Latest news with #RobynParry
The Irish Sun
15-07-2025
- Health
- The Irish Sun
Groom-to-be, 36, dies suddenly just days after sending out wedding invitations
A GROOM-to-be died suddenly just days after sending out wedding invitations with his fiancée. Robyn Parry, 36, was due to marry his partner Bryony on August 21 this year and sent out cards to mark the occasion in March. 3 Robyn Parry tragically died just days after he and his wife-to-be sent out wedding invitations Credit: Daily Post Wales 3 Robyn was born with the extremely rare blood condition called Diamond Blackfan anaemia Credit: Daily Post Wales But days later, the nurse became seriously ill and passed away suddenly on March 17. Robyn was born with the extremely rare blood condition called Diamond Blackfan It stops the bone marrow from making enough red blood cells, leading to anaemia and other health issues that affect daily life. The lifelong genetic disorder affects approximately seven in every million newborn babies worldwide. Read more on rare conditions There is no cure for DBA, and treatment - which can help manage symptoms - ranges from monthly blood transfusions to steroid therapy and in some cases a stem cell transplant. The condition requires lifelong care and monitoring, and the risk of serious complications increases around the age of 25. It can be life-threatening due to severe anaemia and its associated complications. Most read in Health Robyn, originally from Valley on Anglesey, spent long periods of his life receiving treatment for the condition at Ysbyty Gwynedd Hospital in Bangor, Wales. Despite grappling with his condition, he dedicated his life to helping others. My baby girl was just 2 weeks from death due to rare disease - before her dad's last-gap action saved her life In 2018, he decided to train to become a nurse. He specialised in haematology and oncology and worked in both Ysbyty Gwynedd and Ysbyty Glan Clwyd over seven years. Groomsman Glyn Owen had thought his frend Ben Brame was calling about the upcoming stag do, when he had news of Robyn's sudden passing. Glyn, 36, a refugee services caseworker for British Red Cross in Cardiff, told 3 A groom-to-be tragically died just days after the couple sent out wedding invitations. Dedicated nurse Robyn Parry was due to marry his partner Bryony, also a nurse, on August 21 this year. Invitations for the big day were sent out to friends and family in March. But within days he had become seriously ill and […] Credit: Daily Post Wales "When Ben called me, I thought it was to discuss the stag do, and it was the same for all of his other friends. "To go from a moment of excitement like that to finding out the news , was crushing." Glyn and Ben expected to be performing wedding duties in the run-up to August. Instead, they're organising a trek of the Anglesey Coastal Path over nine days (130 miles), in memory of Robyn who was "never one to shy away from a challenge and was always up for an adventure". "The timing of the event will coincide with what should have been the happiest week of Robyn's life; his wedding to fiancée, Bryony," the pair wrote in a fundraiser post. "While that special moment can no longer take place, friends and family may still come together to celebrate the memory of Robyn." What is Diamond Blackfan anaemia (DBA)? Diamond Blackfan anaemia (DBA) is a a rare blood condition where your body's bone marrow fails to produce enough red blood cells. Your blood is mostly made up of four things: red blood cells, white blood cells, other cells called platelets and a liquid called plasma, which the blood cells and platelets move in. Bone marrow is the spongy part inside your big bones. It is a bit like a cell-making factory where new blood cells are made. When they are first made by the bone marrow they are called stem cells. These stem cells grow into red blood cells, white blood cells, and platelets. Red blood cells carry oxygen around your body, making them necessary for life. Symptoms range from mild to severe and may include: Fatigue Headache Loss of appetite Rapid heartbeat Shortness of breath Skin paleness Swelling in your hands and feet Weakness Currently there is no cure, but DBA is very treatable with help from hospitals. Many people with DBA are treated with blood transfusions, often monthly. Some DBA patients can respond to a high dose of steroids, often taken every-other day. Sources: The walk will raise money for Glyn said: 'We wanted to do something to honour and commemorate Rob, who was a really incredible person. "In terms of his health, he had quite a difficult life, but he never let it affect him; quite the opposite, he had such an appetite for life and really understood the importance of grabbing it with both hands. "We have so many great memories of adventures, parties, camping, beaches and so on. "I have many memories of him swimming in the sea at various places around the island, swimming far out from the shore; I think he loved the freedom and the exhilaration of it.' Ben and Glyn are inviting as many people as possible to join in whatever way they would like during the nine day event - from walking the stunning Coastal Path with them, to swimming and beach BBQs, or a beer or two at the local pubs along the route. The friends also intend to complete parts of the walk in superhero fancy dress in tribute to Robyn's love of comic books, which he would read during the long periods of treatment in hospital as a child. Ben Brame, 34, a watersports instructor and electrician from Y Felinheli, said: 'Look out for Spiderman and Thor rambling through the streets of Beaumaris or Amlwch in August, and please consider donating.' You can check out the fundraiser and get further information about the event
Wales Online
15-07-2025
- Health
- Wales Online
Groom-to-be, 36, dies just days after wedding invitations were sent out
Groom-to-be, 36, dies just days after wedding invitations were sent out Robyn Parry was due to marry his partner Bryony this August, with invitations for the big day sent out to friends and family in March - but a few days later he became seriously ill Robyn Parry with fiancee Bryony A bridegroom-to-be died tragically died just days after wedding invitations were posted for his wedding. Devoted nurse Robyn Parry was set to wed his partner Bryony, who is also a nurse, on August 21 this year. The invites for their special day were sent out to their loved ones in March, but within days he had fallen critically ill before dying unexpectedly on March 17 this year. He was just 36 years old. The heart-breaking news shattered everyone who knew Robyn. When best man Ben Brame rang groomsman Glyn Owen, Glyn thought it would be about the stag party they were organising. Read the biggest stories in Wales first by signing up to our daily newsletter here Instead, he received the devastating news that Robyn had died, leaving Glyn feeling "crushed". Nurse Robyn Parry, originally from Anglesey During what should have been the week they were preparing for their wedding roles, they will instead trek the complete 130-mile Anglesey Coastal Path across nine days. Article continues below They are fundraising for Diamond Blackfan Anaemia Support Group UK. Robyn was born with Diamond Blackfan Anaemia, an exceptionally rare blood disorder where bone marrow fails to generate sufficient red blood cells. The condition impacts roughly seven in every one million live births. Monthly throughout his lifetime, Robyn, originally from Valley on Anglesey and later living in Penrhyn Bay near Llandudno, would endure extended stays at Ysbyty Gwynedd, Bangor, undergoing treatment for his condition. Robyn's gratitude for the medical care he received was so profound that in 2018, he chose to devote his life to aiding others by training as a nurse. He spent seven years working at Ysbyty Gwynedd and Ysbyty Glan Clwyd, eventually nursing on the haematology and oncology ward. Having been a frequent patient during his youth and later serving as a nurse, numerous hospital staff who had crossed paths with Robyn over the years took to social media to mourn his loss, remembering him as a wonderful individual. Glyn, a 36-year-old refugee services caseworker for the British Red Cross in Cardiff, originally from Bangor, said: "It was so sad when we received the news about Rob, as we had all just received the wedding invitation in the post the same day or a couple of days before. "When Ben called me, I thought it was to discuss the stag-do, and it was the same for all of his other friends. To go from a moment of excitement like that to finding out the news, was crushing. "We wanted to do something to honour and commemorate Rob, who was a really incredible person. In terms of his health, he had quite a difficult life, but he never let it affect him; quite the opposite, he had such an appetite for life and really understood the importance of grabbing it with both hands. "We especially wanted to do the event when the wedding was supposed to take place, as it should have been a moment of celebration for him, his family and his friends. "We want to bring together as many people as we can to celebrate Rob's life so we are inviting anyone who knows him to get involved; whether it's joining us for the whole walk or just for a coffee at a cafe along the way. "We decided to do the walk around Anglesey because of the fantastic times we shared with Rob here, and it's where he's from. We have so many great memories of adventures, parties, camping, beaches and so on. I have many memories of him swimming in the sea at various places around the island, swimming far out from the shore; I think he loved the freedom and the exhilaration of it." The walk will also have special significance as the friends intend to mark 14 years since the death of Robyn's best friend, Lewis Darroch, who lost his life on 24 August 2011 near Porth Trecastell (Cable Bay) on Anglesey, while trying to rescue a drowning friend.. Glyn said: "When Lewis died it obviously had a huge impact on all his friends, but particularly so on Rob, as they were best friends since childhood. "I remember vividly that it was Rob who contacted me to tell me the news about Lewis, and then to receive the news about Rob out of the blue like that too, was devastating. "So it's fitting that 14 years nearly to the day, our route will bring us to the place where someone who Robyn loved so dearly died while performing a heroic act of friendship." Ben and Glyn are encouraging as many individuals as possible to participate in any way they can during the nine-day event. Options include joining them for walks along the scenic Coastal Path, enjoying swims and BBQs on picturesque beaches, or sharing a pint or two at local pubs en route. The duo also plans to don superhero costumes for parts of the walk, honouring Robyn's passion for comic books, which he often read during lengthy hospital stays in his youth. Article continues below Those interested in participating in the event or making a donation can reach out or contribute through their JustGiving page here.
