Horror as Top Chef star reveals daughter, 8, has rare disease that is 'disintegrating' her bones
Hosea Rosenberg's daughter Sophia, eight, is battling a rare disease.
On Thursday Rosenberg discussed how his child has Multicentric Carpotarsal Osteolysis (MCTO). It is a genetic disorder characterized by progressive bone loss, primarily affecting the carpal (wrist) and tarsal (ankle) bones.
It's often misdiagnosed as juvenile rheumatoid arthritis due to similar initial symptoms like joint pain and swelling.
Sophia could be seen pictured in a hospital bed drawing as well as playing with her two pug dogs. Other photos showed her on a beach with a friend.
'"How is your daughter Sophie doing?" This is a question I am asked constantly. The answer is complicated. As with many things in life, it all depends on perspective,' Rosenberg - who was a winner of season five of Top Chef - began his update.
'Compared to normal, healthy 8-year old kids, she's not good. Her feet haven't grown in years (toddler size), her hands are starting to show disfigurement and they are very weak,' he continued.
And Sophia can't do things that normal kids can do.
'She has trouble with stairs, can't ride a bike, and needs help opening things. She gets tired and can't walk long distances. Her kidneys are slowly failing. She's missing groups of bones entirely.'
Sophia loves school, dance and laughing, is was added.
'Today, as she does every 6 weeks, she got an infusion at Children's Hospital Colorado. Twice every day, she has to take multiple medications,' Rosenberg continued.
'She wears splints on her legs and arms when she sleeps.'
'She wears braces on her legs every single day. She sees different therapists every week.
'She is constantly in and out of doctor's offices and hospitals. Her bones are slowly disintegrating and we haven't figured out how to stop it.'
But the proud dad said all he knows is that his daughter is doing her best and she has all the love and support possible.
'So how is Sophie doing? She's amazing,' Rosenberg concluded his caption.
Rosenberg is the owner and executive chef of restaurants in Boulder.
His menus highlight local, seasonal ingredients with an emphasis on sustainable sourcing.
Hosea's culinary path began while earning a degree in Engineering Physics at the University of Colorado.
In April 2020, Rosenberg revealed to his fans that his then-3-year-old daughter had been diagnosed with MCTO.
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