Latest news with #PulmonaryFibrosisNI
Yahoo
28-07-2025
- Health
- Yahoo
Fermanagh man remembered in 'colourful' fancy dress walk to honour his memory
Around 53 people climbed Cuilcagh Mountain to honour Tom Donohoe and support Pulmonary Fibrosis NI. The memorial walk, known as the 'Stairway to Heaven,' was held on July 26 to commemorate what would have been Tom's 50th birthday. Tom had been diagnosed with Idiopathic Pulmonary Fibrosis in 2018 at the age of 43. The disease is a life-limiting lung condition that ultimately took his life in September 2024 at age 49. The walk, with its steep boardwalk and stairway, represented the daily struggles faced by those living with pulmonary fibrosis. (Image: Pulmonary Fibrosis NI) Participants were encouraged to dress up in fancy dress for the walk. Characters such as Dolly Parton, Madonna, and even an alien made an appearance, bringing "colour and craic as Tom would have loved." Organisers expressed their gratitude for the support given and highlighted the importance of raising awareness of pulmonary fibrosis, the disease that had such a huge impact on Tom's life. (Image: Pulmonary Fibrosis NI) They said: "In Tom's 49 years on this earth, he left footprints in countless hearts. "It brought us great comfort to walk in his memory, raising awareness for pulmonary fibrosis – the cruel, life-limiting lung disease that stole Tommy from us last September. "We are deeply grateful to everyone who braved the mountain with us, (it was no mean feat) especially those who donned fancy dress to bring colour and craic as Tom would have loved." (Image: Pulmonary Fibrosis NI) Thanks were extended to those who donated and raised funds for Pulmonary Fibrosis NI, an organisation that provides vital support to patients, their carers, and bereaved families. The organisers said: "We are indebted to those who have donated generously and gathered sponsorship to continue the invaluable work of Pulmonary Fibrosis NI, who were a lifeline to Tom and our family during his illness and since his death." Following the walk, participants gathered at JT Ryan's Bar to raise a glass in Tom's memory. (Image: Pulmonary Fibrosis NI) There, they shared stories and listened to his favourite song, "I Love This Bar." The organisers also expressed their gratitude to the friends, family, and neighbours who joined them, as well as those who sent messages of support. They added: "Thank you to friends, family, and neighbours who joined us in JT Ryan's Bar afterwards to raise a glass (or two) in Tom's memory, where we reminisced and listened to his favourite song 'I Love This Bar'. "Thank you to those who sent messages of love and support – every word meant the world." (Image: Pulmonary Fibrosis NI) The organisers' final note of thanks was directed at all who have supported them throughout Tom's pulmonary fibrosis journey and continue to stand by them in their grief. They said: "And finally, thank you to everyone who has walked alongside us on Tom's pulmonary fibrosis journey, and continue to do so through our grief."
Yahoo
27-02-2025
- Health
- Yahoo
Enniskillen retreat provides support for those battling Pulmonary Fibrosis
A new retreat providing respite for individuals and families affected by Pulmonary Fibrosis has officially opened in Enniskillen. Inis Ceithleann Retreat was launched in a heartfelt ceremony, marking a significant milestone for the Pulmonary Fibrosis community in Northern Ireland. Speaking at the opening, Clare Donohoe, Trustee of Pulmonary Fibrosis NI (PFNI), described the moment as both an honour and a deeply personal one. The retreat, she explained, is more than just a building; it is a sanctuary offering relief to those facing the challenges of the disease. 'For me, today is also bittersweet,' she shared, reflecting on her late husband Tom's battle with Idiopathic Pulmonary Fibrosis (IPF). Tom, a devoted husband and father, was diagnosed in 2019 at the age of 43 after initially presenting with a persistent cough. 'Devastation hit home when I researched the disease,' Mrs. Donohoe said, recounting the impact on their young family. Despite the challenges, Tom remained stoic and hopeful, continuing to work while quietly managing his diagnosis. In June 2024, Mrs. Donohoe took voluntary redundancy from her role as a lecturer to care for Tom as he navigated the later stages of the disease while awaiting a transplant at The Freeman Hospital in Newcastle. However, the transplant never came. In August 2024, Tom's condition worsened, and after three weeks in intensive care at the South West Acute Hospital, he passed away on September 1. Despite her grief, his wife emphasised Tom's instrumental role in securing the property for Inis Ceithleann Retreat. A chance conversation with a workman during a drive led to an introduction to the owner, David Wilson, and eventually, the acquisition of the property by PFNI in June 2024. 'Whilst Tom's loss is deeply felt, his legacy lives on in the sanctuary of Inis Ceithleann Retreat, and in the hope and respite it will offer to so many who sadly are on the pulmonary fibrosis journey,' she said. Mrs. Donohoe extended heartfelt thanks to the many supporters, trustees, funders, and friends who made the retreat possible. She also acknowledged Paul Shannon, William Foster, and Sean McCarroll from Balcas for their tribute to Tom—a bespoke bench crafted in his memory. Mr. Foster said: 'This bench is more than just a seat; it's a place for reflection, comfort, and connection. As visitors rest here, may they find solace and draw inspiration from Tommy's life and the love he shared with all who knew him. 'Tommy's absence leaves a void, but his spirit lives on in the laughter we shared and the memories we cherish. Let this bench serve as a lasting tribute to a remarkable man whose impact will be felt for generations to come.' The opening of Inis Ceithleann Retreat represents a beacon of hope for those affected by Pulmonary Fibrosis, ensuring that families have a place of peace, sanctuary, and renewal in their time of need. Tom McMillan, Chair of Pulmonary Fibrosis NI (PFNI), opened the event with a welcome and introduction. Dr. Nadia Chadkuri, a PFNI Trustee, also spoke, followed by patient and trustee Una McMillan. Paddy McNamara, a patient and transplant recipient, shared his experiences and insights as an ambassador for PFNI. Representatives from the community and political parties also attended the opening.
