
Judi Dench: Government must give people with dementia earlier diagnosis
Almost a million people in the UK are living with dementia, but about one in three do not have a diagnosis.
According to Alzheimer's Research UK, people in some parts of England can wait up to a year for a diagnosis after being referred, while those in the most deprived areas face longer delays.
Dame Judi said: 'Dementia doesn't just take away memories – it can take away identity, connection, and the future you thought you had.
'Watching loved ones slip away, and not knowing why, is an experience no one should have to go through without answers.
'Many people across the UK are still waiting far too long for a dementia diagnosis – or never receive one at all.
'That means they miss out on vital support, on the chance to plan ahead, opportunities to get involved in research, and on precious time.
'A diagnosis may not fix everything, but it gives people understanding, clarity, and some control at a time when everything feels uncertain. It allows families to make the most of the moments they have left.
'That's why I've signed Alzheimer's Research UK's petition – and why I'm asking the public to do the same.
'Together, we can call on government to fix the crumbling diagnosis system and make sure no one faces dementia unseen.'
The new Alzheimer's Research UK campaign, Dementia Unseen, comes after the NHS target to ensure 66.7% of people with dementia receive a diagnosis was removed from NHS planning guidance for 2025-26.
Two breakthrough Alzheimer's drugs: lecanemab and donanemab, were rejected for use on the NHS last week.
Alzheimer's Research UK is calling for people with suspected dementia to be referred by their GP to see a specialist within six weeks – and to have a diagnosis and treatment plan in place within 18 weeks.
Hilary Evans-Newton, chief executive of Alzheimer's Research UK, said: 'Everyone who has dementia should have the right to know the disease or diseases causing it, and to be diagnosed early enough to get treatments that help with its symptoms.
'But hundreds of thousands of people are waiting too long for a diagnosis, causing uncertainty, and adding distress to an already challenging situation.
'We're incredibly grateful to Dame Judi for helping shine a light on what people with dementia need – and to everyone who has already signed our petition and stands with us.
'More people are seeking answers, so it's vital that the NHS and government act now to fix the system – because no one should face dementia alone or unseen.'
The petition is at https://alzres.uk/unseen
Professor Fiona Carragher, chief policy officer at Alzheimer's Society, said: 'Everyone living with dementia deserves the clarity and dignity of an early and accurate diagnosis. Yet, more than a third of people living with this terminal condition are in the dark because they haven't been diagnosed, with many left to struggle alone without the care, support and treatment a diagnosis can bring.
'In fact, on average people experience dementia symptoms for three and a half years before they receive a diagnosis.
'For some time, we've been calling on the UK Government to urgently address dementia diagnosis and we welcome the recommendations in this new report.
'In particular, we support the call for health services to have the right teams and technology they need to diagnose more people, and for more data on diagnosis so that resources can be targeted where they're needed most.
'The science for dementia treatments is flying but the diagnosis system is failing. It is crucial governments invest in diagnosis across England, Wales and Northern Ireland so people can access the existing treatments of today, plan for the future, and be eligible for the life-changing treatments of tomorrow.
'If our governments set bold and ambitious new dementia diagnosis rate targets to get more people diagnosed, this would bring significant benefits for individuals, their families, and for health and care services.'
Hashtags

Try Our AI Features
Explore what Daily8 AI can do for you:
Comments
No comments yet...
Related Articles


Daily Mirror
an hour ago
- Daily Mirror
Six Oropouche symptoms easily mistaken for flu after deadly virus first found in UK
UKHSA confirms first UK cases of Oropouche virus in travellers from Brazil. With flu-like symptoms, experts warn holidaymakers to know the signs and take precautions British travellers are being urged to stay vigilant after the UK recorded its first-ever cases of Oropouche virus (OROV), a mosquito and midge-borne infection that can easily be mistaken for the flu. According to the latest UK Health Security Agency (UKHSA) report, three cases of Oropouche were identified in travellers returning from Brazil between January and June 2025. While relatively rare, the virus has been spreading across parts of South and Central America and the Caribbean, with Brazil reporting the largest outbreaks. The infection typically causes high fever, chills, headache, joint pain, and muscle aches - symptoms that closely resemble common viral illnesses, making it easy to misdiagnose. It comes after the NHS warns mouth symptom could be life-shortening disease. READ MORE: Urgent warning issued as dogs and foxes die after eating 'poison' in Devon park Dr Philip Veal, Consultant in Public Health at UKHSA, stressed the importance of taking travel precautions. 'If a person becomes unwell with these symptoms following travel to affected areas, they should seek urgent medical advice,' he said. Pregnant travellers, in particular, are advised to be cautious due to recent concerns about Oropouche virus infection during pregnancy. Symptoms Fever or chills Severe headache Muscle aches or joint pain Nausea or vomiting Rash Diarrhoea Get health warnings straight to your WhatsApp! As the world grapples with the threats of Covid-19, mpox and more, the Mirror has launched its very own Health & Wellbeing WhatsApp community where you'll get health warnings and news straight to your phone. We'll send you the latest breaking updates and exclusives all directly to your phone. Users must download or already have WhatsApp on their phones to join in. All you have to do to join is click on this link, select 'Join Chat' and you're in! We may also send you stories from other titles across the Reach group. We will also treat our community members to special offers, promotions, and adverts from us and our partners. If you don't like our community, you can check out any time you like. To leave our community click on the name at the top of your screen and choose Exit group. If you're curious, you can read our Privacy Notice. The rise in Oropouche cases comes alongside other travel-related infections that UKHSA has been tracking. Chikungunya - a mosquito-borne virus causing sudden fever and debilitating joint pain - has seen a sharp increase, with 73 cases reported in England in the first half of 2025. Most affected travellers had returned from Sri Lanka, India, and Mauritius, where outbreaks continue. Although the UK's climate prevents local mosquitoes from transmitting the disease, severe symptoms can linger for months, particularly joint pain, which affects up to 12 percent of patients even three years after infection. For those planning trips to higher-risk regions, two chikungunya vaccines are now available in the UK: IXCHIQ® for adults aged 18 to 59 and Vimkunya® for individuals 12 and older. UKHSA recommended consulting a travel clinic to discuss suitability before travelling. The Travel-associated Infections report also highlights a worrying increase in cholera cases, rising from one case in 2024 to eight in the first half of 2025, largely linked to travel to India and Ethiopia. Dengue and Zika virus cases, by contrast, have fallen, with 161 dengue cases and just four Zika cases reported across England, Wales, and Northern Ireland during the same period. Meningococcal serogroup W (MenW) disease has also been noted among UK travellers, particularly those visiting Saudi Arabia for Umrah and Hajj. The potentially deadly infection can leave survivors with severe lifelong health complications, and vaccination with MenACWY is strongly advised for pilgrims and their close contacts. UKHSA recommends that travellers consult the Travel Health Pro website at least four to six weeks before departure. The site provides comprehensive advice on health risks worldwide, helping travellers take preventive measures such as vaccinations, mosquito bite avoidance, and timely medical guidance if symptoms appear.


BBC News
3 hours ago
- BBC News
CPR theory test changes 'mean so much' to dad after daughter's death
A dad has said it became his "mission" to increase awareness about CPR and how to use a defibrillator after his daughter's Len Noakes, chair of NHS group Save a Life Cymru, has spearheaded the push for changes to be made to driving theory tests which will result in a new set of first aid questions being added early next daughter Claire Noakes tragically died at the age of 25 from complications following a cardiac arrest in Noakes said he was left in tears after the theory test changes, hailing it as a "significant step" towards increasing survival rates from out-of-hospital cardiac arrests in Wales, which are currently less than 5%. Speaking previously to NHS Wales, Prof Noakes said he received a phone from his daughter's friend saying she had collapsed."By the time we got there, which is only five minutes away, the paramedics were there already working on Claire," he Noakes told Radio Wales Drive he remembered asking if his daughter was breathing when he received the phone person said she was breathing but "it was funny", the medical director at Cardiff City FC said she was showing signs of agonal breathing, or sudden, irregular gasps of breath, which is closely associated with a cardiac arrest. "But you wouldn't expect someone who isn't aware of cardiac arrests to know that."Prof Noakes said he hoped young drivers having the knowledge and ability to identify a cardiac arrest will help people in similar situations."They can get on and dial 999. They will tell you how to start CPR and where the nearest defibrillator is," he Noakes' daughter spent the next nine months unresponsive before she died."You can't stop this happening. But you can do your best to make sure other families don't have to go through this," he said. Prof Noakes said he looked to other European countries for inspiration when he was appointed as the chair of Save a Life Cymru, which was established in 2019 by the Welsh government to make sure people know what to do if an out of hospital cardiac arrest said: "Some have the CPR in the driving test. Combining this with education has led to a significant rise in the survival rate."Prof Noakes described Wales' survival rate as "shocking" but said he hoped these changes will increase the said it "meant so much" to know that questions are being added to the driving theory test early next since they are aimed at new drivers, what advice does he have for people who have already passed their theory test?"Go online. There are a number of online tutorials you can look at," he said."If you want to physically learn how to do it there are a number of organisations offering training such as the St John's Ambulance service."We can all give it our best shot to help someone having a cardiac arrest."

Rhyl Journal
7 hours ago
- Rhyl Journal
‘Contradiction' in figures makes health experts question NHS data
Experts suggest that more patients are being referred for treatment than leaving the waiting list, despite the overall waiting list coming down. Analysis found that in May, for every 100 referrals for pre-planned care, only 86 patient 'pathways' were complete – a scenario that would expect to see the waiting list getting bigger. But the official figures for May, published last month, show that the waiting list for routine hospital treatment in England had dropped to its lowest level for more than two years. 'There appears to be a contradiction in the data,' analysts from the Nuffield Trust think tank said. Writing a piece for part of the Quality Watch programme, the experts claim that an increase in NHS activity alone has not been enough to cause the reduction in the waiting list. Their new report examines so-called 'unreported removals', which occur when someone is taken off the waiting list for a reason other than that person having received their treatment that month. The report says that over the last two financial years there has been an average of 244,500 unreported removals a month. Though the waiting list has started to go down, unreported removals have gone up, they add. Officials from the Department and Health and Social Care insist that over the last 12 months, the number and percentage of unreported removals are lower than 2019. The new report points out that some of these unreported removals will represent patients that did get treatment but it was not recorded properly at the time. Another issue could be problems with NHS software and data management processes. The authors of the review wrote: 'Improving the data quality of waiting lists is important to ensure that people who should not be on the list, like people who have been treated privately or left the country, are no longer counted among those waiting to be seen. 'However, accusations of gaming the validation process, by removing referrals from the waiting list inappropriately without treatment, are likely to persist in the absence of transparency about what actions the unreported removals materially represent. 'The NHS is delivering more planned care, but still not enough to keep up with demand. 'The planned care that is reported is not enough to explain the reduction in the elective waiting list, and the publicly available data provides little more insight.' Officials estimate that 85% of the reduction in the waiting list is because of increased NHS 'activity' and suggest that 15% is because of unreported removals. According to the latest NHS figures, an estimated 7.36 million treatments were waiting to be carried out at the end of May, relating to just under 6.23 million patients, down from 7.39 million treatments and just over 6.23 million patients at the end of April. These are the lowest totals since March 2023 for treatments and April 2023 for patients. The list hit a record high in September 2023, with 7.77 million treatments and 6.50 million patients. The size of the list had been on an upward trend for much of the last 10 years, passing three million treatments in 2014, four million in 2017, five million in 2021 and seven million in 2022. In February 2020, the last full month before the start of the Covid-19 pandemic, the list stood at 4.57 million treatments. The authors of the latest review add: 'The information available in the public domain is insufficient for independent scrutiny of the elective waiting list, and consequently for holding government to account. 'Removals from the waiting list should be described in publicly available data in a meaningful way; the current process is unduly obscure. 'Until more transparent reporting is provided, accountability around unreported removals remains impossible and the planned care waiting list will continue to be a misleading indicator of how the NHS is dealing with demand.' It comes as the NHS in England is to reveal its latest waiting list figures on Thursday. Commenting on the analysis, an NHS England spokesperson said: 'NHS staff have made significant progress in reducing waiting lists in the last year – down by more than 260,000 since June 2024 – and this is driven by the fact that 2,300 more patients are receiving treatment every day compared to last year.' 'While the validation process has a small impact on the overall waiting list – as is made crystal clear in our published monthly waiting list data – it's right we regularly clinically review those waiting so hospitals can prioritise patients more accurately and deploy their resources efficiently.' A Department of Health and Social Care spokesperson added: 'Our drive to clear the huge waiting list backlog we inherited includes making sure all patients are getting the right treatment as quickly as possible. 'That's why we are supporting GPs to seek specialist advice before making referrals, and screening existing waiting lists to check that all patients need to be on there – freeing up capacity to get more people seen more quickly. 'This is one element of our wider work to cut waiting times for patients and improve productivity through our Plan for Change, through which we have already delivered over four million extra appointments and cut the waiting list by 260,000.'