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Politico
19 hours ago
- Health
- Politico
The post-Roe fight over data privacy
Hey everyone! I hope you are all having a lovely Pride Month. Thanks for reading Women Rule. We'll be on hiatus next week and back in your inbox on June 27. Reach out and say hello: klong@ and ecordover@ This week I had a chat with Rep. Sara Jacobs on her reintroduction of the My Body, My Data Act. The post-Roe era has elevated a new data privacy fight, as concerns grow over how reproductive and sexual health data is collected and disclosed. But the issue has been front of mind for Rep. Sara Jacobs for years, even prior to the Dobbs decision. The California Democrat reintroduced the My Body, My Data Act on Thursday, which aims to increase protections for those who use apps and sites that collect reproductive and sexual health data, such as period tracking apps. Jacobs points to certain instances where reproductive health data, which is not protected under HIPAA, has been used to investigate and prosecute users in states with strict abortion laws. Jacobs describes the push to protect reproductive and sexual health data as 'the abortion fight of the 21st century.' The bill, which was introduced in 2022 and then reintroduced the following year, would provide consumer protections for users who disclose their reproductive and sexual health data on apps and websites. This includes limiting the data that can be collected to only that which is necessary to provide a certain product or service, and bolstering transparency from companies on how that data is collected, retained and shared. Sens. Mazie Hirono (D-Hawaii) and Ron Wyden (D-Ore.) sponsored the bill's Senate counterpart. The legislation was introduced twice before, first in 2022 and again the following year, but made little headway. And with a Republican-controlled Congress, the bill's reintroduction will likely result in a similar fate. Women Rule spoke with Jacobs on the reintroduction of the bill, which comes on the heels of the three-year anniversary of the Dobbs decision. This interview has been edited for length and clarity. I first wanted to talk a little bit about the bill. I think especially in a post-Roe world, there's growing concern over government tracking on period apps and other apps and sites related to reproductive and sexual health. I first introduced this bill because right after the opposite decision came down when Roe v. Wade was overturned, I started getting all these messages from friends and peers wondering what they should do about their period tracking apps, and I also use a period tracking app, and we started looking into it and there's basically no protections for this kind of reproductive and sexual health data. It's not covered under HIPAA, and so we're already seeing people try to use this data to go after people who are getting abortions and those helping them in states that have criminalized abortion. We know that they want to go after this data, and so I think it's incredibly important that we as Congress do something to protect this very sensitive data. Actually, there was a poll two years ago that showed that 2 in 3 Americans, including 54 percent of Republicans, support Congress making it illegal for apps and search engines to sell their reproductive health data. Why is it important for this bill to pass now? Well, in 2017, even before the overturning of Roe v. Wade, Mississippi police used Google search history to go after someone and alleged that she had an abortion. In 2022, the police used Facebook messages in Nebraska as part of an investigation into an abortion illegal under state law. More recently, a data broker sold cell phone and geolocation data to an anti-abortion political group that then used that information to dispense misinformation about reproductive health to people who had visited 600 abortion clinics in 48 states. And more Americans are turning to online clinics for medication abortions. Young people increasingly use the internet, live online, we are googling questions about medicine, we are using Ubers to get places, right? And all of this data can be misused, and we know the lengths that police and prosecutors will go to to try and intimidate or prosecute people for having abortions. With a Republican controlled Congress, it seems unlikely that the bill will pass, but have you received any support from across the aisle? Unfortunately, while I work in a bipartisan way with a lot of Republicans on data privacy, when it comes to this kind of data, they have been unwilling to engage even though they claim to support data privacy. We're coming up on the three-year anniversary of Roe v. Wade being overturned, and you've mentioned a few examples. Could you talk about how the Dobbs decision has impacted those who use these reproductive and self sexual health tracking apps and sites? Look, especially in states that have criminalized abortion — something like 1 in 3 women live in a state that has criminalized abortion in some way — there is an incredible amount of fear that even if they have a natural miscarriage they could be prosecuted because they Googled something once or that this kind of information can be used against [them] and weaponized against people. I think as we're seeing more and more states and as we know that at the end of the day this Republican Party wants a federal abortion ban, it's more important than ever that we protect people's data. Is there anything in particular about the My Body My Data Act that you would like to highlight? This is the abortion fight of the 21st century, right? Because it's about access and it's about how they're enforcing these really horrible laws. Americans are now becoming more aware of how their data is being used and stored, in part because of DOGE and what Elon Musk is doing. And we know that women are often trying to find the apps and services that claim to safeguard their data, but each individual person shouldn't have to try and figure this out on their own, and it shouldn't be up to companies to do the right thing. This is the exact kind of thing you need the government for, to protect very sensitive health data. And young people intrinsically understand this issue from both sides of the aisle. But part of what's hard is that so many of my colleagues do not understand this. There's just a bit of a mismatch between Congress and the American people on this issue. POLITICO Special Report How Kamala Harris Is Processing the LA Unrest by Melanie Mason for POLITICO: 'Harris has been choosy about when to weigh in publicly on politics since leaving Washington. So her statement on social media this week denouncing President Donald Trump's activation of the National Guard as a 'dangerous escalation' instantly lent itself to frenzied tea leaves reading. … For Harris, it was a natural issue to speak up on for several reasons, according to one of the people familiar with her thinking and granted anonymity to speak freely. First, she's coming at this as a lifelong Californian who came up in law enforcement and has made the rule of law a driving theme of her career. She also empathizes with the protesters, after growing up steeped in the civil rights protests of her childhood and campus anti-apartheid movement of the 1980s.' Trump's DOJ Indicted a Democratic Congresswoman. The Case Could Fall Apart. by Ankush Khardori for POLITICO: 'The decision to proceed with an indictment following the initial charges against the New Jersey Democrat comes at a politically volatile moment — following President Donald Trump's decision to deploy the National Guard and the Marines in response to protests in Los Angeles, and in the midst of ongoing wrangling over the scope and legality of the administration's deportation effort. In recent weeks, that effort has generated heartrending images from courthouse arrests and more admissions of mistaken deportations from the Justice Department. Meanwhile, the administration is moving to deport hundreds of thousands of people who entered the country legally under the last administration.' Phil Murphy Skated to the NJ Governor's Mansion. Mikie Sherrill Might Not Have it So Easy. by Matt Friedman and Madison Fernandez for POLITICO: 'Rep. Mikie Sherrill was the vanguard of the anti-Trump backlash in 2018. Just months after the political unknown declared her Democratic candidacy for Congress and began raising money at a fast clip, the 24-year Republican incumbent bowed out rather than face the first competitive general election of his career. Sherrill easily won what had long been a safe Republican district in a blue wave election that flipped the House. Now, Sherrill stands as Democrats' bulwark against a red tide after winning the party nomination for New Jersey governor Tuesday night.' Number of the Week More on that here. MUST READS Doctors Report the First Pregnancy Using a New AI Procedure by Alice Park for Time Magazine: 'Doctors at Columbia University Fertility Center have reported what they are calling the first pregnancy using a new AI system, in a couple that had been trying to start a family for nearly two decades. The pregnancy was possible due to an advance developed by the Columbia team, led by Dr. Zev Williams, director of the center, to address azoospermia, or a lack of detectable sperm in the ejaculate. Male factors account for about 40 percent of infertility in the U.S., and azoospermia is responsible for about 10 percent of those cases. Until recently, there was little doctors could do to address the lack of sperm needed to fertilize an egg, other than using donor sperm.' Domestic Abusers Could Have Easier Path to Getting Gun Rights Back Under Trump Proposal by Jennifer Gerson for The 19th: 'The Trump administration is proposing a change to how people convicted of crimes can have their gun rights restored, raising concerns over what this means for victims of domestic violence. The Democratic Women's Caucus and the Gun Violence Prevention Task Force of the U.S. House of Representatives sent a letter to Attorney General Pam Bondi and Robert Hinchman, senior counsel at the Department of Justice (DOJ), criticizing an interim final rule that would move the responsibility for determining if someone gets their gun rights back from the Bureau of Alcohol, Tobacco, Firearms and Explosives (ATF) to the Office of the Attorney General. While the ATF is part of the DOJ, the letter says the proposal would create 'an apparent lack of an objective, holistic process for making' these decisions.' Senate Democrats File Bill to Prevent Ban on Transgender Military Service by Luis Martinez for ABC News: 'The 'Fit to Serve Act' would prohibit the Defense Department from banning transgender service members from serving in the military. If passed, the law would prevent the DOD from denying access to healthcare on the basis of gender identity, and it would also prohibit the military from forcing service members to serve in their sex assigned at birth. It would also make it illegal for the military to discriminate against service members on the basis of gender identity.' QUOTE OF THE WEEK Read more here. on the move Fortune journalist Emma Hinchliffe was promoted to editor of the Most Powerful Women Daily newsletter at the publication, leading editorial for the 28-year-old franchise. Martina McLennan is now director of policy communications for economic and health policy at the Bipartisan Policy Center. She previously was communications director for Sen. Jeff Merkley (D-Ore.). (h/t POLITICO Influence) Cara Duckworth is now SVP of comms at USTelecom – The Broadband Association. She previously was chief corporate comms officer at the U.S. Patent and Trademark Office. (h/t POLITICO Playbook)
Yahoo
3 days ago
- Politics
- Yahoo
Democrats introduce bill that aims to protect reproductive health data
Three Democratic members of Congress are introducing a bill to limit companies' ability to hoover up data about people's reproductive health – a measure, they say, that is necessary to protect women from persecution in the post-Roe v Wade era. Representative of California, Senator Mazie Hirono of Hawaii and Senator Ron Wyden of Oregon on Wednesday will file the My Body, My Data Act in both the US House and Senate. The bill aims to block companies from collecting, using, retaining or disclosing information about someone's reproductive health unless that data is essential to providing a requested service. This provision would apply to information about pregnancy, menstruation, abortion, contraception and other matters relating to reproductive health. 'Young people live our lives online, right? That includes tracking our periods, but it also includes our phones tracking our location and using Google to think about your medical care or how to obtain an abortion for yourself or a friend, or ordering abortion pills online, or using an Uber to travel to an abortion clinic,' Jacobs said. 'All of those things are tracked online, and none of those are protected right now.' Law enforcement officials have already attempted to use people's data trails to identify abortion seekers. In 2022, the year that the US supreme court overturned Roe, Nebraska brought a series of felony and misdemeanor charges against a teenager and her mother in connection to the teen's abortion. The charges relied on Facebook chats, which the social media giant had turned over. (Both the teenager and her mother pleaded guilty and were sentenced to time behind bars .) In 2023, anti-abortion activists used cellphone location information to send anti-abortion messages to people who had visited some Planned Parenthood clinics. And in May, a Texas police officer searched tens of automatic license plate reader cameras, including in states that permit abortion, for a woman who officials suspected of self-managing an abortion. The post-Roe landscape is also creating more opportunities for online surveillance. In recent years, orders for abortion pills online have spiked, as tens of thousands more Americans have used online services to obtain pills to 'self-manage' their own abortions. A number of women have also faced criminal charges over miscarriages, leading abortion rights advocates to worry that women who Google phrases like 'how to get an abortion' and then miscarry could find themselves in law enforcement's crosshairs. 'It doesn't deal with everything in terms of data brokers, but it does put women in a much stronger position to protect their rights,' Wyden said of the My Body, My Data Act. 'Reproductive rights are the ultimate privacy priority, because the fundamental right of a woman to control her own body and her own healthcare is as private as it gets.' An earlier version of the bill was introduced in 2023. Given that Republicans control Congress, the bill is not likely to pass. 'I have many Republican colleagues who say they care about data privacy. We work together on data privacy in every other area, but when it comes to anything abortion-related, they refuse to do it,' Jacobs said. 'This is also the third oldest Congress in history, and I'll be honest, many of my colleagues don't understand how period tracking apps or website searches or location data even work.' Jacobs says she uses a period tracker run by a company based in Europe that is subject to the European Union's General Data Protection Regulation, a set of strict regulations that governs how businesses obtain and handle people's online data. While the US has no similar regulations on the federal level, Washington state in 2023 became the first in the country to create a state version of the My Health, My Data Act. That law covers health data that is not otherwise protected by the US Health Information Portability and Accountability Act (Hipaa) – including information about reproductive healthcare services – and requires companies to give their customers more privacy disclosures and seek their authorization before selling their data. It also gives Washington residents the ability to demand those companies delete their personal information. Jacobs advises people to use apps based in states with some degree of protection for reproductive health data. She added: 'If you live in a state that is really criminalizing abortion and going after people, you should be careful about what you put online.'
