Girl, 8, with rare illness gets Disneyland trip of lifetime

Western Telegraph

07-08-2025

Belle's Story was set up in memory of Wolfscastle's Belle Curran, who lost her battle with interstitial lung disease at only ten years old.
During her lifetime Belle, along with her family friends and supporters, raised tens of thousands of pounds for the charities that helped her, as well as increasing awareness of organ donation.
(Image: Belle's Story) Belle's Story has continued that work. It also helps make a difference to young people touched by life-changing illness and disabilities, by providing direct support to them and their families.
One of the families they have supported is that of eight year-old Tiara Davies who has Margan syndrome, a serious heart condition and scoliosis of the spine.
With the help of the people of Pembrokeshire Belle's Story raised enough money to send Tiara and her family on the holiday of her dreams to Disneyland Paris this summer.
'Our family was blessed with the opportunity to visit Disneyland Paris, a dream we never thought possible,' said Tiara's family.
(Image: Belle's Story) 'For us this trip wasn't just a holiday. It was a moment of pure joy laughter and wonder, a chance to escape hospitals, treatments and difficult days.
'To see her eyes light up with excitement, to hear her laughter and to watch her meet her favourite characters was more than we could ever hope for. It's a memory we will treasure for the rest of our lives.
'This experience gave us a chance to simply be a family,' Tiara's mum told Belle's Story. 'You gave us more than just a wish, you gave us hope, happiness and a moment of peace in a very uncertain journey.'
Belle's Story holds fundraising events throughout the year including coffee mornings, bingo, dog shows and craft fayres to support the charity's work.
The charity also receives donations from fundraisers that various schools and associations have held on its behalf.
(Image: Belle's Story) In this case pupils from Cosheston VC School held a four event pancakeathon after the charity gave the school the My Engine Parts book which helps approach what can be the sensitive subject of organ donation with young children.
The pupils raised £530 which they presented to Belle's mum Stella and volunteer Sarah who said that it would go towards the Disneyland Paris trip.
'Pembrokeshire people support us so much and I'm so grateful,' said Stella.
The next Belle's Story fundraise will be an afternoon tea with fizz at Letterston Memorial Hall on Sunday, August 10.
The homemade afternoon tea will run from 2.30pm to 5.30pm and is a chance to put on a posh frock for an afternoon of fun and fundraising.
There will be a glass of fizz on arrival as well as a cash bar, raffle and entertainment.
Tickets cost £18 and are available by messaging 07811 398612.