logo
Edinburgh medics to drill 13 holes into schoolgirl's skull in 'last-chance operation'

Edinburgh medics to drill 13 holes into schoolgirl's skull in 'last-chance operation'

Edinburgh Live3 days ago
Our community members are treated to special offers, promotions and adverts from us and our partners. You can check out at any time. More info
A Scottish schoolgirl and daughter of an MMA fighter is preparing to have a 'last-chance operation' where 13 holes will be drilled into her skull.
Myla Ray, 10, lives with drug-resistant epilepsy and a rare brain malformation Cortical Dysplasia. She's been having severe seizures since she was just four years old, reports the Daily Record.
The daughter of MMA star Steven Ray, from Kirkcaldy, is set to have the operation on August 13. Medics will drill 13 electrodes into her skull at Edinburgh's Royal Hospital for Children and Young People.
Steven, who has secured support for Myla across the sport, described the youngster as a "the real fighter in the family."
He added: "She's only 10 years old and she's already went through way more than I have my whole life."
Myla has already survived intensive care, multiple operations, and being put in a coma, all before her 11th birthday. Doctors diagnosed Myla with frontal lobe epilepsy and later found a malformation in her brain called cortical dysplasia, a condition that began before birth.
She had part of her brain removed in May 2023, but the seizures returned. Doctors to hope stimulate her brain to trigger a seizure that reveals the exact area to remove.
Mum, Natalie said: "If we don't do it, the seizures will keep getting worse and it could kill her."
Sign up for Edinburgh Live newsletters for more headlines straight to your inbox
"They told us the medication was no longer working. We were told if we don't go ahead with this next operation, there's a high probability of death as she's drug resistant."
In the upcoming operation, surgeons will insert rods into her brain. She will be monitored for a week in a bid to identify the exact seizure source. If no seizure happens naturally, her medication will be stopped, increasing the risk of a coma or even death.
Natalie added: "They've talked us through everything that could go wrong.
"She could have a heart attack, a stroke or they could hit a blood vessel, but at this point it's our only option."
(Image: Supplied)
Myla's condition has also taken a toll on her development and has left her with the brain capacity of a four-year-old. The youngster doesn't understand days, weeks or danger, and often uses a wheelchair when her mobility is affected.
Despite it all, Natalie appreciates the better days: "I'm so thankful for the days she's going about laughing."
Back in 2023, before Myla's first surgery, her parents turned to fundraising to pay for private care as NHS wait times grew too long. The campaign went viral, attracting donations from around the world - including a £1,000 contribution from Outlander star Sam Heughan and a staggering £10,000 from UFC president Dana White.
Join Edinburgh Live's Whatsapp Community here and get the latest news sent straight to your messages
Steven launched the GoFundMe alongside Natalie which smashed the initial £100,000 target, eventually reaching over £110,000.
Should the procedure be a success, Myla is likely to face more brain surgery potentially by the end of the year.
The family are staying strong even as they face terrifying possibilities. Natalie said: "We've been told the odds; it's basically 50/50 whether she'll be able to have another operation after this one."
"But at this point we will try anything."
Orange background

Try Our AI Features

Explore what Daily8 AI can do for you:

Comments

No comments yet...

Related Articles

Husband dies just four days after returning home from cancer drug trial
Husband dies just four days after returning home from cancer drug trial

Daily Record

time4 hours ago

  • Daily Record

Husband dies just four days after returning home from cancer drug trial

Just days after ending his immunotherapy trial, he fell seriously ill and was admitted to hospital. A woman was left heartbroken after her husband died days after returning from a drug trial. ‌ Malcolm Williams was diagnosed with transitional cell bladder cancer in January 2024, but due to a number of pre-existing conditions, surgery wasn't an option. ‌ With an uncertain future ahead of him, Malcolm was offered a lifeline in the form of a new immunotherapy trial which was hailed as a something that would at least extend his life by five years. ‌ Join the Daily Record WhatsApp community! Get the latest news sent straight to your messages by joining our WhatsApp community today. You'll receive daily updates on breaking news as well as the top headlines across Scotland. No one will be able to see who is signed up and no one can send messages except the Daily Record team. All you have to do is click here if you're on mobile, select 'Join Community' and you're in! If you're on a desktop, simply scan the QR code above with your phone and click 'Join Community'. We also treat our community members to special offers, promotions, and adverts from us and our partners. If you don't like our community, you can check out any time you like. To leave our community click on the name at the top of your screen and choose 'exit group'. If you're curious, you can read our Privacy Notice. Two weeks after his treatment started, he fell seriously ill and had to be admitted to the Royal Preston Hospital, reports the Mirror. ‌ Believing he had an infection and unaware he was on the trial, doctors put him on antibiotics. The dad-of-four, who was "worshipped" by his three step-children, was diagnosed with immunotherapy-related myocarditis - a rare but known complication of the drug he was trialling. In a bid to stop his immune system from attacking the muscle of the heart, he was prescribed high doses of steroids. ‌ Just a few hours later, Malcolm died aged 76. Due to the way in which drug trials are conducted Lauren and Malcolm weren't told the name of the immunotherapy drug. However, the trial involved using pembrolizumab alongside chemotherapy and radiotherapy, and was aimed at patients who were not suitable for surgical intervention. In a previous trial, pembrolizumab was found to "almost double" survival rates for patients with advanced bladder cancer. ‌ During an inquest into Malcolm's death, held in July, consultant oncologist Dr Omi Parikh revealed that when Malcolm joined the trial in March 2024, the drug he was given was still awaiting NHS funding approval. The National Institute for Health and Care Excellence (NICE) states that the average cost of a course of treatment is £84,000. Dr Parikh stated: "When you are in a position to be able to offer treatments that are not currently available, but have been shown to show improvements in that particular disease, we are keen to offer [trials like] this." ‌ Malcolm, a retired civil servant born in Sheffield, began the trial on 22 April 2024 at the Rosemere Cancer Centre in Preston. Malcolm's wife Lauren has spent the last 14 months seeking answers about her husband's death. She has several folders in her living room containing all the paperwork related to the drug trial and Malcolm's death. "I only found out after he died what the drug was," Lauren, 74, told LancsLive. "I also found out through the inquest that he was only the second person in Preston to be put on it. If we had known that we would never have done it. ‌ "He can't have died for nothing. I've had to do so much to get justice for him. But now it's over I can't do anything else for him other than highlight what happened. I don't want him to have died in vain." The medication he was given, pembrolizumab, is produced by Merck Sharp and Dohme (MSD). Following the inquest, a representative for MSD stated: "Nothing is more important to us than the safety of our medicines and the people who use them. "MSD adheres to established clinical trial protocols for patients who experience adverse events, in line with the Medicines and Healthcare products Regulatory Agency's ethical and regulatory standards. "We are deeply saddened to hear of the death of a patient whilst undergoing treatment and would like to express our condolences to their loved ones. We are unable to publicly discuss details concerning individual patients in the interests of protecting their privacy. "We would like to reassure the cancer community that patient safety and upholding high pharmacovigilance standards are of utmost importance for MSD."

Gran left shaken and too scared to go out alone after horror fall at shopping centre
Gran left shaken and too scared to go out alone after horror fall at shopping centre

Daily Record

time15 hours ago

  • Daily Record

Gran left shaken and too scared to go out alone after horror fall at shopping centre

Helen Taggart was left bloodied and in shock after tripping on 'dangerous' paving in the Asda car park at Glasgow's Forge Shopping Centre on Sunday, June 27. A Scots gran has been left shaken to the core and too frightened to go out on her own after she suffered a fall on uneven paving. ‌ Helen Taggart, 78, was left covered in blood and in shock after she tripped on a raised slab in the car park of the Forge Shopping Centre's Asda store on Sunday, June 27. ‌ The NHS receptionist had just loaded her shopping into the back of her car when she was sent crashing to the ground after her foot caught on a paving stone while stopping her trolley from rolling away, reports Glasgow Live. ‌ Helen, who has worked at her local health centre for more than 40 years, was left with horrific injuries including deep cuts inside her mouth where her teeth almost burst through her lip, and multiple gashes and abrasions to her face. Helen told Glasgow Live: "I was in a terrible mess. I'm still not right. I was putting my shopping bags in the back of my car when the trolley moved. I took a couple of steps to catch it, and I felt my feet clicking on the slab, which was up from the rest of them. ‌ "I had nothing to catch onto. I threw my arm out so my face partially landed on my arm. I was lucky. If I had hit that, I honestly think my whole head would have burst. The amount of blood was unbelievable." Shocked shoppers and a passing staff member rushed to help the pensioner, but she was too stunned to stand. ‌ She added: "I'm held together with metal because I was hit by a bus quite a long time ago, which is why I have a disabled badge. I'm not a complainer, I just take a paracetamol and get on with it. But I just couldn't get up and keep going. "People were all around me, and one of the guys who does the trolleys came over and gave me a cloth. They helped me to my feet. I can't thank them enough. They were amazing." Join the Daily Record WhatsApp community! Get the latest news sent straight to your messages by joining our WhatsApp community today. You'll receive daily updates on breaking news as well as the top headlines across Scotland. No one will be able to see who is signed up and no one can send messages except the Daily Record team. All you have to do is click here if you're on mobile, select 'Join Community' and you're in! If you're on a desktop, simply scan the QR code above with your phone and click 'Join Community'. We also treat our community members to special offers, promotions, and adverts from us and our partners. If you don't like our community, you can check out any time you like. To leave our community click on the name at the top of your screen and choose 'exit group'. If you're curious, you can read our Privacy Notice. ‌ Helen then drove herself to her health centre, only for colleagues to send her straight to hospital. Doctors couldn't stitch her mouth because of the amount of skin lost, leaving her unable to speak for four days. She survived on drinks through a straw for fear of reopening the wound. Speaking about the impact of the fall, she added: "I don't feel the same anymore. I'm taking dizzy spells. ‌ "When I'm walking, I feel like I'm going sideways. I'm really shook up. Most of the time, I have someone with me when I leave the house now. It really hits your confidence." Helen is now considering giving up her job at the health centre where she has worked for over 40 years. Following the fall, Helen's niece Sandra tried to get in contact with the Forge Shopping Centre, but says that all attempts at contact have fallen on deaf ears. Sandra told Glasgow Live: "We're just looking for someone to acknowledge what happened. Helen is a typical wee feisty Glasgow woman and this has knocked her back. We feel completely ignored."

A vision for social security, designed by and for disabled people
A vision for social security, designed by and for disabled people

The Herald Scotland

time16 hours ago

  • The Herald Scotland

A vision for social security, designed by and for disabled people

From the outset, the review was a model of inclusivity, rooted in the voices of disabled people and the organisations that represent them. As the largest provider of support to ADP applicants (outside of friends and family), our network was perfectly placed to channel these insights into people's real-life experiences of accessing the system. Exploring the entirety of how ADP operates, the review recognised the achievements associated with ADP as a payment based upon the values of dignity, fairness and respect, while seeking to understand how to build on those achievements. It includes several important recommendations, such as establishing a group of people who have direct experience of accessing ADP from Social Security Scotland – placing real-world perspectives at the heart of Scotland's social security agency. This would be augmented by agency-wide training for staff in how to support people who have experienced trauma, embedding a flexible approach which is crucial to preventing further harm. Other simple, transformative suggestions include improvements to the ADP application form and giving people the option from the outset to discuss their circumstances with specialist staff either in person or remotely. Evidence from our network shows that many people struggle with the nature of their circumstances, often unable to articulate or even perceive them clearly. Giving people the opportunity to interact directly with agency staff can be the most effective way of conveying a complete and accurate picture of their situation. Empowering people in this way would help to avoid inaccurate decisions, resulting in fewer disputes that cause psychological and financial harm. The review is clear. Ambition is needed if ADP is to become a truly world-leading payment. For example, facilitating seamless connections between social security to other agencies and services that a person might need, such as a local authority team, would facilitate consistency in decision-making and better anchor services to the needs of individuals. Achieving this means revising the ADP eligibility criteria to focus on the impact of health on wellbeing and everyday outcomes, such as being able to prepare a nutritious meal. It means accounting for the way health conditions interact and explicitly recognising health related risks and potential harms. The review has drawn a map towards a process that sensitively explores the multiple dimensions of a person's life and health, including medical information; the ability to perform tasks; personal circumstances; and social and environmental realities. Such an approach would radically improve the experience of, and trust in, social security and its ability to identify and fulfil the needs of disabled people. The Scottish Government will now consider whether to accept the review's recommendations. Our view is that doing so would take Scotland forward toward a genuinely world-leading, participative and fair social security payment; surely a promising future worth investing in. Erica Young is senior policy officer in the social justice team at Citizens Advice Scotland

DOWNLOAD THE APP

Get Started Now: Download the App

Ready to dive into a world of global content with local flavor? Download Daily8 app today from your preferred app store and start exploring.
app-storeplay-store