Latest news with #Kelham
BBC News
7 days ago
- Health
- BBC News
'My son has a rare condition only 15 people have'
The parents of a five-year-old boy say they "constantly worry every day" because he has a rare condition, which means "there is always a chance of cardiac arrest".Harrison's dad Kelham and stepmother Shannon say they were shocked when they were told their son had a condition only 15 people in the world had. Harrison has a rare mutation in the Filamin C gene, also known as FLNC, which impacts his spine, heart and lungs. The family, from Ilkeston in Derbyshire, are now fundraising for a specialist car seat to make his weekly 260-mile round trips to Great Ormond Street in London more comfortable. Kelham, 30, says due to the rarity of the condition, there is not a lot of a research, and it is "difficult to know what the future holds" for his son. He noticed something was not right when he stopped one afternoon with Harrison in the two at the time, Harrison began to vomit in his car seat. Arriving home five minutes later, Kelham said he noticed a curve in his back while he was changing taking him to A&E, medics diagnosed Harrison with scoliosis. But further examinations were later carried out, and after a number of trips to the Queen's Medical Centre in Nottingham, Harrison took part in genetic testing. "There was nothing to suggest something was wrong when he was born and was just a normal little boy," added Kelham."The hospital tests came back as a gene mutation called FLNC (Filamin C); it's very rare, and 15 people in the world have what he has. We were really shocked when we were told."The condition has led to Harrison developing a curved bend in his spine, so his shoulders and the bottom of his back are no longer in turn, this has meant Harrison is at higher risk of further has restrictive cardiomyopathy - a heart muscle disease where the heart muscle becomes stiff, preventing it from relaxing and filling with blood scoliosis also puts pressure on the lungs and has decreased his respiratory function, causing lung family said Harrison now faced an arduous surgery to remove vertebrae and have metal rods fused to his spine to straighten it, after wearing a halo device fixed to his skull and leg bones to slowly pull his spine into a straighter position. "It's a struggle in day-to-day life, because there's not a lot of information about the condition, there isn't a lot of research we can look at," Kelham said."We both constantly worry every day because with FNLC there's always a chance of cardiac arrest."We don't want that to happen, so we take every day as it comes, and put a smile on Harrison's face and we do the best we can as parents. "But Harrison doesn't stop doing what he does, and we keep going."Due to his condition, Kelham and Shannon, 31, have to take Harrison to Great Ormond Street Hospital in London for treatment. Something the family struggle with. "His current car seat isn't right for him, he gets agitated trying to get comfortable, and we have to keep stopping every 30 to 45 minutes," Kelham added."Car journeys are a problem in general, and he works himself up and can be sick because of it." The family have partnered up with children's disability charity Newlife in raising money for a specialist car seat moulded in the curve of his spine. This would enable Harrison to have comfortable journeys and give the family more confidence in having more trips out with the rest of the said despite his condition, Harrison still lived life to the fullest."He will try his best in everything that he does, like what any other child does."Harrison has his challenges, but he's a happy little boy, and we love him for who he is."
San Francisco Chronicle
10-06-2025
- Sport
- San Francisco Chronicle
Luke Mistone hits go-ahead homer in the 8th to help Murray State advance to the program's first CWS
DURHAM, N.C. (AP) — Luke Mistone hit a go-ahead homer in the eighth inning, Graham Kelham was solid in another long relief appearance, and Murray State beat Duke 5-4 on Monday night in a winner-take-all championship game at the Durham Super Regional to advance to the program's first College World Series. Murray State (44-15) became the fourth No. 4 seed to advance to Omaha, Nebraska. Duke (40-20) was seeking its first appearance in the CWS since 1961. Jonathan Hogart hit his second home run of the game in the seventh inning — his 21st of the season — into the pine trees over the left-field wall to tie it at 3. Murray State retook the lead in the eighth on Mistone's leadoff shot — just his fourth homer of the year. Then Dan Tauken's triple scored Will Vierling from first for a 5-3 lead after the ball caromed off the wall toward center field. Later in the eighth, the Racers had the bases loaded with no outs after back-to-back walks but James Tallon struck out two and got a groundout to end the threat. Murray State appeared to win the game after an interference call at second base, but it was overturned after an official review to give Duke another chance. Kelham regrouped after the celebration to get a groundout to first to end it. Kelham, who threw 43 pitches on Sunday in a three-inning save, struck out four in 2 2/3 innings for his fourth win of the season. ___
Winnipeg Free Press
10-06-2025
- Sport
- Winnipeg Free Press
Luke Mistone hits go-ahead homer in the 8th to help Murray State advance to the program's first CWS
DURHAM, N.C. (AP) — Luke Mistone hit a go-ahead homer in the eighth inning, Graham Kelham was solid in another long relief appearance, and Murray State beat Duke 5-4 on Monday night in a winner-take-all championship game at the Durham Super Regional to advance to the program's first College World Series. Murray State (44-15) became the fourth No. 4 seed to advance to Omaha, Nebraska. Duke (40-20) was seeking its first appearance in the CWS since 1961. Jonathan Hogart hit his second home run of the game in the seventh inning — his 21st of the season — into the pine trees over the left-field wall to tie it at 3. Murray State retook the lead in the eighth on Mistone's leadoff shot — just his fourth homer of the year. Then Dan Tauken's triple scored Will Vierling from first for a 5-3 lead after the ball caromed off the wall toward center field. Later in the eighth, the Racers had the bases loaded with no outs after back-to-back walks but James Tallon struck out two and got a groundout to end the threat. Murray State appeared to win the game after an interference call at second base, but it was overturned after an official review to give Duke another chance. Kelham regrouped after the celebration to get a groundout to first to end it. Kelham, who threw 43 pitches on Sunday in a three-inning save, struck out four in 2 2/3 innings for his fourth win of the season. Reid Easterly (9-3) took the loss after allowing two earned runs in three relief innings. ___ AP college sports:
Fox Sports
10-06-2025
- Sport
- Fox Sports
Luke Mistone hits go-ahead homer in the 8th to help Murray State advance to the program's first CWS
Associated Press DURHAM, N.C. (AP) — Luke Mistone hit a go-ahead homer in the eighth inning, Graham Kelham was solid in another long relief appearance, and Murray State beat Duke 5-4 on Monday night in a winner-take-all championship game at the Durham Super Regional to advance to the program's first College World Series. Murray State (44-15) became the fourth No. 4 seed to advance to Omaha, Nebraska. Duke (40-20) was seeking its first appearance in the CWS since 1961. Jonathan Hogart hit his second home run of the game in the seventh inning — his 21st of the season — into the pine trees over the left-field wall to tie it at 3. Murray State retook the lead in the eighth on Mistone's leadoff shot — just his fourth homer of the year. Then Dan Tauken's triple scored Will Vierling from first for a 5-3 lead after the ball caromed off the wall toward center field. Later in the eighth, the Racers had the bases loaded with no outs after back-to-back walks but James Tallon struck out two and got a groundout to end the threat. Murray State appeared to win the game after an interference call at second base, but it was overturned after an official review to give Duke another chance. Kelham regrouped after the celebration to get a groundout to first to end it. Kelham, who threw 43 pitches on Sunday in a three-inning save, struck out four in 2 2/3 innings for his fourth win of the season. Reid Easterly (9-3) took the loss after allowing two earned runs in three relief innings. ___ AP college sports: recommended in this topic
Yahoo
10-06-2025
- Sport
- Yahoo
Luke Mistone hits go-ahead homer in the 8th to help Murray State advance to the program's first CWS
DURHAM, N.C. (AP) — Luke Mistone hit a go-ahead homer in the eighth inning, Graham Kelham was solid in another long relief appearance, and Murray State beat Duke 5-4 on Monday night in a winner-take-all championship game at the Durham Super Regional to advance to the program's first College World Series. Murray State (44-15) became the fourth No. 4 seed to advance to Omaha, Nebraska. Advertisement Duke (40-20) was seeking its first appearance in the CWS since 1961. Jonathan Hogart hit his second home run of the game in the seventh inning — his 21st of the season — into the pine trees over the left-field wall to tie it at 3. Murray State retook the lead in the eighth on Mistone's leadoff shot — just his fourth homer of the year. Then Dan Tauken's triple scored Will Vierling from first for a 5-3 lead after the ball caromed off the wall toward center field. Later in the eighth, the Racers had the bases loaded with no outs after back-to-back walks but James Tallon struck out two and got a groundout to end the threat. Advertisement Murray State appeared to win the game after an interference call at second base, but it was overturned after an official review to give Duke another chance. Kelham regrouped after the celebration to get a groundout to first to end it. Kelham, who threw 43 pitches on Sunday in a three-inning save, struck out four in 2 2/3 innings for his fourth win of the season. Reid Easterly (9-3) took the loss after allowing two earned runs in three relief innings. ___ AP college sports: The Associated Press
