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This project helps Indonesian community overcome cultural barriers, false myths about autism

This project helps Indonesian community overcome cultural barriers, false myths about autism

SBS Australia30-04-2025
SBS Indonesian
30/04/2025 32:15 is a national project funded by the Australian federal government that routinely delivers autism-related learning for schools and general communities. The project, which began in 2008, also provides resources in languages other than English to better serve communities with Culturally and Linguistically Diverse (CALD) backgrounds. Last October, this workshop was organised for the Indonesian speaking community for the first time and was held in Western Australia. The topic presented was about sensory proccessing. They will again hold workshops in Indonesian language with different themes this year.
Positive Partnerships' Indonesian delivery team (L-R: Josephine Ratna, Fenny Hadiwinata, Emilita Cornain). Credit: Supplied
'They [participants] can come out of the workshop with a strategy and have a bit of an idea of 'ok, now we have to go where and how',' said Emilita Cornain, a Perth-based psychologist who is also a member of Positive Partnerships' delivery team. Not only is she professionally associated, Cornain also has a personal connection with autism. Her youngest sister was diagnosed with autism more than 20 years ago while her family was still living in Indonesia. Cornain said that even now there are myths surrounding autism such as the condition being referred to as a curse, karma, bad luck, to due the wrong things the mother does while pregnant.
They're different but they're not less. They still deserve to have a good, productive life. Fenny Hadiwinata, mother of an autistic child Another member of the delivery team, Fenny Hadiwinata, is a mother whose child was diagnosed as being on the autism spectrum when the family first came to Australia more than 17 years ago. She admitted having a difficult time especially with her Indonesian background where it was not customary to talk openly about autism. 'For school-age or pre-school children, sometimes it's not that easy for us to be sure that they're autistic or not,' said Hadiwinata, who continues to learn about autism because it's not a 'disease so it has to be cured.' Cornain and Hadiwinata said that the workshop they conducted with Positive Partnerships was delivered in a non-patronising way, and could be a place to share the burden and tips with 'those on the same boat'. Listen to SBS Indonesian's full conversation with Fenny Hadiwinata and Emilita Cornain. Listen to every Monday, Wednesday, Friday and Sunday at 3 pm. Follow us on and and listen to our .
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Most parents skip the flu jab for their children. Is that a bad idea?
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Most parents skip the flu jab for their children. Is that a bad idea?

The bulk of influenza infections occur in children; they are also the main transmitters of the virus within the community. One study of 29 countries, including Australia, found 19 per cent of flu cases were in children under four. Consider this study from Hong Kong that tracked the spread of flu through households: kids under 18 were up to 2.8 times more likely to pass on the virus than adults, and they were more likely to catch it. Children seem to shed more copies of the virus (including before they show symptoms); they also tend to have closer contact with adults. They are also less likely to wash their hands, and more likely to put things in their mouth. Why? Principally because they are immune-naive: their bodies have not had time to train on influenza. An adult has an arsenal of antibodies to several different strains of the flu. A young child has nothing beyond any left-over antibodies from their mother. 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Most parents skip the flu jab for their children. Is that a bad idea?
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'They are new in the world, and they are getting infected with a lot of different viruses,' says Professor Kristine Macartney, director of the National Centre for Immunisation Research and Surveillance. 'While that's inevitable, what we don't want – and I promise you as a paediatrician who has cared for many kids critically ill in hospital with flu – we don't want to see kids with severe illness.' We often think of the flu as a nuisance for young people and adults, and a threat for the elderly. Consider flu vaccination rates: 60 per cent of Australians over 65 have had a jab, compared to 24.7 per cent of those under five. 'They are new in the world, and they are getting infected with a lot of different viruses.' Professor Kristine Macartney on the susceptibility of children But influenza hospitalisation rates among very young children are surprisingly high – higher still if you add in all those who have co-infections, such as RSV at the same time. 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The panel, which released its recommendations on Tuesday, found "there is no clinical benefit for an individual to have a blood test for PFAS". The panel has 13 members, including Hunter New England Health public health physician Tony Merritt. John Hunter Hospital clinical director of endocrinology Shamasunder Acharya was also on the panel. PFAS contamination has been an issue at Williamtown since 2012. In more recent years, health concerns have risen across the country, amid reports of PFAS contamination of drinking water and the food chain. The panel's report said "many health conditions potentially associated with PFAS are common in the community and associated with well-established risk factors". Nonetheless, the report noted that studies had "reported an association between PFAS exposure and high cholesterol and reduced kidney function". Further associations were made between PFAS exposure and changes to the immune system, hormone levels, liver enzymes and menstruation. Additionally, these "forever chemicals" had been linked to "lower birthweight, high blood pressure in pregnancy and some cancers". But the panel said there were "inconsistent findings across different studies, with limited evidence of a dose-response relationship". "The amount of PFAS measured in some studies was low, similar to levels found in the general population. "These studies are unable to distinguish any effects of PFAS from the many other factors that can affect health." The report said there were "few high-quality studies of workers exposed to high levels of PFAS". It added that health effects associated with PFAS "may instead result from factors such as poor kidney function". "PFAS are partly excreted by the kidneys. This means people with poor kidney function will have higher levels of PFAS, which may result in apparent associations between PFAS and other health conditions." The International Agency for Research on Cancer has classified PFOA as carcinogenic to humans and PFOS as possibly carcinogenic. The panel examined these findings, but said it was "confident that the absolute cancer risk from PFAS was low". It also stated that authorities should avoid using "currently available human epidemiological studies" to obtain PFAS threshold levels due to a high risk of bias. Research shows forever chemicals are in the blood of most people. A University of Newcastle paper, published last year, said mounting epidemiological evidence supports "negative associations between PFAS exposure and an array of human health conditions". The paper acknowledged that it was "challenging to definitively link PFAS exposure to impacts on human health". However, it found that "the balance of evidence" supports the potential for PFAS exposure to lead to adverse health outcomes. The Newcastle Herald reported in June that Hunter Water had welcomed revised Australian drinking water guidelines for PFAS. Tests confirmed that Hunter Water-supplied drinking water was safe and met the revised guidelines. Dr Kerry Chant, the chief health officer, said "updated NSW Health advice provides consumers with guidance on how to reduce PFAS exposure". "There is considerable concern, particularly in the Blue Mountains community, about exposure to PFAS through drinking water, and NSW Health takes these concerns very seriously," Dr Chant said. Nonetheless, NSW Health said it accepted all the expert panel's recommendations, which included "how to communicate risk in the context of evolving evidence". The health effects of PFAS "appear to be small", a NSW Health expert panel has found. The panel, which released its recommendations on Tuesday, found "there is no clinical benefit for an individual to have a blood test for PFAS". The panel has 13 members, including Hunter New England Health public health physician Tony Merritt. John Hunter Hospital clinical director of endocrinology Shamasunder Acharya was also on the panel. PFAS contamination has been an issue at Williamtown since 2012. In more recent years, health concerns have risen across the country, amid reports of PFAS contamination of drinking water and the food chain. The panel's report said "many health conditions potentially associated with PFAS are common in the community and associated with well-established risk factors". Nonetheless, the report noted that studies had "reported an association between PFAS exposure and high cholesterol and reduced kidney function". Further associations were made between PFAS exposure and changes to the immune system, hormone levels, liver enzymes and menstruation. Additionally, these "forever chemicals" had been linked to "lower birthweight, high blood pressure in pregnancy and some cancers". But the panel said there were "inconsistent findings across different studies, with limited evidence of a dose-response relationship". "The amount of PFAS measured in some studies was low, similar to levels found in the general population. "These studies are unable to distinguish any effects of PFAS from the many other factors that can affect health." The report said there were "few high-quality studies of workers exposed to high levels of PFAS". It added that health effects associated with PFAS "may instead result from factors such as poor kidney function". "PFAS are partly excreted by the kidneys. This means people with poor kidney function will have higher levels of PFAS, which may result in apparent associations between PFAS and other health conditions." The International Agency for Research on Cancer has classified PFOA as carcinogenic to humans and PFOS as possibly carcinogenic. The panel examined these findings, but said it was "confident that the absolute cancer risk from PFAS was low". It also stated that authorities should avoid using "currently available human epidemiological studies" to obtain PFAS threshold levels due to a high risk of bias. Research shows forever chemicals are in the blood of most people. A University of Newcastle paper, published last year, said mounting epidemiological evidence supports "negative associations between PFAS exposure and an array of human health conditions". The paper acknowledged that it was "challenging to definitively link PFAS exposure to impacts on human health". However, it found that "the balance of evidence" supports the potential for PFAS exposure to lead to adverse health outcomes. The Newcastle Herald reported in June that Hunter Water had welcomed revised Australian drinking water guidelines for PFAS. Tests confirmed that Hunter Water-supplied drinking water was safe and met the revised guidelines. Dr Kerry Chant, the chief health officer, said "updated NSW Health advice provides consumers with guidance on how to reduce PFAS exposure". "There is considerable concern, particularly in the Blue Mountains community, about exposure to PFAS through drinking water, and NSW Health takes these concerns very seriously," Dr Chant said. Nonetheless, NSW Health said it accepted all the expert panel's recommendations, which included "how to communicate risk in the context of evolving evidence". The health effects of PFAS "appear to be small", a NSW Health expert panel has found. The panel, which released its recommendations on Tuesday, found "there is no clinical benefit for an individual to have a blood test for PFAS". The panel has 13 members, including Hunter New England Health public health physician Tony Merritt. John Hunter Hospital clinical director of endocrinology Shamasunder Acharya was also on the panel. PFAS contamination has been an issue at Williamtown since 2012. In more recent years, health concerns have risen across the country, amid reports of PFAS contamination of drinking water and the food chain. The panel's report said "many health conditions potentially associated with PFAS are common in the community and associated with well-established risk factors". Nonetheless, the report noted that studies had "reported an association between PFAS exposure and high cholesterol and reduced kidney function". Further associations were made between PFAS exposure and changes to the immune system, hormone levels, liver enzymes and menstruation. Additionally, these "forever chemicals" had been linked to "lower birthweight, high blood pressure in pregnancy and some cancers". But the panel said there were "inconsistent findings across different studies, with limited evidence of a dose-response relationship". "The amount of PFAS measured in some studies was low, similar to levels found in the general population. "These studies are unable to distinguish any effects of PFAS from the many other factors that can affect health." The report said there were "few high-quality studies of workers exposed to high levels of PFAS". It added that health effects associated with PFAS "may instead result from factors such as poor kidney function". "PFAS are partly excreted by the kidneys. This means people with poor kidney function will have higher levels of PFAS, which may result in apparent associations between PFAS and other health conditions." The International Agency for Research on Cancer has classified PFOA as carcinogenic to humans and PFOS as possibly carcinogenic. The panel examined these findings, but said it was "confident that the absolute cancer risk from PFAS was low". It also stated that authorities should avoid using "currently available human epidemiological studies" to obtain PFAS threshold levels due to a high risk of bias. Research shows forever chemicals are in the blood of most people. A University of Newcastle paper, published last year, said mounting epidemiological evidence supports "negative associations between PFAS exposure and an array of human health conditions". The paper acknowledged that it was "challenging to definitively link PFAS exposure to impacts on human health". However, it found that "the balance of evidence" supports the potential for PFAS exposure to lead to adverse health outcomes. The Newcastle Herald reported in June that Hunter Water had welcomed revised Australian drinking water guidelines for PFAS. Tests confirmed that Hunter Water-supplied drinking water was safe and met the revised guidelines. Dr Kerry Chant, the chief health officer, said "updated NSW Health advice provides consumers with guidance on how to reduce PFAS exposure". "There is considerable concern, particularly in the Blue Mountains community, about exposure to PFAS through drinking water, and NSW Health takes these concerns very seriously," Dr Chant said. Nonetheless, NSW Health said it accepted all the expert panel's recommendations, which included "how to communicate risk in the context of evolving evidence".

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