Latest news with #LangerhansCellHistiocytosis
Cision Canada
4 days ago
- Health
- Cision Canada
17th Annual Ride for SickKids Returns August 10, 2025 Français
Motorcycle ride to support SickKids families and raise funds for specialized medical equipment TORONTO, Aug. 6, 2025 /CNW/ - Over 600 motorcycle riders are expected to rev their engines for a cause that touches the hearts of thousands across Ontario. The 17th Annual Ride for SickKids is set to take place on Sunday, August 10, 2025, kicking off from North Maple Regional Park in Vaughan. This year's fundraising goal is $200,000, aimed at purchasing life-saving pediatric medical equipment and supporting the SickKids Foundation's mission to transform care for every child. "We're proud to support this important fundraising event to help children and their families in their time of need," said Joanne Dalziel, AVP National Product Portfolio at Co-operators General Insurance, who is a top-level corporate sponsor of Ride for SickKids for the second year. "The funds raised each year by the Ride for SickKids is used to purchase life-saving pediatric equipment that is so vital to the work the passionate and dedicated team at SickKids do every day." One of the largest charity rides in the GTA, the Ride for SickKids has raised more than $1.3 million since it began in 2009. This year's event will feature a scenic 100 km escorted ride through York Region, followed by a post-ride celebration with live entertainment, food & drinks, vendors and the raffle draw for prizes and the main prize of a 2025 custom built motorcycle by Cycleworx. Honouring Two Brave Ambassador Children Each year, the Ride honours children whose courageous journeys at SickKids inspire our community to give back. This year, we are proud to spotlight two ambassador children: Ilaria, now 18, was just 12 when she was diagnosed with the rare disorder Langerhans Cell Histiocytosis (LCH). The condition caused a lesion in her skull and excruciating migraines. "It was a scary and uncertain time," she recalls. "But my doctors at SickKids made all the difference." With the help of the oncology team, Ilaria began her road to healing. Her strength and grace through adversity continues to inspire others. Baby Valentina was born on March 6, 2024, and within days was transferred to SickKids from Brampton Civic Hospital when doctors discovered serious complications. She was ultimately diagnosed with Rubinstein-Taybi Syndrome Type 2 and Ponto Cerebellar Hypoplasia, rare neurological conditions requiring specialized, ongoing care. Her family has been on an emotional journey of discovery, strength, and advocacy — made possible by the unmatched support of SickKids. "These stories remind us why we ride," said Nella Figliano, Chair of the Ride for SickKids. "Each dollar raised goes directly toward helping kids like Ilaria and Valentina get the care they need. Their strength fuels our mission." A Day of Community and Celebration The Ride begins with a mass police-escorted departure at 11 a.m., and returns to North Maple Regional Park by 12:30 p.m. There, the celebration continues with lunch, live music, vendors, and many emotional moments: the grand prize motorcycle raffle draw at 2 p.m. Media personality Stella Acquisto returns as this year's hosts, ensuring the day is filled with energy, connection, and purpose. Event Details: WHERE: North Maple Regional Park, 11085 Keele Street, Maple, ON WHEN: Sunday, August 10, 2025 Riders arrive: 8 a.m. Opening remarks & ambassador stories: 10:15 a.m. Ride departs: 11 a.m. Celebration & lunch: 12:30 p.m. Raffle draw: 2 p.m. About Co‑operators Proudly Canadian since 1945, Co‑operators is a leading financial services co-operative, offering multi-line insurance and investment products, services, and personalized advice to help Canadians build their financial strength and security. With more than $74 billion in assets under administration, Co‑operators is well known for its community involvement and its commitment to sustainability. Currently a carbon neutral organization, Co-operators is committed to net-zero emissions in its operations and investments by 2040, and 2050, respectively. Co‑operators is recognized as one of Canada's Top 100 Employers and ranked as one of Corporate Knights' Best 50 Corporate Citizens in Canada. For more information, please visit: For more information, please contact: Nella Figliano, Chair [email protected] 416-895-5215 Media Inquiries – Co-operators [email protected] SOURCE The Co-operators Group Limited
Rhyl Journal
28-05-2025
- Health
- Rhyl Journal
Childhood cancers which take longest to diagnose revealed in new study
Babies and those with kidney cancer wait the shortest period before they are diagnosed, academics found. Researchers, led by University of Nottingham, analysed data on 2,000 children diagnosed with cancer between September 2020 and March 2023. Untreated, tumours grow bigger and can spread around the body, requiring more extensive surgery and more intensive therapies to offer a cure. On average, children with cancer were diagnosed within 4.6 weeks. While some children were diagnosed on the same day their symptoms began, others waited up to six years, experts found. The time to diagnosis was found to be longest among 15 to 18-year-olds, who waited for an average of 8.7 weeks before they were told they had cancer. And those with bone cancer were found to wait for more than three months on average, or 12.6 weeks. Meanwhile children under the age of one waited just 3.7 weeks before diagnosis and children with kidney cancer, also known as renal cancer, waited for an average of 2.3 weeks before they were diagnosed. But they said that overall, half of children and young people diagnosed with cancer in the UK are waiting for four weeks or more to be diagnosed. They also studied where children were diagnosed and found the majority (67%) were diagnosed after a trip to A&E, after an emergency referral or emergency admission to hospital. Some cancer types, including bone tumours, soft tissue tumours Langerhans Cell Histiocytosis and brain tumours, were associated with a higher number of medical visits before diagnosis. Writing in the Lancet Regional Health – Europe, researchers said their work highlights 'disparities for age and diagnostics groups' when it comes to cancer diagnoses as they called for more efforts to 'accelerating diagnosis' for those facing 'lengthy' waits. They said the findings could help inform health officials as they draw up a national cancer plan for England. Dr Shaarna Shanmugavadivel, from the School of Medicine at the University of Nottingham, said: 'For the first time, we understand the current landscape of childhood cancer diagnosis in the UK. 'There is an urgent need to focus efforts on young people and tumour types such as bone tumours that are still experiencing lengthy intervals. 'Earliest possible diagnosis is key as time is crucial. 'Untreated, tumours grow bigger and can spread around the body, requiring more extensive surgery and more intensive therapies to offer cure. 'The findings will help focus efforts towards closing the gap for these groups, ensuring more children and young people receive a diagnosis sooner.' Ashley Ball-Gamble, chief executive of CCLG: The Children and Young People's Cancer Association, and co-author of the study, added: 'It's crucial that we understand why certain groups, such as older teenagers, or those with certain cancers, such as bone and brain tumours, are likely to face a lengthier diagnosis. 'By recognising these differences, we hope to work towards faster diagnoses and improved survival rates.'
South Wales Argus
28-05-2025
- Health
- South Wales Argus
Childhood cancers which take longest to diagnose revealed in new study
Babies and those with kidney cancer wait the shortest period before they are diagnosed, academics found. Researchers, led by University of Nottingham, analysed data on 2,000 children diagnosed with cancer between September 2020 and March 2023. Untreated, tumours grow bigger and can spread around the body, requiring more extensive surgery and more intensive therapies to offer a cure. On average, children with cancer were diagnosed within 4.6 weeks. While some children were diagnosed on the same day their symptoms began, others waited up to six years, experts found. The time to diagnosis was found to be longest among 15 to 18-year-olds, who waited for an average of 8.7 weeks before they were told they had cancer. And those with bone cancer were found to wait for more than three months on average, or 12.6 weeks. Meanwhile children under the age of one waited just 3.7 weeks before diagnosis and children with kidney cancer, also known as renal cancer, waited for an average of 2.3 weeks before they were diagnosed. But they said that overall, half of children and young people diagnosed with cancer in the UK are waiting for four weeks or more to be diagnosed. They also studied where children were diagnosed and found the majority (67%) were diagnosed after a trip to A&E, after an emergency referral or emergency admission to hospital. Some cancer types, including bone tumours, soft tissue tumours Langerhans Cell Histiocytosis and brain tumours, were associated with a higher number of medical visits before diagnosis. Writing in the Lancet Regional Health – Europe, researchers said their work highlights 'disparities for age and diagnostics groups' when it comes to cancer diagnoses as they called for more efforts to 'accelerating diagnosis' for those facing 'lengthy' waits. They said the findings could help inform health officials as they draw up a national cancer plan for England. Dr Shaarna Shanmugavadivel, from the School of Medicine at the University of Nottingham, said: 'For the first time, we understand the current landscape of childhood cancer diagnosis in the UK. 'There is an urgent need to focus efforts on young people and tumour types such as bone tumours that are still experiencing lengthy intervals. 'Earliest possible diagnosis is key as time is crucial. 'Untreated, tumours grow bigger and can spread around the body, requiring more extensive surgery and more intensive therapies to offer cure. 'The findings will help focus efforts towards closing the gap for these groups, ensuring more children and young people receive a diagnosis sooner.' Ashley Ball-Gamble, chief executive of CCLG: The Children and Young People's Cancer Association, and co-author of the study, added: 'It's crucial that we understand why certain groups, such as older teenagers, or those with certain cancers, such as bone and brain tumours, are likely to face a lengthier diagnosis. 'By recognising these differences, we hope to work towards faster diagnoses and improved survival rates.'
South Wales Guardian
28-05-2025
- Health
- South Wales Guardian
Childhood cancers which take longest to diagnose revealed in new study
Babies and those with kidney cancer wait the shortest period before they are diagnosed, academics found. Researchers, led by University of Nottingham, analysed data on 2,000 children diagnosed with cancer between September 2020 and March 2023. Untreated, tumours grow bigger and can spread around the body, requiring more extensive surgery and more intensive therapies to offer a cure. On average, children with cancer were diagnosed within 4.6 weeks. While some children were diagnosed on the same day their symptoms began, others waited up to six years, experts found. The time to diagnosis was found to be longest among 15 to 18-year-olds, who waited for an average of 8.7 weeks before they were told they had cancer. And those with bone cancer were found to wait for more than three months on average, or 12.6 weeks. Meanwhile children under the age of one waited just 3.7 weeks before diagnosis and children with kidney cancer, also known as renal cancer, waited for an average of 2.3 weeks before they were diagnosed. But they said that overall, half of children and young people diagnosed with cancer in the UK are waiting for four weeks or more to be diagnosed. They also studied where children were diagnosed and found the majority (67%) were diagnosed after a trip to A&E, after an emergency referral or emergency admission to hospital. Some cancer types, including bone tumours, soft tissue tumours Langerhans Cell Histiocytosis and brain tumours, were associated with a higher number of medical visits before diagnosis. Writing in the Lancet Regional Health – Europe, researchers said their work highlights 'disparities for age and diagnostics groups' when it comes to cancer diagnoses as they called for more efforts to 'accelerating diagnosis' for those facing 'lengthy' waits. They said the findings could help inform health officials as they draw up a national cancer plan for England. Dr Shaarna Shanmugavadivel, from the School of Medicine at the University of Nottingham, said: 'For the first time, we understand the current landscape of childhood cancer diagnosis in the UK. 'There is an urgent need to focus efforts on young people and tumour types such as bone tumours that are still experiencing lengthy intervals. 'Earliest possible diagnosis is key as time is crucial. 'Untreated, tumours grow bigger and can spread around the body, requiring more extensive surgery and more intensive therapies to offer cure. 'The findings will help focus efforts towards closing the gap for these groups, ensuring more children and young people receive a diagnosis sooner.' Ashley Ball-Gamble, chief executive of CCLG: The Children and Young People's Cancer Association, and co-author of the study, added: 'It's crucial that we understand why certain groups, such as older teenagers, or those with certain cancers, such as bone and brain tumours, are likely to face a lengthier diagnosis. 'By recognising these differences, we hope to work towards faster diagnoses and improved survival rates.'
North Wales Chronicle
27-05-2025
- Health
- North Wales Chronicle
Childhood cancers which take longest to diagnose revealed in new study
Babies and those with kidney cancer wait the shortest period before they are diagnosed, academics found. Researchers, led by University of Nottingham, analysed data on 2,000 children diagnosed with cancer between September 2020 and March 2023. Untreated, tumours grow bigger and can spread around the body, requiring more extensive surgery and more intensive therapies to offer a cure. On average, children with cancer were diagnosed within 4.6 weeks. While some children were diagnosed on the same day their symptoms began, others waited up to six years, experts found. The time to diagnosis was found to be longest among 15 to 18-year-olds, who waited for an average of 8.7 weeks before they were told they had cancer. And those with bone cancer were found to wait for more than three months on average, or 12.6 weeks. Meanwhile children under the age of one waited just 3.7 weeks before diagnosis and children with kidney cancer, also known as renal cancer, waited for an average of 2.3 weeks before they were diagnosed. But they said that overall, half of children and young people diagnosed with cancer in the UK are waiting for four weeks or more to be diagnosed. They also studied where children were diagnosed and found the majority (67%) were diagnosed after a trip to A&E, after an emergency referral or emergency admission to hospital. Some cancer types, including bone tumours, soft tissue tumours Langerhans Cell Histiocytosis and brain tumours, were associated with a higher number of medical visits before diagnosis. Writing in the Lancet Regional Health – Europe, researchers said their work highlights 'disparities for age and diagnostics groups' when it comes to cancer diagnoses as they called for more efforts to 'accelerating diagnosis' for those facing 'lengthy' waits. They said the findings could help inform health officials as they draw up a national cancer plan for England. Dr Shaarna Shanmugavadivel, from the School of Medicine at the University of Nottingham, said: 'For the first time, we understand the current landscape of childhood cancer diagnosis in the UK. 'There is an urgent need to focus efforts on young people and tumour types such as bone tumours that are still experiencing lengthy intervals. 'Earliest possible diagnosis is key as time is crucial. 'Untreated, tumours grow bigger and can spread around the body, requiring more extensive surgery and more intensive therapies to offer cure. 'The findings will help focus efforts towards closing the gap for these groups, ensuring more children and young people receive a diagnosis sooner.' Ashley Ball-Gamble, chief executive of CCLG: The Children and Young People's Cancer Association, and co-author of the study, added: 'It's crucial that we understand why certain groups, such as older teenagers, or those with certain cancers, such as bone and brain tumours, are likely to face a lengthier diagnosis. 'By recognising these differences, we hope to work towards faster diagnoses and improved survival rates.'
