Bruce Willis' wife shares how he continued acting after dementia diagnosis
Bruce Willis' family have rallied around him since the Die Hard actor was diagnosed with frontotemporal dementia in February 2023, and his wife has now opened up about his work
Bruce Willis' wife, Emma Heming Willis, is shedding light on how the Hollywood icon managed to continue working on set even after his health started deteriorating because of frontotemporal dementia (FTD). In her upcoming book The Unexpected Journey, which is set to be released on September 9, 2025, Emma shares intimate details about the measures that were taken to keep Bruce in front of the camera while his cognitive abilities declined.
According to reports, some of the tactics directors used included shortening his dialogue and feeding him lines via an earpiece, which was discreetly operated by a close friend on set.
These behind-the-scenes accommodations allowed the Die Hard legend to complete roles in films like Assassin (2023) and the Detective Knight trilogy (2022–2023), even though he was being increasingly impacted by FTD, which is a degenerative disease that affects cognition and speech
Willis's diagnosis was first made public in 2022 when his family announced he was suffering from a language disorder called aphasia. In February 2023, they confirmed the condition had progressed into FTD. Since then, Bruce has stepped away from acting.
Emma told fans on Instagram that she wrote her book to help other families facing similar situations. She shared: "I really wrote the book that I wish someone had handed me the day we got our diagnosis with no hope, no direction … not much. Today life looks different for me and our family because I was able to put support into place.
"This isn't a memoir, it's a self-help guide for caregivers, written to hold space for our heartbreak and our healing." During Bruce's final years of working, directors began to alter his roles so that he would be able to make it through shooting.
In a 2020 email, Out of Death director Mike Burns asked writers to "abbreviate his [Willis'] dialogue so that there are no monologues".
The actor's shooting schedules were also adjusted so that his workdays were limited to four hours when possible, and he did not film for more than two consecutive days.
On set, crew members noticed that Bruce seemed confused and often struggled to remember lines or his purpose in a scene. They were particularly troubled by one moment during White Elephant, when he reportedly asked, "I know why you're here, and I know why you're here, but why am I here?"
Despite the challenges, some collaborators still held high opinions of his work. Paradise City director Chuck Russell praised Bruce's efforts, saying he "brought his A-game". But others, like White Elephant production supervisor Terri Martin, said, "He just looked so lost… He always tried his best."
Emma has reflected on the early days of Bruce's condition developing, sharing: "As his language started changing, it [seemed like it] was just a part of a stutter, it was just Bruce. Never in a million years would I think it would be a form of dementia for someone so young."
Bruce's children have opened up about the emotional effect his diagnosis had on them, with his daughter Tallulah in particular admitting the seriousness of his situation hit home to her when she imagined her wedding day and realised her father would no longer be able to deliver a speech.
"It was devastating," she sighed. "I left the dinner table, stepped outside, and wept in the bushes." Despite that heart breaking realisation, Tallulah added: "There's painful days, but there's so much love."
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Bruce Willis' wife shares how he continued acting after dementia diagnosis
Bruce Willis' family have rallied around him since the Die Hard actor was diagnosed with frontotemporal dementia in February 2023, and his wife has now opened up about his work Bruce Willis' wife, Emma Heming Willis, is shedding light on how the Hollywood icon managed to continue working on set even after his health started deteriorating because of frontotemporal dementia (FTD). In her upcoming book The Unexpected Journey, which is set to be released on September 9, 2025, Emma shares intimate details about the measures that were taken to keep Bruce in front of the camera while his cognitive abilities declined. According to reports, some of the tactics directors used included shortening his dialogue and feeding him lines via an earpiece, which was discreetly operated by a close friend on set. These behind-the-scenes accommodations allowed the Die Hard legend to complete roles in films like Assassin (2023) and the Detective Knight trilogy (2022–2023), even though he was being increasingly impacted by FTD, which is a degenerative disease that affects cognition and speech Willis's diagnosis was first made public in 2022 when his family announced he was suffering from a language disorder called aphasia. In February 2023, they confirmed the condition had progressed into FTD. Since then, Bruce has stepped away from acting. Emma told fans on Instagram that she wrote her book to help other families facing similar situations. She shared: "I really wrote the book that I wish someone had handed me the day we got our diagnosis with no hope, no direction … not much. Today life looks different for me and our family because I was able to put support into place. "This isn't a memoir, it's a self-help guide for caregivers, written to hold space for our heartbreak and our healing." During Bruce's final years of working, directors began to alter his roles so that he would be able to make it through shooting. In a 2020 email, Out of Death director Mike Burns asked writers to "abbreviate his [Willis'] dialogue so that there are no monologues". The actor's shooting schedules were also adjusted so that his workdays were limited to four hours when possible, and he did not film for more than two consecutive days. On set, crew members noticed that Bruce seemed confused and often struggled to remember lines or his purpose in a scene. They were particularly troubled by one moment during White Elephant, when he reportedly asked, "I know why you're here, and I know why you're here, but why am I here?" Despite the challenges, some collaborators still held high opinions of his work. Paradise City director Chuck Russell praised Bruce's efforts, saying he "brought his A-game". But others, like White Elephant production supervisor Terri Martin, said, "He just looked so lost… He always tried his best." Emma has reflected on the early days of Bruce's condition developing, sharing: "As his language started changing, it [seemed like it] was just a part of a stutter, it was just Bruce. Never in a million years would I think it would be a form of dementia for someone so young." Bruce's children have opened up about the emotional effect his diagnosis had on them, with his daughter Tallulah in particular admitting the seriousness of his situation hit home to her when she imagined her wedding day and realised her father would no longer be able to deliver a speech. "It was devastating," she sighed. "I left the dinner table, stepped outside, and wept in the bushes." Despite that heart breaking realisation, Tallulah added: "There's painful days, but there's so much love."
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