Groom-to-be, 36, dies suddenly just days after sending out wedding invitations
Robyn Parry, 36, was due to marry his partner Bryony on August 21 this year and sent out cards to mark the occasion in March.
3
Robyn Parry tragically died just days after he and his wife-to-be sent out wedding invitations
Credit: Daily Post Wales
3
Robyn was born with the extremely rare blood condition called Diamond Blackfan anaemia
Credit: Daily Post Wales
But days later, the nurse became seriously ill and passed away suddenly on March 17.
Robyn was born with the extremely rare blood condition called Diamond Blackfan
It stops the bone marrow from making enough red blood cells, leading to anaemia and other health issues that affect daily life.
The lifelong genetic disorder affects approximately seven in every million newborn babies worldwide.
Read more on rare conditions
There is no cure for DBA, and treatment - which can help manage symptoms - ranges from monthly blood transfusions to steroid therapy and in some cases a stem cell transplant.
The condition requires lifelong care and monitoring, and the risk of serious complications increases around the age of 25.
It can be life-threatening due to severe anaemia and its associated complications.
Most read in Health
Robyn, originally from Valley on Anglesey, spent long periods of his life receiving treatment for the condition at Ysbyty Gwynedd Hospital in Bangor, Wales.
Despite grappling with his condition, he dedicated his life to helping others.
My baby girl was just 2 weeks from death due to rare disease - before her dad's last-gap action saved her life
In 2018, he decided to train to become a nurse.
He specialised in haematology and oncology and worked in both Ysbyty Gwynedd and Ysbyty Glan Clwyd over seven years.
Groomsman Glyn Owen had thought his frend Ben Brame was calling about the upcoming stag do, when he had news of Robyn's sudden passing.
Glyn, 36, a refugee services caseworker for British Red Cross in Cardiff, told
3
A groom-to-be tragically died just days after the couple sent out wedding invitations. Dedicated nurse Robyn Parry was due to marry his partner Bryony, also a nurse, on August 21 this year. Invitations for the big day were sent out to friends and family in March. But within days he had become seriously ill and […]
Credit: Daily Post Wales
"When Ben called me, I thought it was to discuss the stag do, and it was the same for all of his other friends.
"To go from a moment of excitement like that to finding out the
news
, was crushing."
Glyn and Ben expected to be performing wedding duties in the run-up to August.
Instead, they're organising a trek of the Anglesey Coastal Path over nine days (130 miles), in memory of Robyn who was "never one to shy away from a challenge and was always up for an adventure".
"The timing of the event will coincide with what should have been the happiest week of Robyn's life; his wedding to fiancée, Bryony," the pair wrote in a fundraiser post.
"While that special moment can no longer take place, friends and family may still come together to celebrate the memory of Robyn."
What is Diamond Blackfan anaemia (DBA)?
Diamond Blackfan anaemia (DBA) is a a rare blood condition where your body's bone marrow fails to produce enough red blood cells.
Your blood is mostly made up of four things: red blood cells, white blood cells, other cells called platelets and a liquid called plasma, which the blood cells and platelets move in.
Bone marrow is the spongy part inside your big bones. It is a bit like a cell-making factory where new blood cells are made. When they are first made by the bone marrow they are called stem cells.
These stem cells grow into red blood cells, white blood cells, and platelets. Red blood cells carry oxygen around your body, making them necessary for life.
Symptoms range from mild to severe and may include:
Fatigue
Headache
Loss of appetite
Rapid heartbeat
Shortness of breath
Skin paleness
Swelling in your hands and feet
Weakness
Currently there is no cure, but DBA is very treatable with help from hospitals.
Many people with DBA are treated with blood transfusions, often monthly.
Some DBA patients can respond to a high dose of steroids, often taken every-other day.
Sources:
The walk will raise money for
Glyn said: 'We wanted to do something to honour and commemorate Rob, who was a really incredible person.
"In terms of his health, he had quite a difficult life, but he never let it affect him; quite the opposite, he had such an appetite for life and really understood the importance of grabbing it with both hands.
"We have so many great memories of adventures, parties, camping, beaches and so on.
"I have many memories of him swimming in the sea at various places around the island, swimming far out from the shore; I think he loved the freedom and the exhilaration of it.'
Ben and Glyn are inviting as many people as possible to join in whatever way they would like during the nine day event - from walking the stunning Coastal Path with them, to swimming and beach BBQs, or a beer or two at the local pubs along the route.
The friends also intend to complete parts of the walk in superhero fancy dress in tribute to Robyn's love of comic books, which he would read during the long periods of treatment in hospital as a child.
Ben Brame, 34, a watersports instructor and electrician from Y Felinheli, said: 'Look out for Spiderman and Thor rambling through the streets of Beaumaris or Amlwch in August, and please consider donating.'
You can check out the fundraiser and get further information about the event
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The Irish Sun
15-07-2025
- The Irish Sun
Groom-to-be, 36, dies suddenly just days after sending out wedding invitations
A GROOM-to-be died suddenly just days after sending out wedding invitations with his fiancée. Robyn Parry, 36, was due to marry his partner Bryony on August 21 this year and sent out cards to mark the occasion in March. 3 Robyn Parry tragically died just days after he and his wife-to-be sent out wedding invitations Credit: Daily Post Wales 3 Robyn was born with the extremely rare blood condition called Diamond Blackfan anaemia Credit: Daily Post Wales But days later, the nurse became seriously ill and passed away suddenly on March 17. Robyn was born with the extremely rare blood condition called Diamond Blackfan It stops the bone marrow from making enough red blood cells, leading to anaemia and other health issues that affect daily life. The lifelong genetic disorder affects approximately seven in every million newborn babies worldwide. Read more on rare conditions There is no cure for DBA, and treatment - which can help manage symptoms - ranges from monthly blood transfusions to steroid therapy and in some cases a stem cell transplant. The condition requires lifelong care and monitoring, and the risk of serious complications increases around the age of 25. It can be life-threatening due to severe anaemia and its associated complications. Most read in Health Robyn, originally from Valley on Anglesey, spent long periods of his life receiving treatment for the condition at Ysbyty Gwynedd Hospital in Bangor, Wales. Despite grappling with his condition, he dedicated his life to helping others. My baby girl was just 2 weeks from death due to rare disease - before her dad's last-gap action saved her life In 2018, he decided to train to become a nurse. He specialised in haematology and oncology and worked in both Ysbyty Gwynedd and Ysbyty Glan Clwyd over seven years. Groomsman Glyn Owen had thought his frend Ben Brame was calling about the upcoming stag do, when he had news of Robyn's sudden passing. Glyn, 36, a refugee services caseworker for British Red Cross in Cardiff, told 3 A groom-to-be tragically died just days after the couple sent out wedding invitations. Dedicated nurse Robyn Parry was due to marry his partner Bryony, also a nurse, on August 21 this year. Invitations for the big day were sent out to friends and family in March. But within days he had become seriously ill and […] Credit: Daily Post Wales "When Ben called me, I thought it was to discuss the stag do, and it was the same for all of his other friends. "To go from a moment of excitement like that to finding out the news , was crushing." Glyn and Ben expected to be performing wedding duties in the run-up to August. Instead, they're organising a trek of the Anglesey Coastal Path over nine days (130 miles), in memory of Robyn who was "never one to shy away from a challenge and was always up for an adventure". "The timing of the event will coincide with what should have been the happiest week of Robyn's life; his wedding to fiancée, Bryony," the pair wrote in a fundraiser post. "While that special moment can no longer take place, friends and family may still come together to celebrate the memory of Robyn." What is Diamond Blackfan anaemia (DBA)? Diamond Blackfan anaemia (DBA) is a a rare blood condition where your body's bone marrow fails to produce enough red blood cells. Your blood is mostly made up of four things: red blood cells, white blood cells, other cells called platelets and a liquid called plasma, which the blood cells and platelets move in. Bone marrow is the spongy part inside your big bones. It is a bit like a cell-making factory where new blood cells are made. When they are first made by the bone marrow they are called stem cells. These stem cells grow into red blood cells, white blood cells, and platelets. Red blood cells carry oxygen around your body, making them necessary for life. Symptoms range from mild to severe and may include: Fatigue Headache Loss of appetite Rapid heartbeat Shortness of breath Skin paleness Swelling in your hands and feet Weakness Currently there is no cure, but DBA is very treatable with help from hospitals. Many people with DBA are treated with blood transfusions, often monthly. Some DBA patients can respond to a high dose of steroids, often taken every-other day. Sources: The walk will raise money for Glyn said: 'We wanted to do something to honour and commemorate Rob, who was a really incredible person. "In terms of his health, he had quite a difficult life, but he never let it affect him; quite the opposite, he had such an appetite for life and really understood the importance of grabbing it with both hands. "We have so many great memories of adventures, parties, camping, beaches and so on. "I have many memories of him swimming in the sea at various places around the island, swimming far out from the shore; I think he loved the freedom and the exhilaration of it.' Ben and Glyn are inviting as many people as possible to join in whatever way they would like during the nine day event - from walking the stunning Coastal Path with them, to swimming and beach BBQs, or a beer or two at the local pubs along the route. The friends also intend to complete parts of the walk in superhero fancy dress in tribute to Robyn's love of comic books, which he would read during the long periods of treatment in hospital as a child. Ben Brame, 34, a watersports instructor and electrician from Y Felinheli, said: 'Look out for Spiderman and Thor rambling through the streets of Beaumaris or Amlwch in August, and please consider donating.' You can check out the fundraiser and get further information about the event
The Irish Sun
18-06-2025
- The Irish Sun
Tragic last video of mum dancing with family just 2 weeks before she died after getting rabies from stray dog on holiday
A TRAGIC last video of a mum who died from rabies after stroking a stray dog shows her happily dancing. 7 Yvonne Ford is seen dancing in the clip Credit: Facebook 7 It was shot two weeks before she died this week Credit: Facebook 7 Yvonne contracted rabies while in Morocco in February Credit: Love Island She had been suffered a mild scratch from a puppy while on holiday in Morocco in February and unknowingly contracted the potentially fatal disease. A video filmed earlier this month, shows her happily dancing with two children as music blasts out from speakers at what appears to be an outdoor family-friendly rave. Yvonne's daughter Robyn Thomson said in a Facebook post yesterday: "Two weeks ago she became ill, starting with a headache and resulted in her losing her ability to walk, talk, sleep, swallow. Resulting in her passing." Her death has led to an urgent warning from the UK Health and Security Agency today. READ MORE NEWS Robyn also said: "She was scratched very slightly by a puppy in Morocco in February. "At the time, she did not think any harm would come of it and didn't think much of it." On Sunday, Robyn shared a clip of Yvonne dancing with two children, writing "just under two weeks before we lost mum". In a tribute, she said: Most read in The Sun "Our family is still processing this unimaginable loss, but we are choosing to speak up in the hope of preventing this from happening to others." In another post, she referred to her mum by the nickname "Bon" and said: "She was the heart of our family—strong, loving, and endlessly supportive. "No words can fully capture the depth of our loss or the impact she had on all of us. "We are heartbroken, but also grateful for every moment we had with her." FACTFILE - Rabies was eradicated from the UK in 1902 - It followed the first vaccine for rabies which was introduced in 1885 - Over 29 million people worldwide now receive a rabies vaccine annually - Dogs are responsible for 99 per cent of cases - Rabies still kills 59,000 people a year, almost entirely in developing countries - Victims can harbour the disease for months without showing any symptoms. - In 2004, US teenager Jeanna Giese became the first person in the world to survive rabies without receiving the vaccine - There has never been a recorded case of human-to-human transmission - Symptoms include anxiety, headaches and fever, before difficulty swallowing and respiratory failure It comes after the UK Health and Security Agency (UKHSA) confirmed a Brit had died, and said her close contacts "are being assessed and offered vaccination when necessary". A statement added: "Rabies is passed on through injuries such as bites and scratches from an infected animal. "It is nearly always fatal, but post-exposure treatment is very effective at preventing disease if given promptly after exposure to the virus." Dr Katherine Russell, Head of Emerging Infections and Zoonoses at UKHSA, said: "I would like to extend my condolences to this individual's family at this time. "If you are bitten, scratched or licked by an animal in a country where rabies is found then you should wash the wound or site of exposure with plenty of soap and water and seek medical advice without delay in order to get post-exposure treatment to prevent rabies. "There is no risk to the wider public in relation to this case. "Human cases of rabies are extremely rare in the UK, and worldwide there are no documented instances of direct human-to-human transmission." What rabies does to the body and how it's treated The infection is common worldwide but is predominantly found in Some of the animals that are most likely to spread the disease are dogs, bats, foxes, skunks and raccoons. Symptoms After a bite or other rabies exposure, the virus can take weeks or months to start causing symptoms. This timeframe is what doctors call the incubation period in which the virus is travelling through the body and to the brain. Some of the most common symptoms of rabies include: Fever Headache Excess salivation Muscle spasms paralysis mental confusion The World Health Organization People or animals with furious rabies may appear agitated, become aggressive, and drool excessively, while other symptoms include hyperactivity, fear of water, and even fear of fresh air. The symptoms of paralytic rabies, on the other hand, are more understated—typically causing gradual paralysis as a patient remains calm and lucid. Treatment If you've been bitten or scratched by an animal in an area with a risk of rabies you should immediately clean the wound with running water and soap for several minutes. After this, you must disinfect the wound with an alcohol- or iodine-based disinfectant and apply a simple dressing. After the wound is addressed, you should see a doctor as soon as possible and they will determine if you need a rabies vaccination or not. Post-exposure treatment is nearly 100 per cent effective if it's started before any symptoms of rabies appear. Some cases will require immunoglobulin, which is administered into and around the wound. This provides short-term protection if there is a significant chance of infection in the wound. Treatment should ideally begin within a few hours of being bitten, but can be delayed up to 24 hours if needed. 7 Her death has led to an urgent warning from the UK Health and Security Agency today Credit: Facebook 7 Yvonne was scratched by a puppy before contracting rabies Credit: Facebook 7 Yvonne died after catching rabies in Morocco Credit: Facebook 7 Yvonne with husband Ron Credit: Facebook
Irish Daily Mirror
18-06-2025
- Irish Daily Mirror
First picture of mum who died of rabies after puppy scratch on holiday
A mum tragically succumbed to rabies after a minor scratch from a puppy in Morocco, with her family now sharing their heartbreak and issuing a stark warning. Yvonne Ford was diagnosed with the deadly disease upon her return to Yorkshire and The Humber, having initially experienced mild symptoms that rapidly escalated, leaving her unable to walk, talk, or swallow. In an emotional Facebook post, her grieving relatives shared: "Our family is still processing this unimaginable loss, but we are choosing to speak up in the hope of preventing this from happening to others. Yvonne Ford, Ron Ford's wife and our Mum, died of rabies. "She was scratched very slightly by a puppy in Morocco in February. At the time, she did not think any harm would come of it and didn't think much of it. Two weeks ago she became ill, starting with a headache and resulted in her losing her ability to walk, talk, sleep, swallow. Resulting in her passing." Authorities are now cautioning travellers about the dangers of interacting with animals in countries affected by rabies, highlighting the near-certain fatality of the disease if contracted. Rabies is transmitted through injuries like bites and scratches from an infected animal, and while post-exposure treatment is highly effective in preventing the illness, it must be administered immediately after exposure to the virus. Rabies is nearly always fatal after symptoms develop, which can include anxiety, headaches, fever, hallucinations, and respiratory failure. The incubation period for rabies can range from three to 12 weeks, with variations depending on where the infection started, reports the Mirror. Robyn, Yvonne's daughter, took to Facebook to announce her mum's death and to issue a stark warning about the dangers of rabies, highlighting that it's invariably fatal once symptoms manifest and can be transmitted through even minor scratches or bites. In her post, Robyn included a section titled 'What You Should Know About Rabies', where she stated: "We never thought something like this could happen to someone we love. Please take animal bites seriously, vaccinate your pets, and educate those around you." Dr Katherine Russell, Head of Emerging Infections and Zoonoses at the UKHSA, stated: "I would like to extend my condolences to this individual's family at this time. "If an animal from a country where rabies is prevalent bites, scratches, or licks you, wash the wound or affected area thoroughly with soap and water, and promptly seek medical advice for post-exposure treatment to prevent rabies. "There is no risk to the wider public in relation to this case. Human cases of rabies are extremely rare in the UK, and worldwide there are no documented instances of direct human-to-human transmission."
