main ones being soft tissue and bone. 13 13 13 13 Cancer Research UK says: 'Soft tissue sarcoma incidence is unusual compared with most cancers because a sizeable proportion of cases occur in children and younger adults; however, the highest incidence rates are in older people.' Soft tissue sarcoma has a 45 per cent survival rate for 10 or more years. Devastated by the shocking survival statistics of sarcoma, Isobel knew she had to raise money in the hopes it would contribute to better outcomes for future patients. She raised £13,000 for Sarcoma UK at a charity ball, and her brother brother, Josh Allen, 24, has since ran the London Marathon, raising £27,000. Her friends are fundraising for Race For Life in July. FOUGHT 'TIL THE END Isobel started chemotherapy, but it was a means to extend her time with family, living life as normally as she could between the side effects. She returned to her work, even commuting to London two days a week, and her supportive friends would plan meet-ups around her chemotherapy schedule so she'd have the energy to join them. The nurses always laughed that she'd turn up to her chemotherapy in a new outfit, wig and full face of makeup - until she became too weak. Even when they told us about the tumour on her lung, I was sobbing and she said, 'Come on, mummy, it is what it is'. SarahIsobel's mum Eventually, the family got the news that there was nothing more that could be done. It was Christmas 2024, and they were advised to think about end-of-life care. Sarah says: 'We had some tough conversations with the consultant in January, who said it wasn't looking good. So Isobel knew the time was getting nearer. 'In March, she was struggling to breathe and they took her into hospital to drain fluid from her lungs - but it wasn't fluid, it was a tumour. 'That's when they said we need to get her home and make her comfortable. She wanted to be on the sofa, so we got her bedding down, and we actually all slept in the living room. 'She died the next day, on Wednesday at 10 to 3, at home with her family. "I just didn't realise it would be that quick. 'Isobel had protected us all along. She fought so hard to carry on as normal, even though the whole time, she had this deadly disease inside of her. 'Isobel was still talking about trying to go on holiday to Spain, she was ordering clothes two days before her death. She was just trying to live like any normal 19-year-old would. 'She was the one comforting us. Even when they told us about the tumour on her lung, I was sobbing and she said, 'Come on, mummy, it is what it is'.' Speaking of her legacy, Sarah notes a tattoo Isobel got towards the end of her life. It read 'Go Live Life'. 'We've had so many parents and other young girls message us from UCLH to say how she inspired them. 'Even her consultant wrote that she was an 'inspiring young lady'. One girl who rang the bell in December said 'Isobel changed my life'. 'She would light up daycare. She'd tell them not to stop living their life, and they were more than cancer.' A spokesperson for The London Independent Hospital, said: 'While, it would be inappropriate for us to discuss individual cases, we send our deepest condolences to the patient's family at this extremely difficult time. " All patients who are referred to us undergo a comprehensive and meticulous consultation to identify and diagnose their symptoms. Should further tests and scans be required to investigate their condition, then these are booked promptly either at our hospital or a referral is made to another appropriate facility.' Matthew Trainer, Chief Executive, Barking, Havering and Redbridge University Hospitals NHS Trust, said: 'I'd like to extend our sincere condolences to Isobel's family. We're extremely sorry for their loss.' 13